Author Topic: Nerve and Muscle Pain...4 months out! Need a "pep" talk  (Read 1102 times)

[Buddie]

Nerve and Muscle Pain...4 months out! Need a "pep" talk
« on: March 20, 2010, 02:23:38 am »
Hello All,

After 2 days where I was feeling a bit of a window (I think)...or at least I did not experience burning for 2 days...today I woke up and could hardly walk.  I know that I have what you all call "jelly legs" but besides being weak and wobbly they just really hurt.  I feel like I do something that "damages" them when I actually fall asleep.  (I know that sounds silly)  But it is so hard every night to get to sleep because of the pain in my neck, shoulders, chest, and legs.  Once I do finally fall asleep, I wake up with my legs feeling "twisted".  On those 2 "good" days, my right leg was actually feeling better...but by bedtime last night, both legs felt as if I had been walking with leg weights on all day.

And the nerve pain...I HATE this!  Today it feels like there are little teeny tiny fingernails pinching the skin all over my torso...I don't know another way to describe it. There are also so many tender places in my rib cage, both front and back.

Even if you have encouraged me before, would someone come back and help me think this through?  I am living with the hope that this is withdrawals, but sometimes I think it HAS to be something more "serious".  (Not to downplay the serious nature of withdrawals...I hope you know what I mean)

One other thing...I have started having hot and cold flashes. Can this be withdrawal???  Or should I just assume it to be hormonal? 

Thank you, buddies :smitten:

~[...] :'(

Suggestions, opinions and/or advice provided by the author of this post should not be regarded as medical advice; nor should it substitute for professional medical care. Consult your doctor before making any changes to your medication. Please read our Community Policy Documents board for further information.

[Buddie]

Re: Nerve and Muscle Pain...4 months out! Need a "pep" talk
« Reply #1 on: March 20, 2010, 05:14:25 am »
[...], so sorry to hear this. I am a little over 4 months off of Xanax and I have the same stuff going on. My legs and arms feel like jelly. It feels as though somebody strapped a ton of bricks on my arms and legs and then just walked away. When I wake in the morning after hardly getting no sleep at all my legs are in so much pain. I feel like a big bolt of lightening is running through my nerves. I have been so weak that I feel so fatigue and darn right yucky!!!!! I never knew this was going to be this hard. We will get through this, hang in there. I know we keep hearing that we will pull through so I want you to know that I am here for you and feel your pain and anytime you want to vent look me up!!!!
Suggestions, opinions and/or advice provided by the author of this post should not be regarded as medical advice; nor should it substitute for professional medical care. Consult your doctor before making any changes to your medication. Please read our Community Policy Documents board for further information.

[Buddie]

Re: Nerve and Muscle Pain...4 months out! Need a "pep" talk
« Reply #2 on: March 20, 2010, 11:55:51 am »
A HUGE "thank you" to you, [...]...for letting me know that you are feeling the same things...and you are about the same amount of time off of your benzo as I am. I certainly take no pleasure that you are in this pain, but it does help to know there is someone who is experiencing this alongside me.  Have you had any windows yet?  Have you found ANYTHING that helps?  About all I have found that seems to give (very temporary) relief is sitting in a hot bath with Epsom salts.  I also find that if I can get myself going on something like pulling weeds (where I am exerting myself a little physically on an activity that requires focus) it at least seems to distract from the pain.

I ventured into a pharmacy here in Austin that is known for natural remedies and happened to speak to a nutritionist/pharmacist who is the first "professional" person I have talked to who seemed to know what I am going through (with the benzo withdrawals).  She grabbed some 5-HTP off the shelf, along with some MSM and liquid B vitamins.  Told me I really needed to get my serotonin up.  I decided to try these things.  I think the 5-HTP helped the first night I took it, but I haven't noticed any help the past 2 nights.  The B vitamins, I think, had the effect that many on this forum warn about.  It seemed to "rev" up my nerves...not necessarily making them more painful but more alive in a bad way. (What is so weird is that last night I discovered I had another bottlle of 5-HTP and I could NOT figure out why I had it!  Then I started looking through the notes from another nutritionist I had consulted with, and discovered I had already been "prescribed" 5-HTP by him...had tried it and had obviously abandoned it for some reason.  I cannot believe how forgetful I am!)

OK...thank you so much again for letting me know about your trials.  I will add you to my prayer list of people to pray for while I am laying awake at night!  And likewise, feel free to PM me if you need a shoulder to cry on :'(

 :smitten:[...]
Suggestions, opinions and/or advice provided by the author of this post should not be regarded as medical advice; nor should it substitute for professional medical care. Consult your doctor before making any changes to your medication. Please read our Community Policy Documents board for further information.

[Buddie]

Re: Nerve and Muscle Pain...4 months out! Need a "pep" talk
« Reply #3 on: March 20, 2010, 12:24:36 pm »
Hi [...].  Sorry you've had so much pain and nerve issues of late.  B vitamins revved my system up.  I stopped taking a B complex after three days.  I've also been fatigued and just posted about it on a thread that Hope started on the subject.  I agree that neurotransmitters and stress hormones can be out of balance after benzo free.  I've also heard that many women have more symptoms during their cycle and/or impact possible from menopause... Guess us guys have it easy ;).  Anyway, as you know my Shingles virus that I got 10 weeks ago has impacted my energy levels.  I also still have occasional nerve tingle and itching which I hope is not neuralgia and just a sensitive nerve.  I've been tired and had blues for much of the year (got Shingles on 12/31) and I think its benzo related.  Wouldn't surprise me one bit to learn my serotonin might be down too.  I've heard 5htp might be helpful but I also read in some book that it should only be used intermittently, a couple weeks on, then off.  I also read a bit on samE which I think may also increase serotonin.  A member on forum recently told me he started St John's Wort, he did not want to take a full blown A/D.  Well, I guess we all have to make those decisions on our own or with our doctor.  So far, I'm giving it another couple months (to six months) to see if my fatigue and blues don't get better with time.  I may try more exercise as weather improves which may not be an option for you based on your chronic pain.  Well, hope something helps to get you on track.

Best and feel better,

V (no more)
« Last Edit: November 07, 2010, 07:53:17 pm by [Buddie] »
Suggestions, opinions and/or advice provided by the author of this post should not be regarded as medical advice; nor should it substitute for professional medical care. Consult your doctor before making any changes to your medication. Please read our Community Policy Documents board for further information.

[Buddie]

Re: Nerve and Muscle Pain...4 months out! Need a "pep" talk
« Reply #4 on: March 20, 2010, 07:29:36 pm »
Hey [...],

    I am so sorry for your pain.  I can't speak to it, but I just wanted to drop in and give you words of encouragement.  It will get better...that is what healing and recovery does, it gets better, even though it may not feel that way. 

     I had to discontinue "B" vitamins early on because they revved up my symptoms.  I tried 5-Htp for sleep, but it caused me the worse depression.  The only supplement that I take is omega-3; otherwise, I am on the organic food/fresh fruit and veggie thing.

     Throughout my taper and for months after I jumped, I experienced hot and cold flashes/flushes at night; they would wake me out of sleep, and then I would get extremely cold.  I thought at first it was perimenopause, but the flashes stopped back in December, and the hormones are fine. 

    If you can muster up any degree of exercise, even if you have to sit in a chair in the garden and use a light free weight, rubber ball or elastic band for exercise, do so and keep the mind occupied, and work the muscles too boot.

     You are 4 months post benzo and you are a champion!  You are a hero!  Continue to be strong...and as I always conclude in my posts...stay the course!
Suggestions, opinions and/or advice provided by the author of this post should not be regarded as medical advice; nor should it substitute for professional medical care. Consult your doctor before making any changes to your medication. Please read our Community Policy Documents board for further information.

[Buddie]

Re: Nerve and Muscle Pain...4 months out! Need a "pep" talk
« Reply #5 on: March 20, 2010, 10:59:10 pm »
Thank you, Retire and [...] (no more)   ;)

I appreciate your comments very much.  You both are so helpful to many of us on this forum! I just need to hear things over and over and over again!

I still struggle so much with just letting myself accept that what I am feeling is all related to withdrawals.  If I could just do THAT, I think I would be so much better off.  As it is, it seems I am like a ping-pong ball, bouncing between the possibilities of:  fibromyalgia, post herpetic neuralgia, damage from levaquin that I took in September, gluten intolerance, messed up hormones, etc.  It just all seems so overwhelming!

IF I had people around me here who really understood the seriousness of withdrawal symptoms, it might be easier for me to just "let go" and believe.  I feel I am constantly having to explain the same thing over and over again (even to my husband).  I wish I had a poster diagram about GABA and that I understood it all well enough to give a decent explanation.  I just get so weary of it all that I don't want to talk to anyone.  I don't call relatives, because I know they are going to ask me how I am doing...and frankly, I don't want to tell them. 

SO...thank you buddies, for being there for me and being such a wonderful support group.  I COULD NOT DO THIS WITHOUT YOU!

 :smitten:[...]

Suggestions, opinions and/or advice provided by the author of this post should not be regarded as medical advice; nor should it substitute for professional medical care. Consult your doctor before making any changes to your medication. Please read our Community Policy Documents board for further information.

[Buddie]

Re: Nerve and Muscle Pain...4 months out! Need a "pep" talk
« Reply #6 on: March 21, 2010, 01:49:30 am »
Hey [...] I can't give you a whole bunch of advice and I wont try to, but in withdrawal I wouldn't advocate b vitamins or really anything extra. I think vitamins are meant to be introduced in the taper on the way down. "out with the old in with the new so to speak". But having said that. Things like grains,legumes chicken and fish have tons of B's in them and you are getting a complete makeup of nutrients which I think can help enormously. I would stay away from ALL processed food. This is gonna be a hard one, but if you look at food just about everything that comes in a packaged state is this way. I would turn into a vicious label reader and eliminate anything that says things like hydrolyzed,Xanathan,vegetable protein,MSG,aspartame,soy protein concentrate,yeast,BHT, modified corn starch and the biggest one NATURAL FLAVOR a huge MSG hideout that the damn FDA allows. BASTARDS!!!!!!!!  I think we are turning into a SICK (literal sense) society since the  industrialization of food supplies. Our food storage have become LOADED with dangerous chemicals that can excite the brain. Excitotoxins if you will. I think a whole foods diet is your best strategy to build up your body and brain again. I have gotten the jelly legs and still do here and there. Comes and goes along with twitches, ear fluttering, muscle and joint pain, and oh lord some other nasty poop. Anyway I have been going so deep and just keep going deeper into diet and find it to be a factor in getting me feeling better. Anything that we ate before needs to seriously be looked at since I feel we are now "chemical sensitive" we probably were before too, but it never came to the surface until our bodies started to show the signs of problems which is why we took a pill to begin with. Add to that the traumas some of us have gone through and you can see why we are all here together sharing our roads to recovery. I hope you feel better soon.
Your BB,
Rev Blue
Suggestions, opinions and/or advice provided by the author of this post should not be regarded as medical advice; nor should it substitute for professional medical care. Consult your doctor before making any changes to your medication. Please read our Community Policy Documents board for further information.

[Buddie]

Re: Nerve and Muscle Pain...4 months out! Need a "pep" talk
« Reply #7 on: March 21, 2010, 02:03:28 am »
Hello Rev,

Thank you so much for the information about diet.  Unfortunately, this is my hardest task to tackle (besides the withdrawal itself, of course).  I know that I need to change and I pick up so many good bits of information from all of you.  I have seen you post on lots of threads about the importance of nutrition, and I usually read all that you have to say.  Is it really true that MSG is disguised like that in lots of things?  I always have read labels to try to avoid MSG...this news throws me for a loop! 

I appreciate your encouragement so much...and wish you "good healing" as well.

 :smitten:[...]
Suggestions, opinions and/or advice provided by the author of this post should not be regarded as medical advice; nor should it substitute for professional medical care. Consult your doctor before making any changes to your medication. Please read our Community Policy Documents board for further information.

[Buddie]

Re: Nerve and Muscle Pain...4 months out! Need a "pep" talk
« Reply #8 on: March 21, 2010, 03:06:54 am »
Hey [...] what is up? You are very welcome.  I guess the hardest part with diet is the fact that it "takes time" to feel any noticeable difference. And we so desperately want relief from all of our sufferings that the added stress of more work to strive for seems daunting to us while we are just trying to get through withdrawals. You are BLESSED to be in Austin and I am going to tell you why. I have been doing a bit too much research on the dangers of psych meds LOL LOL and came across this lovely bit on a anti-medication psychotherapist named John Breeding and his practice is located right in Austin. I thought about going there many times just to speak with this man. He seems so in tune with real human suffering and emotions and advocates an all natural approach. It may be worth your while to check him out. He of course has a website. Just google his name. Let me know how you are making out in this struggle for normalcy. Damn tough road for all.
Your BB,
Rev Blue
Suggestions, opinions and/or advice provided by the author of this post should not be regarded as medical advice; nor should it substitute for professional medical care. Consult your doctor before making any changes to your medication. Please read our Community Policy Documents board for further information.

[Buddie]

Re: Nerve and Muscle Pain...4 months out! Need a "pep" talk
« Reply #9 on: March 21, 2010, 04:43:18 am »
Hi [...],

I hope u r doing better today. My window of last week has now closed and I'm back to the nerve pain/burning/tingling phase. But the pain is a notch lower, and I'm praying that it stays that way. I had expected the symptoms to return... I think the beauty of this site is that it prepares us for the twists and turns of recovery.

U mentioned that u took Levaquin last September. I too took a fluoroquinolone antibiotic (Avelox) about a year ago, and i believe that this is what precipitated the tolerance w/d syndrome in my case. I can clearly trace my misery back to that single 400mg poison pill (+Klon of course).

There's a recent 2008 UK study that observed that 12 out of 13 of Benzo users that took Fqs immediately developed severe adverse reactions. This is a massive 92% for Benzo users vs 1-4% for the general population. But the good news is that time also heals post Benzo/Fq symptoms. Here's the link to the paper: http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2435654/

But what can help w pain? Tylenol, Advil, etc cannot impact nerve pain, cos they don't work on the CNS. Heavy duty medications, such as opiates, do that thru GABA receptors, but this is not an option of us here. I also read that Elavil/Tryptizol (Amitriptyline), a tricyclic antidepressant, could be helpful, but i personally do not intend to take any now.

So we r left with our inner strength and patience (and a little help from our friends on BB) to continue the fight. Stay the course, we can do it.

[...]



« Last Edit: March 21, 2010, 05:54:17 am by [Buddie] »
Suggestions, opinions and/or advice provided by the author of this post should not be regarded as medical advice; nor should it substitute for professional medical care. Consult your doctor before making any changes to your medication. Please read our Community Policy Documents board for further information.