Author Topic: 2nd success story at 12 months - life just gets better  (Read 14549 times)

[Buddie]

Re: 2nd success story at 12 months - life just gets better
« Reply #20 on: June 26, 2018, 09:56:51 pm »
here is the link to the list of neurotoxic foods / ingredients / condiments - its not a live link so you will need to cut and paste it into your web browser


http://www.dramyyasko.com/wp-content/files_flutter/1279663001Neuroprovokers8.pdf
« Last Edit: June 28, 2018, 11:24:13 am by [Buddie] »
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[Buddie]

Re: 2nd success story at 12 months - life just gets better
« Reply #21 on: June 26, 2018, 10:30:27 pm »
Thank you for all the information you have added in your two success story posts. It is very helpful.

I hope the rest of your life is full of health and joy and happiness.
Suggestions, opinions and/or advice provided by the author of this post should not be regarded as medical advice; nor should it substitute for professional medical care. Consult your doctor before making any changes to your medication. Please read our Community Policy Documents board for further information.

[Buddie]

Re: 2nd success story at 12 months - life just gets better
« Reply #22 on: June 26, 2018, 11:44:23 pm »
Just stopped back in to see if there were any immediate questions -

will try to answer them:

Gooner - yes - I believe an untreated brain injury could very well hinder recovery.  I will try to look it up but a Dr Nemechek out in Arizona has published quite a bit on brain injury and less than traditional healing modalities - he was about to publish something new - not sure if it's come out yet.  I imagine you will need to pursue some traditional physical therapy programs - i have a friend who slipped and fell on the ice this winter and got a concussion and is going through just about all the things i did and she is getting tons of PT / OT etc and insurance is of course covering it since a concussion is recognized as a medical issue - sadly - our situation is not

Pinky - i debated addressing many of the things you asked about but the post was already so long.   For anyone who knows me - they know i pretty much don't believe in modern medicine anymore after all i've witnessed in my 20 yr career - with the exception of hte developments going on in oncology - which is the only reason i remain in my career.   My doubts began 12 yrs ago when my 12 year old niece was born entirely normal and thriving until she received her millionth vaccine and suddenly became SEVEVERLY autistic- she was not born that way - it took $100,000 in non traditional healing modalities and she is recovered 100% and thriving.  Much of what recovered her was following Dr Amy Yasko's protocol - and an 18 month old has no ability to recover due to hte "placebo effect" - she went from being non verbal, non responsive, hitting herself in her stomach and banging her head against the wall back to a totally normal, thriving child.   

As mentioned - there are no published scientific studies on vitamins - and most of my doctors will say they do nothing.  I can only go off my own experience that i healed from several health crises using them where my labs were off the charts and then went back into the normal ranges without taking the "pills" the doctors wanted to use.    Any doctor under the age of 50 has only learned "you see this symptom - you give this pill" - by own endocrinologist didn't know what hte HPA axis was...... the reason I know is because oncologists understand it far more than endocrinologists.  In the end i found a functional medicine doc who is 74 - ex Navy trained MD - who has left traditional medicine and he said doctors his age all knew the dangers of valium and all understand how the body heals based on actual function - not in using pills..... one of my labs that went through the roof was IGF-1 during this - that was scary because when you read about high IGF-1 it can be from cancer - its most often caused by too much dairy or sugar but given i was consuming none - i knew that wasnt the cause - after enough research - i found that lycopene can reduce IGF-1.  I started it - within a month my number dropped from 260 to 215 and another month later it was 160.  i have another friend who also had high IGF-1 - she started on it and had the same results.  After resuming Vitamin C my cortisol levels dropped dramatically .  This is my own evidence - everyone can decide for themselves but given i had lab testing to show i was deficient - and major improvements occurred after going back on vitamins - that is all the evidence i need.

I reference the Secret and Power because they are easily accessible and understandable.   Major oncology institutions like MD Anderson and Dana Farber recommend them.  They are an easy read .  I had some hesitation because the books basically say we are all responsible for our current situation and that could upset people - it also says - shit happens - and its how you respond to it that matters..... either way - reading them changed my life - perhaps because i read far too much heavy science all day long - something simple appealed to me

As for the german joke - i've heard the same one and there is a different answer to it - "zero - because it was engineered so efficiently it will last forever" ......  my parents were both born and raised in germany and i have many german friends and we all get a good laugh over our toughness , rigidity, etc,  we have a sense of humor about it- we all say its the source of our success and failures.....

Thank you for taking the time to respond to those points. Your persuasive for sure. Urgh, I fear I am losing my faith in modern medicine with this whole experience being the final straw. I began drifting away a few years go from the certainty mind-set of modern medicine and the more I live and learn the more uncertain I have become. Now all I can see is a cultural arrogance emanating from those who dismiss anything outside of modern medicine. There is a rejection of the 'transcendent' or that which we should be humbled by in our ignorance. That instinct in the medical community to reject the unknown with certainty seems to me something closer to ideology than reason nowadays. I have argued at length with colleagues that there is no room for the exploration of these domains in medicine and we in the 'establishment' so-to-speak suck the oxygen out of the room when patients and colleagues explore them. therefore, there is no room for open minded people to rightfully seek answers to questions that plague us all by utilizing the vast infrastructure of modern medicine, which is their right. Carl Jung's explorations of transcendental experiences and their uses in health (Alcoholics Anonymous) was the first time I noticed that modern medicine has distinct boundaries or rather barriers and 'others' these sorts of things under the complimentary/alternative medicine category. So it becomes a 'no mans land' where we don't go. They then repeat over and over that all things that have merit become medicine and all things without stay alternative. Its kind of preachy actually. That was a 'road to Damascus' kind of moment for me.

I think I will try these vitamins for a while and see for myself. Ill read those books too.

Also I appreciate you sharing your anecdotes given how personal they are. They gave a lot of food for thought.

On the lighter note, I'm stealing that joke for work. We have a few German doctors who I like telling jokes to and then watching them say without smiling or laughing "hmm, thats funny, I like it". Cracks me up every-time. They, like you and your family do have a decent sense of humor, its just a bit deeper.

Oh and kudos to you for being brave enough to check your bloods regularly and experiment so much through this all and then share the results. My health anxiety is far too out of control to go looking for cancer markers like IGF-1.

Last thing, do you have any recommendation for resources; websites, you tube channels etc of people who recommend meals and foods that are not on that list. It seems like a lot of cross referencing to do before meal preps. Im short on time at the moment so any resource that provides meal plans with no neuro-excitatory foods would be an awesome short cut.
« Last Edit: June 27, 2018, 12:03:16 am by [Buddie] »
Suggestions, opinions and/or advice provided by the author of this post should not be regarded as medical advice; nor should it substitute for professional medical care. Consult your doctor before making any changes to your medication. Please read our Community Policy Documents board for further information.

[Buddie]

Re: 2nd success story at 12 months - life just gets better
« Reply #23 on: June 27, 2018, 12:38:31 am »
hey [...] - thanks for the well wishes - i wish the same for you - everyone in this site has suffered too long and my only hope is to share that sometimes time isn't the only answer and sometimes time won't be enough.   

i really wish we had qualified doctors in this country to help people.    meanwhile - all we can do is share what has worked for us and hope it helps others.  just like exercise helps some - it harms others - so - my plan worked for me and will likely work for someone with similar health status and genetics.  doctors are threatened by all of what they don't know.  i had huge moments of satisfaction as i circled back to each of them that i saw during the ordeal - it was very satisfying to see their shock and disbelief.   the human body is truly capable of healing with the right tools.

pinky - i wish you success in trying some of these things - just remember to ease your way in.  even natural things can be abrupt to a benzo distressed body.  as for food recommendations - that is honestly why i got to that very limited list - i just didnt have the strength and energy to be more creative - the only thing i used to cook food was olive oil and sea salt for a very long time and some organic butter.  everything was very plain and eating brought no joy - but i realized my food was medicine in many ways.  at the 8 month mark i got daring and slowly started to add things in.  i am surprised - i still enjoy chicken and salmon despite how much of it i ate!   if i come across any good sites - i will share them.  for me - it got overwhelming because with the CBS gene i'm supposed to avoid high sulfur foods but then i also had to avoid high histamine foods - so - that really limited the options to what i laid out in that meal plan - i ate that way day after day - month after month.......

sometimes i shook things up and used romaine or arugula instead of kale - i loved spinach but that is on the high histamine list so it had to go. 

Dr Yasko published a free e-book - its not an easy read - it's titled around autism but i had to say the benzo brain injury we experience is very similar - so - it may be worth reading as she tries to explain the GABA / Glutamate imbalance and she gets into quite a few of the gene SNPs that are common amongst people with brain imbalances. 
http://www.dramyyasko.com/wp-content/files_flutter/1327512160_9_1_1_8_pdf_02_file.pdf

 i know my post was long - it took a long time to write it - but it was based around all the different questions i've received over the last few months - i figured it was worth sharing with everyone.  i certainly don't have all the answers but i have some alternatives for people to try if they feel they aren't making progress.  i think the first few months are going to be brutal no matter what until the GABA receptors start to return but i do think it's possible to shorten the length of suffering if the body is fully supported with the right nutrients.  the ashton manual is a valuable resource but it's from the 70s before much was known about the level of toxins in our current environment and the gene mutations that have become more common, etc.,  so while she is absolutely right about not messing with GABA products - I think some of the other information is outdated.  In the 70s- the soil had far more nutrients and food wasn't preserved, etc.,  the world was a very different place back then!    our milk and juice came in glass bottles - now everything is plastic - that change alone made a big impact on health!!

best wishes to all.   we all deserve to heal. 
Suggestions, opinions and/or advice provided by the author of this post should not be regarded as medical advice; nor should it substitute for professional medical care. Consult your doctor before making any changes to your medication. Please read our Community Policy Documents board for further information.

[Buddie]

Re: 2nd success story at 12 months - life just gets better
« Reply #24 on: June 27, 2018, 09:01:40 pm »
What a beautiful written success story!  Thank you for all the wonderful information and all the help what you trying to do for us who are still in it.  :smitten:

I'm 3 years in this and trying to climb up from the darkest most horrible hole in my life. Only 4 months off all the medication and eating extremely healthy just like you.
Saw so many doctors, had so many tests and all came back normal accept my DHEAS is very high and cortisol is very high, my projesterone very low, I have underactive thyroid. Taking natural thyroid medication for that.  I'm 57 years old and just going trough peri menapouse now. Taking a very low bio identical projesterone cream only 5 mg. I tried to stop before about 2 months ago could not do it.
 
I have some improvement thank you God but my brain is not calming down. Still have bad burning head/scalp is feels like painful thingling all over my scalp and squeezing muscle spasm all over my scalp and neck. It is give me anxiety and more anxiety I have more scalp/ head pain I have.
Scared to take any supplements, what ever I tried did not work.

My question is for you, do you think this burning brain / scalp is still withrawl or I have this horrible pain bc hormonal unbalanced or bc the projesterone cream?
Did you had burning head/ scalp? This is by far my worst symptoms and I have no idea how to help my self.
Thank you again all the great information. God bless you with good health and wonderful life.
Love and healing
[...]
Suggestions, opinions and/or advice provided by the author of this post should not be regarded as medical advice; nor should it substitute for professional medical care. Consult your doctor before making any changes to your medication. Please read our Community Policy Documents board for further information.

[Buddie]

Re: 2nd success story at 12 months - life just gets better
« Reply #25 on: June 27, 2018, 10:06:55 pm »
Hi [...] - i did have that scalp pain - it was pretty constant for a few months - then left - then came back and then left never to happen again - so - i suspect it is withdrawal related - the way i would describe it - felt like someone had been pulling at my hair for hours on end such that my scalp felt sore.   it felt like something was tugging yet i didnt have my hair in a clip or pony tail - so - not sure what causes that but it was very uncomfortable.  hopefully it will stop soon for you!! 

the fact that your DHEA-S and cortisol levels are high means your adrenals are still going in full fight / flight mode - so  - i am not surprised by your symptoms.  i do understand the fear of supplements.  if you haven't tried some vitamin C - i would consider it - i stuck with twin labs crystalline vitamin C because its rumored not to be a citrus source - which can increase histamine.... i have no way of verifying that but i didnt have a bad reaction to it - since it was a capsule - i only took half the contents initially and worked my way up to a full one.   the more you can get your cortisol levels down the better your progesterone will do - they call it the progesterone steal because cortisol uses the same building blocks and when the body is alarmed - it will prioritize making cortisol...... in men - its a testosterone steal.

i struggled with the decision to stop the progesterone cream i had been using for years but i was on 25mg twice a day so a much heftier dose.  i am sure it made my withdrawal worse but i had concerns it was worsening things with hitting the GABA receptors.  i imagine something as low as 5mg wouldnt have much consequence and i don't think it is the source of the scalp issue you are talking about

best wishes for healing - you've been down a long road!
Suggestions, opinions and/or advice provided by the author of this post should not be regarded as medical advice; nor should it substitute for professional medical care. Consult your doctor before making any changes to your medication. Please read our Community Policy Documents board for further information.

[Buddie]

Re: 2nd success story at 12 months - life just gets better
« Reply #26 on: June 28, 2018, 01:40:59 am »
thanks for a great detailed post and all you did to heal ... very helpful , gives me hope .
I wish you all the best !
[...] :)
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[Buddie]

Re: 2nd success story at 12 months - life just gets better
« Reply #27 on: June 28, 2018, 10:13:14 am »
Sorry but that link still does not work :( , It does bring you to a website from dr Amy Yasko but on that website it says this URL does not exist) I am very interested in that list so if you could double check it that would be so great.

Thank you for your detailed succes strory !!!!!
Suggestions, opinions and/or advice provided by the author of this post should not be regarded as medical advice; nor should it substitute for professional medical care. Consult your doctor before making any changes to your medication. Please read our Community Policy Documents board for further information.

[Buddie]

Re: 2nd success story at 12 months - life just gets better
« Reply #28 on: June 28, 2018, 11:25:54 am »
i replaced the link at the top of the page - not sure why it wasn't working but here it is - i've tested it out to ensure it's working

http://www.dramyyasko.com/wp-content/files_flutter/1279663001Neuroprovokers8.pdf
Suggestions, opinions and/or advice provided by the author of this post should not be regarded as medical advice; nor should it substitute for professional medical care. Consult your doctor before making any changes to your medication. Please read our Community Policy Documents board for further information.

[Buddie]

Re: 2nd success story at 12 months - life just gets better
« Reply #29 on: June 28, 2018, 12:50:17 pm »
I would bet everything you did had nothing to do with your recovery
Suggestions, opinions and/or advice provided by the author of this post should not be regarded as medical advice; nor should it substitute for professional medical care. Consult your doctor before making any changes to your medication. Please read our Community Policy Documents board for further information.