Author Topic: Benzo free - flumazenil works!  (Read 48388 times)

[Buddie]

Re: Benzo free - flumazenil works!
« Reply #60 on: October 31, 2012, 11:57:05 am »
The way i see it, is that the benzos block the sites. Then our bodies try to make more chemical messengers. Then when the benzos are withdrawn, our bodies are way over stimulated due to excess messengers. That is a simple way that I look at it.

So with Flumazenil, the effect is short term. For me, I cant understand how flumazenil could work long term.

As we know, some people dont go thru PAWS. But what do I know. Whatever works.

I am 2 years off, and about 90 percent healed.

If it makes you happy think this way be may guest!

That won't change the fact that I am not longer addicted to benzos and without flumazenil I would have never been able to achieve this so quickly and so smoothly.
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[Buddie]

Re: Benzo free - flumazenil works!
« Reply #61 on: October 31, 2012, 12:04:35 pm »

I was 9 days on flumazenil and I am now 10 moths off benzo!

Not only that I am so confident that I will never go back that I have thrown away every pill and prescription I had. :thumbsup:
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[Buddie]

Re: Benzo free - flumazenil works!
« Reply #62 on: October 31, 2012, 01:00:13 pm »
So are you still on Remeron? 
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[Buddie]

Re: Benzo free - flumazenil works!
« Reply #63 on: October 31, 2012, 01:58:43 pm »
on 3 milligrams of remeron.
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[Buddie]

Re: Benzo free - flumazenil works!
« Reply #64 on: October 31, 2012, 02:48:46 pm »
I could be wrong, but this sounds similar to some who were detoxed off benzos with other drugs.  Being 70% after 10 months, means that earlier in the process, the healing was at a lower percentage, and sounds similar to where other's removed from same level of the same drugs might be.  Perhaps the lesson is that this may be as viable an option for some who need to get off the drug safely and quickly if that's absolutely necessary.  The second part of the lesson may then be there is no magic bullet to getting off benzos and that while this may surpass a straight CT, it is not drastically different than the more responsible of the detox programs.  Keeps you from dying or seizure, gets you off the drug, but there is still a lengthy recovery. 

It's tremendous that you got off the drug [...].  Congratulations on your 10 months.

Suggestions, opinions and/or advice provided by the author of this post should not be regarded as medical advice; nor should it substitute for professional medical care. Consult your doctor before making any changes to your medication. Please read our Community Policy Documents board for further information.

[Buddie]

Re: Benzo free - flumazenil works!
« Reply #65 on: October 31, 2012, 06:43:50 pm »
I could be wrong, but this sounds similar to some who were detoxed off benzos with other drugs.  Being 70% after 10 months, means that earlier in the process, the healing was at a lower percentage, and sounds similar to where other's removed from same level of the same drugs might be.  Perhaps the lesson is that this may be as viable an option for some who need to get off the drug safely and quickly if that's absolutely necessary.  The second part of the lesson may then be there is no magic bullet to getting off benzos and that while this may surpass a straight CT, it is not drastically different than the more responsible of the detox programs.  Keeps you from dying or seizure, gets you off the drug, but there is still a lengthy recovery. 

It's tremendous that you got off the drug [...].  Congratulations on your 10 months.

I have been on the 70% since I stopped, I skipped all the horror times that regular cold turkey people have suffered. People around me tell me how I look better and better, and I feel myself more and more myself. I am healing and flumazenil pushed me out of the benzo nightmare in just nine days of treatment.
Suggestions, opinions and/or advice provided by the author of this post should not be regarded as medical advice; nor should it substitute for professional medical care. Consult your doctor before making any changes to your medication. Please read our Community Policy Documents board for further information.

[Buddie]

Benzo free thanks to flumazenil
« Reply #66 on: October 31, 2012, 06:50:21 pm »
Dear Benzobuddies,
I have decided to restart my flumazenil post because this information is important. There is a road out of the benzo nightmare.

This mis my post, my story, If you don't [...] it, don't agree, don't like it please start your own post!

On the 9th of January I stopped taking benzo and started the flumazenil treatment as per the pioneering work of Doctor George OíNeil / Fresh Start Foundation, Australia.
I was the first pilot carried out in the Nederlands under the care of Addiction Doctor Erik Paling (Novadic Kentron) and Addiction Professor Core de Jong (Nispa). The treatment entailed subcutaneous infusion of Flumazenil for 9 days. Additionally I was give an antiepileptic (Depakina) and a anti depressive (Mirtazapine).
From the 9th of January I have stopped taking diazepam. I was on benzoís for 2 years, my highest dosses was 2 tablets of 2 milligram loremetazapam = 40 diazepam. By the time I entered treatment I had managed to go down to 17 diazepam. I choose to do the treatment even though it was experimental because I realized that I was unable to reduce the diazepam on my own. I had to many withdrawal symptoms. I signed an indemnity form in which I [...] full responsibility of my choice.
The first days were the most challenging ones. My sister had specially take off work to support me during the first two days. I initially had stopped at 5 days, but as I realized that my brain was over stressed I went on for another 4 days. By that time when I stopped the infusion I managed to function reasonably well. Initially I was hipper sensitive to impulses sound, lightÖ but as the days went on I could manage more and more. I now started going to the gym doing simple work outs. The only medication I am still taking is Ĺ a tablet of 17 milligram mirtazapina.
How does flumazenil work, it is not yet clear. The thinking is that is somehow repairs the gaba receptors so that they work properly. How much time must flumazenil must be administered to achieve this is still an unanswered question
 All in all I had 4 panic attacks, one just after stopping after 5 days of treatment, one when restarting the extra 4 days and one during the first week at home, and the last one now that I am sick with flu and my sinus hurt so I donít sleep well. These are the times when I felt my heart flutter. For the rest I am doing well, better and better every time. It nearly feels unreal that I had so much stress. I am able to do more, handle more and start thinking about the my future.

I am grateful that this opportunity appeared, that I had the courage to do it. But it wasnít just me, you benzo buddies helped me. I wanted to thank the Benzo Buddies team and all its member for without all the information I got from the site I would have believed that I was mentally ill. All the symptoms we discussed, all the postings kept me focussed and gave me courage to take the plunge. Thank you.
The advice that [...] give you is flumazenil works, Professor de Jong will be undertaking a formal study but that takes time before it gets published. For those that donít want to wait you could follow this treatment in Australia at the Fresh Start Foundation. For those that canít afford such a trip I would advise them to contact a professor of addiction nearby and convince him/her to do a pilot. Perhaps make a benzo buddies flumazenil group and work together at organizing the treatment in the USA. Coming to the Netherlands is not an option because its public health care and you need to be a Dutch citizen. When looking on internet I have seen some detox centres in the USA that work with flumazenil, I donít know what their protocol is. So I will give you some important points that you need to keep in mind:
subcutaneous infusion is better than intravenous, it is just as affective and your body fat doesnít get bruised as easy as veins.
George Oíneil uses a small pomp that you carry around your neck and you are allowed to go home after two days. That is you are only hospitalized for two days. This allows you freedom of movement and helps you keep your sanity.
The longer you stay on flumazenil the smaller the drop in well being when you stop. Therefore a place where you can decide for how long you want to have flumazenil and gives you the option to restart your treatment when you donít feel well is the best.
Ideally you stop all medication before you stop the flumazenil. Stopping medication gives you stress and you want to be done with all the pills while you are on flumazenil.
Having a Buddy to be with you while you detox and support you the days, weeks and after is importatn. Somebody that understands, care, loves you and has time for you.
Last but not least please note that this is an experimental treatment, it has not been officially verified through quantifiable studies. Thus you are navigating uncharted territory, therefore you will be fully responsible for your choices and the consequences that arise from it. I wish you wisdom and courage regarding the decision you take.
Suggestions, opinions and/or advice provided by the author of this post should not be regarded as medical advice; nor should it substitute for professional medical care. Consult your doctor before making any changes to your medication. Please read our Community Policy Documents board for further information.

[Buddie]

Re: Benzo free - flumazenil works!
« Reply #67 on: October 31, 2012, 06:51:18 pm »
[...], the problem is that no one knows how people would respond without flumazenil.  We need placebo controlled studies for this, and there are none as far as I know.

It's really way past the time when this should be researched.  Some have tried flumazenil on this forum without success.  It's really hard to tell, but it's worth sharing our experiences, and for that I'm glad you shared.

I also think Remeron masks some of the withdrawal symptoms, however, if it helps with sleep that is huge. 



Suggestions, opinions and/or advice provided by the author of this post should not be regarded as medical advice; nor should it substitute for professional medical care. Consult your doctor before making any changes to your medication. Please read our Community Policy Documents board for further information.

[Buddie]

Re: Benzo free thanks to flumazenil
« Reply #68 on: October 31, 2012, 06:52:23 pm »
Hi,
Its been 10 months since I did my treatment, 10 months free of benzos!!!!

For a long time I had kept my last benzo pills and prescriptions in my cabinet, I have thrown them away for I know that I will never need them or go back to them!!!!!!!!

I wish I could say I am a 100% back to the old me, but that is not true. What [...] say is that I am about 70% myself which is pretty good considering from where I came. I came from a very deep dark place.

I am now working on my diet, making sure that I really give my body all the nutrients it needs to heal the last part.

I am endlessly thankful to Doctor George O'Neil for the work he does and the kindness with which he shares his knowledge.
Suggestions, opinions and/or advice provided by the author of this post should not be regarded as medical advice; nor should it substitute for professional medical care. Consult your doctor before making any changes to your medication. Please read our Community Policy Documents board for further information.

[Buddie]

Re: Benzo free thanks to flumazenil!
« Reply #69 on: October 31, 2012, 06:54:14 pm »
If you have any questions you can contact me on personal messages.
Suggestions, opinions and/or advice provided by the author of this post should not be regarded as medical advice; nor should it substitute for professional medical care. Consult your doctor before making any changes to your medication. Please read our Community Policy Documents board for further information.