I can't get better. Unbearable muscle pain

I've come here to try and find how I might be able to help these muscle twitches and spasms. They are horrible and disfiguring. 7 years of hell and probably 7 more.  I wish to God I had been warned about benzos. I wish someone had told me how to taper.

Hello, and welcome to BenzoBuddies!  You'll find a lot of information and support here.  Most of our members are glad to share their tapering and withdrawal experiences.  Please remember that although withdrawal symptoms can be severe, they are only temporary.  Time is the healer, and you will heal eventually.  The amount of time healing takes varies from person to person and really can't be predicted in advance.

 

I'm sorry that you are suffering so much.  Are you still on benzos, or are you off at this point?  Which benzo are/were you on and for how long? If you give us a little more info, we'll be able to offer support.  Meanwhile:

 

As you know the best way to get off benzos is to taper off if you've used them for an extended length of time.  The suggested taper rate is 5/10% every 10/14 days.  Some taper faster and some slower than that, and the rate can be adjusted to meet your needs.  You can learn more about tapering on our General Taper Plans Board.  The second pink-highlighted post explains the three accepted taper methods.  Also:

 

The Ashton Manual is an authoritative source on what to expect in withdrawal and recovery.  Dr. Ashton is an expert in the field.  She describes and explains withdrawal symptoms, and there is also a section with withdrawal/taper schedules.

 

Members discuss their symptoms on The Withdrawal and Recovery Support Board.

 

Please take the time to Create a Signature.  This will allow others to see where you are in the process so they can better support you.

 

Again, welcome!

 

 

Hi Karen,

Have u tried magnesium?

Epsom Salts is magnesium sulfate which might help to use in a hot bath about 2 cups.

Magnesium relaxes smooth muscles.

 

 

I've tried everything. I've even spent money I don't have on chiropractor. There's a brain body connection in the gut and part of the spine effects the gut. I took pain killers for a few years and the doctor abruptly stopped prescribing them and so I cold Turkeyed of them too; now my colon is blocked. Unlike I was told on benzo boards -- opiates DO effect benzo withdrawals. They effect the benzo receptors in the gut. 

 

I take supplements - cal-mag, selenium, b-complex, NAC, niacin, iodine, C, D and zinc.

 

I've been on benzo boards a few years back. It was too painful hearing about how people took such low doses and got better after a year or two.

 

I took over 12mg of Xanax and klonopin for a couple of years and lesser amounts of benzos since 1999. All the drugs the doctor had me on made me suicidal. Then after a death in the family I started drinking more and tried suicide. I quit drinking in 2007 and tried to cold turkey of all the benzos- 1000 hells! After 5 months or so I figured out what a valium taper was and started taking 6mg valium. Too late, the damage was done. I try and water titrate and am down to 4.25mg. It's just too hard. My muscle pain is unbearable. The hot and cold and pounding heart. I am enormously better than a few years back... but my God... how can pills do this to a person.

 

There's not a drug I trust. I don't want to take the supplement gaba but I'm tired of this pain. I was hoping it would help with the muscle spasms. The spasms are in my face too.

 

If there's any advise about this supplement or 5 HTP I would appreciate it. I know St Johns wart and Valerian root could be a big mistake.

 

Thank you

 

 

I've tried everything. I've even spent money I don't have on chiropractor. There's a brain body connection in the gut and part of the spine effects the gut. I took pain killers for a few years and the doctor abruptly stopped prescribing them and so I cold Turkeyed of them too; now my colon is blocked. Unlike I was told on benzo boards -- opiates DO effect benzo withdrawals. They effect the benzo receptors in the gut. 

 

I take supplements - cal-mag, selenium, b-complex, NAC, niacin, iodine, C, D and zinc.

 

I've been on benzo boards a few years back. It was too painful hearing about how people took such low doses and got better after a year or two.

 

I took over 12mg of Xanax and klonopin for a couple of years and lesser amounts of benzos since 1999. All the drugs the doctor had me on made me suicidal. Then after a death in the family I started drinking more and tried suicide. I quit drinking in 2007 and tried to cold turkey of all the benzos- 1000 hells! After 5 months or so I figured out what a valium taper was and started taking 6mg valium. Too late, the damage was done. I try and water titrate and am down to 4.25mg. It's just too hard. My muscle pain is unbearable. The hot and cold and pounding heart. I am enormously better than a few years back... but my God... how can pills do this to a person.

 

There's not a drug I trust. I don't want to take the supplement gaba but I'm tired of this pain. I was hoping it would help with the muscle spasms. The spasms are in my face too.

 

If there's any advise about this supplement or 5 HTP I would appreciate it. I know St Johns wart and Valerian root could be a big mistake.

 

Thank you

 

Hi Karen,

Damn, u have been thru absolute pure hell if u were on that high a dose.

I am so sorry u r going thru this.

Absolutely, opiates, steroids, alcohol, etc can effect benzo withdrawal and gaba receptors.

 

It looks like u r on the right supplements, except I don't see any probiotics, kefir or yogurt.

Yes, the gut has gaba receptors.

Getting our gut flora working can help.

Staying away from processed gmo foods, grains and carbohydrates can help a bunch too.

Eating high quality organic fruits and vegetables is very important too.

 

As far as the muscle spasms, if your spine's atlas is out of alignment, this would cause issues downline and the withdrawals make it a billion times worse.

If u r interested in more info on the Atlas Orthogonal system, here is a video that explains it.

Part 1

Part 2

 

To find an atlas orthogonal chiropractor, click on Find a Doctor link at the top

http://atlasorthogonality.com/PatientSite/aboutAO.html#

 

Remember that what ever symptoms we have get hyper exacerbated while in withdrawal.

 

My mom did take a muscle relaxer the first time she withdrew which helped.

These can become addictive too just like opiates which causes the same pain we had before, but goes away after withdrawal.

Everytime my mom took tramadol, she would get back pain.

Once she tapered off, her back pain went away and never returned.

 

You say that your digestive tract is blocked?

If so, epsom salts in some water or milk of magnesia can help get things moving.

You could check the alternatives thread for more info on supplements.

http://www.benzobuddies.org/forum/index.php?board=110.0

Hi and thanks for the info.

 

I make my own water kefir and sauerkraut - love it and it costs a lot less than store bought. I juice organic vegetables. Here in the US we are not allowed to have GMOs labeled as our congress has been bought by special interests.

 

The colon blockage is a spastic colon with constipation. It closes up from spasms. I didn't have any problem at all on opiates as long as I took magnesium. The opiate c/t, most likely, did something to the nerve endings. Now magnesium only makes it worse as the water absorbed just gets blocked.

 

I still get days of benzo depression but over all it's the physical pain and spasms that are so depilating (feels like hot razor blades and tearing muscles). I've found that breathing exercise help.  My head is clear (usually) and my memory is  better than ever.

 

Some of the things I've learned from having my body destroyed by doctors are:

 

There is a difference between generic and brand name drugs (some of them). The pharmacy makes a lot more money selling generic.

 

Benzos are fat soluble and better absorbed when taken with fat. I use coconut oil. 

 

Fast track (some of them) A-line vaccines have live cancer viruses in them. See the FDA site under "Cancer cells in the vaccines".

 

The US federal Government puts fluoride in the public water even though it's a drug and lowers the IQ. We are being drugged against our will. Fluoride causes many health problems some of which are arthritis like symptoms and hypothyroidism. Hitler used fluoride on the jews in the work camps.

 

Here in the US big pharma is a drug cartel. They want you from cradle to grave. Look up - Rockefeller, the FDA, American Cancer society and the American Medical association. You Tube has a short video on it.

 

Thanks for the chiropractor info

 

 

 

Hi and thanks for the info.

 

I make my own water kefir and sauerkraut - love it and it costs a lot less than store bought. I juice organic vegetables. Here in the US we are not allowed to have GMOs labeled as our congress has been bought by special interests.

 

The colon blockage is a spastic colon with constipation. It closes up from spasms. I didn't have any problem at all on opiates as long as I took magnesium. The opiate c/t, most likely, did something to the nerve endings. Now magnesium only makes it worse as the water absorbed just gets blocked.

 

I still get days of benzo depression but over all it's the physical pain and spasms that are so depilating (feels like hot razor blades and tearing muscles). I've found that breathing exercise help.  My head is clear (usually) and my memory is  better than ever.

 

Some of the things I've learned from having my body destroyed by doctors are:

 

There is a difference between generic and brand name drugs (some of them). The pharmacy makes a lot more money selling generic.

 

Benzos are fat soluble and better absorbed when taken with fat. I use coconut oil. 

 

Fast track (some of them) A-line vaccines have live cancer viruses in them. See the FDA site under "Cancer cells in the vaccines".

 

The US federal Government puts fluoride in the public water even though it's a drug and lowers the IQ. We are being drugged against our will. Fluoride causes many health problems some of which are arthritis like symptoms and hypothyroidism. Hitler used fluoride on the jews in the work camps.

 

Here in the US big pharma is a drug cartel. They want you from cradle to grave. Look up - Rockefeller, the FDA, American Cancer society and the American Medical association. You Tube has a short video on it.

 

Thanks for the chiropractor info

Hi Karen,

wow, that sounds like ulcerative cholitis (UC) or crohns or something falsely triggering peristalsis.

I'm sorry u have to deal with that kind of horrible pain.

I have a friend that has UC and she uses aloe vera juice and prednisone.

I don't agree with the prednisone, but maybe aloe vera juice might help.

 

And, yes, I know all about what you are saying with vaccines, drugs, etc.

All drugs are synthesized off of an original plant or component, so why would we use a drug?

They do this for patent and because it causes side effects that can be treated with more drugs.

 

 

There is a difference between generic and brand name drugs (some of them). The pharmacy makes a lot more money selling generic.

 

Benzos are fat soluble and better absorbed when taken with fat. I use coconut oil. 

 

Fast track (some of them) A-line vaccines have live cancer viruses in them. See the FDA site under "Cancer cells in the vaccines".

 

The US federal Government puts fluoride in the public water even though it's a drug and lowers the IQ. We are being drugged against our will. Fluoride causes many health problems some of which are arthritis like symptoms and hypothyroidism. Hitler used fluoride on the jews in the work camps.

 

Here in the US big pharma is a drug cartel. They want you from cradle to grave. Look up - Rockefeller, the FDA, American Cancer society and the American Medical association. You Tube has a short video on it.

 

I would like to see some evidence (ie links to scientific studies) to back up these outrageous claims! 

Yes, more drugs. Pretty smart criminals.

 

I had an MRI with dye and even gave in to a CT scan with dye (100 chest x rays)... I was that desperate thinking there could have been something life threatening. I also had a colonoscopy.

 

Wouldn't they have been able to diagnose UC with these procedures?  I was told there was no inflammation present (for what it's worth).

 

I read a lot of good things about aloe vera, but then heard that it can cause colon spasms so stopped. About 10 days ago for one day things for about 70% normal. I was SO HAPPY. But then it only got bad again. I tried to think what it was that made that day so good and all I can think of was I was taking aloe vera.  So today I started taking it again on an empty stomach. Also I'm trying to take soluble fiber when eating "trigger" foods.

 

Prednisone helped kill my mother. She took moderate doses for arthritis and ended up with a ruptured colon. It thinned her large bowel to the point of rupture.

 

The thing is, a diet for spastic colon is almost opposite from a diet for UC. 

 

Thanks for the help.

 

 

 

 

Try some cannabis to see if it helps. Valerian and the other stuff like that, it's too mild after taking the meds you have been on. I have Fibro and cannabis help inmmensly with muscle pain. You have nothing to lose.

Xana,

 

Here's a link to the FDA -- http://www.fda.gov/biologicsbloodvaccines/scienceresearch/biologicsresearchareas/ucm127327.htm

 

You can research these topics yourself too.

 

There's a plethora of information regarding the damaging effects of  fluoride. Fluoride binds with aluminum and crosses the blood brain barrier. fluoride is used in rat poison and some pharmaceuticals.

 

Google:

 

Carnegie, Alcoa Aluminum and fluoride. He also headed the Department of Human Resources. 

 

The Manhattan project and the fluoride toxic waste put in the public water supply.

 

Operation paper clip.

 

Benzos being fat soluble are self explanatory. Some vegetables and supplements also need to be taken with fat. A chemist said that the valium will be absorbed but not as much as with fat.

 

The topic about generics vs brand is very hard to find. I've seen it rarely on threads. I talked to a pharmacist and my family doctor and they both explained this to me. The pharmacists reluctantly told me about it only after I persisted. I had to up dose from 3mg to 6mg of valium thanks to a cheep generic.

 

I talk about some very interesting things to my family doctor - he's very awake and aware about how the world works. He told me that he talked to the valium manufacturer in the Netherlands and was told that the dose of generic was different from brand Valium. There's a plus and minus factor allowed.

 

 

Here's an outrageous fact - I went to a holistic MD for colon hydrotherapy. She had a patient that did a 10 day colon cleanse and against this holistic doctor's advise the patient did another 10 day colon cleanse. A handful of pharmaceuticals pills were expelled from her colon. Think of what this means. For one thing, some people aren't properly absorbing these pharmaceutical drugs and being given higher doses.

 

 

Just google the Rockefeller topic - https://www.youtube.com/watch?v=sDjcVrZnemM

 

 

https://www.youtube.com/watch?v=EKIl34rV-3o

Bill Gates and population reduction through health care and vaccines. His father was a eugenicists and, at one time, headed family planning. Bill Gates and George Soros have large stocks in GMO seeds which are know to cause miscarriages.

 

https://www.youtube.com/watch?v=DmPQtizSjvU

Cancer and AIDS in the polio vaccine

 

https://archive.org/details/Ecoscience_17

Obama science czar John P. Holdren and sterilization through the water. Eco Science.

7 of the White house czars are communists/socialists and advocate a world government.

 

 

https://www.youtube.com/watch?v=Z1AJN1_Wu4o

TPP - WHAT THE WORLD IS NOT BEING TOLD BY THE CONTROLLED MEDIA. World council over sovereign nations. Control over supplements, drugs and food. And the Internet.

 

People live in a Matrix and most will die believing in that Matrix.

 

 

 

 

Hi,

 

Thanks for the advise.

 

I thought about cannabis. I don't want to but I need help. I used to smoke it decades ago but it started giving me anxiety. I have fibro. If I stub my toe or something minor like that, the nerve ending attack that area of pain. I can watch TV and see something painful and my body will ache with pain.

 

Actually a bill in the state I live in was passed to legalize medical cannabis. I'm afraid of it giving me paranoia but I could use a break from pain.

 

I used to be so healthy.

 

I will look into it. Thanks.

Hi Karen,

Are u off of all drugs?

What dose of valium are u on currently?

 

Try some cannabis to see if it helps. Valerian and the other stuff like that, it's too mild after taking the meds you have been on. I have Fibro and cannabis help inmmensly with muscle pain. You have nothing to lose.

 

2bemeagain, you have been repeatedly warned about making these comments, and yet you persist. We have received complaints about this thread and your comments specifically. Stop it. I get that you think smoking pot all the time is good for you, but you need to understand that you can't make comments like this, or you will be sanctioned again.

 

Actually a bill in the state I live in was passed to legalize medical cannabis. I'm afraid of it giving me paranoia but I could use a break from pain.

Karen, I think your caution is wise, and it blows my mind that some people on here want to pretend that cannabis isn't a drug and cannot have adverse effects. Among people who have prior experience with pot, I've seen a mix of different reactions on here. Among people with no prior experience who try pot for the first time in withdrawal, I've seen many more reports of adverse effects including anxiety, panic attacks and muscle pain.

 

Because of concerns about legal status (federally as well as globally) as well as all of the normal reasons that we prohibit prescriptive advice, we have a firm policy here that members are only allowed to discuss marjiuana insofar as it relates to their own personal experience, and are not allowed to glorify its use or imply that it's right for other people. I don't think that's unreasonable, and 99.9% of the users here understand it, but we have a tiny minority of people who persist over and over in trying to dance around this line.

Hi Karen,

Are u off of all drugs?

What dose of valium are u on currently?

 

Hi mrtmeo,

 

Yes, off all drugs. I water titrate from 4.25 mg valium.

 

Hi mrtmeo,

Yes, off all drugs. I water titrate from 4.25 mg valium.

 

Is titration helping symptoms?

My mom is finally getting to some better days and I hope those horrible ones don't return.

I am tapering her daily now from 1.55mg valium.

Today is good (for now) if only my tummy would get better.

 

There is a slow heal. It seems after the horrible episodes I get just a little better.

 

I had been down to 3mg but up dosed because of weak generics and went right back into the pit of w/ds. I was having pretty good days at 3mg. I think the lower I get the better it will be. That up dose caused me years more of tapering.

 

Your mother is very, very lucky to have you as a daughter.

I'm her son and people make this mistake all the time.

I think my mom has done better the farther down she goes in her dose too.

I'm daily cutting her now, and don't know if this will open a can of worms or not.

 

Sorry about that. You're a great son.

 

I think I'll feel better the further down I get. It's SO HARD.

 

I've heard of people getting much worse the further down they taper.  Benzos are strange.

 

I hope your mom stay's stable, she's so close.

How long have u been tapering?

I am beginning to think that any painful or bad memories we experience while on benzo's causes our worst symptoms during tapering and withdrawal.

It just seems like this with my mom.

 

 

I really don't have a time line anymore. I cut 2ml when I can. I tried 2ml every 3 or 4 days but it's too horrible. My muscles will pull me into a ball on the floor, I can't describe the pain; and the mental withdrawals will start up again. It's been so many years of this and I am tired.

 

My blood test show that there's an enzyme attacking my thyroid. I'm told that it's entirely from stress. Eventually my thyroid will burn out. I get bitter at doctor's for doing this to people. The "doctor" that prescribed them to me told me to "stay on them for the rest of my life".

 

There's a brain body connection. It's very delicate. Your thinking can, at times, make it worse. Proper breathing helps.

 

I have heard that the oxygen level in the muscles can effect spasms. I don't know anything about this though. The benzos relax the muscles so I guess now I'm paying for it.

 

 

I really don't have a time line anymore. I cut 2ml when I can. I tried 2ml every 3 or 4 days but it's too horrible. My muscles will pull me into a ball on the floor, I can't describe the pain; and the mental withdrawals will start up again. It's been so many years of this and I am tired.

 

My blood test show that there's an enzyme attacking my thyroid. I'm told that it's entirely from stress. Eventually my thyroid will burn out. I get bitter at doctor's for doing this to people. The "doctor" that prescribed them to me told me to "stay on them for the rest of my life".

 

There's a brain body connection. It's very delicate. Your thinking can, at times, make it worse. Proper breathing helps.

 

I have heard that the oxygen level in the muscles can effect spasms. I don't know anything about this though. The benzos relax the muscles so I guess now I'm paying for it.

 

 

Hi karen,

If u are refering to TPO antibody which is a peroxidase that damages the thyroid, this process can be stopped with selenium.

http://www.ncbi.nlm.nih.gov/pubmed/20883174.1

 

It sure seems to me that the muscle spasms are from klonopin.

Perhaps, a memory of opiates and being klonopin that pops up in a wave?

I know opiates can cause these spasms from a friend that was on opiates and klonopin.

I really don't have a time line anymore. I cut 2ml when I can. I tried 2ml every 3 or 4 days but it's too horrible. My muscles will pull me into a ball on the floor, I can't describe the pain; and the mental withdrawals will start up again. It's been so many years of this and I am tired.

 

My blood test show that there's an enzyme attacking my thyroid. I'm told that it's entirely from stress. Eventually my thyroid will burn out. I get bitter at doctor's for doing this to people. The "doctor" that prescribed them to me told me to "stay on them for the rest of my life".

 

There's a brain body connection. It's very delicate. Your thinking can, at times, make it worse. Proper breathing helps.

 

I have heard that the oxygen level in the muscles can effect spasms. I don't know anything about this though. The benzos relax the muscles so I guess now I'm paying for it.

 

 

Hi karen,

If u are refering to TPO antibody which is a peroxidase that damages the thyroid, this process can be stopped with selenium.

http://www.ncbi.nlm.nih.gov/pubmed/20883174.1

 

Could the thyroid issues be causing the spasms or is it something else?

 

Fantastic link - thanks. I just started taking selenium. Look up "Why Jerry Lewis was fired". Selenium was curing MS and cystic fibrosis but the MS foundation didn't want the public to find out. Same old story.

 

I'm at the beginning of my research on the thyroid issue. I know the adrenals and thyroid can effect the gut. I don't know about the muscles.

 

This is not your area I know but I never took hormones for menopause. I could never tell the difference between the benzo symptoms and menopause. Anyway, I've read that women really should supplement progesterone and estrogen. I want the bio identical hormones but it's very expensive and since big pharma can't patent it my insurance won't cover it. I'm going to further look into this topic.

 

I'm going to look at the blood test again and start looking into it.

 

Thanks for the great info!

Fantastic link - thanks. I just started taking selenium. Look up "Why Jerry Lewis was fired". Selenium was curing MS and cystic fibrosis but the MS foundation didn't want the public to find out. Same old story.

 

I'm at the beginning of my research on the thyroid issue. I know the adrenals and thyroid can effect the gut. I don't know about the muscles.

 

This is not your area I know but I never took hormones for menopause. I could never tell the difference between the benzo symptoms and menopause. Anyway, I've read that women really should supplement progesterone and estrogen. I want the bio identical hormones but it's very expensive and since big pharma can't patent it my insurance won't cover it. I'm going to further look into this topic.

 

I'm going to look at the blood test again and start looking into it.

 

Thanks for the great info!

DHEA helps my mom.

Many on here have said that hrt helped with withdrawals.

 

Ya, there is a huge link with selenium, iodine and vitamin D with all these autoimmune diseases and cancer.

It maybe the massive mercury in our mouths and environment along with fluoride and bromide that push out our iodine.

Mercury is the 2nd most toxic substance on the planet next to plutonium, so why put it a few inches from the thyroid and brain?

I'll check on DHEA.  I was taking MSM but it can be tough on the gut at first so I quit. I'm told the high quality stuff lasts for many years so I can still give it a try. HRT has issues but I may try it to find relief.

 

There's something called Desiccated thyroid extract that was always prescribed but alas... big pharma buried it. I don't know if women can still get any more but my doctor didn't know what it was.  From what I understand it's the combination of progesterone and estrogen that is necessary. There's the rub on progesterone cream but you can't tell how much your absorbing.

 

http://articles.mercola.com/sites/articles/archive/2009/09/19/Is-the-FDA-Poised-to-Ban-a-Century-Old-Natural-Remedy.aspx

The FDA enforcers 

 

Even the holistic doctors say to supplement with natural hormones that's why I've started to look into it.

 

Yeah I know, mercury in the mouth - these people are very good at selling the public on something. Root canals aren't very kind on the heart either.