Medication Induced Setback Support

Hi ismytime :  I’m sorry that you had to go through this as well but you pulled through  and you overcame it  I am seeing small improvements but the symptoms are horrific at times.

I hope as time goes on my symptoms will lessen

Tulip

I do hope so as well. May healing come our way.

Tulip! Our stories are SO similar!!! 2 weeks ago I took Amoxicillin... what a nightmare its been!! I'm back in acute after 4 months off and thinking i'm actually starting to heal. It is VERY scary.

Tulip! Our stories are SO similar!!! 2 weeks ago I took Amoxicillin... what a nightmare its been!! I'm back in acute after 4 months off and thinking i'm actually starting to heal. It is VERY scary.

. 

 

I’m sorry you had to go through it two. Took amoxicillin for ear infection and ears drops for three weeks. My infection is gone but I’m suffering badly on my waves. Starting to feel a bit better in my better days  I feel it caused more akathesia for me.

Body burning inner restlessness pressure torture. I feel I’ll never recover. I can’t endure this pain for so long.  My foot is moving constantly

Is there anyone that get better from chronic akathesia

Hope you don’t have this symptom

Tulip :'(

Does anyone know how long do setbacks generally last and anyone else has insomnia as a symptom? I'm almost 4.5 months out and while many symptoms have gotten milder, sleep is still bad.. it's always broken and I feel wired and never sleepy....I was recovered for 3.5 years from the garbage drug until I got setback in December 2021...was wondering if anyone has sleep issues and how it resolved for them. I'm not taking anything for sleep. Slept normally before and after recovering from Benzos so it's really discouraging going through this crap again.

Hey veggiebuddy,

What led to your setback?

 

i can relate I slept well before the setback now its a challenge not a guarentee. I do find that Quinton water helps I take it before bed and in the middle of the night when i wake up. It calms me... so i guess if u r having axniety at bedtime it may help.

Just for the pool of info. Took my antibiotic in February, the first 6 weeks after were the worst. Not there, yet, but slight improvement.

 

Was taking live probiotics, but had hives and itchiness. Found out probiotics cause histamine production. So, I stopped them for now.

 

Also had a severe allergic reaction to Clariton/loratadine yesterday, that's new. Was told by my nurse and a friend who experienced something similar that once you have a severe reaction to a medication, you will always be allergic to it. At my medical center, antihistamines are now in my growing list of allergens s I can not take.

 

Our CNS does not know how to run the body very well without a healthy gut.

 

Be very careful about any OTC meds, or vitamins or supplements until your gut healed. Your system is prone to see them as a toxin, and provoke an allergic response.

 

If you research this, and find good papers on it, you will run into contradictions all over the place. My suggestion for food is to test 1 at a time and see how it goes to determine what you can eat.  Food allergies could be temporary at this time. Once healed, we should be able to eat more foods.

 

Baddove

 

These are typically mast cell reactions.

Antibiotics can do that etc

 

Oddly, after my Moderna booster, I’ve become very allergic to the Valium pill and also to the Ativan liquid.

 

I’m in a tough spot as when I take it, I’m getting anaphylactic type reactions everyday from it.

 

What am I to do now? I can’t stop taking it, I would probably die, but taking it is sending me into anaphylaxis everyday.

 

So tired.

 

Winnie

I am so sorry Winnie. You must be going through hell.

Hey veggiebuddy,

What led to your setback?

 

i can relate I slept well before the setback now its a challenge not a guarentee. I do find that Quinton water helps I take it before bed and in the middle of the night when i wake up. It calms me... so i guess if u r having axniety at bedtime it may help.

 

Thank you. I'm mostly going to bed when I feel like I can sleep, so I will stay up a night here or there. The Covid booster was probably what caused my setback, together with intense exercise.

 

How is your sleep now?

I’m in a severe setback from covid that I had at the end of November. Is there anyone else out there that had a severe covid setback and it passed? I’ve met others that are in severe covid setback as well but we are all still in the thick of it. I’m hoping to find someone who is out on the other side.

I’m in a severe setback from covid that I had at the end of November. Is there anyone else out there that had a severe covid setback and it passed? I’ve met others that are in severe covid setback as well but we are all still in the thick of it. I’m hoping to find someone who is out on the other side.

 

Me, and there are several others.  I'll let them chime in if they see this.  Unfortunately, for me it has not passed, although it is slowly getting better.  I know Trina had Covid and it did pass for her.  There were several others that messaged me and said it passed for them too.  So just because you are recovering from benzos does not necessarily mean you can't overcome a Covid setback. 

I had covid in January whilst I was still tapering, I had no setback and didn't notice anything from it in my benzo symptoms.

Hi,

I am also in a setback from Covid. Caught it in January. I am still in the thick of it but I have noticed very small windows. I wasn’t healed before but was very functional and about 70% healed. I am 2.5 years off benzos and was tapering my AD which was going well, was actually feeling better and better. For me, Covid has been worse than benzo acute.

It would be great to hear from people who have healed from Covid.

Take care xxxx

I had Covid twice, not vac'd and had some acute sxs for a week or two the first time  but with advised supplements and meds, I am fine now and have huge antibodies.

 

Wishing you all the best.

 

Klonkar

Good to know I’m not alone. Sage hill, when did your setback seem to start to turn around? Mine actually has been getting worse every month it seems.

 

Lumpy, mine has some symptoms revved up to acute but not everything is back full swing, but some things are worse than acute. I’m here if you ever want to connect. How long has it been for you?

Good to know I’m not alone. Sage hill, when did your setback seem to start to turn around? Mine actually has been getting worse every month it seems.

 

Lumpy, mine has some symptoms revved up to acute but not everything is back full swing, but some things are worse than acute. I’m here if you ever want to connect. How long has it been for you?

 

I got worse before I got better too.  The first 3 months or so were utter hell.  I started to turn a corner after about a month of doing The Gupta Programme, which is a brain retraining course, which would have been about 3 1/2 months in.  Even with the program, it's a long slow recovery.  I still have a lot of symptoms.  But at least I'm sleeping most nights and my anxiety and depression is much less intense.  I get nice windows sometimes, too.  Also, I've been able to start taking walks, which would have been unthinkable during the worst of it.  At one point it was a struggle just to walk outside and sit in the sun.  Also, I was not able to even read or watch movies at one point because the anxiety and brain fog was so bad.

 

Things I can do now that I could not do before:

 

Drive

Do my own grocery shopping

Take walks with my dogs

Do more of the housework

Feel calm

Watch movies

Play video games

Read

 

 

 

Hi sage,

Thank you for the update. I am having a really hard day today. The anxiety is intense. I seem to have different days - one day the anxiety is lower but I have brain fog. Then another day I feel exhausted and depressed. There seems no rhyme or reason. This intense anxiety though is crazy. I’m about 3.5 months now. Waiting12, I also have times where I feel it is so intense I might explode! I have had a few moments of lower symptoms but they are just short lived - maybe an hour or so. I never had these moments the first 3 months. I am hoping they are a good sign. It’s good to connect and No we are not alone. Xxxx

Crippling anxiety is my worse and most persistent symptom. I am also getting new sxs I have not had before, or did not have to the level I am getting them now. However, it is the high anxiety that is persistant, and primary from antibiotic damage. Just over 2 months from the antibiotic.

 

On the plus side, the constant itching has stopped. Migraines are down as well.

 

I feel completely destabilized per my usage and taper of my meds, xanax and seroquel.

I had a antibiotic setback to amoxicillin in February. I have seen small improvements. What is the average length of time people go through with antibiotics setbacks. I know everyone is different  I’m on gabapentine as well and cymbalta

 

Tulip

Not sure where to post this. I need help. I feel worse after my antibiotics setback. Thinking of reinstating. I know it does work but I’m in agony. Negative thoughts. I’m so scared. What do I do  Someone

E please respond. I feel like I’m dying.

Tulip

I got much worse after my abx setback two years ago, 100+ sx instead of 50 I had before the setback. Internal aka with SI was my worst sx, these are very common in setbacks. I had to start trazodone at a low dose of 12.5 mg at night, it helped, made things a little bit more tolerable, I also did nad + infusions, that took care of the most acute sx when I was the worst. It didn't make the sx last any less, I still had the most horrific, long setback, but at least it took the acuity off a little bit. If you have any questions, feel free to pm me, it does get better, just very slowly, and it is very very scary, but oftentimes it's short lived too, just have to get through the first acute and then for some people things improve very quickly.

Lots of healing thoughts to you, I'm so sorry you are going through this nightmare also((

Not sure where to post this. I need help. I feel worse after my antibiotics setback. Thinking of reinstating. I know it does work but I’m in agony. Negative thoughts. I’m so scared. What do I do  Someone

E please respond. I feel like I’m dying.

Tulip

 

You are not alone.

 

I am still recovering after my AB 13 months ago. I have lots of physical malaise and illness that I didn't have prior and it's been very difficult. Mental symptoms came back but happily they have been better. I think I'd be doing much better if not in perimenopause at the same time. Cycling acute symptoms and cycling hormone symptoms is Russian Roulette of hell every day for me.

Warrior 24. It’s nice to hear that you have some improvements at 13 months. Are you able to function?  I’m noticing some small improvements but not with all my symptoms.

The burning in my body sometimes is not as bad and the intensity of the inner restlessness lessens on some days.

My sleep is ok 6 hrs a night usually but broken. I’m grateful for any improvements. 

Today I’m a bit more positive.

Hope you see more improvements in the up coming months

Tulip

I can only function some of the time. And by function I mean, get dressed, and do light things around the house. Once in a great while I can drive somewhere nearby or visit with a friend. Agoraphobia is still bad and I was NEVER a homebody before.

I had to quit my job as a mental health therapist after the AB setback because the physical illness was just too severe. I am a single mom and will need to return to work sometime later this year as I can't go on financially like this much longer.

 

Don't have a clue what the AB did to me. I've been to every specialist and even a benzo naturopath who tested everything and all came back good. Just a little low on B vitamins.

I received an email from benzo buddies just a minute ago and it made me think of you guys. I wanted to drop by and tell you all that I am better. It took the better part of a year and a half for me to really get back on my feet, but I am back to working as a stylist, raising my girls, and enjoying my life. I was going through an immense amount of stress when I had my setback and I truly believe that contributed to the length of time it took me to really start healing again. Stress is so detrimental to our already sensitive nervous system.

 

I still have symptoms, but they are tolerable, and can typically be curtailed with a nap. Lol. I hope you all are doing well. Hang in there, regardless and run towards any glimpse of freedom from this you my find.  <3

 

I always think of the person (Muddlefoot) who started this very thread about med setbacks. Muddlefoot came back to say she DID RECOVER from her antibiotic set back, and she was back at work, enjoying her kids and living a full life, and that it took her "the better part of a year and a half to get there" , and she truly believes that stress contributed to how long it took.

 

Now I know it's not good to compare timelines. The point is though that she recovered from the setback and moved on.

 

I don't want to alarm anyone in pointing out her time frame because if you're in a setback from a med it can be over in a week, a month, a few months. It is all over this forum the different ranges of time that it takes people to recover from being sensitive to a certain med.  My flu shot setback was 4 months. A year and a half is rare, but she made it and recovered. That is the point.

 

Please hang on. You will get there. Be gentle with yourself.

 

- Fortitude