Author Topic: Can we get a "worst symptoms" list going???  (Read 668 times)

[Buddie]

Can we get a "worst symptoms" list going???
« on: June 02, 2022, 02:30:18 am »
I know this is weird but I find comfort in hearing about others symptoms as messed up as that is.
Can we get a list of you're worst of the worst symptom or groups of symptoms which you've experienced so far

Trigger warning to those who aren't ready to read fellow benzo struggles

Ill start

1) Seeing flashing lights/patterns when my eyes are closed, mixed with this vertigo sensation

2)Burning pain, then it switched to extreme inner itching in my pubic area but under the skin

3) perceptional issues, seeing things, hallways stretching, grainy visom, hyper focus eye sight with no control over it, visual snow, seeing yellow and sometimes blue spots in vison

4) Upper right abdominal pain, sometimes burning under the skin. Freaked me out thought it was my liver.

5) Head pressure and weird sensations on the top of my head, sometimes it feels like I'm expanding my consciousness outside of my head its weird. Stable deep pain, sometimes burning scalp. Other times I get these seizure like sensation in my head it's very scary when it happens.

6) Limbs: Always my left side, arm and leg either feeling like they're being pulled downward, muscle too weak in both arm/leg, numbness or tingling sensation in left arm.

7) complete bodily weakness: the kind where you're just like nope, I need to lay in bed all day this isn't normal weakness

8) overly anxious sensation in limbs, but very painful

9) Feeling like I'm either falling in my own head while laying down or my body is sinking in the bed.

10)  Food sensitivity: This one is bad, I'm basically afraid to eat or take anything including water because I don't want the symptoms to come back which they ALWAYS do either while eating or a few minutes to a hour after eating everything.

Suggestions, opinions and/or advice provided by the author of this post should not be regarded as medical advice; nor should it substitute for professional medical care. Consult your doctor before making any changes to your medication. Please read our Community Policy Documents board for further information.

[Buddie]

Re: Can we get a "worst symptoms" list going???
« Reply #1 on: June 02, 2022, 05:23:22 am »
1. Interstitial cystitis feeling like I had a uti for 18 months straight. I would pee 40+ times a day

2. Akithisia pure terror for months

3. Mast cell/histamine reactions chronic anaphylaxis

4. Tremors to the point of dropping stuff

5. Dizziness and migraines



Suggestions, opinions and/or advice provided by the author of this post should not be regarded as medical advice; nor should it substitute for professional medical care. Consult your doctor before making any changes to your medication. Please read our Community Policy Documents board for further information.

[Buddie]

Re: Can we get a "worst symptoms" list going???
« Reply #2 on: June 02, 2022, 07:06:07 pm »
Acute was by far the worst.... with the #1 being my brain on auto-pilot with constant intrusive thoughts about horrible dark things and obsessing over them non-stop. No control over my thought process.

Acute aside, my worst symptom is these really intense moments of dp/dr where it feels like my brain temporarily glitches out and I disassociate with this massive feeling of fear/dread for a good 15-30 seconds.
Suggestions, opinions and/or advice provided by the author of this post should not be regarded as medical advice; nor should it substitute for professional medical care. Consult your doctor before making any changes to your medication. Please read our Community Policy Documents board for further information.

[Buddie]

Re: Can we get a "worst symptoms" list going???
« Reply #3 on: June 02, 2022, 07:39:37 pm »
1. Pain in the limbs, feels like aching deep pain ,doesn't go away, worse after eating some foods..What IS THIS DEAR GOD

2. lower back is just done, feels like I got kicked by a horse

3. Tearing muscles easily , don't even know if this is related,  feel inflamed

4. Vision is trash and changes whenever it decides to

5. Feeling dehydration and low blood sugar with standing even though it isn't that

6. Forgetting to breath and then realizing it, even in sleep, waking up freaking out from not breathing

7. Neck and headaches from tension

8. Temperature changes and inability to handle hot or cold

9. Dp/ Dr [ I hate these abbreviations or whatever they are, letters, I hate seeing them but have this to no avail , like who or where am I...out of body

10. Swallowing is weird, so histamine

11. I'm almost sure there's some vascular component to something here. Idk.

12. Crazy anxiety at times and crazy brain with depression that never let's up
Suggestions, opinions and/or advice provided by the author of this post should not be regarded as medical advice; nor should it substitute for professional medical care. Consult your doctor before making any changes to your medication. Please read our Community Policy Documents board for further information.

[Buddie]

Re: Can we get a "worst symptoms" list going???
« Reply #4 on: June 02, 2022, 07:40:44 pm »
I know this is weird but I find comfort in hearing about others symptoms as messed up as that is.
Can we get a list of you're worst of the worst symptom or groups of symptoms which you've experienced so far

Trigger warning to those who aren't ready to read fellow benzo struggles

Ill start

1) Seeing flashing lights/patterns when my eyes are closed, mixed with this vertigo sensation

2)Burning pain, then it switched to extreme inner itching in my pubic area but under the skin

3) perceptional issues, seeing things, hallways stretching, grainy visom, hyper focus eye sight with no control over it, visual snow, seeing yellow and sometimes blue spots in vison

4) Upper right abdominal pain, sometimes burning under the skin. Freaked me out thought it was my liver.

5) Head pressure and weird sensations on the top of my head, sometimes it feels like I'm expanding my consciousness outside of my head its weird. Stable deep pain, sometimes burning scalp. Other times I get these seizure like sensation in my head it's very scary when it happens.

6) Limbs: Always my left side, arm and leg either feeling like they're being pulled downward, muscle too weak in both arm/leg, numbness or tingling sensation in left arm.

7) complete bodily weakness: the kind where you're just like nope, I need to lay in bed all day this isn't normal weakness

8) overly anxious sensation in limbs, but very painful

9) Feeling like I'm either falling in my own head while laying down or my body is sinking in the bed.

10)  Food sensitivity: This one is bad, I'm basically afraid to eat or take anything including water because I don't want the symptoms to come back which they ALWAYS do either while eating or a few minutes to a hour after eating everything.

I get number 5, it feels like something is unfolding inside my brain and sometimes it feels like I will have a seizure or something like it, it effects my face and my face will get tense and lips will quiver
Suggestions, opinions and/or advice provided by the author of this post should not be regarded as medical advice; nor should it substitute for professional medical care. Consult your doctor before making any changes to your medication. Please read our Community Policy Documents board for further information.

[Buddie]

Re: Can we get a "worst symptoms" list going???
« Reply #5 on: June 02, 2022, 07:42:44 pm »
Also get the burning under the ribs front stomach you speak of, oatmeal seems to make this go away
Suggestions, opinions and/or advice provided by the author of this post should not be regarded as medical advice; nor should it substitute for professional medical care. Consult your doctor before making any changes to your medication. Please read our Community Policy Documents board for further information.

[Buddie]

Re: Can we get a "worst symptoms" list going???
« Reply #6 on: June 03, 2022, 04:19:50 am »
Frequent colds, heart palpitations, muscle spasms, muscle pain, muscle stiffness and occasional anxiety attack.
« Last Edit: June 07, 2022, 06:38:59 am by [Buddie] »
Suggestions, opinions and/or advice provided by the author of this post should not be regarded as medical advice; nor should it substitute for professional medical care. Consult your doctor before making any changes to your medication. Please read our Community Policy Documents board for further information.

[Buddie]

Re: Can we get a "worst symptoms" list going???
« Reply #7 on: June 03, 2022, 04:40:17 am »
Headaches/migraines
Dizziness/nausea
Eyes strain
Anxiety/Fear
Agoraphobia
Neck/shoulder/Mid back tension
Tinnitus (ringing both ears)
Overly sensitive nervous system
Sensitive to carbs
Suggestions, opinions and/or advice provided by the author of this post should not be regarded as medical advice; nor should it substitute for professional medical care. Consult your doctor before making any changes to your medication. Please read our Community Policy Documents board for further information.

[Buddie]

Re: Can we get a "worst symptoms" list going???
« Reply #8 on: June 03, 2022, 05:08:24 pm »
My top scariest:
1) night terrors: waking up from nightmares, feeling like I was awakened only to feel the body fighting to stay alive
2) chest tremors/vibrations/flutters
3) heart palpitations, PVCs, increased heart rate, feeling like itíll explode out of my chest; highest pulse recorded while in a relaxing pose 172
4) strong chest tightness/elephant sitting on it
5) dizzy/lightheaded, feeling like Iím going to pass out
6) feeling out of breath, tight diaphragm when trying to control the breaths
7) extreme tinnitus

[...]
Suggestions, opinions and/or advice provided by the author of this post should not be regarded as medical advice; nor should it substitute for professional medical care. Consult your doctor before making any changes to your medication. Please read our Community Policy Documents board for further information.

[Buddie]

Re: Can we get a "worst symptoms" list going???
« Reply #9 on: June 03, 2022, 05:09:17 pm »
One more:
8) electricity coursing through body, especially from chest to hands

[...]
Suggestions, opinions and/or advice provided by the author of this post should not be regarded as medical advice; nor should it substitute for professional medical care. Consult your doctor before making any changes to your medication. Please read our Community Policy Documents board for further information.