I never have short waves, only day to week long waves.

I see people on here going through windows and waves and they talk about them coming and going throughout the day.

 

I feel mostly healed most of the time but when I get a wave it hits fast and last from a day to over a week. All of my sxs are physical and they just knock me out. Most of the time i’ll Go weeks or months between waves. They’ll usually come after a week of eating like crap and being out of my rhythm, like coming home from a vacation.  Almost like my CNS is able to hold on for dear life with day to day things but finally says “screw it” when I don’t take care of myself for 4+ days.

 

Who else doesn’t get short waves but gets long waves and feels pretty much ok between these waves.

At waves have never been short. The are usually days, weeks, months. I’m Going on 9 months off soon and they seem to be getting somewhat shorter, maybe a week. Before it was a month of hell at a time at least.