Author Topic: Burned in hell, crawled through purgatory, and now walking amongst the living  (Read 7057 times)

[Buddie]

[...]-I am SO happy to have read your success story. I remember all of the suffering that you had to endure and I am thrilled to have read that you are doing great. If you didn't start the exercise group we would never have met four years ago on BB. Your group has helped so many people!

I am wishing you a long happy life. I promise you that it will only get better and better.
Best,
Fran  :smitten:
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[Buddie]

So happy for you, my friend  :smitten:
Suggestions, opinions and/or advice provided by the author of this post should not be regarded as medical advice; nor should it substitute for professional medical care. Consult your doctor before making any changes to your medication. Please read our Community Policy Documents board for further information.

[Buddie]


Congratulations [...], so pleased for you  :thumbsup: Thank you for coming back and writing your story, it will inspire and bring hope to many people. 

[...] :smitten:
Suggestions, opinions and/or advice provided by the author of this post should not be regarded as medical advice; nor should it substitute for professional medical care. Consult your doctor before making any changes to your medication. Please read our Community Policy Documents board for further information.

[Buddie]

Great story! Love to hear that you're now even feeling better than you did in a long time. You so much deserve it!
Suggestions, opinions and/or advice provided by the author of this post should not be regarded as medical advice; nor should it substitute for professional medical care. Consult your doctor before making any changes to your medication. Please read our Community Policy Documents board for further information.

[Buddie]

Congratulations [...], you made it and Iím so happy for you!!!
 Thank you so much to coming back and let us know you are better and you get back your life after so many years of struggling.  Give me so much hope to read your success story!
Iím crying  and hoping one day will come for me too.
I have severe burning head scalp pain and nerve pain all over my body,  still after 32 months off benzo and 12 months off  remeron. No medication at all now.

Can I ask when was the time when your head pain get better?

May continue to have a happy life with a lot of joy and happiness

The head and scalp jsut got better recently but it was improving in fits and starts. The scalp burning is gone but I can get a bout of scalp tightening every now and then.  I maybe get one or two days a week of headaches and such  but nothing like the old days. I can go out and do things and if I take a tylenol it goes away but I jsut don't like taking anything anymore. I also now get botox shots every three months(have them for five months) to prevent migraines.  I'm am sure it is helping give me relief.
Thank you so much [...] for writing me back.
Iím approved for Botox but  Iím so scared to do it. But reading your letters may push me to go for it. I have no life only severe head/scalp pain and anxiety. Not able to work for 3 years now.
Iím just recently felt the Tylenol or Advil helping me somewhat but Iím so scared to take it regularly, so Iím suffering 24/7.
Thank you again with all my heart for writing me back.
God bless you and keep you in good health
[...]

Do the Botox!  It made my head worse for about two weeks but thatís normal. It wasnít way worse just not better.  Also, the only real danger is an allergic reaction but if itís done in a dr office theyíll be prepared.  My doc had it only happen once out of several hundred patients.
Also the shots can be painful but your benzo tough.  The first time was bad because my head was so locked up.  The next round way easier.
Hi [...], can I ask you about Botox... did you get it all over on your head scalp, even your neck the first time?
Did you had a burning head scalp when you had the Botox or the burning already get better before Botox? Iím thinking to just try a small area first then maybe second time do some more.
I have more pain on my left side of head scalp neck and face. Did you had all over pain or one side had more pain?
[...]
Suggestions, opinions and/or advice provided by the author of this post should not be regarded as medical advice; nor should it substitute for professional medical care. Consult your doctor before making any changes to your medication. Please read our Community Policy Documents board for further information.

[Buddie]

I got the shots in head, neck, shoulders, and upper back.  The burning stopped by then.
Suggestions, opinions and/or advice provided by the author of this post should not be regarded as medical advice; nor should it substitute for professional medical care. Consult your doctor before making any changes to your medication. Please read our Community Policy Documents board for further information.

[Buddie]

Well written post [...]. Thank you for the inspiration.  :thumbsup:
Suggestions, opinions and/or advice provided by the author of this post should not be regarded as medical advice; nor should it substitute for professional medical care. Consult your doctor before making any changes to your medication. Please read our Community Policy Documents board for further information.

[Buddie]

Hi [...], so glad to hear you are feeling better. Iím 3+ years off and really feeling like it will never change. You didnít mention sleep? Are you sleeping better? I feel like in some ways for me it is worse now than it ever was.
[...]

PS really am glad to hear things are good for you.
Suggestions, opinions and/or advice provided by the author of this post should not be regarded as medical advice; nor should it substitute for professional medical care. Consult your doctor before making any changes to your medication. Please read our Community Policy Documents board for further information.

[Buddie]

Hi [...], so glad to hear you are feeling better. Iím 3+ years off and really feeling like it will never change. You didnít mention sleep? Are you sleeping better? I feel like in some ways for me it is worse now than it ever was.
[...]

PS really am glad to hear things are good for you.

Sleep is hit or miss but a bad [...] doesnít always equal a bad day for me. Once in a while though.
Suggestions, opinions and/or advice provided by the author of this post should not be regarded as medical advice; nor should it substitute for professional medical care. Consult your doctor before making any changes to your medication. Please read our Community Policy Documents board for further information.

[Buddie]

Congrats [...].....thanks for sharing. I feel deathly ill each day and feel like I will never get better but these success stories inspire me.
Suggestions, opinions and/or advice provided by the author of this post should not be regarded as medical advice; nor should it substitute for professional medical care. Consult your doctor before making any changes to your medication. Please read our Community Policy Documents board for further information.