autonomic dysfunction

I was doing well on my taper, then a lot in my life happened. I have up dosed and held, being able to some what function is all I care about right now. My doctor  thinks I have autonomic dysfunction, has anyone else heard of this?

Hi lostdaydreaming,

 

Yes, I have autonomic dysfunction.  They think the klonopin is making it worse, that is why I am reducing as quickly as I can. (They think that is what is contributing to my intense lightheadedness.) I had a tilt table test done and that's how they diagnosed it.  In January, I am being sent to an Autonomic Dysfunction specialist for more help. But they want me off the klonopin asap...reduction by .25 every three weeks. Two more reductions to go.

 

 

Good luck and speak to your doctor about the tilt table test.  If it is autonomic dysfunction, doctors can help make the symptoms better.

I'm not sure what they mean by autonomic dysfunction. I do know that when were going through this wd is stressful and its tough on us. When were in constant stress it puts us into the flight or fight mode and that's puts our autonomic nervous  system in overdrive and that's what's causing our sxs. After looking it up, it looks like I had it, but as I recovered and my sxs went away everything went back to normal. Just another label for something that they don't understand. Don't let it scare. Everybody dealing with this wd has a over active autonomic nervous system, but it goes away along with the stress. And it doesn't help when they tell you something like that. all that does is cause more fear and that no good.

 

Good luck.

 

 

Do you mean autonomic nervous system dysfunction?

 

http://www.merckmanuals.com/home/brain,-spinal-cord,-and-nerve-disorders/autonomic-nervous-system-disorders/overview-of-the-autonomic-nervous-system

 

These are certainly the problems we have in withdrawal and recovery!

 

But rest assured, as Wolflake said, the symptoms gradually leave. It seems as if it'll last forever, but in time everything fades away.

Do you mean autonomic nervous system dysfunction?

 

http://www.merckmanuals.com/home/brain,-spinal-cord,-and-nerve-disorders/autonomic-nervous-system-disorders/overview-of-the-autonomic-nervous-system

 

 

Sounds similar to what MS people are going through....?

Well that's really going to put her mind at ease.

Well that's really going to put her mind at ease.

 

No offence.... but even Ashton states that people may get wrongly

diagnosed with MS, ...I was responding to Terry's post actually....so sorry.

I agree with everyone that it can be confusing about if it is w/d or is it an autonomic disorder.  The "gold standard" for diagnosing it is to have a Tilt Table test.  BUT as someone with it, I will say that the benzo could be playing a role.  That is why the doctors need me off it asap so they can see if it was from the 7 years of benzos or if the migraines (why I am taking the benzo) were actually POTS - an autonomic disorder.

 

lostdaydreaming, I would suggest that you ask your doctor about a Tilt Table test (now or after the taper) if he/she really thinks you have an autonomic disorder.  And then I would ask which autonomic disorder you have. It is not a life-threatening condition and it can be managed. It sounds like your doctor used the term but didn't give you proper information and a roadmap for figuring it out.

I was diagnosed with POTS

Thanks for the link Terry and the reassurance that it does all go away.  I was very conscious of the 3 parts to the cns.. autonomic sympathetic and parasympathetic which all seemed affected during acute!  I still have some light sensitivity and peristalsis motility problems that are certainly not linear in healing, and my vascular system is affected although my bp is slowly heading towards normal after being very low which is a good sign.  I was also reading about nitrous oxide synthase (somehow my research got me there) which frightened me enough to stop reading and start doing.

 

The reassurance that our cns is doing everything to reset was just what I needed!  I do think that so much of this is wd.

I never would have thought my symptoms would go, Kristina. I had so, so many. But the only ones I have left are the really stubborn ones. And they're few. You'll get there!!! 

Thanks Terry,  I read on a platelets thread that yours were low at some stage too;  I bruise a lot but at this stage am putting off tests ... I am doing a lot better than I was...

 

Sorry for hijacking the thread!! I think all of our WD sxs are from dysfunction in autonomic sympathetic and parasympathetic areas of our CNS which does very very slowly rectify 

I have POTS as a result of the short use of Benzos

I have ME/CFS and orthostatic intolerance is part of it.

 

You may find this helpful : https://www.healthrising.org/forums/resources/enhancing-blood-volume-for-chronic-fatigue-syndrome-me-cfs-pots-and-orthostatic-intolerance.44/

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