Jump to content

Naproxen reaction..??


[Ca...]

Recommended Posts

Anyone had or know about..??

 

Just started for the Bells Palsy, 500x2/d -was the second tablet that did it..

 

Strong reflux type chest pain (no reflux), Tight face/cheek/jaw bone pain, a bit anaphylactic feeling..

 

-Insomnia

 

Breathing was tight and off at first when laying down, but seems fine sitting now..

 

Got to go in for bloods soon, so will obviously check while there..

 

Ty

:)

 

Link to comment
Share on other sites

[d6...]

It may not be the drug itself, but one the excipients in it that you are allergic to.

 

Have you had this with other substance or drugs?

 

Normal allergy testing won't pick this up as an actual allergy.

 

This happened to me after I took antibiotics, my whole life I could take Advil, dramamine etc.

The next, all these things made my heart go crazy.

I was also all of a sudden allergic to food that I never had a problem with before.

 

If that is like you, you might benefit from seeing an immunologist who specializes in histamine/mast cell issues.

There are around 8-9 different tests that they can run, the tricky part is that even if all the tests come back negative, a patient can still have it.

One way they can figure out a way around this is by trying some antihistamines and seeing if the patient responds well.

 

Good luck

 

 

Link to comment
Share on other sites

Winnie took the words right out of my mouth!  😊 it’s ALOT of testing. I had 4 different 24hour urine tests and 35 vials of blood taken to check for it. I had high white blood cells, high lymphocytes, Ensophils, and high histamine.  Still waiting on two results. But it sounds like you are possibly having a mast cell reaction. You should talk to your doctor about it.
Link to comment
Share on other sites

[d6...]

Anyone had or know about..??

 

Just started for the Bells Palsy, 500x2/d -was the second tablet that did it..

 

Strong reflux type chest pain (no reflux), Tight face/cheek/jaw bone pain, a bit anaphylactic feeling..

 

-Insomnia

 

Breathing was tight and off at first when laying down, but seems fine sitting now..

 

Got to go in for bloods soon, so will obviously check while there..

 

Ty

:)

 

It's best if you contact your doctor and report these side effects before taking more of this med.

 

"Serious side effects

 

Call your doctor right away if you have serious side effects. Call 911 if your symptoms feel life-threatening or if you think you’re having a medical emergency. Serious side effects and their symptoms can include the following:

 

chest pain

shortness of breath or trouble breathing"

 

https://www.healthline.com/health/naproxen-oral-tablet#side-effects

 

Eric is absolutely correct - he gave the smarter advice.

I apologize, as I should have started with this.

 

If you are having trouble breathing and think it's a reaction to the med. - go see dr immediately or call 911.

 

All the other tests can wait once you are stable, and may or may not be relevant etc.

 

 

Link to comment
Share on other sites

Thanks guys.. :)

Home again now, and its settling down lots.. I assume dose #1 is being eliminated and the second one soon.. Dr wasnt much help, just said too much for me, stop.. Might skip the Prednisone too, only had 2 half doses left anyway to end of 10 day course..

That sure was intense..!!

 

Eric, as per yesterdays convo.. The swelling has loosened up lots, -by appearance at least, in conjunction with the naproxen and/or probs the massaging... With that came a decent improvement in the palsy... Thats the main thing for now.. Ta for the support..

 

Ummm... errrr.. Winnie, Paxia.. :) That was a bold leap of faith with the hist. stuff..!! Lol

We will see, im immersed in that theory atm as you may know from my posting in a few places, but its complex thing, and what is driving what is important.. While appearing to be problematic, histamine systems may be doing just what it should under duress...

Pls dont get me wrong, the heads up is appreciated, even more the support.. But boy its complex and individual, and as you mention I will need professional help when I get to that point and am able..

Keep up the good work guys, and thanks..

 

Hope that came out right, -Must be nap time.. Has been quite the week or two..

I see my normal Dr in 2days, that might help..!!

:)

 

 

Link to comment
Share on other sites

Thanks guys.. :)

Home again now, and its settling down lots.. I assume dose #1 is being eliminated and the second one soon.. Dr wasnt much help, just said too much for me, stop.. Might skip the Prednisone too, only had 2 half doses left anyway to end of 10 day course..

That sure was intense..!!

 

Eric, as per yesterdays convo.. The swelling has loosened up lots, -by appearance at least, in conjunction with the naproxen and/or probs the massaging... With that came a decent improvement in the palsy... Thats the main thing for now.. Ta for the support..

 

 

 

It's the prednisone that has helped the most with the swelling and inflammation because that's what it does. It's best to finish this med because it's the one that's most important in treating the Bell's palsy. If you doctor didn't tell you to stop the prednisone then you should finish the course of that treatment.

 

"Oral corticosteroids have traditionally been prescribed to reduce facial nerve inflammation in patients with Bell's palsy. Prednisone is typically prescribed in a 10-day tapering course starting at 60 mg per day"

https://www.aafp.org/afp/2007/1001/p997.html

Yeah, I hear you.. Wish I had a decisive Dr on this, but it didnt turn out that way for a few reasons.. First it was none (sight unseen), then 5x@50mg, no improvement so I got a kinda whateva @7x50mg and a bit of a taper up to 10 days total..

I really am left to make a judgment call here till the day after tomorrow.. -its fkn crazy..!!

The bottom line is I FEEL taking another anything (they both messed me up) would be dangerous.. I dont feel well at all.. -Strange things going on, I truly feel quite like just before “coding” in hosp from sepsis, but obviously not for that reason... No true rigours with crazy temps.. Yay..

Bit beyond the scope of BB, I know...

Thanks again..

:)

 

Link to comment
Share on other sites

Thanks guys.. :)

Home again now, and its settling down lots.. I assume dose #1 is being eliminated and the second one soon.. Dr wasnt much help, just said too much for me, stop.. Might skip the Prednisone too, only had 2 half doses left anyway to end of 10 day course..

That sure was intense..!!

 

Eric, as per yesterdays convo.. The swelling has loosened up lots, -by appearance at least, in conjunction with the naproxen and/or probs the massaging... With that came a decent improvement in the palsy... Thats the main thing for now.. Ta for the support..

 

 

 

It's the prednisone that has helped the most with the swelling and inflammation because that's what it does. It's best to finish this med because it's the one that's most important in treating the Bell's palsy. If you doctor didn't tell you to stop the prednisone then you should finish the course of that treatment.

 

"Oral corticosteroids have traditionally been prescribed to reduce facial nerve inflammation in patients with Bell's palsy. Prednisone is typically prescribed in a 10-day tapering course starting at 60 mg per day"

https://www.aafp.org/afp/2007/1001/p997.html

Yeah, I hear you.. Wish I had a decisive Dr on this, but it didnt turn out that way for a few reasons.. First it was none (sight unseen), then 5x@50mg, no improvement so I got a kinda whateva @7x50mg and a bit of a taper up to 10 days total..

I really am left to make a judgment call here till the day after tomorrow.. -its fkn crazy..!!

The bottom line is I FEEL taking another anything (they both messed me up) would be dangerous.. I dont feel well at all.. -Strange things going on, I truly feel quite like just before “coding” in hosp from sepsis, but obviously not for that reason... No true rigours with crazy temps.. Yay..

Bit beyond the scope of BB, I know...

Thanks again..

:)

 

How long ago did you have sepsis????  That’s a crazy dangerous diagnosis.  How long did it take you to recover from that?  You don’t have to answer if you are uncomfortable I understand if that’s the case. I’m just curious.

Link to comment
Share on other sites

 

“How long ago did you have sepsis????  That’s a crazy dangerous diagnosis.  How long did it take you to recover from that?  You don’t have to answer if you are uncomfortable I understand if that’s the case. I’m just curious.”

 

 

Paxia,

Thats fine to ask.. -sure you wanna hear..!! :(

Everything gets lost over time here on BB and so many that know my story are long gone.. I tried to collect a few of my earlier posts on the early pages of my blog for posterity, I knew I had a long road ahead..

Iv just got my sig down for the moment to edit a bit when I can, -bad timing.. But it was “dye my hair a random colour today” kinda day but for my sig..

 

So, 2009... Hit by car on my motorbike.. Smashed crab, -Half a pelvis in lung, ruptured bowel, bladder, spleen, etc.. Induced... sepsis #1 and 2..

2012... Pelvic fixation once stable, sepsis 3...  Plate broke in hosp, sepsis 4, strip out fixations and grafting, about 3 months of picc line antibiotics, more washouts and transfusions, throw in VRE and a “probable” Lyme infection, -Final “tonka” fixation..

lol, the short story..

 

I had a couple of questions for you and Winnie too.. Was gunna wait till I feel a bit better, but the essence of it was if you could both describe any GI issues.. -Transit, peristalsis, SIBO, leaky gut, reflux, etc..

Do you feel this contributes to any histamine issues..??

Have you found probiotics toxic, -or even eating (possibly anything at all)..

You can probably see im angling towards a possible systemic inflammation pathway to a histamine response..

Obviously this is very much MY situation, speculative at best at this point, NOT exactly WD related, and I think you mentioned DAO down regulation somewhere as your DX.. -So just curious..

-When, as, and if you please.. Simple answer is fine too..

 

:)

 

Link to comment
Share on other sites

 

“How long ago did you have sepsis????  That’s a crazy dangerous diagnosis.  How long did it take you to recover from that?  You don’t have to answer if you are uncomfortable I understand if that’s the case. I’m just curious.”

 

 

Paxia,

Thats fine to ask.. -sure you wanna hear..!! :(

Everything gets lost over time here on BB and so many that know my story are long gone.. I tried to collect a few of my earlier posts on the early pages of my blog for posterity, I knew I had a long road ahead..

Iv just got my sig down for the moment to edit a bit when I can, -bad timing.. But it was “dye my hair a random colour today” kinda day but for my sig..

 

So, 2009... Hit by car on my motorbike.. Smashed crab, -Half a pelvis in lung, ruptured bowel, bladder, spleen, etc.. Induced... sepsis #1 and 2..

2012... Pelvic fixation once stable, sepsis 3...  Plate broke in hosp, sepsis 4, strip out fixations and grafting, about 3 months of picc line antibiotics, more washouts and transfusions, throw in VRE and a “probable” Lyme infection, -Final “tonka” fixation..

lol, the short story..

 

I had a couple of questions for you and Winnie too.. Was gunna wait till I feel a bit better, but the essence of it was if you could both describe any GI issues.. -Transit, peristalsis, SIBO, leaky gut, reflux, etc..

Do you feel this contributes to any histamine issues..??

Have you found probiotics toxic, -or even eating (possibly anything at all)..

You can probably see im angling towards a possible systemic inflammation pathway to a histamine response..

Obviously this is very much MY situation, speculative at best at this point, NOT exactly WD related, and I think you mentioned DAO down regulation somewhere as your DX.. -So just curious..

-When, as, and if you please.. Simple answer is fine too..

 

:)

 

Ohmy!!!  That’s a lot of trauma to the body!  I’m so sorry to hear all of that happened to you!  And how strong of a person are you to keep trudging through all of this after all of that!!!  I will gladly answer questions you have. I actually didn’t know I had reflux. I didn’t show the normal signs of it. I knew I had a malabsorption issue going on. I always had really runny yellow stools. Probiotics made my withdrawals worse, that was the first thing my PCP put me on once I started getting the runny stools. So I had to stop those. I started taking pancreatic enzymes and those made my stools more solid but they were still very yellow. My PCP kept urging me to see a GI specialist but I kept putting it off. I really didn’t want to see yet again another specialist to give me some kind of wonky unrealistic diagnosis. But, after speaking individually with a member on here, she had the same things and mentioned that her stools were yellow from reflux and acid build up. Once I looked it up, sure enough yellow stools is definitely a sign of reflux. I never had the heart burn or anything just yellow stools. Once I saw that I started taking Prilosec and scheduled my GI appointment. About a week after starting Prilosec I noticed my heart rate and chest pain subsiding a bit. Once I told my GI doctor that I noticed these symptoms after coming off of benzos. He was like yup!  I know exactly what it is!  It’s mast cell activation syndrome. He put in the labs to get ran and sure enough. I have mast cell activation syndrome which is causing severe organ inflammation. From this I also severely high blood sugars. So right now the only medications I take are metoprolol for my heart rate because it was sooo high and the palpitations were causing an irregular heart rhythm and Prilosec for reflux. I see a mast cell activation specialist next month to discuss further treatment options for the organ inflammation. I hope this helps. If I forgot anything, or you have any additional questions, I’m here to answer.  😊

Link to comment
Share on other sites

Thanks Paxia.. :)

Keep me in the loop on how it goes with the new specialist if you can please.. -Without going to extra trouble of course.. :)

 

Glad you dont get the actual acid reflux too bad.. I dont know how people get through a bad run of that one..?? Im lucky, I dont have any issues I know of above the duodenum..

 

One question was do you get the skin histamine issues with this..?? I dont get much, a couple of itch spots and a few blotches are the worst of it.. I think its about which transmitters are effected for what..?? -lol, think ill have to do some re-reading.. Am already way ahead of myself..

 

Finally came good (normal wd good) this afternoon.. Still shell shocked and a bit brain mushed, but ill live..

 

All the best as you fight on..

:)

 

Link to comment
Share on other sites

Thanks Paxia.. :)

Keep me in the loop on how it goes with the new specialist if you can please.. -Without going to extra trouble of course.. :)

 

Glad you dont get the actual acid reflux too bad.. I dont know how people get through a bad run of that one..?? Im lucky, I dont have any issues I know of above the duodenum..

 

One question was do you get the skin histamine issues with this..?? I dont get much, a couple of itch spots and a few blotches are the worst of it.. I think its about which transmitters are effected for what..?? -lol, think ill have to do some re-reading.. Am already way ahead of myself..

 

Finally came good (normal wd good) this afternoon.. Still shell shocked and a bit brain mushed, but ill live..

 

All the best as you fight on..

:)

 

I do get some skin issues with this. I think they are minor skin issues though. I get the face flushing at times and I get these tiny red like blood spots all over my skin. I’ll get a very tiny minuscule blotchy rash every once in awhile but it goes away in a couple of days to a week. I’m glad you had a better afternoon. 😊

Link to comment
Share on other sites

Thanks Paxia.. :)

Keep me in the loop on how it goes with the new specialist if you can please.. -Without going to extra trouble of course.. :)

 

Glad you dont get the actual acid reflux too bad.. I dont know how people get through a bad run of that one..?? Im lucky, I dont have any issues I know of above the duodenum..

 

One question was do you get the skin histamine issues with this..?? I dont get much, a couple of itch spots and a few blotches are the worst of it.. I think its about which transmitters are effected for what..?? -lol, think ill have to do some re-reading.. Am already way ahead of myself..

 

Finally came good (normal wd good) this afternoon.. Still shell shocked and a bit brain mushed, but ill live..

 

All the best as you fight on..

:)

 

I do get some skin issues with this. I think they are minor skin issues though. I get the face flushing at times and I get these tiny red like blood spots all over my skin. I’ll get a very tiny minuscule blotchy rash every once in awhile but it goes away in a couple of days to a week. I’m glad you had a better afternoon. 😊

Thanks Paxia.. :)

-I might have spoke too soon, but such is life.. -nap time..

 

Ta for the chat..

:)

Link to comment
Share on other sites

I think I may have miss as well.  Were any of you able to get the covid vaccination?  If so, how did you do?

 

I got the Moderna vaccines. I was in a bad wave at the time as well. I had a sore arm, uptick in an already present headache, and massive fatigue for 48 hours. That was all I noticed.  They have a thread on here specifically for the people who have gotten vaccinated to share their experience. I forget where it is located though. If I find it, I will pot you the link.

Link to comment
Share on other sites

Hi Guys.. Just an update..

 

Have been much better for 4 days now after the Naproxen.. Not quite back, my head isnt quite right, and im pretty jittery compared to baseline..

 

Massage is helping the face nerve, but the swelling around the TMJ is pretty persistent..

 

Link to comment
Share on other sites

Next chapter... :(

So I decided to go to my follow up app with the fill in dr that prescribed the dreaded Naproxen.. Mainly cos I had to go in to town anyway, and I could get him to print out my blood results and MRI report, but also to see his thoughts on this swelling around the TMJ... 

 

So he looks in my ear and says I might have an outer ear infection cos it looks inflamed and swollen, -restricted..  Well the whole side of my face feels swollen EXCEPT my ear..!! I couldnt get a clear answer as to actual dermal deterioration -just red and inflamed.. It doesnt feel like an ear infection and there is no pain or irritation in there no matter how I prod n poke.. -Forward of my ear, yes, -at the back of my jaw..

So he has prescribed antibiotics FLUMETASONE/CLIOQUINOL ear drops, -My 3rd lot of ABs now...??!!

 

So as I do, and have done since Adam was a kid, I tried an ear full of Peroxide -3% Not 6%.. -Nothing... Not even the slightest twinge or hint of a little sting.. 

I give up.. He still says he cant determine any swelling in the TMJ area..

The MRI did determine an inflamed facial nerve there though...

Im sure they make it up as they go along..

:(

So... Fill my head with these antibiotics or not..??  Hmmm, might sleep on it...

 

Link to comment
Share on other sites

If it makes you feel less alone in this. I have to start taking anti fungal medication which is just as bad as taking anti biotics!  I have a fungal infection in my gut from this withdrawal and if it persists it can travel into the blood so not taking the anti fungals isn’t an option. 😞 stupid benzos!
Link to comment
Share on other sites

If it makes you feel less alone in this. I have to start taking anti fungal medication which is just as bad as taking anti biotics!  I have a fungal infection in my gut from this withdrawal and if it persists it can travel into the blood so not taking the anti fungals isn’t an option. 😞 stupid benzos!

Well that doesnt sound very good, though a bit too familiar given my suspicions about my GI issues.. Can I ask, was it a result of testing, or how did they (or you) Dx this..? Has pathology confirmed fungi in your blood at this stage..? Did you see a specialist or your Naturopath Dr..?

Sorry, I am all questions, and I know how hard this can be, including getting the help we need as we follow our suspicions in the often dismissive medical industry..

kinda story of my life atm..

Lol, I have a phobia, -against Gastroenterologists, so trying to avoid until I cant.. 

 

Hey, I liked your “White Walker” skin description.. That and the “Claw” sound a bit like the more recent neuropathy under my foot, though its more constant and doesnt sound as violent or volatile as your hand..

 

Feel free to PM me if its easier..

:)

 

 

Link to comment
Share on other sites

If it makes you feel less alone in this. I have to start taking anti fungal medication which is just as bad as taking anti biotics!  I have a fungal infection in my gut from this withdrawal and if it persists it can travel into the blood so not taking the anti fungals isn’t an option. 😞 stupid benzos!

Well that doesnt sound very good, though a bit too familiar given my suspicions about my GI issues.. Can I ask, was it a result of testing, or how did they (or you) Dx this..? Has pathology confirmed fungi in your blood at this stage..? Did you see a specialist or your Naturopath Dr..?

Sorry, I am all questions, and I know how hard this can be, including getting the help we need as we follow our suspicions in the often dismissive medical industry..

kinda story of my life atm..

Lol, I have a phobia, -against Gastroenterologists, so trying to avoid until I cant.. 

 

Hey, I liked your “White Walker” skin description.. That and the “Claw” sound a bit like the more recent neuropathy under my foot, though its more constant and doesnt sound as violent or volatile as your hand..

 

Feel free to PM me if its easier..

:)

 

My GI doctor runs a huge amount of tests to figure out the cause of my chronic diarrhea and malnutrition. The fungal infection was confirmed with fungal stool tests. He ran parasite tests too which came back negative luckily!!!!  He put in the RX for anti fungals already but I’m preparing myself for the possible torture before I go pick them up. He also put in blood work to check if it’s in my blood or not I haven’t gotten them drawn yet though. I’m going to go this weekend.  When I went to my GI doctor I was like I’m having these symptoms and I noticed them when I stopped taking benzos. And he was like okay let’s do this. Ran tests for MCAS and other tests to rule out other things. It was like 35 different tests all together. Along with an endoscopy and colonoscopy.

Link to comment
Share on other sites

If it makes you feel less alone in this. I have to start taking anti fungal medication which is just as bad as taking anti biotics!  I have a fungal infection in my gut from this withdrawal and if it persists it can travel into the blood so not taking the anti fungals isn’t an option. 😞 stupid benzos!

Well that doesnt sound very good, though a bit too familiar given my suspicions about my GI issues.. Can I ask, was it a result of testing, or how did they (or you) Dx this..? Has pathology confirmed fungi in your blood at this stage..? Did you see a specialist or your Naturopath Dr..?

Sorry, I am all questions, and I know how hard this can be, including getting the help we need as we follow our suspicions in the often dismissive medical industry..

kinda story of my life atm..

Lol, I have a phobia, -against Gastroenterologists, so trying to avoid until I cant.. 

 

Hey, I liked your “White Walker” skin description.. That and the “Claw” sound a bit like the more recent neuropathy under my foot, though its more constant and doesnt sound as violent or volatile as your hand..

 

Feel free to PM me if its easier..

:)

 

My GI doctor runs a huge amount of tests to figure out the cause of my chronic diarrhea and malnutrition. The fungal infection was confirmed with fungal stool tests. He ran parasite tests too which came back negative luckily!!!!  He put in the RX for anti fungals already but I’m preparing myself for the possible torture before I go pick them up. He also put in blood work to check if it’s in my blood or not I haven’t gotten them drawn yet though. I’m going to go this weekend.  When I went to my GI doctor I was like I’m having these symptoms and I noticed them when I stopped taking benzos. And he was like okay let’s do this. Ran tests for MCAS and other tests to rule out other things. It was like 35 different tests all together. Along with an endoscopy and colonoscopy.

Thanks.. :)

Thats the boat im in.. Need help to start to narrow things down a bit and put a plan in place.. Thankfully only 1 med now, and at a much more respectable dose.. Trying to find the energy is half my battle.. -as I imagine you know too..

 

 

Link to comment
Share on other sites

I actually didn’t know I had reflux. I didn’t show the normal signs of it. I knew I had a malabsorption issue going on. I always had really runny yellow stools.  Once I looked it up, sure enough yellow stools is definitely a sign of reflux. I never had the heart burn or anything just yellow stools.

 

 

I used to hang around a GI board, looking for solutions to my PPI induced Hypomagnesemia. I learned something new I never heard of before, the term "Silent Reflux". Quite a few people there had reflux, and had mild gastritis (which they didn't know they had), and an occasional cough after eating certain foods. None of them had the classic signs usually associated with reflux, no heartburn, esophageal burning, nothing. No idea anything was wrong except abnormal stools. They were told they had "Silent Reflux" and put on medication by their doctors. It was explained that "Silent Reflux" is when you have reflux, but no typical symptoms of it, the abnormal stools are often the only symptom of it, and you wouldn't normally associate that with reflux.

Link to comment
Share on other sites

 

Lol, I have a phobia, -against Gastroenterologists, so trying to avoid until I cant.. 

 

I don't blame you, I had the one from hell; jerk, 2sshole, and a bunch of other descriptives I can't use on BB describe him. Absolutely horrible doctor. Then a CareLink nurse associated with the hospital system here recommended a different one. Kind, compassionate, read my research linking chronic PPI dependency to Hypomagnesemia, and the only drug that would fix it. Problem was the drug came from London, UK, and I live in the US. Thankfully the FDA approved my getting it. This doctor listened to me, helped me get the drug I needed. If I ever develop a major GI issue due to benzo W/D, he will be the one I'll go back to. So far, H2 blockers, Sesamin, a bland low histamine diet and DGL chewables 20 minutes before dinner and supper, keep symptoms to a minimum. If I plan on splurging on somehing high in histamine, I take DAO capsules prior to my meal. Valium lowers DAO, and you need DAO to reduce histamine and break it down in your food. It also helps that I have two genes that cause my body to produce more DAO than normal, which might be compensating for the effects of Valium. Lucky me.

 

There are good GI docs out there, if you lived in Delaware, I'd recommend mine. This comes from someone who fired 4 doctors and 1 Nurse Practitioner over the past 5 years. Ha! 8 years ago I walked out of a doctors office during a consultation and exam and said, "I've had, I'm leaving, not coming back." Wished I did that with the psychiatrist who ignored my chronic Hypomagnesemia, decided I had GAD, and srarted my benzo hell. But I was so sick then, terribly sick, and still seeing the idiot GI doctor. And I believed the lies the psychiatrist told me

Link to comment
Share on other sites

 

Lol, I have a phobia, -against Gastroenterologists, so trying to avoid until I cant.. 

 

I don't blame you, I had the one from hell; jerk, 2sshole, and a bunch of other descriptives I can't use on BB describe him. Absolutely horrible doctor. Then a CareLink nurse associated with the hospital system here recommended a different one. Kind, compassionate, read my research linking chronic PPI dependency to Hypomagnesemia, and the only drug that would fix it. Problem was the drug came from London, UK, and I live in the US. Thankfully the FDA approved my getting it. This doctor listened to me, helped me get the drug I needed. If I ever develop a major GI issue due to benzo W/D, he will be the one I'll go back to. So far, H2 blockers, Sesamin, a bland low histamine diet and DGL chewables 20 minutes before dinner and supper, keep symptoms to a minimum. If I plan on splurging on somehing high in histamine, I take DAO capsules prior to my meal. Valium lowers DAO, and you need DAO to reduce histamine and break it down in your food. It also helps that I have two genes that cause my body to produce more DAO than normal, which might be compensating for the effects of Valium. Lucky me.

 

There are good GI docs out there, if you lived in Delaware, I'd recommend mine. This comes from someone who fired 4 doctors and 1 Nurse Practitioner over the past 5 years. Ha! 8 years ago I walked out of a doctors office during a consultation and exam and said, "I've had, I'm leaving, not coming back." Wished I did that with the psychiatrist who ignored my chronic Hypomagnesemia, decided I had GAD, and srarted my benzo hell. But I was so sick then, terribly sick, and still seeing the idiot GI doctor. And I believed the lies the psychiatrist told me

Sounds like quite the journey too Lottie..

I guess like everything, we keep chipping away at it.. -Must say, im a bit worn out from the whole events of the last month on top of the usual stuff..

Trying to think of a “WD Friendly” holliday, but the damn covid doesnt help.. :(

 

TMJ swelling seems to have eased a bit, so there is that..

:)

 

Link to comment
Share on other sites

×
×
  • Create New...