Author Topic: Baclofen is a Benzo!? FREAKING OUT.  (Read 5425 times)

[Buddie]

Baclofen is a Benzo!? FREAKING OUT.
« on: February 19, 2011, 11:37:57 pm »
WHAT!?

Please be very careful that it is not related to Baclofen...a skeletal muscle relaxer that also affects your GABA receptors!!!! it is a benzo in disguise and is the reason i am on this site, and weaning off of Ativan. i'd be very leery of anything with the word 'relaxant' in it. Please check it out VERY carefully. Sounds like you already have your doubts, and rightfully so.

jeanie

I've been taking that for my jaw for a year.  My doctor specifically told me it was NON HABIT FORMING AND IT WAS AN ARTHRITIS MEDICATION.  I've taken two tablets three times a day!  OMG are you sure about this?  WTH!?  Alright, now I'm in a full blown panic.  
« Last Edit: February 20, 2011, 06:50:00 pm by [Buddie] »
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[Buddie]

Re: Baclofen is a Benzo!? FREAKING OUT.
« Reply #1 on: February 19, 2011, 11:48:37 pm »
Well this is just wonderful.   :tickedoff: :tickedoff: :tickedoff: :tickedoff: :tickedoff:  I take 60mg of baclofen a DAY for my jaw.  I don't take it every day because it knocks me flat, but I take it often enough to keep the jaw pain within a tolerable range.  Holy crap.  This was the only doctor I trusted and he put me on this and told me it was for my osteo arthritis.  He specifically said it was non habit forming and had NO negative side effects. 
This is too much.   :tickedoff: :tickedoff: :tickedoff: :tickedoff: :tickedoff: :tickedoff: :tickedoff: :tickedoff: :tickedoff:
Suggestions, opinions and/or advice provided by the author of this post should not be regarded as medical advice; nor should it substitute for professional medical care. Consult your doctor before making any changes to your medication. Please read our Community Policy Documents board for further information.

[Buddie]

Re: Baclofen is a Benzo!? FREAKING OUT.
« Reply #2 on: February 19, 2011, 11:49:15 pm »
It is not a benzo, per se, but affects gaba receptors.  From what I'm reading it does have a withdrawal associated with it that can resemble benzo w/d, and it must be tapered off.  Hopefully Jeanie will come by and offer more information, or someone else with experience with this drug.

I know you are in panic mode right now, but everything WILL be okay.  Deep breaths...you can handle this.  As you get more information, you can decide when/whether you want to start a slow taper off of it.  There are many surprises and bumps and "setbacks" along this difficult journey, but you will make it.  It's going to be okay, and we'll be here to support you!

It is difficult when doctors are telling us certain information that is not accurate...it's unfortunate it has to be this way.  This entire situation has been a real eye-opener for me, and I hate to be this way, but I will forever have a hard time trusting medical professionals again.  I was told that as long as I was under 1 mg of Xanax, that it was safe and not habit forming....9 months later..I'm still suffering.  Makes me really mad, but we have to just move forward and know that eventually we will break free and have health again.  

Thinking of you, BT.
Suggestions, opinions and/or advice provided by the author of this post should not be regarded as medical advice; nor should it substitute for professional medical care. Consult your doctor before making any changes to your medication. Please read our Community Policy Documents board for further information.

[Buddie]

Re: Baclofen is a Benzo!? FREAKING OUT.
« Reply #3 on: February 19, 2011, 11:55:00 pm »
Thank you Bitter  :'( :'( :'( :'( :'(  I really didn't need anything else on my plate right now (who does?)
My jaw gets so bad I've had to take delaudid for the pain.  I've gone 4.5 months without chewing because it hurt so bad.  Baclofen was the only thing that kept the pain to a tolerable level. 
If I taper off of it, I'm likely back on narcotics, which make me sick.  Actually, they make me so sick they aren't really an option.  Right now I feel like saying screw all of this.  I'm going back on the benzos and taking my baclofen and making the best of it.  My options appear to be that I can live in excruciating pain, or I can be on drugs. 
I'm so done with all of this.  I'm so scared, angry and shocked I can't even think straight.  This just beats all. 
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[Buddie]

Re: Baclofen is a Benzo!? FREAKING OUT.
« Reply #4 on: February 20, 2011, 12:02:41 am »
My heart breaks for you!  I am so sorry you are in such a dilemma.  Maybe for now just continue forward benzo free...you have worked hard to get to this point...and going back could cause more problems for you and more problems down the road.  Others may have different thoughts on this, but maybe continue on the Baclofen for now and deal with it later as you start to feel better from coming off the benzo.  One thing at a time!  It sounds like there are some other less addictive muscle relaxers that maybe you could switch to down the road ?? Although I know sometimes when dealing with severe pain, only certain things seem to work.  You'll get answers and find a solution...I just know it.  For now, one day at a time and no rash decisions!  I know...easier said than done.  I'm just so sorry for what you're going through. 
Suggestions, opinions and/or advice provided by the author of this post should not be regarded as medical advice; nor should it substitute for professional medical care. Consult your doctor before making any changes to your medication. Please read our Community Policy Documents board for further information.

[Buddie]

Re: Baclofen is a Benzo!? FREAKING OUT.
« Reply #5 on: February 20, 2011, 12:12:28 am »
This just put me right over the edge.  You are right- going back to the benzos isn't going to help.  I just feel like it doesn't matter if I still have to take baclofen anyway. 
I need to go to bed and cry for a while.  I need to put in my nightguard because if I cry myself to sleep, I'll grind so hard I'll break teeth (I've done it plenty of times before). 
I'll be back when I'm partially over this bombshell. 
Thank you Bitter
:hug:
Suggestions, opinions and/or advice provided by the author of this post should not be regarded as medical advice; nor should it substitute for professional medical care. Consult your doctor before making any changes to your medication. Please read our Community Policy Documents board for further information.

[Buddie]

Re: Baclofen is a Benzo!? FREAKING OUT.
« Reply #6 on: February 20, 2011, 12:34:11 am »
I hope you feel better soon, BT.  Remember, everything will be okay, even if it doesn't feel like it right now, and things have a way of working themselves out.  I know it's a little different, but there are a lot of folks who are on other medications, such as antidepressants, who have to get rid of one medication at a time.  First coming off the benzo, and not until time passes and they are feeling much better do they start considering their options and tapering the a/d.  For you I know it's a case of needing something to deal with the pain, but once more time passes and you are feeling better, you can maybe find an alternative to switch to and slowly taper off that the Baclofen and replace it with something less addictive.  I know it's not any fun when you already feel like you're dealing with so much...but I think you are doing great and I can tell you're a fighter.  For now I think you just need to move forward and keep doing what you're doing, gather information, and you'll figure out a plan of attack for this down the line.

Also, has the jaw pain always been an issue?  TMJ?  An injury?  Is that what led you to benzo use? 

You're in my thoughts.  *Big Hugs*
Suggestions, opinions and/or advice provided by the author of this post should not be regarded as medical advice; nor should it substitute for professional medical care. Consult your doctor before making any changes to your medication. Please read our Community Policy Documents board for further information.

[Buddie]

Re: Baclofen is a Benzo!? FREAKING OUT.
« Reply #7 on: February 20, 2011, 12:59:48 am »
Benzo Torture - I'm so sorry that you are suffering so much and now to find that your doctor was wrong with what he told you.  But do some research on Baclofen yourself and then take it to him.  Maybe he can explain why it is the right drug for you......and yes as Bittersweet said,
don't do anything rash.....if you are tapering off the Benzo, keep going and do it - you will be better off for it.  I too understand how you feel about having a life in pain or a life on drugs.  I feel that way many times - my life was so much easier when I was taking the very small piece of Klonopin that I took.  It was only when they updosed me to higher doses for only six weeks and when I tried to go back onto my small dose,
 was tolerant to it and so I had to get off.  The quality of my life right now is horrible.But as Bittersweet says, you will find a way....and being just on Baclofen and not also on another Benzo could be all you need and so what, if that is what helps you.  I am sorry that my question led to all this upsetment for you.  Just think about it when you can think more clearly.  [...]
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[Buddie]

Re: Baclofen is a Benzo!? FREAKING OUT.
« Reply #8 on: February 20, 2011, 02:34:49 am »
Hearing any bad news, even news that may not turn out as bad as it seems tends to hit very hard during benzo withdrawal.  Your situation may be better than you suspect in the long run.  Hope it goes well.

[...]
Suggestions, opinions and/or advice provided by the author of this post should not be regarded as medical advice; nor should it substitute for professional medical care. Consult your doctor before making any changes to your medication. Please read our Community Policy Documents board for further information.

[Buddie]

Re: Baclofen is a Benzo!? FREAKING OUT.
« Reply #9 on: February 20, 2011, 06:26:52 am »
I feel a little better now.  I had my little panic attack and I'm over it. 
The reason this is so upsetting to me is that the baclofen is the only thing that's ever worked for my jaw pain at all.  Narcotics work but I get addicted to them within days and then I have to go through withdrawals (plus they make me so sick I want to die). 
I've got really bad tmj.  I started grinding my teeth when I was a little kid and I've done everything possible to stop this and nothing has worked.  My jaw joint is misshapen so when I chew or yawn I get searing pain.  At its worst, it feels like you have ear infections in both ears, nerve pain in your ears, root canals needed in every tooth in your mouth, and neck and shoulder pain.  It only flares up a few times a year but when it does it's totally incapacitating.  Even when it isn't bad I often wake up with headaches, sometimes migraines. 
Baclofen was my 'safe' solution- now that's gone. 

Onward.  There's no sense dwelling on it.  Me--->  :pokey:  <--- Me   
Suggestions, opinions and/or advice provided by the author of this post should not be regarded as medical advice; nor should it substitute for professional medical care. Consult your doctor before making any changes to your medication. Please read our Community Policy Documents board for further information.