Dystautonomia/POTS/Low BP

I was diagnosed with POTS a few years ago. It's been mild compared to other cases of POTS. Recently at the six month mark I was hit by either a wave or setback. Comparing now, a month ago, and three months ago there's a big difference in symptoms overall but especially activity tolerance. I had very few withdrawal symptoms the first couple months. I was exercising daily and only experiencing POTS symptoms I've had for years. Now, it takes hours to recover from a shower and I feel accomplished if I can unload the dishwasher. I refuse to sit on the couch all day but lying down resolves most of the uncomfortable symptoms. I plan on trying a few suggestions I've received over the years from my electrophysiologist but I'm wondering what's actually worked for others.

Has anyone with pre-existing POTS noticed their symptoms worsen during withdrawal?

If you have pre-existing POTS or onset in withdrawal, what helped you the most?

Any trouble supplementing Potassium? When I went to the ER for this a few weeks ago it was my only abnormal test result.

Type in POTS in withdrawal and you will see a 3 page section on here with cases and advice. I would copy and paste it here but don't know how with my chromebook.

PG

I suggest speaking to your cardio/electrphysiologist about a medicine called ivabradine or corlanor.

Hope this helps.

Yes, I had POTS before, and this process did make the POTS harder for sure.  When I could, exercise made a huge difference.  But let me be very clear.  When I started with the exercise, I was so weak from this process and the POTS, I could only row for 30 seconds and then I would nap for hours...no joke! After 12 weeks, I made it to 30 minutes a day.  I never thought it could be done, but those 30 seconds added up and really made a difference.  After that I moved to a stationary bike and now I am walking 40 minutes a day.

Other things that helped - water (a ton), salt (this is for the POTS), liquid IV, exercise, atenolol, napping, and keeping a somewhat tight schedule.  And letting myself rest when I feel the POTS is coming on strong.

Have you seen a POTS specialist during this process?

Wishing you the best...