Author Topic: Crushing Fatigue Support Group  (Read 3843 times)

[Buddie]

Re: Crushing Fatigue Support Group
« Reply #40 on: October 16, 2019, 08:19:31 pm »
Me too, man. I had a window not long ago, so this wave is a huge letdown. But I can always remember the window feeling and realize that this crap ends. Weíll make it!
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[Buddie]

Re: Crushing Fatigue Support Group
« Reply #41 on: November 29, 2019, 12:53:38 pm »
Not much going on here: does that mean nobody is fatigued anymore or are we all just to tired to be posting?  My fatigue is just getting worse. It's almost undoable the last couple of days. I wake up at 4.30am. in pain, very tired and have this crushing fatigue almost all day long. Can only just prepare meals and that's about it. Chair to sofa, to bed, back to chair. To tired to do anything. I pray this goes away asap.
.Pain, fatigue, nausea,anxiety. This is not how life is supposed to be.
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[Buddie]

Re: Crushing Fatigue Support Group
« Reply #42 on: November 29, 2019, 01:07:52 pm »
I still have it, Troch. A sickening exhaustion running through my body. Itís not tiredness. Itís something different. I know itís connected to whether I get real sleep or not. Im considering getting a sleep study, but donít want to waste the money.
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[Buddie]

Re: Crushing Fatigue Support Group
« Reply #43 on: November 29, 2019, 05:38:49 pm »
The sleep we get isn't at all recharging the battery. It's just being unconscious for a while.  You're right: it's not tiredness,  it's a completely different animal!  Hope we may recover. Good luck to you!
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[Buddie]

Re: Crushing Fatigue Support Group
« Reply #44 on: November 30, 2019, 06:03:11 am »
Hi [...] - Could you possibly have ME/CFS?  With your history of fibromyalgia, unrefreshing sleep, concern about Lyme, and the unremitting bone crushing fatigue, it might be something to consider.   I just started a support group thread for people who have a firm dx of ME/CFS -  no responses yet because I'm hoping to attract people who KNOW they have ME/CFS and had it before benzos.  I put some info links on there you might want to check out.

But lots of conditions can cause severe fatigue, including Sleep Apnea and thyroid issues.   I have both of those too (both  are under control) along with ME/CFS. 

I just started my Xanax taper a month ago, and  I do feel a new kind weakness and tiredness that I  attribute to the withdrawal.     Fatigue is a strange thing because there's so many different types.   I felt it differently with the sleep apnea before it was treated, and also when my thyroid is low.  And when I've been anemic it was even a different kind of tiredness.  But the fatigue with ME/CFS is a whole other species.  It feels like my cells are made out of lead.  It permeates my whole being.  And all the debilitating accompanying symptoms that go with ME/CFS are the reason why we've lobbied to get the name changed.

I hope this turns out to "just" be the benzo withdrawal for you though.  From what everyone says here, the fatigue is pretty gnarly but it does eventually go away.

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[Buddie]

Re: Crushing Fatigue Support Group
« Reply #45 on: November 30, 2019, 07:42:44 am »
 Hi [...], something to take into consideration. It did cross my mind before, of course. It could be lots of other things as well. I didn't have it before getting on benzos. It started earlier this year and went away for a while. Tired yes, but fatigued not so much. It started again in August / September after I started having more abdominal issues again.  Seeing a specialist in a couple of weeks about that. Wishing you all the best!
« Last Edit: December 01, 2019, 07:06:21 am by [Buddie] »
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[Buddie]

Re: Crushing Fatigue Support Group
« Reply #46 on: November 30, 2019, 04:48:10 pm »
Hi Trochstter, With such a short fatigue duration that only started after benzos, I wouldnít be worrying about ME/CFS at this point. Iím sorry for alarming you - I thought this had gone on much longer.

The official CDC criterion requires a minimum of 6 months of severe fatigue that reduces daily activity by at least 50%, in addition to a list of other specific symptoms. Plus, every other possible cause for those symptoms (which are many) has to be first ruled out through a boatload of testing. 

Best of luck to you in getting free from benzos- Iím sure youíll be feeling better when you do. 😀
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[Buddie]

Re: Crushing Fatigue Support Group
« Reply #47 on: December 06, 2019, 12:21:12 pm »
Hi fatigued people,  how have you been doing?  Not much going on here. My fatigue is really awful again. Exhaustion is a better word. Had a couple of days feeling less worn out, but now it's back again. Last night I had very [...] sleep and today the fatigue is overwhelming. Can barely stand or walk a bit. Makes me very worried. Is it a wave or is there an underlying cause? Did any of you have tests done to rule out other causes?  I have an appointment with the stomach, liver,  colon specialist in two weeks time. Already anxious about that. Hope it's withdrawal that causes my belly issues and fatigue. Stay strong.
« Last Edit: February 06, 2020, 09:01:44 am by [Buddie] »
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[Buddie]

Re: Crushing Fatigue Support Group
« Reply #48 on: February 06, 2020, 08:59:22 am »
Hi,
Today is exactly two months after the last entry on here. And it was mine.
 Remarkable,  that nobody else has posted since. Don't you feel fatigued and exhausted anymore?
I surely do. The last two weeks I have had days with horrible exhaustion. Felt like I was going to die. Unbelievable.
Can this be benzo related or is it cancer?  I don't know what to think anymore.
Anyone else has this exhaustion?
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[Buddie]

Re: Crushing Fatigue Support Group
« Reply #49 on: February 08, 2020, 03:59:14 am »
Hi,
Today is exactly two months after the last entry on here. And it was mine.
 Remarkable,  that nobody else has posted since. Don't you feel fatigued and exhausted anymore?
I surely do. The last two weeks I have had days with horrible exhaustion. Felt like I was going to die. Unbelievable.
Can this be benzo related or is it cancer?  I don't know what to think anymore.
Anyone else has this exhaustion?

I know exactly how you are feeling. I feel completely exhausted. Some days worse than others. The days following a night I donít sleep well are the worse. Never felt like this before withdrawal so I just keep on keeping on and hope that in time ,after I am benzo free, I can start healing from all this damage. Stay strong. I do know exactly how you feel. It truly is tough. 🦋
Suggestions, opinions and/or advice provided by the author of this post should not be regarded as medical advice; nor should it substitute for professional medical care. Consult your doctor before making any changes to your medication. Please read our Community Policy Documents board for further information.