Author Topic: FREE 10/28 Benzodiazepine-Induced Brain Injury: The Hidden Prescription Epidemic  (Read 2293 times)

[Buddie]

October 28th at 8:30-9:45 am Mountain Daylight Time (7:30-8:45 am Pacific, 9:30-10:45 am Central, 10:30-11:45 am Eastern) the Colorado Consortiumís 2021 Annual Meeting is hosting a free session on Zoom entitled Benzodiazepine-Induced Brain Injury: The Hidden Prescription Epidemic. Questions should be directed to info@corxconsortium.org.

Presenters:

Nicole Lamberson, PA, Benzodiazepine Information Coalition's Medical Advisory Board

John Staight, patient advocate

Alexis Ritvo, MD, Colorado Consortium Benzodiazepine Action Work Group co-chair

D.E. Foster, Benzo Free Podcast, Easing Anxiety, Colorado Consortium Benzodiazepine Action Work Group co-chair

Moderator: Jamie Feld, MPH

Session Description:

There is a growing crisis of patient harm from prescribed benzodiazepines, a class of medications traditionally prescribed for anxiety, sleep and anesthesia.

While benzodiazepines have some limited indications, they are often prescribed in the absence of adequate research and for far longer than the recommended time limitation of 2-4 weeks.

In September 2020, the FDA added a black box warning to prescription benzodiazepines. This warning states that "Physical dependence can occur when benzodiazepines are taken steadily for several days to weeks, even as prescribed." And that "Stopping them abruptly or reducing the dosage too quickly can result in withdrawal reactions, including seizures, which can be life-threatening." Unfortunately, much of the public and many healthcare providers are unaware of this warning.

Studies report 10-44% of chronic benzodiazepine users experience moderate to severe protracted withdrawal symptoms upon cessation lasting months to years; some have suggested calling this phenomena "Benzodiazepine Induced Brain Injury" or "Benzodiazepine Injury Syndrome".

This session looks at the benzodiazepine crisis from the perspectives of medical professionals, affected patients, and community organizers. The goal of this session is to increase knowledge about safer prescribing and deprescribing of benzodiazepines.

Sign up at the link below and select BENZOS as your concurrent session:

https://ucdenver.zoom.us/meeting/register/tJMlfuCtrDsuE9UPHq2Y2b9H_jxD14NRZm66
« Last Edit: October 08, 2021, 03:54:16 am by [Buddie] »
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[Buddie]

Let everyone know on this forum who can't attend the session what they discussed.  I can't attend.
Suggestions, opinions and/or advice provided by the author of this post should not be regarded as medical advice; nor should it substitute for professional medical care. Consult your doctor before making any changes to your medication. Please read our Community Policy Documents board for further information.

[Buddie]

Yes, I'm hoping there will be a video made available after the fact here. I can't attend either, but I'd be interested in seeing it after-the-fact.
Suggestions, opinions and/or advice provided by the author of this post should not be regarded as medical advice; nor should it substitute for professional medical care. Consult your doctor before making any changes to your medication. Please read our Community Policy Documents board for further information.

[Buddie]

I signed up and will try to attend. Thank you for this information.
Suggestions, opinions and/or advice provided by the author of this post should not be regarded as medical advice; nor should it substitute for professional medical care. Consult your doctor before making any changes to your medication. Please read our Community Policy Documents board for further information.

[Buddie]

I hope that some of these speakers will address what if anything can be done for those of us who have suffered for years from Benzodiazepine Injury Syndrome. If not, for God's sake someone please ask.

It feels like we are modern medicine's dirty little secret that are being swept under the rug and forgotten about. 

It seems like the medical profession should be held to the standard of "If you break it you ought to try to fix it".  But, by in large they won't admit that we exist, much less spend any resources to try to help us. Our doctors were Johnny on the spot when it came to passing out prescriptions like candy and the pharmaceutical companies made their billions off these drugs.  Their lives and their companies have moved on, but we remain here stuck in hell, the detritus of Big Medicine. We really don't know what has been done to us since no one is doing the fundamental research to figure that out.






 
Suggestions, opinions and/or advice provided by the author of this post should not be regarded as medical advice; nor should it substitute for professional medical care. Consult your doctor before making any changes to your medication. Please read our Community Policy Documents board for further information.

[Buddie]

[...], you always are spot on with what you say.  What really sucks is that many of us are too sick to speak out and complain about it because we have injured brains.
Suggestions, opinions and/or advice provided by the author of this post should not be regarded as medical advice; nor should it substitute for professional medical care. Consult your doctor before making any changes to your medication. Please read our Community Policy Documents board for further information.

[Buddie]

I hope that some of these speakers will address what if anything can be done for those of us who have suffered for years from Benzodiazepine Injury Syndrome. If not, for God's sake someone please ask.

It feels like we are modern medicine's dirty little secret that are being swept under the rug and forgotten about. 

It seems like the medical profession should be held to the standard of "If you break it you ought to try to fix it".  But, by in large they won't admit that we exist, much less spend any resources to try to help us. Our doctors were Johnny on the spot when it came to passing out prescriptions like candy and the pharmaceutical companies made their billions off these drugs.  Their lives and their companies have moved on, but we remain here stuck in hell, the detritus of Big Medicine. We really don't know what has been done to us since no one is doing the fundamental research to figure that out.



 

3/4 of the panel is injured. I'm sure they'd like these answers, too.
Suggestions, opinions and/or advice provided by the author of this post should not be regarded as medical advice; nor should it substitute for professional medical care. Consult your doctor before making any changes to your medication. Please read our Community Policy Documents board for further information.

[Buddie]

I hope that some of these speakers will address what if anything can be done for those of us who have suffered for years from Benzodiazepine Injury Syndrome. If not, for God's sake someone please ask.

It feels like we are modern medicine's dirty little secret that are being swept under the rug and forgotten about. 

It seems like the medical profession should be held to the standard of "If you break it you ought to try to fix it".  But, by in large they won't admit that we exist, much less spend any resources to try to help us. Our doctors were Johnny on the spot when it came to passing out prescriptions like candy and the pharmaceutical companies made their billions off these drugs.  Their lives and their companies have moved on, but we remain here stuck in hell, the detritus of Big Medicine. We really don't know what has been done to us since no one is doing the fundamental research to figure that out.



 

3/4 of the panel is injured. I'm sure they'd like these answers, too.

[...]'s comment is spot on, imo. I will add, imo, that based upon my personal experience (I've been on prescribed dosages of Valium and Xanax my entire adult life) and based upon my observations of my personal friends' experiences that tapering and withdrawal from benzos only make the symptom related injuries worse ... even after a prolonged abstinence of benzodiazepines (many years). Will the panel of experts please address the issues related to the severe reduced cognitive and physical functionality of patients who taper and cease using benzos? Some current unbiased, factual statistics and data would be appreciated.
Suggestions, opinions and/or advice provided by the author of this post should not be regarded as medical advice; nor should it substitute for professional medical care. Consult your doctor before making any changes to your medication. Please read our Community Policy Documents board for further information.

[Buddie]

I hope that some of these speakers will address what if anything can be done for those of us who have suffered for years from Benzodiazepine Injury Syndrome. If not, for God's sake someone please ask.

It feels like we are modern medicine's dirty little secret that are being swept under the rug and forgotten about. 

It seems like the medical profession should be held to the standard of "If you break it you ought to try to fix it".  But, by in large they won't admit that we exist, much less spend any resources to try to help us. Our doctors were Johnny on the spot when it came to passing out prescriptions like candy and the pharmaceutical companies made their billions off these drugs.  Their lives and their companies have moved on, but we remain here stuck in hell, the detritus of Big Medicine. We really don't know what has been done to us since no one is doing the fundamental research to figure that out.



 

3/4 of the panel is injured. I'm sure they'd like these answers, too.

[...]'s comment is spot on, imo. I will add, imo, that based upon my personal experience (I've been on prescribed dosages of Valium and Xanax my entire adult life) and based upon my observations of my personal friends' experiences that tapering and withdrawal from benzos only make the symptom related injuries worse ... even after a prolonged abstinence of benzodiazepines (many years). Will the panel of experts please address the issues related to the severe reduced cognitive and physical functionality of patients who taper and cease using benzos? Some current unbiased, factual statistics and data would be appreciated.

Your experience and that of your friends is just one segment of the population, just as my and pianogirls experience of complete recovery after a cold turkey and taper respectively, is ours.  Anecdotal evidence is just that and while you believe no one can recover after tapering from benzodiazepines, I believe they can and we have hundreds of success stories attesting to this. 

Stating this " Will the panel of experts please address the issues related to the severe reduced cognitive and physical functionality of patients who taper and cease using benzos? " shows your own bias.
Suggestions, opinions and/or advice provided by the author of this post should not be regarded as medical advice; nor should it substitute for professional medical care. Consult your doctor before making any changes to your medication. Please read our Community Policy Documents board for further information.

[Buddie]

I hope that some of these speakers will address what if anything can be done for those of us who have suffered for years from Benzodiazepine Injury Syndrome. If not, for God's sake someone please ask.

It feels like we are modern medicine's dirty little secret that are being swept under the rug and forgotten about. 

It seems like the medical profession should be held to the standard of "If you break it you ought to try to fix it".  But, by in large they won't admit that we exist, much less spend any resources to try to help us. Our doctors were Johnny on the spot when it came to passing out prescriptions like candy and the pharmaceutical companies made their billions off these drugs.  Their lives and their companies have moved on, but we remain here stuck in hell, the detritus of Big Medicine. We really don't know what has been done to us since no one is doing the fundamental research to figure that out.



 

3/4 of the panel is injured. I'm sure they'd like these answers, too.

[...]'s comment is spot on, imo. I will add, imo, that based upon my personal experience (I've been on prescribed dosages of Valium and Xanax my entire adult life) and based upon my observations of my personal friends' experiences that tapering and withdrawal from benzos only make the symptom related injuries worse ... even after a prolonged abstinence of benzodiazepines (many years). Will the panel of experts please address the issues related to the severe reduced cognitive and physical functionality of patients who taper and cease using benzos? Some current unbiased, factual statistics and data would be appreciated.

Your experience and that of your friends is just one segment of the population, just as my and pianogirls experience of complete recovery after a cold turkey and taper respectively, is ours.  Anecdotal evidence is just that and while you believe no one can recover after tapering from benzodiazepines, I believe they can and we have hundreds of success stories attesting to this. 

Stating this " Will the panel of experts please address the issues related to the severe reduced cognitive and physical functionality of patients who taper and cease using benzos? " shows your own bias.

What you describe as my bias is my experience and similar experiences of my personal friends. I was in the situation of being the sole breadwinner for my family and became totally dysfunctional following the discontinuation of Valium. My doctors and I agreed that I needed to reinstate (they prescribed Xanax) for my and my childrens' benefit. As it turned out, after reinstating and regaining my cognitive and physical capabilities, I was able to assist my children in completing their educations with honors and are they are now medical doctors. I was able to successfully continue with and then retire from my career. For me, the benefits  associated with reinstating the use of benzos far exceeded the risks of not doing so. I am certain there are many circumstances similar to mine. Will the panel address circumstances such as I just described?

Edit: If the panel does not address these types of circumstances, I would consider that to be bias.   

"The Residual Medium and Long-term Cognitive Effects of Benzodiazepine Use: An Updated Meta-analysis" https://pubmed.ncbi.nlm.nih.gov/29244060/

"Conclusions: The results of the study are important in that they corroborate the mounting evidence that a range of neuropsychological functions are impaired as a result of long-term benzodiazepine use, and that these are likely to persist even following withdrawal. The findings highlight the residual neurocognitive compromise associated with long-term benzodiazepine therapy as well as the important clinical implications of these results."

^That is not anecdotal evidence.
« Last Edit: October 10, 2021, 07:05:09 pm by [Buddie] »
Suggestions, opinions and/or advice provided by the author of this post should not be regarded as medical advice; nor should it substitute for professional medical care. Consult your doctor before making any changes to your medication. Please read our Community Policy Documents board for further information.