Author Topic: Seroquel Support Group  (Read 36576 times)

[Buddie]

Re: Seroquel Support Group
« Reply #500 on: December 22, 2020, 07:02:15 pm »
I keep hearing this suggestion over and over from another threats that it is apparently recommended by this other site to taper off the antipsychotics first because they (1) "wreak the most havoc on your brain" and (2) the benzois apparently help mask the antipsychotic withdrawal symptoms. Do you guys have any thoughts about that? I feel like it could go both ways as far as which drug is easiest to taper first
Suggestions, opinions and/or advice provided by the author of this post should not be regarded as medical advice; nor should it substitute for professional medical care. Consult your doctor before making any changes to your medication. Please read our Community Policy Documents board for further information.

[Buddie]

Re: Seroquel Support Group
« Reply #501 on: December 23, 2020, 05:02:42 am »
I took only a few mgs of Seroquel for months and it caused confusion, drooling, incontinence, but it did help me sleep.  It's very nasty. 
Suggestions, opinions and/or advice provided by the author of this post should not be regarded as medical advice; nor should it substitute for professional medical care. Consult your doctor before making any changes to your medication. Please read our Community Policy Documents board for further information.

[Buddie]

Re: Seroquel Support Group
« Reply #502 on: January 21, 2021, 07:45:40 pm »
I used Q to help sleep during my taper. A low dose is not going to have much antipsychotic effect. It's going to be mostly an antihistamine that sedates. That's why a low dose (100mg or less, probably less) is used as a sleeping pill. Higher doses have other effects.

I tapered my benzo first. After that, I was able to taper my Q lower by splitting pills. The Q taper caused anxiety for me, too. But low-dose Q does help me with sleep and the worst side effect is a morning hangover.
Suggestions, opinions and/or advice provided by the author of this post should not be regarded as medical advice; nor should it substitute for professional medical care. Consult your doctor before making any changes to your medication. Please read our Community Policy Documents board for further information.

[Buddie]

Re: Seroquel Support Group
« Reply #503 on: March 25, 2021, 03:57:23 pm »
Wanting to update this group. I have been tapering seroquel, I went way up for a while. I kept waking up, or it wouldn't work. I am not sure where I was, but a month ago I was at 650 (5 doses) and am now at 550 (4 doses)

My body did this. I started to sleep better, and often missed a dose, so I just cut it out and went to 4 doses (125.150, 150, 125)  Now, I am starting to sleep through the 3ed dose. Just saw my pdoc, he encouraged me to slow down.

Anyway, would like to have input from others, and hopefully, resurrect support for folks on seroquel.

My primary concern is increased paradoxical reactions to my xanax doses. No matter what I take, they don't work and make me feel worse. I have been in waves like this many times. Always wondered if it was seroquel screwing things up.  I don't know how to get out of it, I have to wait until it starts toning down on it's own.

Am aware that their are 3 receptor states with higher doses of seroquel.

Anyone with the dosage charts, please chime in. I think at above 200Mg's, you hit antihistamine receptor 3,  above 150, receptor 2, and above 100, receptor 1. I know, not very technical. I'm wondering if at my high dose, it is receptor 1 for sure that getting a hit, maybe even 2. Your body has to work it's way off of each receptor, so depending on dose, you could have 3 distinct withdraw experiences.

Other than xanax being a nightmare, I feel much better overall on the lower dose of seroquel.

If more people comment in this group, we can discuss seroquel withdraw more extensively.

I am not planning to taper completely off, this is a dose reduction my body has essentially done on its own. Except for the high anxiety, air hunger  and freezing/ burning I feel a lot better overall. Wont go symptom by symptom, but it's much better overall even at my first reduction.
« Last Edit: March 25, 2021, 07:49:49 pm by [Buddie] »
Suggestions, opinions and/or advice provided by the author of this post should not be regarded as medical advice; nor should it substitute for professional medical care. Consult your doctor before making any changes to your medication. Please read our Community Policy Documents board for further information.

[Buddie]

Re: Seroquel Support Group
« Reply #504 on: March 25, 2021, 06:32:54 pm »
I'm very glad to hear you have been able to get lower on your Q. I, too, find the lower I get, the better I feel. I don't know if I will get off, either, but the lower the better. :thumbsup:
Suggestions, opinions and/or advice provided by the author of this post should not be regarded as medical advice; nor should it substitute for professional medical care. Consult your doctor before making any changes to your medication. Please read our Community Policy Documents board for further information.

[Buddie]

Re: Seroquel Support Group
« Reply #505 on: March 25, 2021, 07:10:39 pm »
I am so glad you responded, as you have been at this a while as well. I missed my 3ed dose, and am experiencing acute air hunger, sweat, dizziness and "weirdness."  These are all listed as sero wd symptoms.

Anxiety is up, so I finally came to peace with the fact that I can't function at lowering my xanax right now. I was struggling so hard, but once I got validation that sero wd causes anxiety, I came to peace with it.

I have not been able to taper xanax with any success's for a good 6 months anyway.

My body wants me to drop another dose, I am trying to not do that yet, pdoc said slow down. But I sleep right through it.

Wondered if those symptoms match any of yours. My dose is above 100, so I am hitting receptors when I reduce. Our experience may be different as your dose capped at 100?

And, how have you been overall?  Are you still in post benzo recovery, or pretty much healed?
« Last Edit: March 25, 2021, 07:44:06 pm by [Buddie] »
Suggestions, opinions and/or advice provided by the author of this post should not be regarded as medical advice; nor should it substitute for professional medical care. Consult your doctor before making any changes to your medication. Please read our Community Policy Documents board for further information.

[Buddie]

Re: Seroquel Support Group
« Reply #506 on: March 25, 2021, 10:33:30 pm »
I was never above 50mg of Q. It was for sleep and didn't seem to do any more good above 50mg. Plus, I had a terrible morning hangover even at 25mg. I kept it as low as possible because the hangover was debilitating. I definitely got anxiety when I tapered the Q. I thought I would lose sleep since it was a sleep med for me, but it was more anxiety than insomnia. I would think at your higher dose you would get anxiety from tapering, too.

I don't know if this is helpful, but I found this about how even low doses of Q can affect receptors.

It is estimated that almost 100% of the H1 receptors and over 50 % of serotonin 5HT2a and dopamine D2 receptors are blocked by use of 50 mg quetiapine. source

I've slowed my taper down to barely moving because I am getting ready to move in with family due to health and financial problems. It's involves remodeling and other stressful stuff! I tried to rush my gabapentin taper to finish before my move, and ended up having to updose and hold. It wasn't worth it.

Our marathons continue. Onward!

Suggestions, opinions and/or advice provided by the author of this post should not be regarded as medical advice; nor should it substitute for professional medical care. Consult your doctor before making any changes to your medication. Please read our Community Policy Documents board for further information.

[Buddie]

Re: Seroquel Support Group
« Reply #507 on: March 26, 2021, 12:33:17 am »
Thank you! Perfect! I am sending that to my therapist asking him if he can find more data, and guidelines and info on tapering and withdraw.

I have so many positive changes just in a month from cutting one dose, but the anxiety (OHMAHGAWD,) air hunger and dizziness are just awful. I can deal with the sweats and other sides that are mostly just unpleasant, and not causing distress.

Still worth it.

Glad your listening to your body, you always have., and letting it guide you.
« Last Edit: March 26, 2021, 01:30:04 am by [Buddie] »
Suggestions, opinions and/or advice provided by the author of this post should not be regarded as medical advice; nor should it substitute for professional medical care. Consult your doctor before making any changes to your medication. Please read our Community Policy Documents board for further information.

[Buddie]

Re: Seroquel Support Group
« Reply #508 on: March 26, 2021, 01:46:26 am »
Thank you! Perfect! I am sending that to my therapist asking him if he can find more data, and guidelines and info on tapering and withdraw.

I have so many positive changes just in a month from cutting one dose, but the anxiety (OHMAHGAWD,) air hunger and dizziness are just awful. I can deal with the sweats and other sides that are mostly just unpleasant, and not causing distress.

Still worth it.

Glad your listening to your body, you always have., and letting it guide you.

You, too, Dove. :smitten: 
Suggestions, opinions and/or advice provided by the author of this post should not be regarded as medical advice; nor should it substitute for professional medical care. Consult your doctor before making any changes to your medication. Please read our Community Policy Documents board for further information.

[Buddie]

Re: Seroquel Support Group
« Reply #509 on: April 12, 2021, 09:23:30 pm »
My body dropped seroquel dose 4.(missed 4 doses in 7 days) 2 days without it. Serious wd affects this time. This is scary wd, beyond what I usually feel. I might updose back, but I know I will still miss doses. Really in distress, doing anything I can think of to distract, it's not easy.

Still maintaining my xanax reduction in spite of this that the first seroquel drop enabled me to do. Xanax is not the problem anyway.

« Last Edit: April 12, 2021, 10:44:58 pm by [Buddie] »
Suggestions, opinions and/or advice provided by the author of this post should not be regarded as medical advice; nor should it substitute for professional medical care. Consult your doctor before making any changes to your medication. Please read our Community Policy Documents board for further information.