Author Topic: Benzo free - flumazenil works!  (Read 47296 times)

[Buddie]

Re: Benzo free - flumazenil works!
« Reply #40 on: March 17, 2012, 06:24:26 pm »
There is a great deal published on how it doesn't work. Even Wiki I think has a blurb about it. We used to think you could put people on Pheno and get them off their benzo, but then we figured out that pheno was a barbaric way to cold turkey people.

I am glad this worked for you. But it may not work for others. All of us would like a way out of this. I have been disabled for a year and a half including my failed taper. I want nothing more than to return to work and be a member of society again. But time is the ONLY healer. There are no drugs that reset GABA. Flumazenzil does not reset receptors. People who get relief from it usually have a return of sx very shortly after the drug leaves their body. People have died from taking flumazenil in an attempt to be benzo free. I dont think you want to promote a "cure" that can lead to death. Again, glad it worked for you. But it may not be the cure that we all [...] will one day relieve people of the misery of healing after benzo use.

Yep. Pretty much sums up my view of this. Also, it's true that people have died trying to get off benzos using flumazenil. It's in tons and tons of peer-reviewed academic articles for people to read about.
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[Buddie]

Re: Benzo free - flumazenil works!
« Reply #41 on: March 18, 2012, 06:10:00 am »
Congratulations on freeing yourself from benzos, [...]! I wish you peace, happiness and safe travels on your journey through life! :)
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[Buddie]

Re: Benzo free - flumazenil works!
« Reply #42 on: March 19, 2012, 11:26:02 pm »
[...] tell you someone that is a member of BB that it did not work for and has been going through HELL every since,
llessur1.  He is now in a slow, appropriate taper.  I will ask him if he will come here and explain his circumstances and experience.

It happened several years ago and he has been suffering every since.

It is not a MIRACLE cure.  Not to mention, it is very expensive so if it were really effective, why is it not being used around the world.  There is a clinic in Dallas that does it, the Urshel Clinic.  It is $14,000 for the treatment and there are no guarntees of no Protracted WD.  They use it mostly for alcohol wd.

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[Buddie]

Re: Benzo free - flumazenil works!
« Reply #43 on: March 20, 2012, 04:28:51 am »
People get desperate with this, and if a dr says it is good then some would try it.

I have seen flumazenil given to wake people up from a benzo haze in the ICU. (it was given the them IV for sedation) As I understand it, it "knocks the benzos off the receptors" . I dont see how it could help in wd any more the narcan could help a heroine addict. I am open to real research, not scammers and dreamers.

The problem is that benzo wd is not well know, so it is not mainstream, so it is not researched widely, so no treatments are tried, so here we are, victims.
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[Buddie]

Re: Benzo free - flumazenil works!
« Reply #44 on: March 20, 2012, 05:10:59 am »
I think the point we are missing is that this victory belongs to [...] and is her success story.  So good luck to her I say lucky it worked for her.  I dont even know what it is so am very neutral.  Im just happy that she is happy.

Lizzy
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[Buddie]

Re: Benzo free - flumazenil works!
« Reply #45 on: March 20, 2012, 05:25:40 am »
I agree Lizzy. It worked for her. She is telling us, so we might encourage more research. See my post above.

gh, fw
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[Buddie]

Re: Benzo free - flumazenil works!
« Reply #46 on: March 20, 2012, 05:40:09 am »
I just saw your post after i posted lol.  Yeah wish it was that simple for me.  Hey I just rang up the hospital to make a complaint about their treatment of me like giving a small person like myself 4mg of xanax and i go the worst anxiety ever and hung up just the memory of it all and the trauma is too much.  Im not up for a fight just yet.

Lizzy :)
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[Buddie]

Re: Benzo free - flumazenil works!
« Reply #47 on: March 20, 2012, 06:23:25 am »
I have seen flumazenil given to wake people up from a benzo haze in the ICU. (it was given the them IV for sedation) As I understand it, it "knocks the benzos off the receptors" . I dont see how it could help in wd any more the narcan could help a heroine addict. I am open to real research, not scammers and dreamers.

I remember there was a possible explanation in the Ashton work. As far as I recall, she wrote about how the BZD receptor site has been locked into "inverse agonist conformation" or in other words has switched it's "polarity", meaning that the endogenous body ligands have the opposite effect on the receptor. It is supposed that flumazenil somehow helps the BZD receptor site regain it's original "polarity", provided it is being exposed to a flumazenil long enough. 
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[Buddie]

Re: Benzo free - flumazenil works!
« Reply #48 on: March 21, 2012, 06:40:24 pm »
I just want to add that I don't think it's odd at all that you were healed from flumazenil.

I think in scientific studies, the manner, dose, and length of time someone is treated can be the difference between a postive result or no result.  You mentioned that this was a pilot study.  Perhaps this is the first of its kind in terms of a protocol with flumazenil that IS promising. Certainly, it's wonderful that they are doing research on it.  If you have had success, then perhaps others in the study will, too - and if that research is duplicated and the results are just as good, then we may be looking at a new approach to benzo treatment that is both reliable and valid.

It's stories like these that need to be respected. I think it's smart for all of us to be cautious, because [...], you got to be part of a pioneering study. That is SO awesome. And I know the VERY happiest person is YOU. :)  You have got to be overjoyed that this is over. But we dont' have that protocol anywhere else yet.  The protocol that was used on you has not yet been published, and in the meantime, what we have are a lot of doctors just kinda experimenting with flumazenil - and some people are not helped at all by that.  Perhaps it's the subcutaneous nature of how it was delivered for you - or perhaps it's the dose and length of time you were on it. Hopefully the study results will show what protocol worked -and hopefully it will have worked for others.  Over time, hopefully it will become a tried-and-true treatment!  However, so far, we dont' have those options over here.  I think when the study results come out, THEN YOU ARE RIGHT.  If the results are positive across the board, then other physicians in other locations will RUSH to duplicate it.  If positive results for this protocol turn out to be reliable, then a new treatment will have been established.  Then people can count on safety and efficacy.

I think it's people like [...] that we have to respect for sticking her neck out and being willing to be a test participant. In the future, when the study results come out, and when a benzo treatment IS finally found (and I [...] it will be in time), it's people like [...] that are the first guinea pigs in order for the rest of us to eventually benefit.

[...], we don't yet have places in the U.S that are doing this with a reliable and valid protocol. I wish we did!
[...]'t wait to see the results of the study you participated in. 
Perhaps that will mean a cure and a reliable protocol for the future.

 I whole-heartedly congratulate you, and I wish I were in your shoes!
Enjoy this wonderful life!

Thank you for taking your time to post on here.

:)[...]
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[Buddie]

Re: Benzo free - flumazenil works!
« Reply #49 on: October 25, 2012, 10:25:05 am »
I am glad I found this post.  I've today been in touch with the organisation that does this treatment in Australia; for me it may be my only option and a saving grace. 

Amazing what you can find on this site.

Staffy
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