Author Topic: Klonopin taper- when do I jump?  (Read 391 times)

[Buddie]

Klonopin taper- when do I jump?
« on: May 18, 2022, 11:22:32 pm »
Hi everyone, I hope someone can help me. I started my Klonopin taper last Oct. Was taking 1 mg 15 years. My doc thought I should taper off and I really didn't think it would be a big deal, but of course it was.

He advised to cut the dose 50%  everyday for 2 weeks then go to every other day for 2 weeks, then just quit.

HA! Of course I failed miserably but started cutting a dose in half every couple days. It took 2 months to get to .5 mg a day but I did it.

Next step was cut that dose. Took another 2 months to get to  .25 a day which brought us to March.

In March I cut another 50% to get us to .125mg. a day which is where I'm at now. Unfortunately it has been extremely difficult and the symptoms are the worse then they have been the whole taper. I just am not able to stabilize. My worse symptom is tinnitus and insomnia. I feel like I'm losing my hearing it's so bad.

My doc says hang in there I'm doing well and to remember it will stop eventually.

Anyway my next appt is beginning of July and he expects me to have quit entirely by then.

So...I need to make another cut even though I am having symptoms. I'm so scared..this is a nightmare. Do you think my symptoms will get worse at .06 mg? I don't even know how to cut my pills so small and I can't concentrate well enough to figure out the math to do a liquid taper.
Thank you for listening.
Suggestions, opinions and/or advice provided by the author of this post should not be regarded as medical advice; nor should it substitute for professional medical care. Consult your doctor before making any changes to your medication. Please read our Community Policy Documents board for further information.

[Buddie]

Re: Klonopin taper- when do I jump?
« Reply #1 on: May 19, 2022, 12:36:24 am »
Most members say it gets more difficult to make reductions the lower in dose they get and it appears you're dealing with the same, I'm sorry to hear how miserable you are.  My suggestion would be to hold until your body can stabilize but your taper has been so rapid I don't know how long that will take or even if it will.  We suggest letting your symptoms guide your taper in order to stay functional and yours are saying a big no.

Are you aware that getting off of the drug is just the first step, recovery is the next and that can take a long time so using the drug to mitigate your symptom severity as you taper is the purpose of a taper because once you're drug free, you'll be on your own.

Would your doctor agree to letting you hold your dose or are you determined to keep going?  If you want to keep going we can help you figure out a way to get smaller reductions, here is some information about titration. Titration FAQ's

One last thing, if your doctor is unwilling to let you, the patient lead your own taper you might show him this.  Colorado Consortium Benzodiazepine Deprescribing Guidelines
Suggestions, opinions and/or advice provided by the author of this post should not be regarded as medical advice; nor should it substitute for professional medical care. Consult your doctor before making any changes to your medication. Please read our Community Policy Documents board for further information.

[Buddie]

Re: Klonopin taper- when do I jump?
« Reply #2 on: May 19, 2022, 04:28:48 am »
Thank you for responding. I'm not entirely sure what you meant by that second paragraph. My thinking skills aren't the best right  now. In fact, today was my worse day. I have no support and am so scared. I think even my vision is being effected now.

I do think my doctor will let me go at my own pace. I had to take a second dose today because I was twitching a lot and scared of having a seizure. I wish I could go back to .25  and go a lot slower. So are you saying you aren't sure I can stabilize at .125? I'm sorry I'm just not thinking clearly.


Suggestions, opinions and/or advice provided by the author of this post should not be regarded as medical advice; nor should it substitute for professional medical care. Consult your doctor before making any changes to your medication. Please read our Community Policy Documents board for further information.

[Buddie]

Re: Klonopin taper- when do I jump?
« Reply #3 on: May 19, 2022, 12:02:57 pm »
Its unlikely you'll have a seizure while tapering, they're rare unless you have a history of them and vision problems are common so try not to go to worst case scenario's although this is what our brain does while we're going through this, fear is a huge withdrawal symptom. 

You're suffering and you've held this dose since March so I feel it makes sense to go back to .25 mgs but even doing that, it will take some time to stabilize.  I need to help you understand what we mean by stable, it doesn't mean feeling good, it means being able to carry out your daily tasks, in others words functional.  This is the gauge members use to determine when it's time to reduce again, their symptoms level off and they feel they can face another reduction.

I didn't taper but members say they make a reduction, typically with Klonopin their symptoms show up around day 3 but begin to level off around day 10 and depending on how they're feeling or what they have coming up in their life, they make another reduction.  This is a patient led, symptom based taper that makes the taper work for the person, not the person working for the taper or an arbitrary timeline determined by someone else.  This is your life and you need to be able to live it while withdrawing and recovering from this drug.

Please don't be scared, we're here to help and if it's your wish to go back to .25 mgs then you might want to consider it as long as your doctor will keep you supplied with enough medication to taper at your own pace.
Suggestions, opinions and/or advice provided by the author of this post should not be regarded as medical advice; nor should it substitute for professional medical care. Consult your doctor before making any changes to your medication. Please read our Community Policy Documents board for further information.

[Buddie]

Re: Klonopin taper- when do I jump?
« Reply #4 on: May 19, 2022, 03:08:11 pm »
Thank you [...]. I'm calling my doc today. I feel like I blew my taper because I backslid and took .25 mg this morning but at least I am now able to function. I hope my doc will understand because if he doesn't I don't know will happen to me.
Suggestions, opinions and/or advice provided by the author of this post should not be regarded as medical advice; nor should it substitute for professional medical care. Consult your doctor before making any changes to your medication. Please read our Community Policy Documents board for further information.

[Buddie]

Re: Klonopin taper- when do I jump?
« Reply #5 on: May 19, 2022, 03:37:01 pm »
Tapers are all about experimentation with you as the subject unfortunately so you didn't blow anything, you went down one path and it didn't work so you'll make adjustments and try another path.  We're all so different, no two people or tapers are alike so when doctors try to make us follow a set guideline it doesn't always work for each individual.

Recording your reductions and your symptom severity will help you make informed decisions about when and how much to reduce so keep a journal.  I'm told by members that approaching your doctor without emotion about your situation is best, keeping calm but laying out your difficulties with a clear idea of how you'd like to proceed is best.  Its also not a good idea to mention online support groups, they tend to dismiss us but we've been in the trenches with members for almost 20 years so we understand this process better than some if not most doctors who's only information comes from their small practice.  The trouble is, not everyone will suffer like we do so we tend to be labeled or misdiagnosed.
Suggestions, opinions and/or advice provided by the author of this post should not be regarded as medical advice; nor should it substitute for professional medical care. Consult your doctor before making any changes to your medication. Please read our Community Policy Documents board for further information.

[Buddie]

Re: Klonopin taper- when do I jump?
« Reply #6 on: May 19, 2022, 03:53:38 pm »
You are amazing in that you make me feel heard! I can't thank you enough. I have a call in to him so will let you know what he says. It's so strange its only the past week the symptoms became unmanageable.
Suggestions, opinions and/or advice provided by the author of this post should not be regarded as medical advice; nor should it substitute for professional medical care. Consult your doctor before making any changes to your medication. Please read our Community Policy Documents board for further information.

[Buddie]

Re: Klonopin taper- when do I jump?
« Reply #7 on: May 19, 2022, 07:52:27 pm »
Benzodiazepine withdrawal is all about uncertainty and pain, we never know when we'll get hit with horrific symptoms, but we do know that stress is a huge contributor to increased symptom severity, have you had recent stress, new medications or supplements?  We can't always figure out why things get worse for us but these are some culprits. 

Please let us know what your doctor says, we'll be here.  :smitten:
Suggestions, opinions and/or advice provided by the author of this post should not be regarded as medical advice; nor should it substitute for professional medical care. Consult your doctor before making any changes to your medication. Please read our Community Policy Documents board for further information.

[Buddie]

Re: Klonopin taper- when do I jump?
« Reply #8 on: May 20, 2022, 02:44:29 am »
Welp, my doctors office never called me back even though they said they were sending an "urgent" message. I do feel a lot better (except the tinnitus) so maybe I just did too fast. I'm going back to .125 tomorrow see what happens. The .25 was surprisingly sedating today.

Suggestions, opinions and/or advice provided by the author of this post should not be regarded as medical advice; nor should it substitute for professional medical care. Consult your doctor before making any changes to your medication. Please read our Community Policy Documents board for further information.

[Buddie]

Re: Klonopin taper- when do I jump?
« Reply #9 on: May 20, 2022, 02:26:23 pm »
Hopefully you'll get a response from your doctor today but I think the fact that the .25 was sedating is a good sign.  A one off increase in dose won't typically affect a taper so going back to .125 sounds like a good idea.
Suggestions, opinions and/or advice provided by the author of this post should not be regarded as medical advice; nor should it substitute for professional medical care. Consult your doctor before making any changes to your medication. Please read our Community Policy Documents board for further information.