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Teva Clonazepam Discontinued Group


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Hi all,

I’m not sure if this is how your supposed to start a group. But there seem to be enough concerned about the discontinued Teva clonazapam that I thought I’d make a central station to discuss how everyone is coping with new generics, crossing over, comparing notes or just how everyone in this boat is doing.

 

I’m currently crossing over to Solco/Qualitest after being on Teva daily for 8 years. I was just tapering & in withdrawal & im slowly switching out my tevas for the new generic so I’m not sure how I’m doing on the new one yet. Also, this new one isn’t guaranteed to stay in stock here.

 

I’ll come back & copy & paste other pertinent questions/answers etc.

 

All input welcome. I realize we’re all different, but if you’ve been on teva clonazapam for quite a while & switched to an alternative, please do tell how it compared for you & what you take it for & for how long would be great.

 

Thanks Scaredie

 

Thank

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5 clonazapam Qualitest/solco switch from Teva more fatigue? Hangover? Alternatives

 

Apologies in advance to be a bother.

 

Hi folks,

So I tried to taper my daily total 3.5mg of clonazapam by making a .25 cut & hold, 6/4-6/10 while @ the same time trying to switch over to a new generic after taking teva daily for 8 years. That small cut gave me withdrawal that I wasn’t expecting & decided to reinstate until I’m crossed over to a new generic & get through some other life issues. But, I’ve been so tired on clonazapam since before that & am now starting I think to feel more sedated. It’s hard to measure, I’ve been crossing over slowly, intermixing less & less of my left over tevas with my Qualitest/solco, I was in withdrawal, & have already been overly sedated for a long time.

 

I’ve been slowly increasing the Qualitest/solco can’t remember, but I think last night I went from 1mg solco 1mg teva @ bed to 1.5 solco & .5 teva @ bed, plus I took it later than normal.

 

Is it possible that I’ve had a hangover from increasing the new solco dose, if it’s an updose from teva?

 

I’ve felt just awful fatigue today. I think the same thing happened when I cut half of teva out of b d time dose adding in solco, but I was in withdrawal at time, but remember being extra foggy the next am & day.

 

Anyone have experience with these two generic clonazapam s& how they compare. I know we are all different. I don’t want to cross to something that’s less effective than teva, but I can’t deal with more fatigue & can’t taper right now either.

 

Should I stop slowly switching the tevas out & just go straight to solco to see their effect better or continue crossing over by slowly removing the tevas?

 

How will I know if I’m updosed? What would I do about it in my situation of not wanting to taper or mess with medication stability right now?

 

Am also considering trying actavis if can get. Again, I know we’re all different, but has anyone taken & preferred teva & then tried activis? Your impression?

 

Anyone who’s taken mostly teva clonazapam for a year or more & switched to a different generic have insight/input on comparisons?

 

Much thanks, be well, Scaredie

 

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High guys, hope all are well. Just need to post my sxs since c&h 6/4-6/10 then reinstatement & crossover. I’m not sure what they’re coming from. I feel like I should be over the up dose, & that they would therefore be from crossover or ingredients in new med not reacting well with me. Please give your thoughts if you have time.

Appologize for any repetition. I’m really not trying to sound like a complainer, just explaining & needing thoughts on what to do.

 

I’m still trying to patiently adjust to solco generic. It’s weird because even though I did a short cut & hold & then reinstated, so am technically still stabilizing from that. I really don’t think that’s what’s causing my current symptoms.

 

Teeth clenching tight painful jaw, bad headaches, intrusive morning thoughts, low steady depression on verge of tears, but not crying, night waking, night sweats(since reinstating)slight nausea this am @ 1.5 mg teva per day & 2mg solco now, tomorrow 6/15 will be @ 1mg teva 2.5 solco, Saturday 6/16 will be all Solco.

 

So I’ve been oversedated from my clonazapam for awhile now trying to figure out how to get started on my taper & then this happens-bad cut & hold reinstatement & then crossover. I’ve been taking the new solco mostly at night, but decided to try one this am to check it out, boy was I hit with sedation within the hour, seemed much more than teva,(hard to say though because I’ve very sedated from teva before, too, but it was different, heavier, with semi nausea/diziness)but not yesterday, so I do feel a bit more foggy/groggy, I think on this new medso seems like I could be updosing, but still having withdrawal sxs? Also this pill dissolves rapidly in mouth if you don’t have water to take right on hand. Had to run downstairs last night for water & had a mouthful of dissolved pills. This am, it got stuck in my throat. I thought that since I havnt had full out insomnia(even though not all the way crossed over sleep has been pretty ok, considering) that that would be a good indicator of it being a good crossover med, but, I can’t do more sedation. So I don’t know?

 

I took morning solco dose @ 6:40am, it’s now 12:40pm & I’m coming out of fog/fatigue but feel queasy, a bit dizzy, & anxious. Ooo don’t like all these changes. I ended up in a full on sobbing meltdown right @ this point, until my Teva k pin kicked in then all was calm & ok mood.

 

It feels like solco is an updose(or even dose)in a very bad way, it clobbered me over the head, to where I couldn’t think, do, move, then it was very apparent when it wore off. Whereas teva is more smooth & I don’t feel it wear off between dosing.

 

The horrible headaches(forehead, temple area, & just all over) jaw, clenching pain,(helped by Aleve) & most worrisome is night sweats all started after reinstating & as new generic dose is increasing. Today after taking new solco for first time during the day, I got body chills too.

 

Do you think could be having bad reaction to ingredients in new generic?

Still reinstatment adjusting?

If it’s an updose but isn’t active as long as teva, couldn’t that cause instability?

What to do if I keep feeling too updosed, sedation, depression, can’t function wise?

Try another generic? Asap before get too adjusted to this zombie med?

I was already too sedated on teva.

Your thoughts & feedback are much appreciated.

Wishing you love & peace & a great day SC

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So... I get different answers every time I call the Teva Generics customer service... today I first checked with my local CVS and they had still had Teva 1 mg in stock... they still had NO 0.5mg clonazepam of any brand and had no idea when they'd get any. So then I called Teva Generics. They said the 0.5mg Actavis (0.5mg Teva discontinued) shipped out to wholesalers last week and should be in stores (CVS was mentioned) later this week. They also said that they don't currently have plans to discontinue the 1mg Teva clonazepam which is the first time I've been told that. They've consistently said they were discontinuing it and just going to have 1mg Actavis.

 

You could call and see what they tell you. 800.545.8800

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On Sunday, 6/17/18, I sent Teva an email to try to get the correct information as I also have called them to find out what is discontinued and what they are now going to use as substitution. Today, I received a reponse in my email. I am unable to Copy and Paste that here for some unknown reason, but I have tried. So essentially, this is what it shows and says.

 

Product Name            Strength        Size              NDC#

 

Clonazepam Tablets,    .5mg            100/500/1000  00093-0832    Discontinued in all bottle sizes.

 

USP CIV

 

Clonazepam Tables,    1 mg            100                  00093-833      Discontinued now in the 100.

                                                                                                    500/100 will be when gone.                                                                                       

 

Teva continues to manufacture and distribute the Actavis lavel Clonazepan to our wholesalers.

 

 

NDC#            Product Name              Product form        Concentration/Stregth

 

00228-3003    Clonazepam Tablets USP  Tablet              .5 mg

 

00228-3004    Clonzepam  Tablets USP  Tablet              1 mg

 

I did want to clarify further, so I had to call them again. This time the number was 1-800-545 8800 (option 3, then option 5)

These phone numbers (as in the 1-888 number listed in their contact information) lead into the same call center.

 

The person I spoke with said they will use up all their inventory of all Teva bottle sizes in the 1 mg count of 500 and 1000 tabs, and then all the Teva clonazepam sizes will be gone. So no more Teva clonazepam after that in the .5 mg and the 1 mg.

 

 

And they will substitute that with the Actavis in all those bottle sizes. And she said they were now sending Actavis out to all their wholesalers. The biggest ones they deal with are McKesson, Cardinal Health, and AmericaBergenCorporation.

 

I am on Sandoz Clonazepam at the moment, and it is totally discontinued in all bottle sizes as per the FDA website, but my pharmacy had enough to fill

my Rx last Friday so I have quite a bit left. I have enough to go through about 2 months for the taper. And my pharmacy uses Mckesson, but the pharmacy manager said that the McKesson site had not updated yet so he could not see what was happening with Actavis. He was able to see the discontinuation of Sandoz in 1 strength, but not in all the strengths and bottle sizes. He said all this takes time for these companies to update the pharmacies, which pretty much jives with what Teva said.

 

The FDA can be notified about discontinuations in advance of the wholesalers and distributers, and the pharmacies are the last to know. Kind of a problems if someone has run out of one of these drugs as most people wont want to wait/try to adjust to another generic brand, and then have the one they were hoping to get come in and be available.

 

The pharmacys around here are carrying Teva Clonazepan and Accord. Ive been switch from Actavis to Sandoz to Actavis, to Sandoz, and I can feel how this is affecting my CNS. Ive tried to stay with the 2 drugs my brain will recognize, but with each change, Im having more trouble tapering. There has been no going completely off at all; Ive kept the taper at the same level it was before the switch each time, but I have had to hold to adjust. It feels like things are pretty messed up as far as my CNS, so now Im wondering what will happen if I do go back on Actavis. Ive my most successful tapering on Actavis, but this feels like I done a lot of PRN dosing or something.

 

And I did call CVS also. Those people are complete "dingbats" IMO. No manager around until Wednesday, and then that will be the only day he'll come in this week. And no one can look at the Mckesson database except him. That pretty normal I think, but sure makes it hard to find anything out. This guy keeps what they used to call "bankers hours.'

 

Well, take this info and do what you want to. Right now, I cant do any refills for a month, so Ill continue my taper of Sandoz.

 

My pharmacy has been pretty good to me. Theyre not a chain pharmacy like CVS or Walgreens. I get my hubbys meds from Walgreens and I know those pharmacists well and like them. But I sure cant say the same about CVS.

 

Frankly, Im concerned about myself right now. Im not the supportive person I used to be, and I may just discontinue my account here as I get ignored CONSTANTLY. It a whole new bunch of folks here; I realize it, but not such a friendly bunch.

 

Oh woe is me. Actually, I could care less at this point. Ive learned way more than I ever knew about Benzos (I knew nothing when I first joined), and I was a bit intrigued with this idea of the taper. Not so much anymore. Just want off, and unfortunately, no one here (not moderators or administrators) can amswer and of my questions. At least they havent.so far.

 

Made a lot of spelling and grammatical errors here, but so what. I think the gist of all this is clear. Just wrote letter to The Salt Lake Tribune before this post. Fed up with all this detention of these innocent kids. Just had to say something. Too bad I live in a red state where all these politicians make excuses and cower to an idiot. My opinion.

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Basically,

 

I can’t say anything for sure. I called CVS in West Jordan (suburb of Salt Lake City), and did speak with the manager Bryan. The more I talk or deal personally with this CVS, I know I don’t want to go there ever again.

 

This manager was very dismissive of me, said he didn’t deal with the wholesalers at all; the store gets what it gets, and then said he was too busy to talk to me.

 

Was told last Friday that only the manager could access their wholesaler data base. Who the hell does know what’s going on? Do they pay these people poverty wages so they can rush you out the door while they do their once a week work? I figure I’m the customer and w/o customers they WILL be receiving poverty wages. Definitely not going there again. For a CVS, they don’t do a lot of business that I can see, and I drive by there on my way to other places all the time. Good luck CVS in West Jordan Utah.

 

Well, I’m fighting for my survival here. Basically losing that battle, since I can barely speak. These switches I’ve had to endure are like I’ve gone cold turkey or something.

 

I’m guessing that Teva will continue to use up all their supply inventory and then maybe Actavis will be available here. The war is about over for me. No matter what, my already altered voice is going to be lost forever. And I doubt a third switch back to Actavis will change that.

 

My brain injured hubby is already on phone trying to help me find one of those tty/tdd phones.

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Scardie:

 

Thanks for starting this thread.

 

Intend: Thanks for all the info. I am so sorry you have had so many changes. I have only had Teva and managed to find more that will last through early August. I am not sure what I do then. I am just holding until I know what will happen.

 

Can I say this sucks for all of us? Because it does.

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Intend, thanks so much for all your info. More than generous of you to share. I’m so sorry for your suffering & all your going through in your life with your husbands issues. Your right about cvs. I asked what their preferred generic k pin was the other day on the phone & someone told me Mylan, then when I was in the store I asked how what it was & how they determined that. She didn’t know what it was & said they just look on the shelf to determine what it is!?

I hope you get your voice back. Mines going away from bad vocal cord surgery.

 

When you say your almost done, do you mean your almost done with the site or your taper? I see your dissatisfied with the site right now, you’ve learned all you need to know about tapering & you must do what you must, if you want to leave, but as someone new who is clueless, you no doubt have much to offer. I’m sorry your not getting your needs met. I wish I was stronger & not so needy & brain mushed. Ive been obsessed with trying to learn the different tapering methods, that my brain doesn’t comprehend & still havnt gotten started & now I have to go to a very important ms specialist appointments this coming week that I’m totally unprepared for & scared as can be about the entire thing & starting ms Meds & my future with that disease. It’s double confusing because benzos(whether in withdrawal or just taking them cause similar symptoms to ms so I don’t know what’s what)& ms. So I understand having multiple problems. Wish you well whichever way you decide to go.

 

Boy I got my hopes up when thought teva was keeping the 1mg. That really does suck that it’s going away.

 

Nolo, thanks for research & sharing.

 

NJ, & all guess we will have to figure out an alternative some time soon. NJ seems like you & I are the most hardcore teva enthusiasts, & the most weary of that transition. We will figure it out, have no choice.

 

Well wishes to all. Love Scaredie

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Just FYI. I stopped crossing over to qualitest & got the 1mg tevas to split into .5s right now as I hold. Will see what’s available when this script I’d up? Good luck all.
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Sc,

 

From what i heard over the phone, all strengths of Teva K are being discontinued. Right now Teva wholesalers are using up their supplies of everything is what I was told. And that means the pharmacies are using up all their supplies also.

 

I’ve emailed Teva and got an emailed response back. So I called for the 3rd time. And that’s what I was told.

 

Boy, Teva has really put Benzo users in a difficult position.

 

 

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This has been so stressful for me as well. Been on teva for 8 years now and taptering for 3 years and only had 5 months left untill being completly off and now this happened. My pharmacy gave me the accord brand which gave me horrible withdrawal symptoms to the point of not being able to function. I finally got the new actavis brand that has replaced teva, and still not feeling any better. Not sure if I should just stay on the actavis until my body adjusts or should try the 1mg teva. I was told the 1 mg teva will be eventually discontinued as well. Mylan and sandoz have discontinued their clonazapam as well, I contacted them by phone and thats what they told me. Pretty strange their all discontinuing around the same time. I am very shocked a change in generic is giving me such a hard time, wasnt expecting it to be this hard. Good luck to everyone. 1luv
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It is very strange that several well known generic brands of clonazepam are being discontinued.

 

Mylan and Sandoz are definitely discontinuing theirs. It has been on the FDA website that someone (can’t remember who)posted. I called Sandoz also and they verified it to me also. Did not call Mylan, but it is on that FDA website. And now there’s this Teva situation. I had plenty of communication with them by email and on the phone.

 

They always indicate that all strengths of Teva K will be gone when used up and replaced by Actavis. I started out with Actavis at a Shopko Pharmacy several years back, and it ended up working fine for me. Then it got replaced with Sandoz at most pharmacies around here. I had to adjust to that. Then back came Actavis. Got put back on that. Then it was unavailable again. Got put back on Sandoz. I’m on it right now, but it has and has had some side effects for me. Sandoz has given me a strong feeling of being choked and inability to breathe that I never experienced with Actavis. I’m really worn out and affected in my CNS with all these switches, and I don’t just mean emotionally.

 

I have a very rare disease called idiopathic subglottic stenosis that affects ones ability to breathe. I’ve had multiple corrective surgeries for it, and after 14, I was able to breathe. So the Sandoz has some connection to the way I feel on it. Could be fillers and dyes or something in the way it’s made. It’s being discontinued for some reason-complaints? Financial? Who knows. I’ve heard Mylan is too weak from various sources. So once again-complaints? Financial? But nevertheless, I’m concerned for myself. Even if I can get the Actavis again, I’m realizing that since all those surgeries affected my voice from the start, the last one I had removed over 2 inches of my trachea and put my vocal chords in a totally different place in my trachea. So now another switch is coming up with Sandoz discontinuation, and basically with each one my CNS is sending mixed up signals to my vocal cords that are weakening my voice. My voice is now so weak, I struggle to speak, and with another switch to any different Clonazepam (Actavis or whatever) I’m going to become totally mute. I essentially have what is known as vocal cord paralysis.

 

This can happen anyway with subglottic stenosis patients, but mine is is definitely exacerbated by Clonazepam or maybe even all benzos. I’m really lost here, and not sure what to do or where to start.

Not asking for advice, just expressing thoughts, fears, concerns. Been doing that since I got up early this morning.

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It is very strange that several well known generic brands of clonazepam are being discontinued.

 

Mylan and Sandoz are definitely discontinuing theirs. It has been on the FDA website that someone (can’t remember who)posted. I called Sandoz also and they verified it to me also. Did not call Mylan, but it is on that FDA website. And now there’s this Teva situation. I had plenty of communication with them by email and on the phone.

 

They always indicate that all strengths of Teva K will be gone when used up and replaced by Actavis. I started out with Actavis at a Shopko Pharmacy several years back, and it ended up working fine for me. Then it got replaced with Sandoz at most pharmacies around here. I had to adjust to that. Then back came Actavis. Got put back on that. Then it was unavailable again. Got put back on Sandoz. I’m on it right now, but it has and has had some side effects for me. Sandoz has given me a strong feeling of being choked and inability to breathe that I never experienced with Actavis. I’m really worn out and affected in my CNS with all these switches, and I don’t just mean emotionally.

 

I have a very rare disease called idiopathic subglottic stenosis that affects ones ability to breathe. I’ve had multiple corrective surgeries for it, and after 14, I was able to breathe. So the Sandoz has some connection to the way I feel on it. Could be fillers and dyes or something in the way it’s made. It’s being discontinued for some reason-complaints? Financial? Who knows. I’ve heard Mylan is too weak from various sources. So once again-complaints? Financial? But nevertheless, I’m concerned for myself. Even if I can get the Actavis again, I’m realizing that since all those surgeries affected my voice from the start, the last one I had removed over 2 inches of my trachea and put my vocal chords in a totally different place in my trachea. So now another switch is coming up with Sandoz discontinuation, and basically with each one my CNS is sending mixed up signals to my vocal cords that are weakening my voice. My voice is now so weak, I struggle to speak, and with another switch to any different Clonazepam (Actavis or whatever) I’m going to become totally mute. I essentially have what is known as vocal cord paralysis.

 

This can happen anyway with subglottic stenosis patients, but mine is is definitely exacerbated by Clonazepam or maybe even all benzos. I’m really lost here, and not sure what to do or where to start.

Not asking for advice, just expressing thoughts, fears, concerns. Been doing that since I got up early this morning.

 

That is a lot to handle. Is there any way you can have your dr. get you approved to take brand name klonopin.

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NJ,

 

I thought a lot about the doc trying to get the brand K for me. He’s told me before of arguing for other clients of his to get brand name meds for them, but he is a pdoc, and I never asked if he meant a Benzo or an AD or an AP. Just didn’t think about it at the time.

 

I have an appt with him on July 14, so I will inquire then.

 

But another consideration is cost. I just turned old enough to have to use the Medicare part D program that President George W Bush started back in 12/8/03. I’m not sure if you know how this works, but it is administered by private health insurers who have a forumulary they use. And each year, in the fall, new plans come out and some remain from previous years. It can be a good program, but the general rule is to stick with the formulary your plan has. I’ve done this for my hubby for several years now since I retired early. He’s permantly disabled, and up until I retired, I had him on my workplace insurance. So his meds were covered by that and so were mine. I’ve actually only been on a Benzo so costs were pretty good overall.

 

Then due to job stress (social work/crisis counselor) and some layoffs (RIFs) that I would have to pick up the work of others, and work by myself for 8 hours each day counseling numerous families and teens in severe crisis, I decided to retire early myself and pay the “early retirement medical insurance” and put my hubby on Medicare which he’s been eligible for all along. So I’ve been picking these plans for him for about 5 years now. But this last fall I had to pick plans for both of us. I usually have gone with plans who’s premiums are fairly low cost as long as they covered his meds. So I picked one that stayed pretty low cost as it did last year. And since I’m now on Medicare myself as this last fall, it’s mandated by law that folks who physically retire (not sure about Federal employees or those who continue working past 65) pick a plan. So we’re now on the same plan for the rest of the year.

 

I checked out the formulary and they pretty much have all the benzos used in the US in generic form. They do have an appeals process that I read and seemed a bit complicated, but the doc will probably understand it. If that were to work out ok, it would most likely lower the cost of the brand name K, and eliminate this constant switching from one generic to another. Of course, these plans change from one year to the next, so by October of this year, I might be looking at another plan altogether. From what I’ve observed they all have an appeals process for this sort of situation, so the answer is maybe I can get the brand name.

 

Paying out of pocket w/o insurance is somewhat prohibitive I think, although I sure haven’t checked out those prices. Thought I read somewhere that brand K at both Sams Club and Costco were fairly inexpensive although it looks like a phone call will be necessary to verify. I’ll also check Walgreens as that’s where our med part D plan is. Im very explanatory as you see.

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NJ,

 

I thought a lot about the doc trying to get the brand K for me. He’s told me before of arguing for other clients of his to get brand name meds for them, but he is a pdoc, and I never asked if he meant a Benzo or an AD or an AP. Just didn’t think about it at the time.

 

I have an appt with him on July 14, so I will inquire then.

 

But another consideration is cost. I just turned old enough to have to use the Medicare part D program that President George W Bush started back in 12/8/03. I’m not sure if you know how this works, but it is administered by private health insurers who have a forumulary they use. And each year, in the fall, new plans come out and some remain from previous years. It can be a good program, but the general rule is to stick with the formulary your plan has. I’ve done this for my hubby for several years now since I retired early. He’s permantly disabled, and up until I retired, I had him on my workplace insurance. So his meds were covered by that and so were mine. I’ve actually only been on a Benzo so costs were pretty good overall.

 

Then due to job stress (social work/crisis counselor) and some layoffs (RIFs) that I would have to pick up the work of others, and work by myself for 8 hours each day counseling numerous families and teens in severe crisis, I decided to retire early myself and pay the “early retirement medical insurance” and put my hubby on Medicare which he’s been eligible for all along. So I’ve been picking these plans for him for about 5 years now. But this last fall I had to pick plans for both of us. I usually have gone with plans who’s premiums are fairly low cost as long as they covered his meds. So I picked one that stayed pretty low cost as it did last year. And since I’m now on Medicare myself as this last fall, it’s mandated by law that folks who physically retire (not sure about Federal employees or those who continue working past 65) pick a plan. So we’re now on the same plan for the rest of the year.

 

I checked out the formulary and they pretty much have all the benzos used in the US in generic form. They do have an appeals process that I read and seemed a bit complicated, but the doc will probably understand it. If that were to work out ok, it would most likely lower the cost of the brand name K, and eliminate this constant switching from one generic to another. Of course, these plans change from one year to the next, so by October of this year, I might be looking at another plan altogether. From what I’ve observed they all have an appeals process for this sort of situation, so the answer is maybe I can get the brand name.

 

Paying out of pocket w/o insurance is somewhat prohibitive I think, although I sure haven’t checked out those prices. Thought I read somewhere that brand K at both Sams Club and Costco were fairly inexpensive although it looks like a phone call will be necessary to verify. I’ll also check Walgreens as that’s where our med part D plan is. Im very explanatory as you see.

 

I am only 49 so still on a regular health care plan, not Medicare. I looked up and I think a 60-day supply for brand name K for me would be $160 with no insurance. I am able to swing that--it isn't great, but worth it my dr. is willing to write a prescription for brand. I think she thinks I am crazy, but I haven't been terribly stable since January (I think some of my gastric symptoms at this point are more than withdrawal, awaiting more tests).

 

I really don't want to be on the generic merry go round, I think this is just ridiculous for all of us. I now wonder if the issues I had with a compounded liquid klonopin a few years back was because the compound was made with something other than teva pills. I never thought of it then, but now wonder if that is the case.

 

Take care.

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NJ, just checked Sams Club and Costco websites and they are up to date. The drug search always defaults to Clonazepam for both, but it’s possible that they can order brand K at a fairly affordable cost.

 

My voice is so weak right now, I hesitate to call. Maybe hubby can do it, although I have to write it all down for him. But I can do that.

 

Going to check Walgreens site also. Up to date, and he can call the Walgreens in West Jordan which is 24 hours.

 

I agree that this awful generic merry go round is ridiculous. It’s worth it to at least check these costs makes sense. My doc is genuinely worried about me as his daughter is a speech pathologist and has worked with several idiopathic subglottic patients. Totally explained it to him. He’s a great doc.

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So I have just emailed Genentech, a subsidiary of Roche. Genentech make brand name klonopin for Roche.

 

Very organized site that will not allow questions about medical products on their general inquiry site.

 

Email inquiries about medical products are redirected to the the Medical Information Department.

 

It will take 1-3 business days to get back to me.

 

I am seeing costs of around $300 for bottles of 60-100 tablets w/o insurance. Maybe this email will provide more specific information. And I can call different pharmacies tomorrow also. I’m a bit overwhelmed and our oldest grandson just came to work on his car.

 

He’s that engineering student and super tech savvy so I’m going to ask him to look at my iPad which keeps timing me out whether I’m posting somewhere or reading movie reviews. Very annoying.

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Actually, this group is a bit inactive, just like the KK #2 is, but oh well; I can’t do much about that.

 

Still baffled by this as so many people get put on K even in 2018. I often wonder what generics brands they are taking currently since all this Teva stuff started.

 

I did a bit more investigatingthis morning about a few of these companies, and just thought I’d pass it along. We do know for sure that Mylan and Sandoz have discontinued their generics of clonazepam.

 

So this morning, I called Solco. I actually forgot to ask if they make generic Clonazepam, but if Scaredie is getting it from Solco, they must. Will call them back when my voice is decent enough to do that just to verify. But I did find out that Solco has no connection to qualitest. They are 2 separate companies.

 

Then I called qualitest at 1-800-444-4011. Qualitest is still part of Endo Pharmaceuticals and Endo bought both Par pharmaceuticals and qualitest. So these folks that answer these phones seem a bit mixed up themselves, but after getting transferred around, I was told that I was speaking with the parent company, Endo, and they only make Clonazepam in the oral disintegrating tablets now and not any higher strengths.

 

I’m wondering what is going on here. I still have to call Solco back to find out what those Clonazepam strengths are, and I will. Just not today because I have a bunch of mundane stuff to do, and after I take that horrible Sandoz crap, my voice is almost inaudible. Surprises me that folks can hear a literal whisper of a voice, but they do hear it. So lots of the older companies are not making Clonazepam at all it seems.

 

Still going to call Accord as they are still around. Just can’t do this in one day. Almost seems like Clonazepam is going away. Well, it’s a toughie for sure. Maybe folks just can’t handle it; I’m unsure of all this now. I did send that email to Genentech who makes brand K for Roche, but can all people on K afford it? I don’t know, but if someone is not working and alone, who knows?

 

I could swing the cost of a couple hundred bucks, but I’m not as close to getting off as others because I started at 3 mg. and tapered down to half of that all on Actavis. I’ve got some time to go here.

 

Just an update here. Good luck to all of us on clonazepam because for all the people here who take it, no one seems particularly concerned overall. I can’t keep all this calling up because I’m VOCALLY IMPAIRED. And maybe others can make a bunch of switcheroos on generic brands, but they screw me up so I can’t.

 

I just made a good case for the Benzo information coalition. One of their “consequences” listed for taking benzos is LOSS OF VOICE. I’ve got that people. The BIC maybe have never encountered it; not sure, and they probably never encountered someone with idiopathic subglottic stenosis. I just don’t know.

 

Well, here I am- a Benzo user who got sucked in by an unknowing psychiatrist way back, and a person with one of the most rare diseases in the world. Anyone can go to Facebook and join the closed group “living with idiopathic subglottic stenosis.” Maybe not if you’d never had it. But it’s there. I personally can not navigate Facebook, so I’ve given up even trying to post there. And my surgeon is considered the best in the world or so I’m told.

 

Getting off track here. Just would appreciate more input from others. What does anyone else hear or know? Still haven’t gathered the courage to see if my particular pharmacy can now order Actavis or not. Those dummies at CVS are the worst. I may report that particular store to their corporate headquarters. Lovely to walk into that pharmacy and have all those people welcome you, and then get to the pharmacy and be treated like crap. And be treated like crap on the phone also. Ok that’s it for now. Maybe I’ll have to try to switch to valium. That’s on the WHO organizations list of essential medicines along with Ativan for seizure control. Not really understanding if they do or don’t control seizures. But Clonazepam is not on that list, and it’s used to control seizures. Nothing making sense here.

 

Please spread the word to whomever you think needs to know. Maybe the long hold group, and that totally inactive KK club#2 who could probably give a rats ass. Just don’t let me be the only person here doing something for heavens sake!

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I switched from teva to accord and was doing awful it was a nightmare. But been on actavis now for about 6 days and doing a lot better.....I’m not 100% better but the brain zaps are finally gone which is the worst for me. So I would say if anyone struggled with accord, actavis is def worth trying. I got my actavis from CVS. Hope everyone on teva, mylan, and Sandoz finds a new generic that works for them. accord was so bad I’m going to contact FDA and file a complaint..... impossible to cut the pills their so soft they just crumble, and dissolve in your mouth as soon as it hits your tongue.
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I do believe in the theory that your body needs time to adjust to a new generic. Cross tapering would be the smartest route to go with switching generics. But I am at such a low dose (.125) that it was impossible to cross taper.
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Dub,

 

Thanks for your reply. I took Actavis from the start and did way better on it than on Sandoz. I’m on Sandoz right now, and I think that for me going back on it has seriously affected my CNS as I’ve mentioned.

 

I’ve tried to stay with the two that I have used in hopes that my brain would recognize them and be compatible. I just got that email for brand K from Genentech, but they mention no prices whatsoever as I had requested. Just say to have the pharmacy contact them.

 

I feel like I’m going to have trouble with my voice now even if I can go back on Actavis. But maybe other things I am experiencing will not be a problem. I seem to have a very clear day on Sandoz with very or no throat tightening, and the next day is a nightmare of confusion, a strangling feeling, and pain all over. The idea of having to take Accord just kind of terrifies me. But that strangling feeling is the worst. I just hope I don’t get with Actavis now. It’s a w/d sx from Sandoz I believe as I started to taper from Sandoz after holding for adjustment. I had thought it was more a side effect, and would be relieved when I started tapering. It could be both, but the holding part never was as awful as this taper.

 

Well, let’s see if anyone else posts now. I do wonder if Clonazepam is only going to be available from limited companies now. Kind of scary when you consider how many docs prescribe it and how many people are already on it. I have to wait till @ the 12 of July to get a new fill as I filled with Sandoz last month as I had no choice. It was either accord or Teva; both which I’ve never taken before. My pharmacy has been ordering it for me. I sure hope I can get the Actavis again there. I can also try another CVS. There all over the place here.

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Hi all,

 

I’m going to my monthly doc appt tomorrow and will be asking him to file and appeal with my insurance company so that they will cover brand name K.  I’m hoping so and if it is a possibility, I’ll let you know.  If only actual Klonopin were more affordable for us...  fingers crossed.

 

Prayers for all of you having trouble with switching generics.  I’m not there yet, as I have some TEVA left.  But once that’s out, I only have Mylan. 

 

Peace and Healing to you all.

 

Love,

 

Uni

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I just posted in the KK#2 group about this.

 

I was able to get brand name Klonopin, as my insurance covered it.  It cost me $50 for 120 .5mg tablets (2-month supply).  My doctor had to write “DAW1” on the prescription, meaning Dispense As Written. 

 

Another option is to inform your pharmacist that you have adverse reactions to the generics.  Ask how much brand name Klonopin will cost.  They will then appeal to the insurance company.  If you do not have insurance, then find out full price in your area/pharmacy. 

 

Hope this helps somehow!  I know many of you are struggling with generics since the discontinuation of TEVA.  Wishing you all the best of luck with this!  Really hoping you can all get brand name, as it’s seems like the best quality we can get. 

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