Author Topic: DP/DR Support group  (Read 9269 times)

[Buddie]

Re: DP/DR Support group
« Reply #20 on: December 05, 2017, 03:26:57 am »
I HATE that feeling of being disoriented and having to like think of what I was doing just five seconds ago (and sometimes replay my whole day in my head). I start to freak out and think "WHAT HAVE I BEEN DOING ALL DAY?" as I cannot remember. This is so scary and it never, ever gets tolerable.
Hey Fuzzy!
[...] here, I have read many of your posts before but I decided to look up your story.

Sounds like you have really been through the ringer. Three different Benzos before you were able to start cutting.

I also suffer from extreme forgetfulness. Suddenly find myself standing in a room, with no idea why I came in there. Sometimes I forget what the room  I was in just before. Try and figure that one out.

So, blessings to you. And I hope that the rest of your taper goes well. I am getting ready to jump in a month.

TommyB
Suggestions, opinions and/or advice provided by the author of this post should not be regarded as medical advice; nor should it substitute for professional medical care. Consult your doctor before making any changes to your medication. Please read our Community Policy Documents board for further information.

[Buddie]

Re: DP/DR Support group
« Reply #21 on: December 05, 2017, 03:29:15 am »
Thanks, I hope everything goes as well as it possibly can for you too.
Suggestions, opinions and/or advice provided by the author of this post should not be regarded as medical advice; nor should it substitute for professional medical care. Consult your doctor before making any changes to your medication. Please read our Community Policy Documents board for further information.

[Buddie]

Re: DP/DR Support group
« Reply #22 on: December 26, 2017, 11:57:17 pm »
OMG, so I'm reading this thread and when I read my old posts, it FEELS LIKE SOMEONE ELSE WROTE THAT.  I feel so crazy.   :crazy:

Hi [...],

Did your DP/DR eventually clear up? I withdrew from my antidepressant in August, and I've had DP/DR constantly for 5 straight months with no windows. Have you seen progress with yours?
Suggestions, opinions and/or advice provided by the author of this post should not be regarded as medical advice; nor should it substitute for professional medical care. Consult your doctor before making any changes to your medication. Please read our Community Policy Documents board for further information.

[Buddie]

Re: DP/DR Support group
« Reply #23 on: January 04, 2018, 01:38:27 am »
I've struggled with this for 17 years, I've had breaks from it at one point I was dare I say normal, I was tapering and doing well. I had a panic attack at work I hadn't had one in a long time and after that they started happening daily, the dR/dp came back.

I obessivly think about how  my body moves , like how do I know to even type. I am  scared this us a dream, well a nightmare. I look at my friends and family,  even my kids and they almost seem like strangers. I am questionin if I see the real world, it's the worst during a panic attack and sadly xanax is the only thing that bring me down to normal. I fee, trapped.  I just want met life back
Suggestions, opinions and/or advice provided by the author of this post should not be regarded as medical advice; nor should it substitute for professional medical care. Consult your doctor before making any changes to your medication. Please read our Community Policy Documents board for further information.

[Buddie]

Re: DP/DR Support group
« Reply #24 on: January 04, 2018, 03:40:41 am »
Hey y'all!  Ok...so, I walk in my closet and look at the clothes hanging there and it feels like they belong to someone else.  When I have to really dress up, i.e.,  go to church, I don't know what to put on or what goes with what.  It's as if the clothes aren't mine and I don't know what to do with them or how to wear them.  What is this?  Is it DP, DR, something else?  I used to be a clothes horse and so have a lot of pieces.  I'm baffled by it all now.  I wonder if I'll ever understand my closet again or feel comfortable wearing my clothes??
Suggestions, opinions and/or advice provided by the author of this post should not be regarded as medical advice; nor should it substitute for professional medical care. Consult your doctor before making any changes to your medication. Please read our Community Policy Documents board for further information.

[Buddie]

Re: DP/DR Support group
« Reply #25 on: January 19, 2018, 06:36:31 pm »
I feel for each of you, I truly do. I read your posts and they're heartbreaking to think about. The DP/DR is almost as debilitating as the boaty symptoms for me, and all of it is causing BP and HR spikes for me every day. My chest pain has gotten worse, too, so I'm seeing a cardiologist next week for a work-up. I'm also hoping to get in with a neurologist soon because I really don't know how I can take this much longer, and I'm only in the middle of month 4 right now. Every time I remember that I've had to quit my job, it makes me feel like none of this could possibly be real. And instead of helping to distract you, does watching anything except a documentary or news on TV make your DP/DR even worse?

Thinking of all of you every day...
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[Buddie]

Re: DP/DR Support group
« Reply #26 on: January 19, 2018, 08:09:12 pm »
This is the worst symptom ever.  For anyone worried about it, it does go away and when it does it totally does.  This is one of those symproms where you canít imagine what being normal feels like, and that once you have experienced dpdr you canít unsee it.  But let me assure you when it leaves your mind goes totally back to normal.  I had a 10 mo full window from it and it just came back in this wave at 25mo. Out.  It doesnít scare me as much this time since Iíve been to the other side.  That being said, I still have some fear of it not going away.  Nature of the beast.
Suggestions, opinions and/or advice provided by the author of this post should not be regarded as medical advice; nor should it substitute for professional medical care. Consult your doctor before making any changes to your medication. Please read our Community Policy Documents board for further information.

[Buddie]

Re: DP/DR Support group
« Reply #27 on: January 19, 2018, 11:21:21 pm »
Before up dosing and holding on my taper I was almost in a 2 year window, I thought I was lucky tapering off 10mgs xanax no sxs... then one day at work it all hit me. That was almost a year ago. I saw my doctor yesterday he said I'm still withdrawing from the 10mgs, even at half my body is noticing the difference.  All I can think is I had been on 10mgs so long it took my brain longer to realize I was tapering. I had a good say yesterday. I asked for celexa 10mgs well the generic of it, I've read it can help with DR . Also there is a lot of good about lamictal m but I'm terrified of meds. My doc gave me 5 1mg kolopin to try, he said try it in place of my xanax. He said he doesn't think it will do much but is willing to try. My fear is it ell work better cause I'll still have xanax in my system. Currently taking my xanax every 3 and a half hours to avoid interdose panicand try to manage the DR.

Has anyone had luck with emdr therapy
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[Buddie]

Re: DP/DR Support group
« Reply #28 on: January 21, 2018, 01:16:58 am »
I had my first window from this for about an hour yesterday.

It was such a relief.
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[Buddie]

Re: DP/DR Support group
« Reply #29 on: January 21, 2018, 02:14:49 am »
[...]

That is awesome  :thumbsup: I have been having windows at night once everyone is asleep, I've found myself actually just enjoying relaxing watching tv. Not constantly thinking is this a dream
Suggestions, opinions and/or advice provided by the author of this post should not be regarded as medical advice; nor should it substitute for professional medical care. Consult your doctor before making any changes to your medication. Please read our Community Policy Documents board for further information.