Author Topic: preparing for PPI taper  (Read 2182 times)

[Buddie]

Re: preparing for PPI taper
« Reply #10 on: October 23, 2011, 01:33:43 am »
And the people on these other forums are pretty much useless -- they don't tell you anything to help you at all.

I am literally about to break down in tears over this and how messed up my stomach is.
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[Buddie]

Re: preparing for PPI taper
« Reply #11 on: October 23, 2011, 03:57:43 am »
What are you taking ?  Have you thought about dropping 1 dose per week....see how you feel....then eliminate 2 doses per week. 
I was able to get off prilosec..and can't remember how slow I went, but it took me about 6 weeks.  I replaced it with zantac toward the end.  You are correct....it can be difficult to get off of....when you have taken it for a while.

Vertigo....was tapering off of a PPI...not that long ago.  Maybe you could find out through the search box, how he tapered.
I got off prilosec first, because it was causing some of the bad side effects, that you read about.  I wish I had never taken any PPI's.  I have been off for 2 years....so you can do this. :thumbsup:

[...]
Suggestions, opinions and/or advice provided by the author of this post should not be regarded as medical advice; nor should it substitute for professional medical care. Consult your doctor before making any changes to your medication. Please read our Community Policy Documents board for further information.

[Buddie]

Re: preparing for PPI taper
« Reply #12 on: October 23, 2011, 04:07:21 am »
[...],

I remember from a previous post you'd come off a PPI, in fact I was just trying to find out if you had a blog or something so I could ask you about this!  Thank you so much for responding!

Here's the problem.  I'm taking a high dose (60 mg) of something called Dexilant.  It's similar to Prevacid, except it's formulated so that you only have to take it once per day but it releases the medication twice or something funny like that.  I think I need to come down on the dosage first before I start skipping days.  I was going to ask how high of a dose you were on.

I've read Vertigo's thread several times.  The only problem is that he was on the lowest dose possible of the Prilosec so he just started skipping days and using Zantac right away.  I'm also scared that the Zantac might flare up benzo withdrawal symptoms.  He also used several natural remedies if I remember correctly.

I guess I just don't know how to do the dosage reduction properly...I'd have to switch PPIs to do it, I think I mentioned I was thinking of using Prevacid instead which comes in 15mg OTC...I think once I get down to the 15 mg once a day I've seen a number of plans as to how to do it from there, I just don't know how to reduce the dosage, how long to hold each reduction, etc.  It's like benzos all over again.

I think my PPI may be causing bad side effects too.  I can't tell what's withdrawal and what isn't.  Also I'm scared of losing weight that I don't have to lose because I don't know what to eat.  Lately I've been eating a lot of almonds and peanut butter.  Now I find out I might not be able to eat those anymore because they have high fat content and can aggravate reflux.
Suggestions, opinions and/or advice provided by the author of this post should not be regarded as medical advice; nor should it substitute for professional medical care. Consult your doctor before making any changes to your medication. Please read our Community Policy Documents board for further information.

[Buddie]

Re: preparing for PPI taper
« Reply #13 on: October 23, 2011, 04:56:30 am »
aj,

I took Nexium, and Protonix, too.   They all had side effects, at least for me.  Nexium, probably helped right after my c/t.  I had severe stomach pains, and also felt pains in my heart which I think now was spasms.  My doctor thought I needed to continue a PPI, but I could tell they were causing me to have more symptoms.  You have read about the side effects of these drugs, when taken long term.  Some people really need them, but I don't think that was the case for me. 
I think it would be wise to come down on your dosage, too.  My dosage was not as high as yours.  Is dexilant in a capsule, or pill form ?  You could probably switch to Prevacid, since they are similar...and take an eqal amount. Is that what you had in mind ?  If you have no problem, then gradually start reducing the amount.  It shouldn't take as long to taper, as the benzo.  Take your time though, and don't rush.  You could take some antacids, if you need some help.  That's what I did.  Don't add too many things...or it could confuse your system.  You know all of that, I know.  Watch what you eat.  Bland worked best for me...and I still have to watch my diet.  I am having the first flare up with digestive symptoms, since benzo free.   IBS, it seems.  I think the peanut butter, and almonds...you may have to put on hold for a while.   :laugh:  Fat can aggravate reflux, and I get heartburn from it. 

You know what ?  I think the PPI's caused me to lose weight.  I never felt like my food digested properly while I took them.  I ate lots of yogurt, turkey, chicken, fish, green beans, potatoes, carrots, bananas, applesauce, canned peaches, asparagus.  Raw foods bothered me.

I will be watching your progress with tapering.  Take it easy. You have plenty of time, and you don't want to do anything that will hurt you.   :therethere:

I know you need support with this taper...and feel alone.  I did...and I was scared.....but it all worked out. ;)


Suggestions, opinions and/or advice provided by the author of this post should not be regarded as medical advice; nor should it substitute for professional medical care. Consult your doctor before making any changes to your medication. Please read our Community Policy Documents board for further information.

[Buddie]

Re: preparing for PPI taper
« Reply #14 on: October 23, 2011, 05:27:37 am »
Dexilant is in a capsule.  I don't think I really need them either.  As far as with the Prevacid, I wasn't thinking of switching to an equal amount but just switching to make the first cut, whatever that would be.  Since the OTC pills are only in 15mg strength, I don't want to be taking 4 of them a day for any amount of time.  I'm a college girl trying to manage a tight budget (my dad's insurance actually covers the Dexilant completely) and so the less of the Prevacid I have to buy, the better.

I just don't know what the first step down should be?  Should I do, say, 45 mg for a given amount of time?  And how long?  And then down to 30 from there, then down to 15, and then start skipping doses?  I did a fairly fast benzo taper (shouldn't have but I had a limited amount of meds)...it was about 2.5 months and I feel like any plan for this will last at least 2 months.

I was just eating the almonds and peanut butter to try and gain weight :(  Plus they're fast and easy when you have college classes.  It's hard to figure out what to eat when you only have 40 minutes or so to grab lunch...and can't just grab lunch somewhere either because I have a bit of a MSG sensitivity.  I've really got to figure out how to cook fish.  I've never done it.  Then again, the yogurt might work.  I eat a fair bit of Greek yogurt.  I wonder if that would bother me.  Also, I wonder if granola and/or oatmeal would bug me.  I eat those a lot too.

I DO feel very alone.  I'm not sure if I'm ready to start this yet being only just over a month benzo free but I can't help but thinking this medication is making me worse.  Yet again I've been thrown into the realm of clueless doctors and unsupportive family members.  Even on PPIs pizza and tomato sauce trigger reflux (I can eat raw tomatoes though?  But I know that'll have to go) and my dad won't stop bugging me and getting mad when I say I can't eat that stuff.  (Thank goodness I only had to come home for a few days and don't have to deal with it after this.)  I wonder if it'll ever get back to where I can eat those things...I could before benzos...my reflux and heartburn, although fairly mild, were ALL benzo-related from what I can tell.
Suggestions, opinions and/or advice provided by the author of this post should not be regarded as medical advice; nor should it substitute for professional medical care. Consult your doctor before making any changes to your medication. Please read our Community Policy Documents board for further information.

[Buddie]

Re: preparing for PPI taper
« Reply #15 on: October 23, 2011, 06:21:35 am »
I think you have a good plan dropping to 45 mg, and see how you are after a week or two.  If you need something extra, then you could take a milder antacid.  The idea is too gradually reduce, so that you don't have acid rebound.  You may feel some discomfort, but don't be too alarmed.  You can always increase again, if you think you are going too fast.  Just thinking....that is a high mg your doctor put you on.
You might want to consider starting this at Christmas break....if you think it would be easier on you.  It is also possible that you might not feel any symptoms at all.

If your reflux and heartburn were benzo related, then you probably will be able to eat whatever you like, at some point.  Oatmeal may work fine for you...toast...some of the soups.  You'll find things that you can eat.  Don't worry.

Remember that stress causes more acid production...so avoid it..and find ways to de-stress.  I feel stress and tension as symptoms right now....but most likely I am having to learn how to cope again, without the drug. 

I'll be checking in to see how you are.   :hug:
Suggestions, opinions and/or advice provided by the author of this post should not be regarded as medical advice; nor should it substitute for professional medical care. Consult your doctor before making any changes to your medication. Please read our Community Policy Documents board for further information.

[Buddie]

Re: preparing for PPI taper
« Reply #16 on: October 23, 2011, 05:29:22 pm »
I don't know if starting it at Christmas break will be the best idea because I'll be home then and my dad will freak out if I'm not eating "normal."  As far as avoiding stress...it's difficult and darn near impossible as a college student, not to mention the benzo withdrawal.  I'm trying but it's so hard.

I'm just scared of staying on PPIs too long because I'm starting to wonder if I don't have vitamin/mineral deficiencies that are causing some of the symptoms that I think are withdrawal.  Anemia is something that comes to mind.  I don't really want to have blood tests done because they're expensive and they scare me too...I passed out after one once.

I hope toast and bread will be okay...I know some people have a problem with wheat.

It is a high mg...he just gave me samples and then prescribed the stuff and I didn't even really look at how many mg it was until later (stupid and naive, I know.)  I don't know why he thinks I can just take it every other day and stop.  I felt so awful having to put that poison into my body this morning...

I don't know what I'm going to do yet...as far as when to start...I think the earliest would be next weekend.  I've been in what I think is a benzo wave for the last four days...lots of depression, shortness of breath, shakiness and jitters, etc...and I hope that's what it is...a benzo wave and not a real health problem...and that it will pass soon.
Suggestions, opinions and/or advice provided by the author of this post should not be regarded as medical advice; nor should it substitute for professional medical care. Consult your doctor before making any changes to your medication. Please read our Community Policy Documents board for further information.

[Buddie]

Re: preparing for PPI taper
« Reply #17 on: October 24, 2011, 02:54:03 am »
I just want to say thank you again though...I'm hoping this wave passes soon but I am so glad to have someone here to check up on me that understands that doctors don't always get it...I'm ditching the other forums...they're all "find a doctor, find a doctor, find a doctor!"

I'm sorry, I really don't have the time, money, or feel that I can deal with the stress of finding a doctor just to advise in a taper off a medication.  In fact the reason I went to my doctor back home after I was at school (it was a doctor at school that put me on Klonopin) was for a taper plan off the Klonopin.  I now have him to thank for trying to take me off cold turkey, giving me Ambien that gave me a paradoxical reaction, and updosing my Klonopin so much and pulling me off so fast that I'm now 10 times more miserable than I probably would have been if I just stayed on my original dose.

Don't read my comments the wrong way...doctors are certainly needed and all.  I just have little faith in the medical community when it comes to advice in tapering off of drugs.

Not to mention you guys are the only ones that also understand I'm in benzo withdrawal!   ::)
Suggestions, opinions and/or advice provided by the author of this post should not be regarded as medical advice; nor should it substitute for professional medical care. Consult your doctor before making any changes to your medication. Please read our Community Policy Documents board for further information.

[Buddie]

Re: preparing for PPI taper
« Reply #18 on: October 30, 2011, 01:33:12 am »
I was going to start this tomorrow until I read the following statements on another message board about getting off PPIs:

"Overall I guess I can say that Things are slowly progressing (The only thing I'm on is Zantac) but that has come at a cost of avoiding many foods (even potentially safe ones) and dropping too much weight."

I can't afford to lose ANY weight!!!!

And worse yet:"I have to say that it took longer than two months for the rebound to go away. At first it was unbearable, and I spent most of my waking hours dealing with it.

I have a life to live!  It's hard enough fighting withdrawal but I've done a very reasonable job of it so far all things considered...and to read this!

I'm practically in tears right now.
Suggestions, opinions and/or advice provided by the author of this post should not be regarded as medical advice; nor should it substitute for professional medical care. Consult your doctor before making any changes to your medication. Please read our Community Policy Documents board for further information.

[Buddie]

Re: preparing for PPI taper
« Reply #19 on: October 30, 2011, 05:10:47 pm »
I decided to start today after all.

Wish me luck!
Suggestions, opinions and/or advice provided by the author of this post should not be regarded as medical advice; nor should it substitute for professional medical care. Consult your doctor before making any changes to your medication. Please read our Community Policy Documents board for further information.