Author Topic: Titration, Patents, and Fantastical Claims  (Read 25329 times)

[Buddie]

Titration, Patents, and Fantastical Claims
« on: October 29, 2019, 11:34:44 pm »
Re: http://www.benzobuddies.org/forum/index.php?topic=231829.msg2975666#msg2975666

For many years there were attempts to promote a particular unproven/untested set of titration protocols. Further, those promoting these methods were engaged in rubbishing completely standard (and effective for most) pill-splitting tapers and characterizing them as 'cut & suffer'. They even peppered posts at BenzoBuddies with such language - this is when I first intervened in this matter (January, 2013). Even though Jana Hill (the person behind the protocols) closed down her forum some years ago, there continue to be a small number of very vocal individuals who seek to promote her untested claims as somehow proven or guaranteed to work. Indeed, there has been a recent uptick in activity promoting her protocols both within and without BB. When there is any attempt at push-back, the rather extreme reaction (including threats of lawsuits) are rather illustrative of the problem. If this fails, then perhaps one of Hill's supporters will instead offer to purchase BB. No.

Jana Hill applied for a patent in 2012. As I suggested a short time later here at BB, the claims made in her patent were extremely flawed, some were even dangerous. Indeed, all twenty claims were rejected. Only with the help of the patent examiner (who apparently redrafted three claims for her) was a patent (with three claims) eventually allowed.

Hill seems to misunderstand (or wishes others to misunderstand) that because a patent is awarded, this somehow means that her protocols are: 1) tested and verified; and 2) are defensible. The award of a patent does NOT connote these things. A recent quote from Hill at the Benzodiazepine Information Coalition website:

Quote from: J.Hill
Crazy Canuk , in his opening statement, says that he learned this taper protocol from its developer through BenzoDetoxRecovery. He states that he hopes that it’s okay to make his videos ostensibly describing it. It isn’t; it wasn’t.

Using the protocol incorrectly tarnishes its good name and places users at risk. He presents it incorrectly.

The authentic BenzoMicroTaper protocol USPTO 9301963 has a 13 year record of success. It is verified by the US patent office as novel( it was not previously available), needed, and understandable by” those practiced in the art”.

If The Coalition’s rules allow it, I will post the way that you can find the authentic BenzoMicroTaper . False versions now seem ubiquitous. A summary is available for the patients’ doctors. You can ask for it using the “reply” button.

J.Hill

Benzodiazepine Tapering Strategies and Solutions - Benzodiazepine Information Coalition
https://www.benzoinfo.com/2017/10/09/benzodiazepine-tapering-strategies-and-solutions/

Hill's statements that her method, "is verified by the US patent office as novel( it was not previously available), needed, and understandable by 'those practiced in the art'", is extremely misleading and disingenuous.

It is probably best for me to simply link to the patent and some information about patents:

https://patents.google.com/patent/US9301963B2/en

https://en.wikipedia.org/wiki/Person_having_ordinary_skill_in_the_art

https://en.wikipedia.org/wiki/Novelty_(patent)

https://en.wikipedia.org/wiki/Inventive_step_and_non-obviousness

https://en.wikipedia.org/wiki/Prior_art

https://web.archive.org/web/20020608171456/http://www.geocities.com/benzobusters/winslow.htm

And for anyone who is particularly interested, and would like to compare, here is the original patent application (with the rejected 20 claims):

http://appft1.uspto.gov/netacgi/nph-Parser?Sect1=PTO1&Sect2=HITOFF&d=PG01&p=1&u=/netahtml/PTO/srchnum.html&r=1&f=G&l=50&s1=20120322794.PGNR.&OS=DN/20120322794&RS=DN/20120322794

Further reading, including threats from Hill to doxx a BB member:

http://www.benzobuddies.org/forum/index.php?topic=159823.0

There is a lot I could get into, but my time is limited - I'll leave it for readers to interpret (and discuss if they wish). But if any of you would prefer to read something a little more bite-sized, please check out the attached document*, which was supplied by Hill to the US Patent office in support of her appeal after the patent was initially rejected.** It is replete with nonsense, false claims, and utilization of quite extraordinary language.

* Available via the link at the foot of this post (with a small green paperclip image next to it).

** Please note: Jana Hill's personal details appear in the attached document. However, Hill long ago chose to make her name and location public knowledge (and again very recently through the media). And the attached document is a public record.
« Last Edit: November 02, 2019, 07:40:52 pm by [Buddie] »
Suggestions, opinions and/or advice provided by the author of this post should not be regarded as medical advice; nor should it substitute for professional medical care. Consult your doctor before making any changes to your medication. Please read our Community Policy Documents board for further information.

[Buddie]

Re: Titration, Patents, and Fantastical Claims
« Reply #1 on: October 30, 2019, 11:51:54 am »
Ah. For those of you wondering where is the 'attached document' I referenced above, it is available as a link at the foot of that post (with a small green paperclip image next to it).
Suggestions, opinions and/or advice provided by the author of this post should not be regarded as medical advice; nor should it substitute for professional medical care. Consult your doctor before making any changes to your medication. Please read our Community Policy Documents board for further information.

[Buddie]

Re: Titration, Patents, and Fantastical Claims
« Reply #2 on: October 30, 2019, 11:45:05 pm »
Earlier this evening, I received a PM from a member who was 'concerned' that I was 'doxxing' (making public) Jana Hill's identity. Please note: Hill long ago chose to make her name and location publicly available (and reaffirmed these again very recently through the media); and the attached document is a public record.

https://www.westword.com/news/inside-cnn-benzos-report-with-lisa-ling-11498488

https://portal.uspto.gov/pair/PublicPair

'Choose type of number': (select) 'Document Identifier'

Enter Number: US 20120322794 A1

Click 'search'

Select 'Image File Wrapper' tab.

Bingo.
Suggestions, opinions and/or advice provided by the author of this post should not be regarded as medical advice; nor should it substitute for professional medical care. Consult your doctor before making any changes to your medication. Please read our Community Policy Documents board for further information.

[Buddie]

Re: Titration, Patents, and Fantastical Claims
« Reply #3 on: October 31, 2019, 09:36:38 am »
Since this is not a taper or support matter, I've moved this topic here from the Titration board.
« Last Edit: November 01, 2019, 11:59:55 am by [Buddie] »
Suggestions, opinions and/or advice provided by the author of this post should not be regarded as medical advice; nor should it substitute for professional medical care. Consult your doctor before making any changes to your medication. Please read our Community Policy Documents board for further information.

[Buddie]

Re: Titration, Patents, and Fantastical Claims
« Reply #4 on: November 01, 2019, 03:56:16 pm »
Well. What do ya know. I just happened upon something from the BB archives.

Re: claim 3. per Hill's patent:

Quote
3. The method of claim 2, wherein the pre-taper plan includes removing any foods, drugs, and other environmental exposure affecting CYP450 enzyme activity that metabolizes the benzodiazepine.

https://patents.google.com/patent/US9301963B2/en

To protect the claim, it should not have been publicly disclosed prior to applying for the patent. From our archives:

It's true that there's no quick cure, but you're right. Every little thing can add up to giving us an edge.

Although a real change in diet is always best done gradually, some foods (and drugs too) are best dropped right away. Cruciferous vegetables and charbroiled meats are some of these. They induce the CYP 3A4 enzyme. This causes a quick loss of benzo levels and therefore increased W/D symptoms.

Our genetic variations of these enzymes make our responses vary. I found that these enzymes are strongly induced in my body. It was a big surprise. I had hit a benzo wall , and clearing these from my diet helped right away.

Antibiotics can do the same thing. Bactrim was my problem. I was on it for three weeks. You can imagine how bad the reaction was.

So moderation is usually the best way, but when a food or drug is working against us, moderation doesn't work.
Jana

http://www.benzobuddies.org/forum/index.php?topic=5660.msg49999#msg49999

The above post is from 2007. The patent was filed in 2011.

I do not mean to elevate the claim, because it is nonsense. But apart from being utter drivel and dangerous to suggest that patients should give up other medicines purely to 'aid' benzodiazepine withdrawal, the notion already existed in the wild before Hill applied for the patent, and by her very own hand, no less. Thus, on the face of it, the claim is indefensible.
« Last Edit: November 01, 2019, 08:05:55 pm by [Buddie] »
Suggestions, opinions and/or advice provided by the author of this post should not be regarded as medical advice; nor should it substitute for professional medical care. Consult your doctor before making any changes to your medication. Please read our Community Policy Documents board for further information.

[Buddie]

Re: Titration, Patents, and Fantastical Claims
« Reply #5 on: November 01, 2019, 07:05:16 pm »
I’ve known for years where Jana Hill lives.

And she does know many things about benzos. However, she is not the “genius “ that she thinks she is or describes herself as.

That is my opinion.
Suggestions, opinions and/or advice provided by the author of this post should not be regarded as medical advice; nor should it substitute for professional medical care. Consult your doctor before making any changes to your medication. Please read our Community Policy Documents board for further information.

[Buddie]

Re: Titration, Patents, and Fantastical Claims
« Reply #6 on: November 01, 2019, 07:51:19 pm »
I heard she reinstated.
Suggestions, opinions and/or advice provided by the author of this post should not be regarded as medical advice; nor should it substitute for professional medical care. Consult your doctor before making any changes to your medication. Please read our Community Policy Documents board for further information.

[Buddie]

Re: Titration, Patents, and Fantastical Claims
« Reply #7 on: November 01, 2019, 09:11:12 pm »
I’ve known for years where Jana Hill lives.

And she does know many things about benzos. However, she is not the “genius “ that she thinks she is or describes herself as.

That is my opinion.

As a matter of interest, did you read the attached document in the opening post? I will probably get into its contents at at some stage. I found the claims bizarre, to say the least.
Suggestions, opinions and/or advice provided by the author of this post should not be regarded as medical advice; nor should it substitute for professional medical care. Consult your doctor before making any changes to your medication. Please read our Community Policy Documents board for further information.

[Buddie]

Re: Titration, Patents, and Fantastical Claims
« Reply #8 on: November 01, 2019, 09:36:03 pm »
I heard she reinstated.

Not according to Hill. And I have no reason to disbelieve her:

http://www.benzobuddies.org/forum/index.php?topic=159823.msg2585690#msg2585690

Though, I never understood why her nose was so bent out of shape by the claim. Frankly, I had far greater concerns arising out of the content of that thread than whether or not Hill had reinstated - why would that be important? Post a correction, and move on. End of. Surely, reinstatement should be a personal decision (unless we treat benzodiazepine withdrawal as an article of faith - which I do not). Sometimes people need to reinstate, and for all kinds of good reasons. I have a real problem with people thinking that reinstatement implies some kind of failure. One of our BB Admins reinstated only a few months ago because of protracted problems with tinnitus. Tinnitus was impacting his life more than his prior use of benzodiazepines ever did. So, he made an informed, logical decision to reinstate. By reacting in a manner which suggests that the mere suggestion of reinstatement is some kind of slur, this negatively impacts all those who are just trying to be the best version of themselves they can. This is why I take such a tough stance against those who seek to spread general anti-psych medicine and anti-psychiatry propaganda - this kind of proselytizing has very real and negative effects upon those who rely upon such medicines and care. By all means debate these topics, because every profession and discipline can be improved, but do not throw out the baby with bath water. Do not tell other people what they must do in their personal health care.
« Last Edit: November 02, 2019, 05:25:37 pm by [Buddie] »
Suggestions, opinions and/or advice provided by the author of this post should not be regarded as medical advice; nor should it substitute for professional medical care. Consult your doctor before making any changes to your medication. Please read our Community Policy Documents board for further information.

[Buddie]

Re: Titration, Patents, and Fantastical Claims
« Reply #9 on: November 02, 2019, 12:45:16 am »
Yes,

When I was dealing with severe akathisia I asked people (here and elsewhere) what medications might help. Everyone told me the same thing, time. But there are actual medications that can be used. I haven no idea if they work, or if they would have worked for me, but I would have liked to have been able to decide before I reinstated and now have to do this all over again. Dogmatic responses are not helpful, and they mirror the responses many of us received from some of our doctors.

My current doctor actually told me that I should try one of these drugs for another issue, anhedonia. She then mentioned it could help with akathisia if mine returns. I thought that was depressingly funny given the timing. Also, she mentioned the main side-effect I'd have to look out for was "nymphomnia."

This would all be funny if it weren't so stupid, and it would be stupid if it weren't so horrible.
Suggestions, opinions and/or advice provided by the author of this post should not be regarded as medical advice; nor should it substitute for professional medical care. Consult your doctor before making any changes to your medication. Please read our Community Policy Documents board for further information.