Fibromyalgia

I have now been diagnosed with fibromyalgia on top of everything else.

 

This has started since withdrwal.

 

Wasn't sure where to put this as I havd reinstatec the diazepam so no linger post withdrawal but also not tspering stm.

 

Reinstatement is not helping. I'm lost.

Look into low dose naltrexone for your fibromyalgia.  Lots of help for pain.

Thanks!

I have now been diagnosed with fibromyalgia on top of everything else.

 

This has started since withdrwal.

 

Wasn't sure where to put this as I havd reinstatec the diazepam so no linger post withdrawal but also not tspering stm.

 

Reinstatement is not helping. I'm lost.

 

I just read a book "Medical Medium" that has big section on this.  It was very interesting and gives you a way to resolve problems w/o meds.  Someone else on here recommended the book, I just can't remember who.  I hope u feel better

Not sure if anyone is interested in this tread anymore, but....

I was diagnosed with fibromyalgia 34 years ago.  It was called fibrositis back then.  Name has changed, but the problem is the same.  Sadly, the best I have ever felt is when I was taking klonopin. A combination of regulated sleep (that's what the k was for), a clean diet, and 5 day a week  intense exercise kept me feeling pretty good.  Those 3 factors are tightly inter-related and vital for me to feel strong.  My prescribing doctor retired, and my new doctor insisted that I stop the K. After 4 months, the fibro is not bad, but I can't exercise intensely and my sleep is shot.

 

I feel for anyone going through this.  It is hard to live with during flares, but if you can work hard at your lifestyle, it is manageable.

 

Please PM me if you want to talk.

Thanks!

 

I ate clean and exercised as much as I could with ME/CFS and spinal probs  prior to withdrawal.

 

Since withdrawal my diet is a mess because I’ve become phobic of a lot of the healthy food since loved.

 

Also exercising is even harder than it was before.

 

Since withdrawal all my muscles have changed in tone - they have all become ropey and painful.

 

Hi Redpoodle!  There was a lot, in your text, that I recognize. You wrote:

"Not sure if anyone is interested in this tread anymore, but ..." And I feel the same, I try to avoid health problems, that don´t have with Benzo to do. But, I'm writing a few lines anyway.

 

I have been diagnosed with fibromyalgia, and other neurological diseases, for 30 years. And I do just like you, "5 day a week intense exercise kept me feeling pretty good." I have always refused, to lie on bed during the day, if I haven´t gotten much worse of the weather.

What has also felt important, is meditation, and controlling my thoughts. If I am negative, I feel bad.

 

But now, during the withdrawal, it is very difficult. It feels like lead in the body, and flu with high fever. But, I try to train a little everyday, and not be bedbound.

 

Which exercise works best for you, both when you feel better, and right now?

 

 

For mr the fibromyalgia has been caused by withdrawal.

 

I notice Paul Ingrhams who runs pains ience.org had the same thing happen coming off Xanax and still has it 2 years later.

Hi Translator,

The exercise that I have been doing for the last 20 or so years (I'm 63) has been weight lifting and any cardio such as running or  using a rowing machine.  Since 2008, I was doing Crossfit and competing, but I stopped in January when my blood pressure skyrocketed and my leg muscles started cramping painfully.  Now I walk a few miles a day- I have a young large dog who is really insistent- and I play racquetball 2 or 3 times a week.  I'd really like to go back to weight training, but I do Olympic lifts and it is too dangerous because I am sometimes dizzy and shaking. Until about 4 months ago, I was very muscular and fit.  Not sure how to get back there!

 

Walking keeps me on an even keel, but it is not intense enough to help me sleep or build muscle.

Hi all,

It’s been suggested to me by 2 chiropractors that I may have fibromyalgia. Never been tested, don’t know who tests that.

My main symptoms are severe upper back, spine, shoulder blade, neck, & shoulder pain that is so painful shower water hurts to touch that area. It feels like the whole area is tensed up. Almost locked up. I admit to not being active & also the pain worsens the longer I sit on my I pad.

 

I was diagnosed with ms last year & it was around that time that I started having these symptoms. I went to pt & she said my vertebrae was twisted & she manually twisted it back & had me work on strengthening the shoulder blade area. I had to quit pt because I had a crazy medical year last year & eventually the pain wained or at least became manageable or not very noticeable for awhile until a few months ago & it’s back with a vengeance.

 

Does this

1. Sound like fibromyalgia?

2. Sound like a possible benzo side effect

3. Sound like a benzo withdrawal side effect-I’m not into my taper but doc let me up & down dose my clonazapam over the past two years from .5-1mg, so don’t know if I unwittingly caused withdrawals

4. If you have this kind of pain, what natural things do you do for it?

 

Hope you are all well thank you

The chances are fibro is caused by withdrawal. Leave things alone and you will heal naturally. the more drugs you put in you to try and fix things the harder things will be.

 

Ive been on forums for years so I know this.

 

You will improve

 

shania

Hi all,

It’s been suggested to me by 2 chiropractors that I may have fibromyalgia. Never been tested, don’t know who tests that.

My main symptoms are severe upper back, spine, shoulder blade, neck, & shoulder pain that is so painful shower water hurts to touch that area. It feels like the whole area is tensed up. Almost locked up. I admit to not being active & also the pain worsens the longer I sit on my I pad.

 

I was diagnosed with ms last year & it was around that time that I started having these symptoms. I went to pt & she said my vertebrae was twisted & she manually twisted it back & had me work on strengthening the shoulder blade area. I had to quit pt because I had a crazy medical year last year & eventually the pain wained or at least became manageable or not very noticeable for awhile until a few months ago & it’s back with a vengeance.

 

Does this

1. Sound like fibromyalgia?

2. Sound like a possible benzo side effect

3. Sound like a benzo withdrawal side effect-I’m not into my taper but doc let me up & down dose my clonazapam over the past two years from .5-1mg, so don’t know if I unwittingly caused withdrawals

4. If you have this kind of pain, what natural things do you do for it?

 

Hope you are all well thank you

 

Could be fibromyalgia.

Could be upper cross syndrome.

Could be complex regional pain syndrome.

 

All these things are just labels and they all overlap.

 

If you are well enough to see a decent exercise therapist that might help.

 

You could also get some massage?

 

Some of it could be caused by bothe being on Benzos and being in some withdrawal at times as you changed dose. Whatever you do taper off very very slowly. All my muscle and spinal problems got much worse because a I tried to come off too quickly and these have not resolved with reinstating.

 

Do you have to take Baclofen for the MS?

 

I developed dystonia in withdrawal and was prescribed Baclofen which made my body freak out completely and try to grip on more tightly as the muscles were forced to relax. Now my brain doesn’t know how to modulate my muscle tone at all - it’s a right mess.

 

Have you looked at the Dr Whal diet for MS?

 

I was doing that before withdrawal freaked my brain out around food and I think it was helping my ME/CFS.

 

Some people say fibromyalgia and muscle symptoms are better treated with a whole food plant based diet. I think it depends on what’s causing the tightness and if you have MS then a more keto/Paleo diet is believed to be better for neuro problems.

 

The chances are fibro is caused by withdrawal. Leave things alone and you will heal naturally. the more drugs you put in you to try and fix things the harder things will be.

 

Ive been on forums for years so I know this.

 

You will improve

 

shania

Thank you

Hi all,

It’s been suggested to me by 2 chiropractors that I may have fibromyalgia. Never been tested, don’t know who tests that.

My main symptoms are severe upper back, spine, shoulder blade, neck, & shoulder pain that is so painful shower water hurts to touch that area. It feels like the whole area is tensed up. Almost locked up. I admit to not being active & also the pain worsens the longer I sit on my I pad.

 

I was diagnosed with ms last year & it was around that time that I started having these symptoms. I went to pt & she said my vertebrae was twisted & she manually twisted it back & had me work on strengthening the shoulder blade area. I had to quit pt because I had a crazy medical year last year & eventually the pain wained or at least became manageable or not very noticeable for awhile until a few months ago & it’s back with a vengeance.

 

Does this

1. Sound like fibromyalgia?

2. Sound like a possible benzo side effect

3. Sound like a benzo withdrawal side effect-I’m not into my taper but doc let me up & down dose my clonazapam over the past two years from .5-1mg, so don’t know if I unwittingly caused withdrawals

4. If you have this kind of pain, what natural things do you do for it?

 

Hope you are all well thank you

 

Could be fibromyalgia.

Could be upper cross syndrome.

Could be complex regional pain syndrome.

 

All these things are just labels and they all overlap.

 

If you are well enough to see a decent exercise therapist that might help.

 

You could also get some massage?

 

Some of it could be caused by bothe being on Benzos and being in some withdrawal at times as you changed dose. Whatever you do taper off very very slowly. All my muscle and spinal problems got much worse because a I tried to come off too quickly and these have not resolved with reinstating.

 

Do you have to take Baclofen for the MS?

 

I developed dystonia in withdrawal and was prescribed Baclofen which made my body freak out completely and try to grip on more tightly as the muscles were forced to relax. Now my brain doesn’t know how to modulate my muscle tone at all - it’s a right mess.

 

Have you looked at the Dr Whal diet for MS?

 

I was doing that before withdrawal freaked my brain out around food and I think it was helping my ME/CFS.

 

Some people say fibromyalgia and muscle symptoms are better treated with a whole food plant based diet. I think it depends on what’s causing the tightness and if you have MS then a more keto/Paleo diet is believed to be better for neuro problems.

Thank you so much for the thourogh response. I’m so sorry to here of your suffering.

 

What kind of doctor would diagnose: fobromyalgia, upper cross syndrome, or complex regional pain syndrome? I really don’t know what any of those are & wouldn’t want to take Meds, but would like to know what’s wrong with me, then I can at least treat naturally accordingly.

 

Are you referring to physical therapy, when you say exercise therapist?

 

I’m sorry, but What does ME that you have in signature stand for?

 

It’s hard to see your entire benzo history in your signature.

 

Did you taper off too quickly?

 

I havnt taken baclofen for ms yet. I’m trying not to take anything. Only diagnosed last year. I’m going to see a very reputable ms specialist out of town at the end of the month for my third opinion & to have him become my main ms neurologist. So havnt taken any dmt yet either.

 

No special diet either, (but have heard of whals will check out link)my treatment resistant depression & fatigue have been too great to get into that. Spouse has been doing shopping & cooking....I’m ashamed to say, but I’m hoping as I reduce benzo, start therapy, better understand & treat ms, & figure out this aweful pain, that my fatigue & depression will reduce & I’ll become a more functioning member of society.

 

I thought my fatigue was from ms & it may be @ least partially, but am now convinced it’s due to too high of a benzo dose. So am anxious to get dose lower ASAP, while trying to avoid withdrawal. I’ve tried to learn all the different methods on here(they Just confuse me right now/benzo brain & or ms) & since I decided benzo is causing too much sedation, for now have just settled on eyeball dry cutting. .25mg from 2nd dose of day & holding for @ least 14 days, & so on staying in or under the 10% of total dose range, until lower, then maybe try to learn to dmt using scale or dlmt. I’m already having some nausea & woke panicked with dark thoughts, thinking my dreams were real this am. I take 3.5mg clonazapam per day.

 

Much thanks for all of your input. Hope your feeling well.I’ll await your reply, Scaredie 

Hiya,

 

Don’t know where you are but in the UK

 

Fibromyalgia is normally diagnosed by rheumatologist.

Upper cross syndrome tends to be mentioned by physics more.

Pain syndromes are diagnosed by different specials a as far as I am aware.

A pain consult would be a good starting point if you have not had one already.

 

Diet is probably the easiest thing you can do to try to help yourself. You partner needs to get with the programme if they want to as well as possible... It will improve their health as well..you shouldn’t be ashamed of not being able to do things for yourself...

 

ME/CFS is sometimes called Chronic Fatigue Syndrome or CFIDs or now SIED in the USA. It is a neuroimmune disease.

 

I’m having a very tough time with withdrawal and now reinstatement. I didn’t know much about it until it was too late. I wish I had gone very very slowly and reduced based on symptoms not time as far as I can tell but there is no guarantee. Some people are lucky others are not. Just don’t be in a hurry to get off them.

Hiya,

 

Don’t know where you are but in the UK

 

Fibromyalgia is normally diagnosed by rheumatologist.

Upper cross syndrome tends to be mentioned by physics more.

Pain syndromes are diagnosed by different specials a as far as I am aware.

A pain consult would be a good starting point if you have not had one already.

 

Diet is probably the easiest thing you can do to try to help yourself. You partner needs to get with the programme if they want to as well as possible... It will improve their health as well..you shouldn’t be ashamed of not being able to do things for yourself...

 

ME/CFS is sometimes called Chronic Fatigue Syndrome or CFIDs or now SIED in the USA. It is a neuroimmune disease.

 

I’m having a very tough time with withdrawal and now reinstatement. I didn’t know much about it until it was too late. I wish I had gone very very slowly and reduced based on symptoms not time as far as I can tell but there is no guarantee. Some people are lucky others are not. Just don’t be in a hurry to get off them.

Hi Ajusta,

Thanks for getting back! I’m from the USA.

So sorry your having a hard time & hope you start feeling better very soon. I will heed your advice & try to taper based on symptoms instead of time. Thanks for explaining your cfs diagnosis. Must be part what makes you so well read on self healing & other medical stuff. You’re a wealth of information. I’m grateful. What benzo & how much were you on for how long to begin with?

 

But, oh I just want this fatigue to go away ASAP, thus wanting to go quicker, at least in the beginning, as tolerated to get the excessive sedation to go down. I mean driving is even starting to get scary, ya know? I’m sooo tired & know it must be related to my high dose. I must’ve used to need the higher dose due to counteracting other phsych med side effects etc & before quitting cigs, but now it’s too much, but can only taper so fast...

 

On top of it all, the generic clonazapam I’ve taken everyday for 8 years just got discontinued, so that can confuse a taper as the different generics do vary. Perhaps it’s best it’s happening now at the beginning of my taper, rather than further down the line, just a big nuisance since I’m ready to start & now have to research dang generic benzos!

 

Sorry went off on tangent.

 

Ok, so rheumatologist for fibromyalgia. I get that.

 

Upper cross syndrome tends to be mentioned by physics more.-I don’t understand what you mean by physics? Like would that be what a physical therapist is in the us? Or a sports medicine person?

 

Pain syndromes are diagnosed by different specials a as far as I am aware.-so like neurologists & or we’ll all I can think of is neurologist. Any others you can think of?

 

A pain consult would be a good starting point if you have not had one already.-Here in the us we have pain management groups, but I think they mainly manage pain with Meds or injections. They don’t really diagnose things. We have primary care doctors that are not specialists & we go to for common illnesses or to be referred to an appropriate specialist for different things. I’m not sure what or who you mean by a pain consult?

 

I’ll try to get us going on a good diet, he’s just so overwhelmed with work & being my caretaker as it is. He’s sick of me being sick & doesn’t really understand depression. I can’t blame him as he does do so much in addition to not having me be emotionally available.

 

Well I’m really wishing you wellness soon. Much thanks again

 

 

 

 

Ive been is such a fibro flare that exercising is unbearable. im so fatigued  and I hurt so much. I pray for nights that I can sleep but still wake every morning feeling like a truck ran over me. Ive been through a lot of health problems and surgeries these past 2 years and it has all taken it toll on me. I recently started having dependency problems with Ativan and decided to taper down. My psychiatrist would still have me on it if it were up to him! I recently expressed that I wanted to go off so we began a taper last week. I never realized until recently that the Benzo was contributing to some health issues. I couldn’t understand why i was more fatigued, anxious, in pain. I thought my healthy was failing even further. Hopefully once this taper is done and I am better from that then fibro and fatigue will get better. All I can do is hope. The reality of it though is hat the fibromand fatigue were there even before the Benzo. Ughhhh...trying my best to feel better.  With fibro and CFS you have to do the best you can each day. Hoping for better days for all of us. 🙏🙏🙏

Ive been is such a fibro flare that exercising is unbearable. im so fatigued  and I hurt so much. I pray for nights that I can sleep but still wake every morning feeling like a truck ran over me. Ive been through a lot of health problems and surgeries these past 2 years and it has all taken it toll on me. I recently started having dependency problems with Ativan and decided to taper down. My psychiatrist would still have me on it if it were up to him! I recently expressed that I wanted to go off so we began a taper last week. I never realized until recently that the Benzo was contributing to some health issues. I couldn’t understand why i was more fatigued, anxious, in pain. I thought my healthy was failing even further. Hopefully once this taper is done and I am better from that then fibro and fatigue will get better. All I can do is hope. The reality of it though is hat the fibromand fatigue were there even before the Benzo. Ughhhh...trying my best to feel better.  With fibro and CFS you have to do the best you can each day. Hoping for better days for all of us. 🙏🙏🙏

Sorry to hear your feeling so poorly, Bella girl.

I hope you’re feeling better soon & get the help your seeking here & through your doctor. Warm wishes, Scaredie

I have been diagnosed with fibromyalgia for 20 years. I have myself suspected, it has been due to tolerance and withdrawal by Benzo. My trouble, began a few years after I started with this. Here in Sweden, this diagnosis isn´t fully accepted, and is considered a "slash diagnosis" when they don´t know what the problem is.

 

Benzo will only be used for a few weeks. Then, there are side effects with anxiety, insomnia and chronic pain. Professor Ashton writes, that no new diagnoses should be made, before recovery is over. How do you know, what is what?

 

So, I hope this gives some hope, to you who are tired of being sick. Benzo causes so much trouble, maybe more than you think. I did a CT, the worst I´ve ever experienced. But, in the end, it´s worth all suffering. I'm so grateful, I'm free from my chronic pain, and I'm looking forward to the future. Without this, I had still been ill.

 

Thanks for the inspiration 

Fibromalgia is caused by withdrawal. If you take meds to cover up the withdrawal symptoms then your cns will not have the opportunity to heal.

 

Just my thoughts

 

 

shania

Thanks!

 

My osteopath says it can be rectified by exercise.

 

So, in a few years if I am finally well enough to exercise again and if my ME is not too bad I might be able to deal with it...