Author Topic: agoraphobia support group  (Read 1093 times)

[Buddie]

Re: agoraphobia support group
« Reply #10 on: July 19, 2021, 04:18:41 am »
same to you [...]   
Suggestions, opinions and/or advice provided by the author of this post should not be regarded as medical advice; nor should it substitute for professional medical care. Consult your doctor before making any changes to your medication. Please read our Community Policy Documents board for further information.

[Buddie]

Re: agoraphobia support group
« Reply #11 on: July 19, 2021, 11:23:21 am »
Hey mate,  im having a clinical issue for a long time, besides of.all the things i need and want to care about and cant since i became agoraphobic  it can be something serious

   I will need to push myself go to a pneumologist, i think my cns settled down and my anxiety aswell to a point that im capable to push myself to go without taking a rescue dose ..

i confess that if it was not a serious question i wold not push myself given the agoraphobia and the general discomfort to go out .. but its something thats making me scared and its causing pain and.discomfort , it has even the possibility of beeing something really bad/ serious so i will need to push myself to check,   maybe by going out and exposing to solve this will help somehow with the agoraphobia
Suggestions, opinions and/or advice provided by the author of this post should not be regarded as medical advice; nor should it substitute for professional medical care. Consult your doctor before making any changes to your medication. Please read our Community Policy Documents board for further information.

[Buddie]

Re: agoraphobia support group
« Reply #12 on: July 20, 2021, 05:18:32 am »
so sorry to hear about the issue that is bothering you i hope everything turn out ok [...]......  if you think your anxiety and cns is healed enough i would suggest a test run with with agoraphobia  we all can push through if we have to but we dont want set backs.....  i found it a lot easier to build up to things gradually then to just force my self in a very uncomfortable situation .......  i am  honestly shocked that this support group has very little interaction given the numbers on this website...
Suggestions, opinions and/or advice provided by the author of this post should not be regarded as medical advice; nor should it substitute for professional medical care. Consult your doctor before making any changes to your medication. Please read our Community Policy Documents board for further information.

[Buddie]

Re: agoraphobia support group
« Reply #13 on: July 20, 2021, 08:04:58 am »
I was thinking the same thing earlier about the litltle numbers of buddies affected by it interacting on here

 The reality is , im still too much unstable, mentally affected/ impaired and emotionally unstable .. a litle stress and i see myself with obsessive rumination toughts and moaning because of anxiety the rest of the day

Im sorry for rambling and if i dont have much to help mate ...just my point of view

I  dont see my cns in a considerable good.baseline...  and im in need to pushmyself to check this, just awfull

 I see it like as cns related, that ends up causing anxiety and depression in the end it tends to affect the psychological ( in my case)

 You see, first time i had an agoraphobic response, i had never experienced anything like it prior, neither severe anxiety, or depression or anything that was mentally distressing...it was a " behavioral problem" , after being medicated for 2 months i developed it ... ( they didnt gave me benzos) the result was awfull anyway... almost 8 months totally agoraphobic and deeply distressed mentally,

it was traumatic, but i dont think a traumatic experience of being hold against my will wiuld have been a problem without the part of being given drugs that deeply affects the brain and cns.. 10 months later it all faded ... the agoraphobia aswell
   
 You had agoraphobia prior to benzos ?

Suggestions, opinions and/or advice provided by the author of this post should not be regarded as medical advice; nor should it substitute for professional medical care. Consult your doctor before making any changes to your medication. Please read our Community Policy Documents board for further information.

[Buddie]

Re: agoraphobia support group
« Reply #14 on: July 21, 2021, 05:34:04 am »
no i did not have agoraphobia till i was on benzos for 5 years   never anything like it at all...... even before benzos the anxiety i experienced and panic attacks where mild to what i have experienced on the drug.....  i do not see the agoraphobia as a cns problem for me i see it as more or a gaba and Glutamate  problem   because i am on the benzo my gaba is down regulated and shot.... so when the glutamate starts ramping up it cause extreme anxiety and anxiety and panic attacks   .....   maybe if we keep the form alive others will join i know its a huge part of the benzo community.....   where are you from ?   i am from  USA   ohio
Suggestions, opinions and/or advice provided by the author of this post should not be regarded as medical advice; nor should it substitute for professional medical care. Consult your doctor before making any changes to your medication. Please read our Community Policy Documents board for further information.

[Buddie]

Re: agoraphobia support group
« Reply #15 on: July 21, 2021, 10:25:01 am »
i'm brazilian , so sometimes i misspell or not put exactly what i want to say

When I adressed the nervous system I wanted to encompass what you put about glutamate and GABA in a general way and I wanted to say that it is a chemically induced condition, it affects the psychological but it is not a natural condition, I think you understand what I mean

even being confuse to understand the dose ur currently on jn your signature I saw that you are micro tapering

In your case, when holding the cut for a while, do you reach a certain stability?

 'if yes, as it is not a linear process and the occurrence of waves of symptoms, it is not difficult to see that you have stabilized to the point of another cut?

 I didn't see myself able to have this microcut routine due to not knowing how much incapacitation it was going to cause me and that I probably wouldn't be able to continue, I jumped from 20 mg of valium this time, it totally broke me partner, months on end of extreme suffering, even with all the incapacitation I'm still in, this kind of deep and extreme suffering has passed

I believe this glutamatergic theory is well refined, due to how much a drug that holds back excess nerve transmission and the glutamatergic storm made me go from totally dysfunctional to functional and feeling somewhat good, ( based on my prior wd) 

 I ended up giving in to a vicious circle, a drug to control the suffering induced by another drug
  since you've been able to maintain the routine without despair, I believe that going at the pace you can handle so that you don't completely break like I did is the best thing you can do mate,
  so that you don't end up in the vicious cycle of medication. this medication significantly decreases the induced mess in my brain but even when healing significantly from benzodiazepine damage I will have to have a lot of patience and engagement in the small cuts routine to discontinue pregabalin without collapsing again

 I believe that you like me and (in most cases) that giving the necessary time to heal ( you/I and everyone) who had this agoraphobic response in this process will break free from this agoraphobia according to the brain homeistasis and stability of the excitatory and gabaergic or whatever the mess caused

 The big problem is not knowing how long it will take to reach a stability to the point of significantly reducing the barrier caused by this anxious situation.

Another big problem its my impatience and also the psychological impact,

 

Besides of agoraphibia what symptoms have been most bothering you ?
 Hold on, it will get easyer as you heal
Suggestions, opinions and/or advice provided by the author of this post should not be regarded as medical advice; nor should it substitute for professional medical care. Consult your doctor before making any changes to your medication. Please read our Community Policy Documents board for further information.

[Buddie]

Re: agoraphobia support group
« Reply #16 on: July 22, 2021, 09:28:14 pm »
very well written i agree with you but i am not micro tapering  i am not tapering at all.....  i have had a one failed taper in the past under doctors supervision i was on 1.5mg and it was a 40 day taper  that was in 2014   i got all the way down to 0.25mg  but could not stay there and i slowly climb back up the ladder to where i am at today but i have gained a signifcant amount of knowledge on how to taper i have been studying benzos for 7 years now i have been on them 8
Suggestions, opinions and/or advice provided by the author of this post should not be regarded as medical advice; nor should it substitute for professional medical care. Consult your doctor before making any changes to your medication. Please read our Community Policy Documents board for further information.

[Buddie]

Re: agoraphobia support group
« Reply #17 on: July 26, 2021, 04:39:12 pm »
Hello all,
I have agoraphobia as well.  I try my best to stay home and I do not go out at all unless I absolutely have to!  I really hate riding in a car as I am so scared that we will have a car accident!  Years ago, I was almost in a car wreck and have not liked riding in a car since!  But - I was able to do it without too much of a problem until 5 years ago when I was put on xanax and then cold turkey'd by a doctor that did not know anything about what the drug would do if you just stop taking it.  I did not know it was a cold turkey at the time and was very, very ill for over 6 months before a doctor put me back on the xanax and over time, went up to 4 mg a day!  The issue for me has been that I have had this anxiety of riding in a car since 1990 and have been able to live with it, even though the anxiety is rough.  Since the pandemic started, I have only left my home around 10 times as I was so scared to go out because I was scared my husband or myself would get covid.  He is high risk so I just did everything I could to stay in.  Have had groceries delivered etc.  Now we are both vaccinated and can go out, I just hate it.  The further down I go in dose with my taper, the worse this fear of going out and riding gets.  I do not drive so I am forced to have to ride.  I try to go out but I get scared and do most anything to not have to!  It does pose a problem for my husband as he tries to make it easier for me but the anxiety is so real!  I am going to talk to my therapist about it again and see what she suggest.  I worry what it will be like once I am off xanax.  I am down to .4688 and am hoping to be off xanax in a few months.  I have been tapering since January 2019.  I also want to be off this drug.

I do like what I read about exposure therapy.  I am going to look into that!

I hope you all the best and I hope and pray things get better for all of us.  I am so close to being off this drug and want to be able to function and go out again!

Hugs,
[...]
Suggestions, opinions and/or advice provided by the author of this post should not be regarded as medical advice; nor should it substitute for professional medical care. Consult your doctor before making any changes to your medication. Please read our Community Policy Documents board for further information.

[Buddie]

Re: agoraphobia support group
« Reply #18 on: July 27, 2021, 05:19:49 am »
hi juila thank you for sharing......   exposure therapy works when you can identify the though behind what is cause the anxiety or ect... right now i am therapy also and i am learning cognitive behavior therapy  to help identify the though patterns   but unfortunately  we as benzo users have chemical induce anxiety and especially when tapering and were not stable... but its still worth a shot to figure out what you can control in your mind and what is chemical from the benzo ...  also another thing that helps me when i have to go places which is rarly is to sit in the back seat and having the option of laying down with the covers i find that being it the front seat with the big windshield and seeing everything is very overstimulating  vs when your in the back  seat you only can look out to the side of the road  through a much much smaller window 
Suggestions, opinions and/or advice provided by the author of this post should not be regarded as medical advice; nor should it substitute for professional medical care. Consult your doctor before making any changes to your medication. Please read our Community Policy Documents board for further information.

[Buddie]

Re: agoraphobia support group
« Reply #19 on: July 27, 2021, 05:43:02 pm »
hi juila thank you for sharing......   exposure therapy works when you can identify the though behind what is cause the anxiety or ect... right now i am therapy also and i am learning cognitive behavior therapy  to help identify the though patterns   but unfortunately  we as benzo users have chemical induce anxiety and especially when tapering and were not stable... but its still worth a shot to figure out what you can control in your mind and what is chemical from the benzo ...  also another thing that helps me when i have to go places which is rarly is to sit in the back seat and having the option of laying down with the covers i find that being it the front seat with the big windshield and seeing everything is very overstimulating  vs when your in the back  seat you only can look out to the side of the road  through a much much smaller window

Hello,
Thanks for the response.  I have tried cognitive therapy but it has not done much for this so far!  Once I am off the xanax I am going to work on this more.  Right now I am just trying to get to the end of this taper and hope some of this gets better.  I was able to tolerate this before I was put on xanax and then the CT but since that time this has gotten really bad for me.

I have the same issue with the large windshield and it looks like everything is coming at me!  I have actually sat in the back seat before when there was a third person in the car and it does help!  I may try it again if this does not get better!

Take care!!
[...]
Suggestions, opinions and/or advice provided by the author of this post should not be regarded as medical advice; nor should it substitute for professional medical care. Consult your doctor before making any changes to your medication. Please read our Community Policy Documents board for further information.