Author Topic: I'm still in here!  (Read 9483 times)

[Buddie]

Re: I'm still in here!
« Reply #50 on: October 05, 2018, 01:51:04 am »
 :hug: :hug:
Hugs and blessings to all of you struggling through this journey. You will get better, you will make it!!!
Just survive one more day.....

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Suggestions, opinions and/or advice provided by the author of this post should not be regarded as medical advice; nor should it substitute for professional medical care. Consult your doctor before making any changes to your medication. Please read our Community Policy Documents board for further information.

[Buddie]

Re: I'm still in here!
« Reply #51 on: October 05, 2018, 11:56:24 am »
:hug: :hug:
Hugs and blessings to all of you struggling through this journey. You will get better, you will make it!!!
Just survive one more day.....

[...]


Back at ya [...]  ;)💜💙💚💛❣️ [...]
Suggestions, opinions and/or advice provided by the author of this post should not be regarded as medical advice; nor should it substitute for professional medical care. Consult your doctor before making any changes to your medication. Please read our Community Policy Documents board for further information.

[Buddie]

Re: I'm still in here!
« Reply #52 on: October 05, 2018, 07:23:44 pm »
Thank you so much [...] for thinking, reminding and inspiring us who are still struggling that  we will also get better when the right time comes.

Wishing you and your family wellness, joy and peace!


Blessing!
[...]
Suggestions, opinions and/or advice provided by the author of this post should not be regarded as medical advice; nor should it substitute for professional medical care. Consult your doctor before making any changes to your medication. Please read our Community Policy Documents board for further information.

[Buddie]

Re: I'm still in here!
« Reply #53 on: October 05, 2018, 09:47:45 pm »
One question- during your MT, did you ever hold? And if you did, do you think it helped? Did you change your rate at all as you got lower?
Thanks!

[...],
I tried holding once for about 5 days, but didn't notice really any better or worse for that matter. I stayed pretty consistent at .001mg for a good bit but went to .002 a few times, sometimes it work fine for a few days, sometimes it felt like too much...so I would go back to the .001. The main thing is trust yourself. Nothing wrong with making adjustments based on your symptoms but I believe for the most part you should keep moving forward, it's not going to be perfect but every mg you cut your done with forever! A good bit of it is trusting yourself even through the bad days. Very many times in the midst of the taper I would feel 2 steps forward 3 steps back....but as you keep going you can look back and see the map of your journey. That is why I recommend a journal. It totally helped me immensely and there were times I could consult it to make decisions moving forward.
Thanks for your kind words on your previous post too. We are all heroes when we make it through this hell. When you have tough times moving forward you can rely on where you came from and actually feel stronger than you ever thought!

Prayers to you, :thumbsup:

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Wise words [...]! thank you for the boost and inspiration....
 :smitten: :smitten:
[...]
Suggestions, opinions and/or advice provided by the author of this post should not be regarded as medical advice; nor should it substitute for professional medical care. Consult your doctor before making any changes to your medication. Please read our Community Policy Documents board for further information.

[Buddie]

Re: I'm still in here!
« Reply #54 on: October 06, 2018, 12:11:37 pm »
[...], I've read your story and replies and you are one of the most brilliant, inspiring people I've ever heard of. I read it at a time when I had not slept in almost 40 hours and was in a difficult spot (trapped 1500 miles from home with no prospect of escaping for days). It really gave me [...] and resolve.

When this is over, I know I will want to forget it and just move on, but I also know that will be impossible. There has been a number of times I was sure I would die and it has just been too traumatic. I [...] that, like you, I can help as many people as possible by telling my story. Many have been through this hell, but are too ashamed too speak up. They shouldn't be. It's the doctors who should be ashamed. But it seems often that  the people who should most feel guilty are also the least likely to express remorse and change their behaviour, while many of their victims are permanently silenced. I [...] we can change this.

Thanks :)
Suggestions, opinions and/or advice provided by the author of this post should not be regarded as medical advice; nor should it substitute for professional medical care. Consult your doctor before making any changes to your medication. Please read our Community Policy Documents board for further information.

[Buddie]

Re: I'm still in here!
« Reply #55 on: October 07, 2018, 03:41:24 am »
[...], [...], S60, DG
Thanks for responding.  Hang in there as best you can and keep moving forward....baby steps add up too!👍

❤❤❤
[...]
Suggestions, opinions and/or advice provided by the author of this post should not be regarded as medical advice; nor should it substitute for professional medical care. Consult your doctor before making any changes to your medication. Please read our Community Policy Documents board for further information.

[Buddie]

Re: I'm still in here!
« Reply #56 on: October 07, 2018, 03:51:41 am »
[...], I've read your story and replies and you are one of the most brilliant, inspiring people I've ever heard of. I read it at a time when I had not slept in almost 40 hours and was in a difficult spot (trapped 1500 miles from home with no prospect of escaping for days). It really gave me [...] and resolve.

When this is over, I know I will want to forget it and just move on, but I also know that will be impossible. There has been a number of times I was sure I would die and it has just been too traumatic. I [...] that, like you, I can help as many people as possible by telling my story. Many have been through this hell, but are too ashamed too speak up. They shouldn't be. It's the doctors who should be ashamed. But it seems often that  the people who should most feel guilty are also the least likely to express remorse and change their behaviour, while many of their victims are permanently silenced. I [...] we can change this.

Thanks :)
DG,
 Glad I could help you a little at a difficult time, Lord knows I've been there my friend. Reading success stories got me through some tough days, one positive comment can sometimes turn your day.
You're right about the doctors, they treated me like a fool many times, when in fact I was right....we must be our own advocate. When they're wrong, in most cases, they just move on to the next room, next patient. Rarely do they admit it and try to right the wrong.

On a side note I noticed you listed hypersalivation as a symptom, I too had this...it was one of the worst secondary symptoms. How is your's doing?
Like everything it does end!!!!
Don't lose [...]!! We MUST remain [...] and positive or we might miss the little victories, and they add up!

🌞
[...]
Suggestions, opinions and/or advice provided by the author of this post should not be regarded as medical advice; nor should it substitute for professional medical care. Consult your doctor before making any changes to your medication. Please read our Community Policy Documents board for further information.

[Buddie]

Re: I'm still in here!
« Reply #57 on: October 07, 2018, 07:03:58 pm »

DG,
 Glad I could help you a little at a difficult time, Lord knows I've been there my friend. Reading success stories got me through some tough days, one positive comment can sometimes turn your day.
You're right about the doctors, they treated me like a fool many times, when in fact I was right....we must be our own advocate. When they're wrong, in most cases, they just move on to the next room, next patient. Rarely do they admit it and try to right the wrong.

On a side note I noticed you listed hypersalivation as a symptom, I too had this...it was one of the worst secondary symptoms. How is your's doing?
Like everything it does end!!!!
Don't lose [...]!! We MUST remain [...] and positive or we might miss the little victories, and they add up!

🌞
[...]

Thanks for the reply [...]. The hypersalivation is not too bothersome for me. It's mostly just disgusting and embarrassing socially (I usually have to spit every five minutes). My worst symptoms are the insomnia, which exacerbates the extreme tension when it gets bad, and the gastrointestinal stuff. The klonopin did severe damage to my stomach. There was a long time where I could not tell whether I was hungry or very full, I just couldn't feel hunger, only a great discomfort and bloating which wouldn't go away. This has gotten much better with a change in diet.

It's fantastic to hear you're doing so well. You must be a tough hombre! I'll try to emulate :)

I [...] you stick around for a bit. It's important for someone to fill the void left by derelict MDs. Here's to things continuing to improve for you  :thumbsup:
Suggestions, opinions and/or advice provided by the author of this post should not be regarded as medical advice; nor should it substitute for professional medical care. Consult your doctor before making any changes to your medication. Please read our Community Policy Documents board for further information.

[Buddie]

Re: I'm still in here!
« Reply #58 on: October 08, 2018, 01:23:06 pm »

DG,
 Glad I could help you a little at a difficult time, Lord knows I've been there my friend. Reading success stories got me through some tough days, one positive comment can sometimes turn your day.
You're right about the doctors, they treated me like a fool many times, when in fact I was right....we must be our own advocate. When they're wrong, in most cases, they just move on to the next room, next patient. Rarely do they admit it and try to right the wrong.

On a side note I noticed you listed hypersalivation as a symptom, I too had this...it was one of the worst secondary symptoms. How is your's doing?
Like everything it does end!!!!
Don't lose [...]!! We MUST remain [...] and positive or we might miss the little victories, and they add up!

🌞
[...]

Thanks for the reply [...]. The hypersalivation is not too bothersome for me. It's mostly just disgusting and embarrassing socially (I usually have to spit every five minutes). My worst symptoms are the insomnia, which exacerbates the extreme tension when it gets bad, and the gastrointestinal stuff. The klonopin did severe damage to my stomach. There was a long time where I could not tell whether I was hungry or very full, I just couldn't feel hunger, only a great discomfort and bloating which wouldn't go away. This has gotten much better with a change in diet.

It's fantastic to hear you're doing so well. You must be a tough hombre! I'll try to emulate :)

I [...] you stick around for a bit. It's important for someone to fill the void left by derelict MDs. Here's to things continuing to improve for you  :thumbsup:
I get it about the insomnia DG. Frankly don't know how I made it with such little sleep. You are right about the lack of sleep ramping up the anxiety so much more. Always felt "wired and tired".....so physically beat, so mentally and emotionally drained but my mind was on constant 78rpm. There was a period [...] off the drugs where the akathasia, rebound insomnia and chemical anxiety had me with practically zero sleep for weeks on end. How our body makes it I don't know, but it does. Now I get 4-6 hours of broken sleep a night and it's heavenly. It's all perspective. I get up and do now and can actually sit sometimes and not think for a minute, about anything.....something I thought was a lost art.
Keep on moving forward my friend....it gets better. :thumbsup:
💙

[...]
Suggestions, opinions and/or advice provided by the author of this post should not be regarded as medical advice; nor should it substitute for professional medical care. Consult your doctor before making any changes to your medication. Please read our Community Policy Documents board for further information.

[Buddie]

Re: I'm still in here!
« Reply #59 on: October 13, 2018, 05:08:13 pm »
We live in the Panhandle of Florida but were personally spared of damage. I pray for the many that were hit hard by Hurricane Michael. I know the stress of life events can dramatically affect your mental state, and something this disastrous can leave many without food or shelter.
I am thankful that I'm healed so I can try and handle life events like a "normal" person.
Prayers to those dealing with this recovery....
[...]

Suggestions, opinions and/or advice provided by the author of this post should not be regarded as medical advice; nor should it substitute for professional medical care. Consult your doctor before making any changes to your medication. Please read our Community Policy Documents board for further information.