Author Topic: Stomach Healing Support  (Read 11045 times)

[Buddie]

Re: Stomach Healing Support
« Reply #20 on: June 16, 2018, 12:07:07 am »
I am sorry[...], have you had any testing done to rule out any structural issues? How are you managing your diet now? I [...] you get better sooner than later.
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[Buddie]

Re: Stomach Healing Support
« Reply #21 on: June 16, 2018, 12:20:49 am »
Thanks for your support. I had an endoscopy nearly three years ago; came back normal. Have had bloodwork done recently and h pylori, no h pylori, no celiac. Had gall bladder scan, came back negative. Have an appt. mid July to see yet another gastro who hopefully will do repeat of endoscopy and a colonoscopy. Unfortunately, nausea has plagued me this entire taper, just never to this extent. Difficult symptom to live with, but what choice do I have. Managing diet through just very bland foods although constipation is becoming more of an issue.
Suggestions, opinions and/or advice provided by the author of this post should not be regarded as medical advice; nor should it substitute for professional medical care. Consult your doctor before making any changes to your medication. Please read our Community Policy Documents board for further information.

[Buddie]

Re: Stomach Healing Support
« Reply #22 on: June 16, 2018, 03:30:25 am »
Thanks for your support. I had an endoscopy nearly three years ago; came back normal. Have had bloodwork done recently and h pylori, no h pylori, no celiac. Had gall bladder scan, came back negative. Have an appt. mid July to see yet another gastro who hopefully will do repeat of endoscopy and a colonoscopy. Unfortunately, nausea has plagued me this entire taper, just never to this extent. Difficult symptom to live with, but what choice do I have. Managing diet through just very bland foods although constipation is becoming more of an issue.
NJ,
I so feel for you... This is the worst... sorry for the medical path you have ahead, all my testing was a nightmare... not so much the physical, but the endless [...] then dissapointment when no answers...
Also the needless standard guessed by the gastros as they went through the list of diet, fodmaps, laxatives... As soon as it became viewed as a medicine issue, it was to those medicine/addiction/pain specialists... And you probably remember where that led... -Back on to opiates.. (right or WRONG)..
Sorry, this isnt meant as negative, more info incase one little thing helps, and probs a bit of a vent too.. :(
I do wonder, and I may have asked, -Is there actual vomiting, or maybe more the cramps and pain that is associated with feeling that sick..?
Is it worse in the morning and right after eating?
Can you even describe it properly..? I struggle with that, even though its significant enough to destroy my life...

I wish you a speedy solution and extra strength...

[...]...
Suggestions, opinions and/or advice provided by the author of this post should not be regarded as medical advice; nor should it substitute for professional medical care. Consult your doctor before making any changes to your medication. Please read our Community Policy Documents board for further information.

[Buddie]

Re: Stomach Healing Support
« Reply #23 on: June 16, 2018, 03:52:56 am »
Hi [...],

So, this is not medical advice obviously but I'll tell you I had horrible [...] symptoms like you some time ago when I was on all kinds of psych meds and then got off. And they came back somewhat from the Ativan. The pain is awful. It does sound like they should do endoscopy/colonoscopy to rule out anything serious. I had some gastritis/a hiatal hernia. I also have celiac. I am also a degreed nutritionist. But what ended up healing my [...] system in the end was a gut healing elimination diet. I did the autoimmune paleo ("The Paleo Approach" that an actual biochemist came up with), which is pretty strict for a bit and you do reintroductions. And that integrative doc you saw can test for SIBO and similar gut microbe imbalance things, which would be worth it to know.

At the time it was so bad I could barely eat, had constant pain, and a bunch of other mysterious medical conditions.I had already started a low FODMAP for the IBS dx but it wasn't enough. The anti-inflammatory paleo thing saved my life. Bone broth (chicken because beef had too much glutamate for me, some people react to it but it is worth the try, particularly for damage from NSAIDs) or a grass-fed collagen supplement (has same gut healing proteins) if you can get one may be really helpful, alone. All dairy is going to aggravate [...] issues, and fats as well. But since you are open to integrative medicine I want to suggest you try a betaine HCL with pepsin supplement. You can google it. Turns out that sometimes we aren't producing enough stomach acid, and we don't need blockers, we need some help while out system repairs itself and this is a natural acid supplement. Modern medicine isn't really onto this yet but many people benefit from it. I didn't have to take it forever. I suspect that these benzos and other meds majorly alter our gut microbes and and this is what causes a lot of symptoms, this imbalance of bacteria. Paleo solves this, low fodmaps shouldn't be done forever.

SO that's my take on it anyways I thought I'd share. This time around I'm dealing with nausea and loss of appetite but rarely have [...] problems from doing a sort of modified paleo again. I never thought I would [...] there but it can be a lifesaver for many. It's also super anti-inflammatory and beneficial for the nervous system in general, but major diet changes and restrictions can be quite a challenge. Best of luck.
« Last Edit: June 16, 2018, 03:59:30 am by [Buddie] »
Suggestions, opinions and/or advice provided by the author of this post should not be regarded as medical advice; nor should it substitute for professional medical care. Consult your doctor before making any changes to your medication. Please read our Community Policy Documents board for further information.

[Buddie]

Re: Stomach Healing Support
« Reply #24 on: June 16, 2018, 08:39:21 am »
Thank you Diana..
 Every bit of info helps...
:)
Suggestions, opinions and/or advice provided by the author of this post should not be regarded as medical advice; nor should it substitute for professional medical care. Consult your doctor before making any changes to your medication. Please read our Community Policy Documents board for further information.

[Buddie]

Re: Stomach Healing Support
« Reply #25 on: June 16, 2018, 01:38:07 pm »
Thanks for your support. I had an endoscopy nearly three years ago; came back normal. Have had bloodwork done recently and h pylori, no h pylori, no celiac. Had gall bladder scan, came back negative. Have an appt. mid July to see yet another gastro who hopefully will do repeat of endoscopy and a colonoscopy. Unfortunately, nausea has plagued me this entire taper, just never to this extent. Difficult symptom to live with, but what choice do I have. Managing diet through just very bland foods although constipation is becoming more of an issue.
NJ,
I so feel for you... This is the worst... sorry for the medical path you have ahead, all my testing was a nightmare... not so much the physical, but the endless [...] then dissapointment when no answers...
Also the needless standard guessed by the gastros as they went through the list of diet, fodmaps, laxatives... As soon as it became viewed as a medicine issue, it was to those medicine/addiction/pain specialists... And you probably remember where that led... -Back on to opiates.. (right or WRONG)..
Sorry, this isnt meant as negative, more info incase one little thing helps, and probs a bit of a vent too.. :(
I do wonder, and I may have asked, -Is there actual vomiting, or maybe more the cramps and pain that is associated with feeling that sick..?
Is it worse in the morning and right after eating?
Can you even describe it properly..? I struggle with that, even though its significant enough to destroy my life...

I wish you a speedy solution and extra strength...

[...]...

The nausea has been a constant throughout my taper, usually popping in here and there, and going away at certain points. Since January, I have had it nearly 24/7, with increased episodes of vomiting (violently), several times a month. I take remeron at night which usually eases the nausea enough for me to sleep, but in the morning it starts all over again.

Since then, I have eliminated all meat from my diet, which seemed to be causing issues. I also have stopped eating anything after dinner, which seemed to be a trigger for the vomiting. I am now eating super-bland; I seem to have more issues too with feelings of reflux, although I do not want to [...] on a ppi.

I do think that having an endoscopy and colonoscopy "just in case" is a good idea. The endoscopy will tell me if I do need reflux medication; I have a family history of crohn's/colitis so the colonscopy probably makes sense. Do I think they will find anything? Probably not ... but I should investigate.

I don't have pain, thank goodness, and in the last day or two I seem to have occasions when I am actually hungry. I am getting weary of pushing through this every day, but what choice do I or any of us have. Thanks for your concern. [...] you are doing okay.
Suggestions, opinions and/or advice provided by the author of this post should not be regarded as medical advice; nor should it substitute for professional medical care. Consult your doctor before making any changes to your medication. Please read our Community Policy Documents board for further information.

[Buddie]

Re: Stomach Healing Support
« Reply #26 on: June 16, 2018, 04:02:54 pm »
Has anybody tried DGL (Deglycyrrhizinated Licorice Extract).  I was given this before I CT from Klonopin (clonazepam) because I was having stomach pain and was on Nexium. He advised me to stop Nexium and try this. It did nothing for my heartburn and stomach pain< however it may be because i was still on Benzos. SInce I stopped Benzos my stomach do not hurt but it burns like crazy and my appetite is not at it's best. I also try to eat bland food with only salt and pepper. A lot of fruit (apples, bananas, blueberries).

I may have switch my orange juice for apple juice. I also drink almond milk. I am reluctant to try the DGL since Benzos because like many I am afraid to put anything in my mouth except for HBP meds, baby aspirin, One a Day Multi-vitamin, vitamin D3, and Toprol XL. The Doctor at the detox center tried to give me Meds but I refused and he said "I believe you have a little OCD about meds". He was right I am nervous as a cat about introducing any new meds.

That DGL contains licorice, glycine, fructose, mannitol, sorbitol, stearic acid, cellulose, silicon dioxide, magnesium stearate, natural flavors. All of those ingredients scare the heck out of me.
Suggestions, opinions and/or advice provided by the author of this post should not be regarded as medical advice; nor should it substitute for professional medical care. Consult your doctor before making any changes to your medication. Please read our Community Policy Documents board for further information.

[Buddie]

Re: Stomach Healing Support
« Reply #27 on: June 16, 2018, 05:30:20 pm »
Has anybody tried DGL (Deglycyrrhizinated Licorice Extract).  I was given this before I CT from Klonopin (clonazepam) because I was having stomach pain and was on Nexium. He advised me to stop Nexium and try this. It did nothing for my heartburn and stomach pain< however it may be because i was still on Benzos. SInce I stopped Benzos my stomach do not hurt but it burns like crazy and my appetite is not at it's best. I also try to eat bland food with only salt and pepper. A lot of fruit (apples, bananas, blueberries).

I may have switch my orange juice for apple juice. I also drink almond milk. I am reluctant to try the DGL since Benzos because like many I am afraid to put anything in my mouth except for HBP meds, baby aspirin, One a Day Multi-vitamin, vitamin D3, and Toprol XL. The Doctor at the detox center tried to give me Meds but I refused and he said "I believe you have a little OCD about meds". He was right I am nervous as a cat about introducing any new meds.

That DGL contains licorice, glycine, fructose, mannitol, sorbitol, stearic acid, cellulose, silicon dioxide, magnesium stearate, natural flavors. All of those ingredients scare the heck out of me.

I used dgl for reflux symptoms rather than a ppi. I only used it for a few weeks. The symptoms went away. I think I need to try it again. I don't think it would be harmful to give it a try.

Yes, we are all OCD about meds!
Suggestions, opinions and/or advice provided by the author of this post should not be regarded as medical advice; nor should it substitute for professional medical care. Consult your doctor before making any changes to your medication. Please read our Community Policy Documents board for further information.

[Buddie]

Re: Stomach Healing Support
« Reply #28 on: June 17, 2018, 04:48:57 am »
Thanks[...].. a bit better picture... 
Yes def. get any testing done that you need, we Know its not Always WD... -and it helps Drs tick boxes and move forward, one hopes...

My prob was more that none of the specialists communicated with the other, and wouldnt listen to me..
And then they would just write it off as accident trauma and its nerve damage...
Infact my [...] Dr was the only one that accepted it was medicine damage well beyond the norm...
After all the scoping and Barium imaging In each end, they had still missed the small intestines...
Soon after I was back in hosp.. which is when they did transit time and peristalsis EEG thingy, -an epic fail on both counts...
Slowly but surely, Things progressed.... my [...] tract is fairly functional now, and the cramping and pain follow my waves...
Though I still have the buprinorphine to taper and that will cause merry hell...

I think listening to your body intently is a huge help, probably you get this with food choices and stuff too..?
I found little things in nearly every aspect of life that helped a little bit...

Hmm.. sorry... -this thread might be good talk therapy for me..!! Lol

:)
Suggestions, opinions and/or advice provided by the author of this post should not be regarded as medical advice; nor should it substitute for professional medical care. Consult your doctor before making any changes to your medication. Please read our Community Policy Documents board for further information.

[Buddie]

Re: Stomach Healing Support
« Reply #29 on: June 17, 2018, 06:25:20 am »
Thank you for starting this thread!! So I'll tell you my story because I need sone support on this too. Ok, 8mo ago I started eating a ketogenic diet, (I was not weaning at that time) and I was feeling amazing! So good, in fact that I started to take my 1mg klonopin less and less. Keto regulates insulin and other hormones and gives you tons of really great energy. I quit the keto after I lost the weight I was aiming to lose 20lbs in 5mo. and stuck with low carb after that, but soon my stomach issues appeared.

I didn't realize it at the time but I think i was having withdrawals but I didn't know what I know now about benzos...it started with nausea and stomach/bloating in the morning that was so bad it literally woke me up at 5am every single morning with my heart racing and a pounding in my vagus nerve area,  to run to the bathroom only to find nothing would come out. Soon, I had constant pain in my upper left abdomen that was dull.

Over the next few months I lost my appetite completely as ALL foods hurt my stomach or lower gut, as time progressed. I could only drink bone broth for about 2 months. I lost 40lbs and lost all my energy and luster, and became underweight, edging on anorexia.  I began throwing up from the nausea every once in awhile when it got extreme and the only relief were belches that came far and in between. I had gone to the doctor to look for an answer several times, getting misdiagnosed with ulcers and IBS. All during this time, I was taking less K than normal because I had backed down with no problem and I didn't know about benzo withdrawals or that you could have them while still being on the pills! I knew that they could constipate you so I thought taking less would help...

Eventually, the extreme weight loss got me enough attention to get a referral to a [...]I. He order a ct, colonoscopy, and endoscopy. I just had the ct last week and it came back normal, (besides some small benign lesions on my liver, which he said was not cause for concern) but during the doctor visit in which I got the referral for the [...]I. I expressed interest in weaning off K and my doctor told me to break my last script in half and then he cut me off c/t. (2mo ago) That's when the real Shit began, I lost even more weight and began to lose my mind too! I was sure I had cancer and was dying...and by the looks of me it didn't seem unreasonable. I was also experiencing headaches and major fatigue this whole time. At that point the withdrawal symptoms became apparent to me.

All in all, I've lost 65lbs...I'm 5'9 and currently weigh 115lbs, at the moment. I'm a total wreck and malnutrition has made my withdrawals MUCH worse. Only until I joined this group about 3 weeks ago did I make the connection that the benzos and the stomach issues could be related. Getting my ct results somewhat confirmed this hypothesis. I've been forcing myself to eat as much as possible and only nutrient dense  foods because my stomach is very small, meeting my nutrient goals is nearly impossible. I've been continually drinking bone broth with lots of salt, it helps with the withdrawals and has lots of collagen for gut healing. I also take DGL and a cinnamon, [...] tincture which both seems to help, as well.

I finally found a doctor last month to give me more Kpins to wean more slowly and luckily never had too big of a gap in my taper and I got leveled off (mostly) at half my regular dose two months after beginning to wean intentionally. I still have bad constipation with bouts of diarrhea in between, but I've put way more focus on water intake and that has been much needed.

I don't know if any of this helps you but it's been my experience and still picking up the pieces. I'm interested in what someone said about deregulation of the vagus nerve? I'm gonna [...] some more research into that because I had the idea that my vagus nerve was damaged in some way, based on some of my symptoms in conjunction but had no evidence for it, it was just a paranoid assumption..interested to learn more about the effects of benzos on the vagus nerve.

I also supplement collagen in the form of gass fed gelatin which I make sugar free herbal gummies with. I'm currently on a strict diet of low carb, and no refined sugars which is having a positive effect.


Suggestions, opinions and/or advice provided by the author of this post should not be regarded as medical advice; nor should it substitute for professional medical care. Consult your doctor before making any changes to your medication. Please read our Community Policy Documents board for further information.