Author Topic: Writing a book maybe - need your help  (Read 14203 times)

[Buddie]

Re: Writing a book maybe - need your help
« Reply #160 on: December 20, 2016, 10:40:39 pm »
Hi All, I just popped back in after a good long time, and found this post through a thread on long withdrawals. Here at around 5 years out for most of us (from looking at your signatures). I'm seeing that I'm not alone in having symptoms (like akathesia) after all these years. I just got some tests done and my eeg shows nothing unusual, and I was having strong symptoms during the 90 minute test. I have often used a couple vodka tonics to quiet them down for just awhile, even while I know it might be dragging things out by slowing down healing. Have any of you felt pushed to the same thing? Other than that Q. I am really mad-a whole lot of feelings in here!! I'm 55 and it's been 10 years since I had my 'life-altering event' and was put on 2 benzos; Xanax and Klonopin, plus Tegretol (anti-convulsants). I feel like the John Lennon song-"All I Want is Some Truth."
~[...]
ps. nice to see you all again  :P
« Last Edit: December 21, 2016, 12:35:53 am by [Buddie] »
Suggestions, opinions and/or advice provided by the author of this post should not be regarded as medical advice; nor should it substitute for professional medical care. Consult your doctor before making any changes to your medication. Please read our Community Policy Documents board for further information.

[Buddie]

Re: Writing a book maybe - need your help
« Reply #161 on: January 08, 2020, 07:09:19 pm »
Please let us know if you wrote a book. Your beginning post has been so helpful! Thanks.
Suggestions, opinions and/or advice provided by the author of this post should not be regarded as medical advice; nor should it substitute for professional medical care. Consult your doctor before making any changes to your medication. Please read our Community Policy Documents board for further information.

[Buddie]

Re: Writing a book maybe - need your help
« Reply #162 on: January 08, 2020, 10:07:59 pm »
Hi 52and forward,
I'm not the one who put that header saying anything about writing a book lol, at least I don't remember doing so. Do you have long lasting symptoms also?
Suggestions, opinions and/or advice provided by the author of this post should not be regarded as medical advice; nor should it substitute for professional medical care. Consult your doctor before making any changes to your medication. Please read our Community Policy Documents board for further information.

[Buddie]

Re: Writing a book maybe - need your help
« Reply #163 on: January 09, 2020, 04:42:30 am »
Hello -

Just a word of encouragement, we do survive these medications and we do get better and we do heal despite them. 

Like mostly every individual here, I was terribly, badly off.  I'm not about to try to convince you just how badly off I was, other than to say that I was bad

My experience has taught me, that there is no substitute to get to the other side, other than to go through the withdrawal to get there.  But the road would have been made much easier, if there would have been support along the way.  That, and the recognition of what it is we are going through, as well as why it is we are going through it.  This is where the medical community has TRULY failed us.  Speaking for myself, it's the trauma of the ordeal that lasts far longer than the actual withdrawals [ordeal] themselves.   

I have come to understand that the medications cause our bodies to respond as though they/we were/are in danger, under attack.  The same as if we were in the middle of a war zone.  Our sympathetic nervous system kicks in, and despite our outward circumstances, responds as though our lives are actually in danger.  (hence the "war zone" analogy)

The sympathetic nervous system is automatic.  It is our bodies built-in safety mechanism.  We do not control it; it is, as I said, automatic.  If the medical community would only embrace our counter-narrative, and hold themselves accountable, they would then educate themselves, and as a result, further their medical understanding on these and many other psychotropic medications.  But instead, we are dismissed.  Our suffering, minimized.  Because as I stated, our experiences speak counter to their accepted, and tightly embraced, narrative.       

Please don't take my strong words as bitterness, because they are not.  Instead, they are a cry of sadness.  Sadness for the needless suffering of people past, present and future. 

All of you will get through this.  Trust me, I've been there.  And now - I'm here. 

grace, [...] & love -

[...]
Suggestions, opinions and/or advice provided by the author of this post should not be regarded as medical advice; nor should it substitute for professional medical care. Consult your doctor before making any changes to your medication. Please read our Community Policy Documents board for further information.

[Buddie]

Re: Writing a book maybe - need your help
« Reply #164 on: January 18, 2020, 12:44:01 am »
Has anyone on BB heard from [...]? She was so active on BB and helped so many people. In any event I hope that she is doing well.
Suggestions, opinions and/or advice provided by the author of this post should not be regarded as medical advice; nor should it substitute for professional medical care. Consult your doctor before making any changes to your medication. Please read our Community Policy Documents board for further information.

[Buddie]

Re: Writing a book maybe - need your help
« Reply #165 on: May 11, 2020, 02:06:33 am »
dear Always,
I have not been on the site very much and when I joined in 2018 even though I was off of clonazepam for years it was hard for me  to maneuver around this sight as  I was in.. what I imagine is called, an extended withdrawal. It was not until 2019 that I would laugh hard again and feel emotions I had not felt in a decade and problem solve and organize better.  So I just now had a chance to read some of Parkers work and I too was wondering where she was.  It looks like the last time she posted was about 2018 ish (I think)

I sent her a private message a few days ago ,but with my brain not all there..  who knows... I may have screwed that up.  So you may want to try to send her a PM too.  I have to go see if messages are answered in a special area here ..until writing this I was waiting for an email notification, but maybe those are not sent ...so glad I read your post ...ugggg if I hear from her I will tell her you are asking for her.
 
I wrote a paper on an rare chronic illness I have and it touched on benzos  covers the fact that I find since coming off Clonazepam , I can only do the first half of thigs, and the second half of what ever it is, takes 10 times longer.  Park explained that so wonderfully in one of her writings and I wanted to quote her and give her credit as it is a sited research paper.  so if you find her will you please ask her [...] PLEASE to message me   [...] is the name.  STAY SAFE AND GOD BLESS. 
Suggestions, opinions and/or advice provided by the author of this post should not be regarded as medical advice; nor should it substitute for professional medical care. Consult your doctor before making any changes to your medication. Please read our Community Policy Documents board for further information.

[Buddie]

Re: Writing a book maybe - need your help
« Reply #166 on: May 11, 2020, 11:46:59 am »
Has anyone on BB heard from [...]? She was so active on BB and helped so many people. In any event I hope that she is doing well.

As we hope for all members, [...] has moved on and is very active in her life away from benzos and away from the forum.  Many people have benefited from the material in her threads and posts.

[...]
Suggestions, opinions and/or advice provided by the author of this post should not be regarded as medical advice; nor should it substitute for professional medical care. Consult your doctor before making any changes to your medication. Please read our Community Policy Documents board for further information.

[Buddie]

Re: Writing a book maybe - need your help
« Reply #167 on: May 13, 2020, 12:09:13 am »
Yes, you should write a book.

I think the must have in there really is the lack of formal education for medical professionals.

Education solves problems before they happen and it doesnt seem like many medical professionals are adequately trained

Teach the dr's and hypothetically they would convey to patients and prevent a lot of these long painful benzo journies which include losing friends, family, and jobs.
Suggestions, opinions and/or advice provided by the author of this post should not be regarded as medical advice; nor should it substitute for professional medical care. Consult your doctor before making any changes to your medication. Please read our Community Policy Documents board for further information.