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PLEASE HELP: ASHTON c/o FOR 1.775 K/C ? OR 1.375?


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dear buddies

 

PLEASE HELP - in a very rough spot, truly desperate for any advice - thank you so much  :o

 

Would be so very grateful for an Ashton table for 1.75-ish - K/C to V ?

 

Currently on an 'odd' dose of 1.375 K/Clon + 8 Valium , or ~ 1.775 K/C; for 2 months now.

 

EDIT: OR, SHOULD IT BE A TABLE FOR 1.375 K -- SINCE THAT'S WHAT I'M ALREADY ON?

 

 

-former GP pulled me off Ashton 4 months ago + 10% to boot .... got to stage 3 was .75mcg + 18V -- but only lasted 2 days before GP stopped me.....  GP said Valium would make me more debilitated than already was, thanks to GP's earlier mistakes.

 

-new GP wants me to go back on, but i am even more disabled now [can barely walk] .... so can't imagine being on ~ 35 V!

 

 

Sorry my Sig/Hx is a jumble -- due to all the changes my GP put me thru, since July '18.

 

 

My INTRO + 1st THREAD are linked below, w/details of messy HX -->

 

-in particular, previous failed direct c/o K/C to V [Val too low].

 

-then previous failed Ashton.

 

-back and forth to K/C, lots of updoses, etc.

 

 

INTRO:

 

http://www.benzobuddies.org/forum/index.php?topic=214556.msg2759775#msg2759775

 

FURTHER ASHTON INFO IN MY REPLIES

 

http://www.benzobuddies.org/forum/index.php?topic=214658.msg2760905#msg2760905

 

 

THANK YOU SO MUCH FOR ANYONE WILLING/ABLE TO READ MY HX + OFFER ANY ADVICE  :smitten:

 

THANK you so much to those kind buddies who replied earlier on...  :smitten:

 

PS: recently trialed Lyrica = horrific fail... + so now, new GP has reversed decision of former GP, Re ASHTON....

 

with much gratitude

 

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Chipmunk,

 

Can I ask, why are they switching you off of klonopin to begin with? In other words, why can't you just taper from that? You could keep a Valium crossover in your back pocket for when you are at a much lower dose so it won't be so sedating. Just a thought.

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Chipmunk,

 

Can I ask, why are they switching you off of klonopin to begin with? In other words, why can't you just taper from that? You could keep a Valium crossover in your back pocket for when you are at a much lower dose so it won't be so sedating. Just a thought.

 

:thumbsup:

 

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WAVES -- thank you so much for trying to help me figure this out, very grateful !!

 

 

current GP refuses to let me go back to all K @ 1.75.... finally agrees it may be 'paradoxical'.

 

...or too far into 'tolerance w/d '....or both.... and updosing makes worse.

 

if was on lower dose... may chance going back to all K... but sadly not.

 

hence Ashton, AGAIN.... [maybe?]

 

current GP says 'just go up 5 V and drop .25 K' ... or 'go up 10.5 V and drop .375 K'...

 

.... but i believe neither is in proper proportion for ~ 1.75 K ?? [1.775]

 

current GP also refuses any other benzo.

 

SO CONFUSING... SORRY  :-[

 

 

will try summary here -- hope it helps clarify.

 

6 GPs, ER, Rheum, Psych -- got me into this mess.

 

PS: just using 'bold' to highlight lack of continuity of care, clarity, etc:

 

 

2016:

 

instant joint/muscle pain + tension -- after 1st dose of K... ie 'paradoxical?'... but old GP who Rx'd -- did not care.

 

all starts w/ forced Baclofen C/T -- caused twisted R hip -- begged to be reinstated twice + tried to taper twice, over a couple of weeks... old GP = no clue. 

 

during this 'taper' -- went to ER for UTI -- missed Baclofen dose that night -- begged ER for Baclofen dose -- but forced on 1mg Ativan instead.... 1st benzo...!!

 

Ativan did not cause muscle/joint pain.... but old GP refused to Rx daily.

 

old GP allowed Ativan sporadically over a few weeks to help w/ Bac C/T….

 

then -- old GP forced  .75mcg K -- but K seemed to lock up twisted hip joint in R leg -- ie, 'paradoxical' ?

 

but old GP did not care + I had to move away.

 

then.... 2017 seemed to stabilize on K... tho was limping Re hip. 

 

Physio all 2017 almost fixed hip 1 yr ago.

 

Dec 2017 = increasing hip/leg muscle tension -- then nerve pain in foot = limping worse =  Achilles pain = downward spiral.

 

 

2018: July-Oct

 

'new' GP -- said 'you've reached tolerance!'...

 

new GP obvs. misunderstood the concept of 'tolerance' .... so.... updosed me a few times July-Oct --- and within a week -- tension always increased...!

 

by Oct -- higher updose caused severe tension after just 1 dose

 

new GP didn't believe 'paradoxical' -- hence lots of updosing, to relieve tension... but just got worse.

 

that's why started swapping in V -- to counter the K tension.... so can't taper V first....

 

not sure 'paradoxical' to both C + V now.... or they're competing + causing more pain, tension, and weakness.

 

another 'paradoxical' event :  took my 1st ever rescue dose of K  -- [for insomnia due to heel pain] -- mid-July before properly Rx'd a full updose to 1mg -- gave me rebound spasms hours later...! ...this happened 3x, GP didn't believe.

 

 

THANK YOU SO MUCH AGAIN, FOR TRYING TO READ MY HX + OFFER ANY ADVICE  :smitten:

 

with much gratitude

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WAVES -- thank you so much for trying to help me figure this out, very grateful !!

 

 

current GP refuses to let me go back to all K @ 1.75.... finally agrees it may be 'paradoxical'.

 

...or too far into 'tolerance w/d '....or both.... and updosing makes worse.

 

if was on lower dose... may chance going back to all K... but sadly not.

 

hence Ashton, AGAIN.... [maybe?]

 

current GP says 'just go up 5 V and drop .25 K' ... or 'go up 10.5 V and drop .375 K'...

 

.... but i believe neither is in proper proportion for ~ 1.75 K ?? [1.775]

 

current GP also refuses any other benzo.

 

SO CONFUSING... SORRY  :-[

 

 

will try summary here -- hope it helps clarify.

 

6 GPs, ER, Rheum, Psych -- got me into this mess.

 

PS: just using 'bold' to highlight lack of continuity of care, clarity, etc:

 

 

2016:

 

instant joint/muscle pain + tension -- after 1st dose of K... ie 'paradoxical?'... but old GP who Rx'd -- did not care.

 

all starts w/ forced Baclofen C/T -- caused twisted R hip -- begged to be reinstated twice + tried to taper twice, over a couple of weeks... old GP = no clue. 

 

during this 'taper' -- went to ER for UTI -- missed Baclofen dose that night -- begged ER for Baclofen dose -- but forced on 1mg Ativan instead.... 1st benzo...!!

 

Ativan did not cause muscle/joint pain.... but old GP refused to Rx daily.

 

old GP allowed Ativan sporadically over a few weeks to help w/ Bac C/T….

 

then -- old GP forced  .75mcg K -- but K seemed to lock up twisted hip joint in R leg -- ie, 'paradoxical' ?

 

but old GP did not care + I had to move away.

 

then.... 2017 seemed to stabilize on K... tho was limping Re hip. 

 

Physio all 2017 almost fixed hip 1 yr ago.

 

Dec 2017 = increasing hip/leg muscle tension -- then nerve pain in foot = limping worse =  Achilles pain = downward spiral.

 

 

2018: July-Oct

 

'new' GP -- said 'you've reached tolerance!'...

 

new GP obvs. misunderstood the concept of 'tolerance' .... so.... updosed me a few times July-Oct --- and within a week -- tension always increased...!

 

by Oct -- higher updose caused severe tension after just 1 dose

 

new GP didn't believe 'paradoxical' -- hence lots of updosing, to relieve tension... but just got worse.

 

that's why started swapping in V -- to counter the K tension.... so can't taper V first....

 

not sure 'paradoxical' to both C + V now.... or they're competing + causing more pain, tension, and weakness.

 

another 'paradoxical' event :  took my 1st ever rescue dose of K  -- [for insomnia due to heel pain] -- mid-July before properly Rx'd a full updose to 1mg -- gave me rebound spasms hours later...! ...this happened 3x, GP didn't believe.

 

 

THANK YOU SO MUCH AGAIN, FOR TRYING TO READ MY HX + OFFER ANY ADVICE  :smitten:

 

with much gratitude

Hi Chip..

Thank YOU for laying things out as best you can... 

 

Sadly I dont have any clear thoughts (on anything) atm..  Im realy just reading, but wanted to offer support, as best I could.. If anything springs to mind I will sing out..

 

I guess my first thoughts are how to apportion the components of Paradoxical, Withdrawal, and Instability/Sensitivity.. -And how that would affect various courses of action..

Which now I have written it, seems a very simplistic view of a complex situation... And I would hate to complicate things needlessly too...  Only V and Lyrica are things I have experienced..

 

Despite everything, and its been a lot, you seem to have a strong and positive attitude, and that will be a winning factor... I sure hope you can find Your path forwards very soon and get a clear run at your taper..

 

Wishing you strength..

:)

 

 

 

 

 

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dear CANT

you are the king of kindness on all these boards  :angel:

 

and as ever, very grateful for all your support and encouragement, you always post thoughtful replies....

 

thanks again so much for your help w/Lyrica -- scary, stubborn sxs persist tho...  >:(

 

CANT -- your first thoughts are perfectly summed up in a nutshell -- thanks for being so concise!

 

...complex -- yes.

 

....'courses of action' -- extremely limited at this stage, i fear.

 

so very humbled that you view me as strong + positive... i try my best to be, to help others, as you do.... you are a superb role model  :)

 

....tho... tbh... i am so terrified, angry + depressed --  my increasing weakness, atrophy + loss of mobility -- make me feel like a trapped animal.... and cannot see a way forward.

 

no updose, no hold, no taper, no helpful meds/supps.... has me considering inpatient  :-\

 

BUT -- deeply grateful for your words of wisdom + unfailing encouragement -- it means so very much to me.... i feel so hopeless.... but please don't give up on me -- i WILL keep trying.

 

i just keep hoping there is a path thru i've missed.... i just want to walk.

 

sorry to vent....  :-[

 

many thanks again for your kindness, dear buddie, so greatly appreciated  :smitten:

 

just don't know what to do.

 

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BELLA, WAVES, anyone?

 

Please -- could you advise, is there anyone who can help w/ ASHTON TABLE?

...thank you again.

 

-edited my original post -- b/c not sure if i should start from current K dose of 1.375...

 

-or from total dose -- including 8 V i'm already on -- which ~ 1.775 ?

 

 

-or any other tapering advice?  based on my replies, RE further info on GP's 'Ashton' advice, and current 'odd dose' ?

 

 

very scared -- my lower left leg + foot have become very swollen, not just the huge ankles  :(

 

 

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BELLA, WAVES, anyone?

 

Please -- could you advise, is there anyone who can help w/ ASHTON TABLE?

...thank you again.

 

-edited my original post -- b/c not sure if i should start from current K dose of 1.375...

 

-or from total dose -- including 8 V i'm already on -- which ~ 1.775 ?

 

-or any other tapering advice?  based on my replies, RE further info on GP's 'Ashton' advice, and current 'odd dose' ?

 

 

very scared -- my lower left leg + foot have become very swollen, not just the huge ankles  :(

 

Hello chipmunk-

 

Hey, I am really sorry you are having such a difficult time.  I was in a similar situation, even had the swollen ankles. My swelling went down after a month off the Cipro.

 

Based on the information you have shared, you are obviously having issues taking both K & V. Also being floxed and having that to deal with too indeed creates a complex situation.

 

You would probably benefit from staying put on a high enough dose of one benzo for a period of time to obtain some form of stability. The back and forth yoyo certainly is not helping your situation. I found that the Valium actually helped with the cipro flox pain. The Valium actually masked the pain for many years. Once off the V the burning, tingling numbness very slowly dissipated. It is almost gone 6 years later. Also want to share, I was diagnosed with fibromialgia too. ALL of that " fibromialgia" pain is gone now too. So there is hope my friend....hang in there... :therethere:

 

Please consider getting on and staying on a consistent dose of one benzo until you become more functional. Only then consider beginning a taper. We will help you formulate a safe, reasonable c/o/taper plan once you decide exactly how you want to proceed. It is also important for you to find a provider that is flexible and will support you in your efforts. You will get through this. Try to remain patient.

 

Let us know , we are here to help and support you in your efforts to safely become benzo free :smitten: 

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dear BELLA  :smitten:

 

thank you so much for sharing your story and such kind support + helpful advice. sorry to hear you were also floxed... but so happy it is dissipating at long last + the 'fibro' pain is gone. you give me hope  :hug:

 

THank you -- yes -- would be grateful for c/o plan to Valium, as per GPs orders.

 

OR -- Do you think her 'plan' would work?  ie, up 5V and cut .25K, or up 7.5V and cut .375K -- at my current 'odd' dose?

 

GP supports returning to Ashton now [after Lyrica fail] -- b/c she called local detox + they advised her.

 

BUt GP is going against stern warnings of both Rheum + Psych -- Re No Valium, esp. due to joint hypermobility.

 

it's a small town and GPs are limited. only 1 hospital, so same Rheum/Psych.

 

YES, desperate to be on just 1 benzo indeed and stabilize. SIGH.

 

but GP won't allow me back on K, at least not at 1.75.

 

do you think 35 V will make me completely bedridden/disabled ?

 

So debilitated -- not sure how will cope w 35 V...?

Can barely stand or walk 15 min each hr between 3 rooms -- only 3 hrs total each day now for months.... otherwise, can sit in only 1 chair, or bedridden.

 

4 months ago on Ashton -- was in very bad shape, but prepared to continue -- tho was very weak + wobbly on high of 18-20 V... that's why former GP stopped it.

 

then, post-Ashton -- ankle + knee swelling began with first 5V 'swap' of K for V last Oct + increased since second 3V 'swap' in Dec.

 

could be the interaction of sxs of 'odd' long term dose of K+V -- as you suggest.

 

but tense hips/legs became very weak after 'swapped' V -- but still tense lower legs -- trying to hold me up...

 

then 'frozen' swollen knees + ankles began -- being hypermobile -- seems they're overloaded now -- due to total atrophy of legs + back.

 

Recent Lyrica trial has worsened + added new + very severe GI sxs, + possibly the increased swelling -- these severe sxs started w/Lyrica.

 

REALLY want to do something now, as per GP.... but also afraid to make any changes due to extra sxs -- but seem to be getting worse -- now 1 month off 4 days of lyrica.

 

it must be lingering / interacting w/ V +K somehow -- which is already complex, as you say.

 

so sorry to ramble and repeat again...complex issues  :-[

 

 

i know you're trying your very best to advise + i very much appreciate your kind + experienced support.

 

between a rock + a hard place... desperate.... don't want to end up in w/chair due to 35 V :( 

 

we have no support + spouse's mom is very ill.... spouse has to help me w/everything.... so he's afraid for me to get more disabled, he can't cope.

 

he wants me to try to MT K -- off fixed 8 V or so.... not sure that will work...?

 

Would be grateful for your thoughts on any alternatives -- based on my condition / situation ?

 

i promise, trying to be patient as possible, but 2.5 yrs in, never been so disabled, distressed + marriage strained  :(

 

THANK YOU SO MUCH FOR YOUR HELP :smitten:

 

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Hi chipmunk -

 

I am by no means qualified to give you medical advice due to the fact that I have absolutely no medical qualifications. I can only tell you what I would do if I were in your situation being based solely on my own personal experience and a little bit of common sense.

 

So this is what I would do If I was on 2 benzos and was in tolerance, experiencing burning legs along with having other adverse reactions to the benzo and healing from a lyrica withdrawal along with being immobilized with hyper-mobility.

 

I would 1st and foremost heed the doctors warnings about the Valium and hyper-mobility. Next I would Get on a dose of Klonopin that gives me relief along with the current dose of Valium. I would stay at that dose until I stabilized. VERY IMPORTANT let things settle down. Once stabilized I would then taper off the Valium doing a slow, daily, symptom based  taper at a rate where I can tolerate symptoms and and function day to day.

 

Let us know what you decide to do. :thumbsup:

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dear BELLA

 

many thanks again for your kind + helpful reply. 

 

YES PLEASE: Would be so very grateful for an Ashton table for 1.75-ish - K to V ?

 

Currently on an 'odd' dose of 1.375 K + 8 Valium , or ~ 1.775 K ; for 2 months now.

 

OR, SHOULD IT BE A TABLE FOR 1.375 K -- SINCE THAT'S WHAT I'M ALREADY ON?

 

 

-------------- Bella------------

 

truly appreciate you trying to put yourself in my slippers [can't get feet into shoes].... and offer the most logical advice.

 

it is a shame my GP disagrees w/the specialists Re Valium -- many thanks for your concern regarding that.

 

but i don't think my GP would allow an updose of K -- to 'stabilize' -- as she says it is 'not working for you' .

 

GP was already familiar w/Ashton at 1st appt. -- and seems to think 'stability' is unattainable at this stage, ie, if 'paradoxical', or in 'tolerance'.

 

also GP feels that holding any longer at this dose [2 months now], is not helping -- and wants me to 'bite the bullet', and move along.

 

this is how she phrased it w/the Lyrica trial as well.

 

she is less flexible than my former GP, but there is no other GP.

 

*would like to show GP what an 'accurate' table would look like....as opposed to her 'winging' it with the c/o quantities.*

 

once again, so very grateful for you taking the time to truly understand my predicament + suggest the most logical route.

 

in theory your advice is absolutely sound, thank you again.  tho in practice, i don't think that GP will Rx more K -- so to taper V may be too difficult otherwise.

 

*BUT -- have left a message for GP + will discuss your advice.... she is booked all week -- hope she finds time to call me back.*

 

MANY THANKS  :hug:

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dear BELLA

 

many thanks again for your kind + helpful reply.

 

YES PLEASE: Would be so very grateful for an Ashton table for 1.75-ish - K to V ?

 

Currently on an 'odd' dose of 1.375 K + 8 Valium , or ~ 1.775 K ; for 2 months now.

 

OR, SHOULD IT BE A TABLE FOR 1.375 K -- SINCE THAT'S WHAT I'M ALREADY ON?

 

Hi chipmunk!

 

I will do a cross over from 1.375K + 8mgV to 35 mg Valium total. Is that what you want? How many doses a day? Ashton does 4 but I think that is for those who are experiencing interdose issues. With the Valuim and Klonpin there usually is not interdose issues (this is due to the longer half life) I did read where you stated that you wanted to dose one time a day at night time because V makes you lethargic during the day? How many times a day do you want to dose?

 

Also want you to know that the lethargy from the V tends to dissipate after a few weeks. I can make the schedule any way you want. Please verify the  total amounts of both K & V and how many times a day you want to dose and I will make the crossover schedule for you  :thumbsup:

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dear Bella  :smitten:

 

thank you so very much!

 

are 2 Tables at all possible, please? 

 

would be extremely grateful, if not too much inconvenience  :-[

 

would like to show GP 'proper' table for 1.75 K -- to see where i 'fit in' now.

 

but -- would also really appreciate a C/O based on 'current dose' of 1.375K + 8V.

 

apologies to request 2 C/O Tables -- but just so confused  :-\

 

 

yes - sadly, can only dose @ night.

 

yes - do have interdose w/d 24/7 - but cannot dose during day, wish i could.

 

maybe it's K + V competing 24/7.

 

or, the 'odd' dose i'm on is not properly proportional?

 

so very much appreciate your time and understanding of my complex situation.

 

my GP has refused to come see me or phone me this week, despite my newly swollen leg/foot. 

 

many thanks for all your help :hug:

 

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would like to show GP 'proper' table for 1.75 K -- to see where i 'fit in' now.

 

but -- would also really appreciate a C/O based on 'current dose' of 1.375K + 8V.

 

Hi chipmunk-

 

I can do 2 schedules but it may take a few days because I am really busy at the moment.

1st c/o schedule from 1.75mg K to 35mg total V equivalent dosing 1x a day

2nd c/o schedule from 1.375mg K + 8mg V to 35mg total V equivalent dosing 1x a day

 

Are these what you want?

 

I will post them here on this thread when I get them done.

 

 

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Hi Chip.. :)

 

Hope you are holding up ok, given the circumstances...

 

I realy hope your Dr can see the sense in allowing you to gain some stability..

 

Sorry I have been a bit quiet, -am a bit/lot under the weather atm, But your in my thoughts...

 

Best wishes...

:)

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Many thanks BELLA, for taking the time to create this table today.

 

Apologies didn't reply sooner  to your last post -- been logged in -- but swollen leg worsened, very much like DVT ....  so scared + scrambling to get some other Dr for home visit.

 

again, your help very much appreciated x

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hiya Cant

 

no worries at all buddie -- so sorry to hear things are bumpy there too.... is it the Lyrica?

 

but many thanks for taking time out for your thoughtful post :)

 

my new Doc doesn't give 2 hoots... my leg is now like DVT ... trying to get another Dr to home visit.

 

did you have leg swelling w/Lyrica?

 

thinking of you too -- really hope you're feeling better soon too... :hug:

 

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hiya Cant

 

no worries at all buddie -- so sorry to hear things are bumpy there too.... is it the Lyrica?

 

but many thanks for taking time out for your thoughtful post :)

 

my new Doc doesn't give 2 hoots... my leg is now like DVT ... trying to get another Dr to home visit.

 

did you have leg swelling w/Lyrica?

 

thinking of you too -- really hope you're feeling better soon too... :hug:

Hey Chip.. :)

Yeah, its mainly the lyrica on top of the rest.. Starting to get there now though, -I always seem to get a big Slap right before feeling much better (everything, not just the lyrica)...

 

Funny you mention your legs and DVT feelings too..!! -This is quiet dominant for me whith this lyrica jump.. Asides the pains and numbness, they just simply dont want to work at times, esp when I get up..  Im pretty used to this stuff, -having significant L leg nerve damage and foot drop, but this is different... I notice my leg muscles fatigue out very easy from only a little use... -Jelly lead legs.. :)

Not so much the swelling or retention, just a little puffy in ankles and above toes.. But I have been sitting much more...

Am just trying to keep them gently moving as I can while it settles...

 

So yeah, it took some time, but Its all getting there...

-It will for you too.. Just hang in there and Step your way through things to a better position to then continue from...

Sending extra strength for this particularly hard bit...

And I hope all goes well with your Dr.. I get so spoilt in that area..  When was the upcoming appointment..??

:)

 

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dear Cant  :smitten:

 

so sorry about the late reply, and thank you so very much as always for your gentle, calm, kindness, and concern, and for replying at all, so grateful  :angel:

 

....been terrified this past week. have been logging in but unable to focus, just obsessing about my leg/foot. and heart.... :(

 

so scared every day waiting for test results for 'heart failure'....  :o

 

my GP ended up coming to my appt.  last Thurs. - i guess she felt guilty after my message RE DVT sxs.

 

she took some measurements and said didn't think was DVT.... also took blood test  Re my heart.

 

she's not been back since to take new measurements. told me to go to ER if worse.

 

this is why i'm so scared -- b/c a few years ago after knee probs started, i got a tiny bit of swelling in left ankle, b/c less active.... yet still 1000x more active than these past 7 months....!

 

so my then-GP sent me for special doppler? veins of legs and echo for heart, i think.

 

anyway : 'mild age-related valve regurgitation'..... [that was age 49 - 50-ish].

 

so i happened to just remember and told new GP -- so she took blood for 'BNP' test -- Re heart failure !?

 

my foot ballooned over the weekend and old stretched out slipper doesn't even fit...by dinner, sometimes sooner. frozen, numb, rock hard to toes and up calf.

 

it goes down a tiny bit at night.... but i sleep w/pillow under knees, and heels just gently resting on mattress -- due to painful Achilles -- and no painkillers...

 

so my feet and ankles have become more and more swollen and now Left frozen stiff over recent months i guess, b/c they're not really dangling, but are hanging below hips / heart.  so fluid not draining.

 

over a week now foot and lower leg always  swollen + calf rock hard next morning once i'm up. 

 

i still try to do my 'laps' every hr - 15-20 min, but later in the day it gets down to 10-15 ... so barely 3 hrs a day of walking...  :(

 

much worse after trying to stand in shower once a week [today].

 

and this DVT thing makes it so much harder to walk, so scared i'm making it worse.

 

so sorry to ramble and rant again -- feel so helpless and worried stiff. which doesn't help....

 

i'm also very sorry to hear about your painful L leg, and lyrica still lingering. hope it settles asap for you dear buddie, such a kind soul, deserving of relief.

 

i'm also so glad you can walk enough to keep these scary DVT sxs at bay.

 

has lyrica w/d ever been this bad for you?

 

prob not -- as you've been able to walk most of this time? gosh i hope so...

 

so sorry for presuming anything...[again] ---  from your SIG i understand you were in a MBA and suffered much i cannot imagine.  but don't know the details.... just so thankful you're here with us now.

 

much gratitude for sending strength, i am so anxious.

 

and my hubs has decide to start weighing my CLZ and noticed a decrease in the weights -- you know how the weekly spread goes up and down, etc.... like .007 or so, due to scoring, cutting.

 

so he kept giving me the lower doses these past few days to try reducing a tiny bit --like .005+ ever other day or so.... so far, been about 2% of just CLZ -- not Val.

 

but not sure if that's affecting things -- should have just left it alone. not sure what to do. desperate to get off these poisons.

 

but -- no way able to do Ashton now -- ankles so wobbly/stiff, etc.... don't want them weaker... and don't know what C/O would do in this case, to legs/foot.

 

so angry GP pushed Lyrica and i forgot to mention my heart...

 

oh gosh, sorry again to keep rambling on and on and complaining , when you suffer too  :-[

 

just trying to rush this post sorry to repeat stuff .... going insane.

 

must get up and try to hobble, then lie down again...

 

much gratitude, you are so kind and so very thoughtful  :angel: wishing you well dear friend x

 

 

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dear Cant  :smitten:

 

so sorry about the late reply, and thank you so very much as always for your gentle, calm, kindness, and concern, and for replying at all, so grateful  :angel:

 

....been terrified this past week. have been logging in but unable to focus, just obsessing about my leg/foot. and heart.... :(

 

so scared every day waiting for test results for 'heart failure'....  :o

 

my GP ended up coming to my appt.  last Thurs. - i guess she felt guilty after my message RE DVT sxs.

 

she took some measurements and said didn't think was DVT.... also took blood test  Re my heart.

 

she's not been back since to take new measurements. told me to go to ER if worse.

 

this is why i'm so scared -- b/c a few years ago after knee probs started, i got a tiny bit of swelling in left ankle, b/c less active.... yet still 1000x more active than these past 7 months....!

 

so my then-GP sent me for special doppler? veins of legs and echo for heart, i think.

 

anyway : 'mild age-related valve regurgitation'..... [that was age 49 - 50-ish].

 

so i happened to just remember and told new GP -- so she took blood for 'BNP' test -- Re heart failure !?

 

my foot ballooned over the weekend and old stretched out slipper doesn't even fit...by dinner, sometimes sooner. frozen, numb, rock hard to toes and up calf.

 

it goes down a tiny bit at night.... but i sleep w/pillow under knees, and heels just gently resting on mattress -- due to painful Achilles -- and no painkillers...

 

so my feet and ankles have become more and more swollen and now Left frozen stiff over recent months i guess, b/c they're not really dangling, but are hanging below hips / heart.  so fluid not draining.

 

over a week now foot and lower leg always  swollen + calf rock hard next morning once i'm up. 

 

i still try to do my 'laps' every hr - 15-20 min, but later in the day it gets down to 10-15 ... so barely 3 hrs a day of walking...  :(

 

much worse after trying to stand in shower once a week [today].

 

and this DVT thing makes it so much harder to walk, so scared i'm making it worse.

 

so sorry to ramble and rant again -- feel so helpless and worried stiff. which doesn't help....

 

i'm also very sorry to hear about your painful L leg, and lyrica still lingering. hope it settles asap for you dear buddie, such a kind soul, deserving of relief.

 

i'm also so glad you can walk enough to keep these scary DVT sxs at bay.

 

has lyrica w/d ever been this bad for you?

 

prob not -- as you've been able to walk most of this time? gosh i hope so...

 

so sorry for presuming anything...[again] ---  from your SIG i understand you were in a MBA and suffered much i cannot imagine.  but don't know the details.... just so thankful you're here with us now.

 

much gratitude for sending strength, i am so anxious.

 

and my hubs has decide to start weighing my CLZ and noticed a decrease in the weights -- you know how the weekly spread goes up and down, etc.... like .007 or so, due to scoring, cutting.

 

so he kept giving me the lower doses these past few days to try reducing a tiny bit --like .005+ ever other day or so.... so far, been about 2% of just CLZ -- not Val.

 

but not sure if that's affecting things -- should have just left it alone. not sure what to do. desperate to get off these poisons.

 

but -- no way able to do Ashton now -- ankles so wobbly/stiff, etc.... don't want them weaker... and don't know what C/O would do in this case, to legs/foot.

 

so angry GP pushed Lyrica and i forgot to mention my heart...

 

oh gosh, sorry again to keep rambling on and on and complaining , when you suffer too  :-[

 

just trying to rush this post sorry to repeat stuff .... going insane.

 

must get up and try to hobble, then lie down again...

 

much gratitude, you are so kind and so very thoughtful  :angel: wishing you well dear friend x

Hi Chip..

 

Hope you are holding up ok..??

 

I sent you a quick PM because it was easier for me when feeling like this.. I hope you got it ok, But sorry I dont have any real answers for you... :(

 

As you know its all a bit complicated with my trauma and situation for much to translate effectivly..

 

I did want to mention as per previous discussion, The lyrica SX started to break up for me today, which was fantastic.. It was sudden, and my leg muscles havnt seemed to go back to how they were, after the "windows" have closed... 

 

This sure can take some patience, but just "chip" away at it as best you can, as you can...

 

I hope others can relay more Benzo related experiences, and pls do get medical support if you feel you need it...

 

Sending strength and best wishes...

 

 

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dear Cant  :angel:

 

so very grateful for your kind + helpful reply here + concern + sending strength, means so very much to me....

 

yes was hoping for other replies, Re lyrica or benzos, but just the 1 reply Re go to ER.

 

yet you still reply when you're not feeling good yourself dear buddie, so kind.  so sorry about your lingering trauma, thinking of you and sending my best wishes  :hug:

 

but you said your lyrica sx Re your legs lifted today?!?  SO HAPPY FOR YOU! thank goodness!! i do hope it lasts forever!

 

i had only just noticed and opened your PM earlier -- THANK YOU SO VERY MUCH  -- so grateful you took the time to care to write......

....... But i only saw the 1st para where you were up past midnight... you are a true  :angel:

 

And then our stupid internet got cut off!?!  second time this month!

 

so been trying to use our phones hotspot  again -- but we've got a useless signal here!

-- so trying to write as quick as i can in case it cuts out again.

 

but had to let you know how much i appreciate your effort to PM + hope to read it in full asap --

i know it will be filled w/calm + sensible advice + just want to thank you so much in advance, you are such a kind soul  :hug:

 

and i hope we get our proper internet back 2moro so i can reply to your no doubt very thoughtful PM.

 

been waiting all week to hear from my GP -- was booked to call me on Tue, but didn't -- then was re-booked to call again today, but didn't  ---  when i called them -- the office had shut @ 1pm -- no reason given in v/mail ... so couldn't even speak to another GP...

 

been freaking out all week and GP just ignores me. guess no blood test result yet but i trusted she'd call and check on my leg -- but nope..... guess she doesn't think DVT but that's not the point.... she said Lyrica but what the hell does that mean?

 

she told me last week there's a mobile doppler than could come to me -- so that's what i was waiting to request on Tues + again today -- but she just left me hanging here  :(

 

want to go read your PM thank you so much again  :angel: ... so will try now -- hope i can post this first NOW to let you know about stupid glitch!?

 

thankyou so much again for care + concern my friend.

 

terrified and will call ambulance if i have to.... leg/foot frozen stiff.

 

hope your sx lift and you feel better soon dear buddie  :angel:

 

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