Support needed and advice please

Hey all, as you know/ can see from my sig this has been a horrendous year of ups and downs on meds. Got c/t’ d 6 weeks ago and hurting immensely from tremors, constant anxiety, vomiting, severe nerve and muscle pain. I cry all day and can’t suffer much longer.

They’ve now realized the Baclofen was the main problem and need to stop that, and that I should’ve stayed on the 12V and tapered slowly.. Baclofen has caused all my muscles to disappear and I can’t sit up or stand, hence why I’ve been bedridden since I started it (doc was blaming Lyme and V, v had always been uplifting for me)

 

Coming off the Baclofen is proving insanely difficult and docs can’t jnderstand why as it’s only 10mg. It causes severe tremors (full body) and my anxiety reaches breaking point.

I can’t take this all right now.

 

At what point is it too late to reinstate and taper slowly? I wanted to but stupidly listened to apparent benzo specialist who I’ve found just treats addicts and not people like me who are just on as doctor ordered.

 

I’m scared of feeling like this and don’t know how much more I can take... 😢

Anyone? I’d really appreciate even just some encouragement or advice.

I could handle the anxiety if I wasn’t bedridden and unable to barely function...

Dtrain - I am here for you! It sounds like getting off the Baclofen is the priority right now.  So given your current health and what I am sensing is really a medical crisis; I would recommend reinstating at 15V for at least 2 months past the end of your Baclofen taper.  Hope that helps. 

Thanks Leslie, I really appreciate hearing from you!

as I’ve just been making drastic changes constantly due to shitty doctors and need to make the right decision... I’ve lost 5 months to this Baclofen caper and I’m so broken and don’t know how I’ll get thru. I’ve been diagnosed with severe muscular hypotonia from the Baclofen, turns out it should never be prescribed if you’re on Mirtazipine or Valium. I’m so angry and upset. And feel stupid for not realizing what was happening. And now I can barely walk and can’t even drive or hold my arms up.

 

You’ve been in my thoughts, how are you doing? Getting better I hope ☺️

Thank you for asking about me DTrain.  I am ok... just a lot catching up with me for what I have been through both mentally and physically.  My symptoms are pretty stable right now but I simply can not exercise or it is right back to aching legs (not sore muscles) and locked hips.  I am learning to live life differently now which is the only thing I can really do.  I have lost out on so much for the past couple of years in terms of being emotionally available for my kids and maintaining friendships that I am in a bit of a despair.  But I am working on trying to mend things in a way that won't make me feel need to medicate again.  Also very bummed that I have gained like 20 pounds in the last three months! It is bizarre.  My metabolism is just WAY off because it is not from eating unhealthy as I have cleaned up my diet a ton... funny - I never had a weight issue hen I was eating fast food and ice cream until withdrawals.  I just had to work out and I was fine. Not anymore!  But there is improvement in many other aspects of my health so I should be grateful for this.  WOW... guess I needed to vent.  Much appreciation.

Oh Leslie bless sorry it’s bedn tough but so happy you’re making progress and getting better!

Sounds like you’re on your way... keep strong!

PM any time you feel like a vent or chat ☺️

 

What does anyone else think, should I reinstate? Any mods that could chime in?

Struggling bad this morning, just feel like I’m going to collapse, heart racing, sweating, shaking, it’s all too much 6 eeeks out. So much pain.. like stone every morning til I take my stupid Baclofen I have to stop it ASAP but can’t take this getting even worse...

DT,

Please do not give up. If you haven't already, read some of my Success Story. You will discover you are not alone in how bad you feel, how scared you are. Getting through this mess IS a huge task. Many days will be bad but after a while, things will start to level out. Slowly slowly, you will return to who you truly are. WD will test you, no doubt. But getting through it will prove to you - once and for all - what a strong person you really are.

Benzo WD may be the hardest thing you ever did. Was for me. But getting through it told me SO much about who I really am, now that benzos are not clouding every single thing I do. I AM a tough old lady, and I am NOT perfect, and never will be. But I made it through the miserable maze of benzo withdrawal and that is something to be proud of.

east

Thanks East, you’re such a kind support on this forum. ☺️

A great advocate for coming out the other end!