Author Topic: I'm still in here!  (Read 9489 times)

[Buddie]

Re: I'm still in here!
« Reply #10 on: September 06, 2018, 08:56:22 am »
Dear [...],

There are no words really to do justice to an experience such as the one you lived. I know that your story conveys only a fraction of all the suffering... But, you're healed and whole!!! Congratulations - and thank you for making my heart sing this morning!

My story echoes yours: multiple misdiagnoses...in and out of psych hospitals...on and on. Like you, I have realised that most, perhaps even all, of my 'labels' were iatrogenic misdiagnoses - and I'll never touch medical drugs again (save in the case of a medical emergency, such as an accident requiring surgery).

Wishing you and your lovely wife a lifetime of love, wellness, and new adventures!
With warmth and gratitude
« Last Edit: September 06, 2018, 09:25:29 am by [Buddie] »
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[Buddie]

Re: I'm still in here!
« Reply #11 on: September 06, 2018, 12:25:40 pm »
Dear [...]  :smitten:

THANK YOU SO MUCH for sharing this incredibly inspiring journey... the words just elude me.

At 15 months, still struggling daily from akathisia and mental symptoms, your story helps so so much... I can't possibly do it justice with any reply I could write just now...

THANK YOU SO MUCH ❤

And huge congratulations of course!  :smitten:

Hugs,
[...] xx
Suggestions, opinions and/or advice provided by the author of this post should not be regarded as medical advice; nor should it substitute for professional medical care. Consult your doctor before making any changes to your medication. Please read our Community Policy Documents board for further information.

[Buddie]

Re: I'm still in here!
« Reply #12 on: September 06, 2018, 01:00:54 pm »
YAY, BSTRONG!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!  Thank you for [...] back to share your freedom with us, and thank you over the years for cheering me on at the Klonopin Klub. 

I relate to the process of forgiving those that turned away when we were most in need.  It hurts, but I understand people do the best they can.  I'm now working on repairing some of those friendships.

Wishing you a lifetime of peace and joy.    :smitten: :smitten: :smitten: :smitten:

[...]

Suggestions, opinions and/or advice provided by the author of this post should not be regarded as medical advice; nor should it substitute for professional medical care. Consult your doctor before making any changes to your medication. Please read our Community Policy Documents board for further information.

[Buddie]

Re: I'm still in here!
« Reply #13 on: September 06, 2018, 01:45:03 pm »
Wow. What an incredible journey. Congratulations.  So so so many similarities to my story. That really helps to validate what I went through. Thank you for taking the time to write this.

Best Wishes.
Suggestions, opinions and/or advice provided by the author of this post should not be regarded as medical advice; nor should it substitute for professional medical care. Consult your doctor before making any changes to your medication. Please read our Community Policy Documents board for further information.

[Buddie]

Re: I'm still in here!
« Reply #14 on: September 06, 2018, 02:20:16 pm »
 I have a question for Be strong.  did your anxiety gradually went away or just one day stopped?  and what did you do while going through it?
Suggestions, opinions and/or advice provided by the author of this post should not be regarded as medical advice; nor should it substitute for professional medical care. Consult your doctor before making any changes to your medication. Please read our Community Policy Documents board for further information.

[Buddie]

Re: I'm still in here!
« Reply #15 on: September 06, 2018, 04:01:37 pm »
Wow that's is amazing success story!!! Feel so many way similarity  to my story.
Congratulations to make it trough and thank you so much to [...] back and let us know there is a [...].
27 months off benzo and 6 months off remeron. Still struggling badly but you give me [...] it will get better one day.
Thank you
Love and healing
[...]
Suggestions, opinions and/or advice provided by the author of this post should not be regarded as medical advice; nor should it substitute for professional medical care. Consult your doctor before making any changes to your medication. Please read our Community Policy Documents board for further information.

[Buddie]

Re: I'm still in here!
« Reply #16 on: September 06, 2018, 08:01:14 pm »
[...],
The Urologist had to do with the stomach pain and problems from the Mesenteric Paniculitis diagnosis. I had a bladder scope done, which was extremely painful, to rule out bladder cancer and check for stones. I've always had a bit of BPH ( enlarged prostate) which causes a feeling of needing to urinate. This feeling increased during withdrawal and I continue to have to get up during the night because of a feeling of needing to go. I think the nerve endings everywhere in the body are at increased awareness because of getting off of a drug that probably dampened them for so long. My kidneys were checked several times, so far so good, wish you well with yours.
I believe, again in my opinion I'm no doctor, that the artificial synthetic drugs altering our body systems and changing our CNC may play a huge role in many problems we go through that are attributed to illness. I'm not saying we don't have other health problems and the ramifications of old age attacking us, but many if not almost all of my problems were drug related.
Early on in this adventure I went to the ER after my doctor decided to try me on Propranolol because my BP had been "mildly elevated". Prior to this my BP was approx 145/90. ( This was on Klonopin too).  This had been my normal BP for the last few years while on K. Although I don't know for sure if that had an affect on it.
A couple of days into taking propranolol my BP was 195/95. I was admitted had extensive cardiology tests including stress tests, EKG, EEG, and a heart Catheter after wearing a holter monitor for a few days. Everything in my heart checked out fine, even though I was having chest pains and palpitations. I stopped the propranolol on my own. They wanted me to take losartin instead, but I never took any. I had some major heart pains, lots of palpitations, but decided in part since my heart had no damage and needed no stents, I would do without. Today my BP is 117/82...I'm on NOTHING! I'm not saying there aren't people who need certain drugs, and that indeed some are life saving, but I can only go by my own experience.
[...],
One of my Pdocs tried me on Remeron, but I had a reaction, fever, flulike symptoms and nervousness. I've heard it's helped some people, but anything that needed any tapering made me nervous anyway, after trying tapering prior. Again, quite possibly we taking an antidepressant drug, which by definition raises your Serotonin, makes you artificially "happy"....while benzodiazepines do the exact opposite...calm you by decreasing serotonin levels and increasing melatonin.
Perhaps us toying with our CNC this much gets our GABA out of balance and homeostasis is very hard to achieve after all the artificial "happiness" and "calming". Alot of drugs we are given play on other body systems cross the blood/brain barrier and affect much more than what they are intended for.
I would definitely tell people who are having anxiety or depression to exhaust all other avenues, be it therapy or changing your environment, or maybe you're just having some anxiety or depression that may subside on it's own if you tough it out. We all go through tough times and situations and if we learn how to work through them instead of introducing an artificial entity to our system to control our emotions, that we learn how to cope naturally. Some situations are just hard!!
 But I've definitely had nothing tougher to deal with than what I went through with this...not even close. That is why [...] out of this funk feels like we have to "relearn" life skills all over again. The more you try the more you succeed. Heck, you're succeeding by just trying!

[...],
So great to here from you!!!!! [...] you're hanging on and trying to enjoy life again my friend.

Sorry for rambling on....but I was where many of you are, and sometimes reading just one thing helped me make it another day.🌞


Prayers to all of you,
Love,❤

[...]
Suggestions, opinions and/or advice provided by the author of this post should not be regarded as medical advice; nor should it substitute for professional medical care. Consult your doctor before making any changes to your medication. Please read our Community Policy Documents board for further information.

[Buddie]

Re: I'm still in here!
« Reply #17 on: September 06, 2018, 08:53:38 pm »
[...],
The Urologist had to do with the stomach pain and problems from the Mesenteric Paniculitis diagnosis. I had a bladder scope done, which was extremely painful, to rule out bladder cancer and check for stones. I've always had a bit of BPH ( enlarged prostate) which causes a feeling of needing to urinate. This feeling increased during withdrawal and I continue to have to get up during the night because of a feeling of needing to go. I think the nerve endings everywhere in the body are at increased awareness because of getting off of a drug that probably dampened them for so long. My kidneys were checked several times, so far so good, wish you well with yours.
I believe, again in my opinion I'm no doctor, that the artificial synthetic drugs altering our body systems and changing our CNC may play a huge role in many problems we go through that are attributed to illness. I'm not saying we don't have other health problems and the ramifications of old age attacking us, but many if not almost all of my problems were drug related.
Early on in this adventure I went to the ER after my doctor decided to try me on Propranolol because my BP had been "mildly elevated". Prior to this my BP was approx 145/90. ( This was on Klonopin too).  This had been my normal BP for the last few years while on K. Although I don't know for sure if that had an affect on it.
A couple of days into taking propranolol my BP was 195/95. I was admitted had extensive cardiology tests including stress tests, EKG, EEG, and a heart Catheter after wearing a holter monitor for a few days. Everything in my heart checked out fine, even though I was having chest pains and palpitations. I stopped the propranolol on my own. They wanted me to take losartin instead, but I never took any. I had some major heart pains, lots of palpitations, but decided in part since my heart had no damage and needed no stents, I would do without. Today my BP is 117/82...I'm on NOTHING! I'm not saying there aren't people who need certain drugs, and that indeed some are life saving, but I can only go by my own experience.
[...],
One of my Pdocs tried me on Remeron, but I had a reaction, fever, flulike symptoms and nervousness. I've heard it's helped some people, but anything that needed any tapering made me nervous anyway, after trying tapering prior. Again, quite possibly we taking an antidepressant drug, which by definition raises your Serotonin, makes you artificially "happy"....while benzodiazepines do the exact opposite...calm you by decreasing serotonin levels and increasing melatonin.
Perhaps us toying with our CNC this much gets our GABA out of balance and homeostasis is very hard to achieve after all the artificial "happiness" and "calming". Alot of drugs we are given play on other body systems cross the blood/brain barrier and affect much more than what they are intended for.
I would definitely tell people who are having anxiety or depression to exhaust all other avenues, be it therapy or changing your environment, or maybe you're just having some anxiety or depression that may subside on it's own if you tough it out. We all go through tough times and situations and if we learn how to work through them instead of introducing an artificial entity to our system to control our emotions, that we learn how to cope naturally. Some situations are just hard!!
 But I've definitely had nothing tougher to deal with than what I went through with this...not even close. That is why [...] out of this funk feels like we have to "relearn" life skills all over again. The more you try the more you succeed. Heck, you're succeeding by just trying!

[...],
So great to here from you!!!!! [...] you're hanging on and trying to enjoy life again my friend.

Sorry for rambling on....but I was where many of you are, and sometimes reading just one thing helped me make it another day.🌞


Prayers to all of you,
Love,❤

[...]


You are so right, sometimes just one topic or sentence can get you through day, it's happened to me many times.  I think it's called [...], and you continue to give that, thank you [...] :smitten:
[...]
Suggestions, opinions and/or advice provided by the author of this post should not be regarded as medical advice; nor should it substitute for professional medical care. Consult your doctor before making any changes to your medication. Please read our Community Policy Documents board for further information.

[Buddie]

Re: I'm still in here!
« Reply #18 on: September 06, 2018, 10:37:35 pm »
Great   job   !!!!

How  long did Intrusive thoughts last and they despite over time ? 
Suggestions, opinions and/or advice provided by the author of this post should not be regarded as medical advice; nor should it substitute for professional medical care. Consult your doctor before making any changes to your medication. Please read our Community Policy Documents board for further information.

[Buddie]

Re: I'm still in here!
« Reply #19 on: September 07, 2018, 12:32:56 am »
how did  you progress over 19 months  ?
Suggestions, opinions and/or advice provided by the author of this post should not be regarded as medical advice; nor should it substitute for professional medical care. Consult your doctor before making any changes to your medication. Please read our Community Policy Documents board for further information.