Author Topic: Long term clonazepam user  (Read 1072 times)

[Buddie]

Re: Long term clonazepam user
« Reply #20 on: April 25, 2022, 06:45:41 pm »
Hopefully you will get some input regarding the emotional lability thing [...].  Here is a link for the Benzo Information Coalition, an advocacy group that among other things has a list of benzo-wise doctors/providers:

https://www.benzoinfo.com/doctors/
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[Buddie]

Re: Long term clonazepam user
« Reply #21 on: May 12, 2022, 11:28:57 pm »
I am currently mulling over whether to do a taper without any other substitutions like Dr. Ashton says in her book, or whether to substitute Klonopin with Valium like she shows in one chart. 

Problem I have now is I am with a psychiatrist that seems to think 5 percent every two weeks is almost impossible. 

I have tried, tried, tried repeatedly to find a doctor that will take my insurance, and when they do, I am put on a waiting list. 

Is there a protocol that some of you have tried--asking questions of psychiatrists--like, "Have you ever successfully tapered a client off a benzodiazepine?"
or,  "would you be willing to closely monitor my status if you did decide to accept me as a patient and tapering me off slowly?" 

I tried calling some Drs. in New York on the Benzo Information Coalition; one Dr. in NYC said she did not know of any doctors she could refer me to. 

It's hard when I find a Doctor that has a good rating, but, that rating means nothing when I do not know if they have any specialization in weaning patients off of harmful medications. 

I probably will have to dig deeper and ask doctors if they know anyone who DOES support slow tapering. 

I know that I will successfully be off of clonazepam someday;  it is a goal that I have had for over a decade (maybe more). 

I've always maintained that clonazepam gives me a "false depression", meaning, I get depressed just from it acting on my GABA receptors.  I know it blunts my enthusiasm and my cognition, too. 

Here's a question: does anyone know or suspect that the taking of benzodiazepines can cause iron deficiency?  Because I have low iron right now and have to have iron infusions after having my blood drawn yesterday.  (my ferritin was 17). 

Thanks.



Suggestions, opinions and/or advice provided by the author of this post should not be regarded as medical advice; nor should it substitute for professional medical care. Consult your doctor before making any changes to your medication. Please read our Community Policy Documents board for further information.

[Buddie]

Re: Long term clonazepam user
« Reply #22 on: May 13, 2022, 02:26:00 am »
I went through this process of trying to find a doctor about a year ago. I decided to stick with the doctor I have and just measure the pills myself as I taper. It's frustrating and infuriating that it has to be this way, but I had to give up searching in the medical community and realized that to do the slow taper I'd have to do it myself.

As far as I'm aware the lowest does of klonopin available regularly is .5 mg. I have to be much more exact. I currently use a dry taper with an advanced scale. I take it 4 times a day and go down by 1 mg of pill weight (not medication amount that's different) every other day. I was at .5 mg in August 2020 and am at .2 mg now. (.05 mg 4 times a day)

I use the dry taper method. Other methods include a liquid taper or using a compounding pharmacy if you can find a cooperative doctor.

I think on thus site there are specific instructions for each method.

I hope that helps and good luck.

P.s. the amount of withdrawal symptoms  I've had are dizzying  I've experienced so many weird things I just don't do as much as speculating as I used to
Suggestions, opinions and/or advice provided by the author of this post should not be regarded as medical advice; nor should it substitute for professional medical care. Consult your doctor before making any changes to your medication. Please read our Community Policy Documents board for further information.

[Buddie]

Re: Long term clonazepam user
« Reply #23 on: May 13, 2022, 04:15:07 am »
I am thinking that it is ultimately up to me, since there is either apathy, ignorance, or not common knowledge in the medical community that benzo harm is rampant. 

Thank you for the advice, [...]. 

What kind of scale should I get?  I am thinking that since I tried once with a nurse practitioner before and did not succeed, that I should at least try tapering while having a doctor prescribe.   

What bothers me about the dr. is the way he came out and first tried to cut the middle dose of .5 mg to .25 mg right away.  That, to me, is NOT slow.  I am fully aware of how powerful and strong klonopin is, and I am determined to succeed this time around. 

I know I have been putting up with this nonsense for 31 years, and I owe it to myself to a better life--better feelings, better relationships, less irritability.

I want to trust in the process and see the healing as it goes along. 

However, I have had tough breaks with employment--I am not currently working, and I am at that age where I feel the clock is ticking for me regarding retirement.   I am 53, and I want to get in several more years of work so I have at least a decent pension. 

I am trying to work with a vocational counselor through the state called ACCES-VR so I can get employment once again.   

Again, I want to taper off VERY SLOWLY, and since I have three doses, I want to evenly cut the dosages so my body does not react strangely like it did over three years ago. 

Where do I look for a good rule of thumb regarding the first taper?  I do have a good pill cutter, but, at some point, I do think I will have to invest in a scale.   

I do know that this is going to be hell on earth with withdrawal, but, being that I've experienced it before, I sincerely think I will win this time around. 

Thanks in advance.
[...]
Suggestions, opinions and/or advice provided by the author of this post should not be regarded as medical advice; nor should it substitute for professional medical care. Consult your doctor before making any changes to your medication. Please read our Community Policy Documents board for further information.

[Buddie]

Re: Long term clonazepam user
« Reply #24 on: May 13, 2022, 04:21:07 am »
[...], I was a long time Clonazepam user and I just finished a long taper.  You can do it too. 

Here's the scale that I used for my taper:
https://www.amazon.com/gp/product/B00ESHDGOI/ref=ppx_yo_dt_b_search_asin_title?ie=UTF8&psc=1

Suggestions, opinions and/or advice provided by the author of this post should not be regarded as medical advice; nor should it substitute for professional medical care. Consult your doctor before making any changes to your medication. Please read our Community Policy Documents board for further information.

[Buddie]

Re: Long term clonazepam user
« Reply #25 on: May 13, 2022, 12:01:36 pm »
I am thinking that it is ultimately up to me, since there is either apathy, ignorance, or not common knowledge in the medical community that benzo harm is rampant. 

Thank you for the advice, [...]. 

What kind of scale should I get?  I am thinking that since I tried once with a nurse practitioner before and did not succeed, that I should at least try tapering while having a doctor prescribe.   

What bothers me about the dr. is the way he came out and first tried to cut the middle dose of .5 mg to .25 mg right away.  That, to me, is NOT slow.  I am fully aware of how powerful and strong klonopin is, and I am determined to succeed this time around. 

I know I have been putting up with this nonsense for 31 years, and I owe it to myself to a better life--better feelings, better relationships, less irritability.

I want to trust in the process and see the healing as it goes along. 

However, I have had tough breaks with employment--I am not currently working, and I am at that age where I feel the clock is ticking for me regarding retirement.   I am 53, and I want to get in several more years of work so I have at least a decent pension. 

I am trying to work with a vocational counselor through the state called ACCES-VR so I can get employment once again.   

Again, I want to taper off VERY SLOWLY, and since I have three doses, I want to evenly cut the dosages so my body does not react strangely like it did over three years ago. 

Where do I look for a good rule of thumb regarding the first taper?  I do have a good pill cutter, but, at some point, I do think I will have to invest in a scale.   

I do know that this is going to be hell on earth with withdrawal, but, being that I've experienced it before, I sincerely think I will win this time around. 

Thanks in advance.
[...]

I use a more accurate scale than most doing a dry taper because I am pretty anal about accuracy. I use a scale that reads to 0.0000g. While I think most here use a scale that reads to 0.000g. The problem with a more accurate scale is the price. I think I paid around 600 dollars for mine. I've also thought about maybe switching to a liquid taper at the end but I'm not sure. Also when you have cut up pills it may make it more difficult with traveling.

I think this is the one I use https://www.amazon.com/dp/B01MU940MZ/ref=cm_sw_r_awdo_3QSTJW9W6VYCFGAZ0RBQ?psc=1

I understand that may be out of many's price range and that I am somewhat privileged to be able to get that.

I understand your frustration. I have a similar story to yours (25 years since my 1st dose, in 40s instead of 50s). I've found that while there are certainly a lot of things to ruminate about and things to legitimately complain about attacking the problem itself has been the most mentally healthy thing for me to do.  I have also found an iterative approach works. I have a long term goal but for what I taper I usually go week by week. If Im feeling bad, I hold. Though I realize that my mindset there may not work for everyone but that is what seems to work for me.

I had a very similar experience with my doctor who wanted to cut too fast. It seems a common practice unfortunately.
Suggestions, opinions and/or advice provided by the author of this post should not be regarded as medical advice; nor should it substitute for professional medical care. Consult your doctor before making any changes to your medication. Please read our Community Policy Documents board for further information.

[Buddie]

Re: Long term clonazepam user
« Reply #26 on: May 13, 2022, 12:37:05 pm »
Quote
I have tried, tried, tried repeatedly to find a doctor that will take my insurance, and when they do, I am put on a waiting list.

Who prescribes the .5 mgs TID of klonopin now that you are currently taking?
Suggestions, opinions and/or advice provided by the author of this post should not be regarded as medical advice; nor should it substitute for professional medical care. Consult your doctor before making any changes to your medication. Please read our Community Policy Documents board for further information.

[Buddie]

Re: Long term clonazepam user
« Reply #27 on: May 13, 2022, 12:39:21 pm »
Quote
I think this is the one I use https://www.amazon.com/dp/B01MU940MZ/ref=cm_sw_r_awdo_3QSTJW9W6VYCFGAZ0RBQ?psc=1

I understand that may be out of many's price range and that I am somewhat privileged to be able to get that.

Glad you can afford Hope. This is ideal for dry cutting, but unfortunately way out of my price range.  :'(
Suggestions, opinions and/or advice provided by the author of this post should not be regarded as medical advice; nor should it substitute for professional medical care. Consult your doctor before making any changes to your medication. Please read our Community Policy Documents board for further information.

[Buddie]

Re: Long term clonazepam user
« Reply #28 on: May 13, 2022, 10:56:49 pm »
Sorry about that. Didn't mean to get you down. As I said there are other methods such as the liquid taper which I believe has similar accuracy. You can also try dry tapering with a less accurate scale. I believe others here have done it successfully.
Suggestions, opinions and/or advice provided by the author of this post should not be regarded as medical advice; nor should it substitute for professional medical care. Consult your doctor before making any changes to your medication. Please read our Community Policy Documents board for further information.

[Buddie]

Re: Long term clonazepam user
« Reply #29 on: May 13, 2022, 11:36:51 pm »
No, you did not get me down. I am ok. Cheers! Enjoy your weekend. :)
Suggestions, opinions and/or advice provided by the author of this post should not be regarded as medical advice; nor should it substitute for professional medical care. Consult your doctor before making any changes to your medication. Please read our Community Policy Documents board for further information.