Author Topic: Pelvic pain, burning VJ/ prostate, urinary type problems support group  (Read 32104 times)

[Buddie]

Re: Pelvic pain, burning VJ/ prostate, urinary type problems support group
« Reply #10 on: August 28, 2015, 06:43:57 pm »
It's the benzo.

Burning pain and irritation is caused by these horrible drugs. They work on the nervous system. I had all of that and more. It vanished after 20 months off the drug. I've had it again in this relapse from Keflex. Stunned, and very angry that an antibiotic triggered a setback. Why we get attacked there is maddening, but it happens. It's horrible. But, it does go away. I'm waiting once again for this vexing pain to stop. I've had 50 sx return and most are gone, but the urethra, rectum, butt cheek pain persists. Today it is less intense so I hope it's on it's way out. Very troubling and crippling.

I flew to California Pelvic Pain Clinic run by the author of Headache in the Pelvis in 2006 while still on Ativan. The top urologist at Stanford, co-author, confirmed I never had interstitial cystitis. He said the burning was coming from "something else." Yep, benzos. There I learned self massage and relaxation for pelvic floor pain. Good to know, but until the drug is out of your body and time passes in withdrawal, the technique did very little to help. Time away from benzos is the only cure. Believe me, I tried everything under the sun. Everything.

Remember, benzos are muscle relaxers. Once  tolerance happens, or reduced or taken away, the muscles can spasm and feel like cement. This causes swelling and/or entrapped nerves as well as trigger point knots everywhere. If the pain is chronic you can be assured it's from the drug. Most likely the pudendal nerve is affected or inflamed. As are other nerves in the pelvis. Interstitial Cystitis is actually Pudendal Neuralgia in many cases. Or, a staph infection that goes undetected in urinalysis. Urethral Syndrome can be a localized staph infection treatable with silver gel.

I highly recommend Trigger Point Therapy Workbook. It is invaluable for self treatment of any pain problem. There are illustrations to guide you as to where your pain is coming from and how to deactivate those tight knots. But, again, the drug is the cause. If it goes on too long the pain can spread to the rectum, as it did for me. Horrible. Then, into the butt cheeks, thighs, hips, abdomen.

Avoiding inflammatory foods like wheat, nightshade veggies, and dairy may help. Avoiding high glutamate food may help. Avoid gassy foods as the colon is very connected to pelvic floor pain.  But, ultimately, it is just time away from drugs. Once off the Ativan my burning got worse for a while. And, turned into pain...it was nasty. I felt like I was sitting in acid and like a car ran into my crotch. The rectum stopped functioning and felt like a jackhammer drilling into my bones. But, it all went away. It takes time. Hard to believe a drug could do this.

I wasn't on Benzo Buddies when I was ill from Ativan withdrawal. I was on Benzo Friends. I was the only member with this burning crotch. Plus, 75 other crippling sx. I felt very hopeless and alone. I even wrote to Heather Ashton and she scared the hell out of me. She said she never heard of this and that it probably wasn't the Ativan. Well, she was wrong. She put horrible fear into my fragile mind and that was awful and unappreciated. It was the Ativan. 100%. It all went away after 20 months off that poison.

Ativan is a horrible chemical. All benzos are horrible. Your pain will go away.

Denise :smitten:




Suggestions, opinions and/or advice provided by the author of this post should not be regarded as medical advice; nor should it substitute for professional medical care. Consult your doctor before making any changes to your medication. Please read our Community Policy Documents board for further information.

[Buddie]

Re: Pelvic pain, burning VJ/ prostate, urinary type problems support group
« Reply #11 on: August 29, 2015, 12:15:52 am »
It's the benzo.

Burning pain and irritation is caused by these horrible drugs. They work on the nervous system. I had all of that and more. It vanished after 20 months off the drug. I've had it again in this relapse from Keflex. Stunned, and very angry that an antibiotic triggered a setback. Why we get attacked there is maddening, but it happens. It's horrible. But, it does go away. I'm waiting once again for this vexing pain to stop. I've had 50 sx return and most are gone, but the urethra, rectum, butt cheek pain persists. Today it is less intense so I hope it's on it's way out. Very troubling and crippling.

I flew to California Pelvic Pain Clinic run by the author of Headache in the Pelvis in 2006 while still on Ativan. The top urologist at Stanford, co-author, confirmed I never had interstitial cystitis. He said the burning was coming from "something else." Yep, benzos. There I learned self massage and relaxation for pelvic floor pain. Good to know, but until the drug is out of your body and time passes in withdrawal, the technique did very little to help. Time away from benzos is the only cure. Believe me, I tried everything under the sun. Everything.

Remember, benzos are muscle relaxers. Once  tolerance happens, or reduced or taken away, the muscles can spasm and feel like cement. This causes swelling and/or entrapped nerves as well as trigger point knots everywhere. If the pain is chronic you can be assured it's from the drug. Most likely the pudendal nerve is affected or inflamed. As are other nerves in the pelvis. Interstitial Cystitis is actually Pudendal Neuralgia in many cases. Or, a staph infection that goes undetected in urinalysis. Urethral Syndrome can be a localized staph infection treatable with silver gel.

I highly recommend Trigger Point Therapy Workbook. It is invaluable for self treatment of any pain problem. There are illustrations to guide you as to where your pain is coming from and how to deactivate those tight knots. But, again, the drug is the cause. If it goes on too long the pain can spread to the rectum, as it did for me. Horrible. Then, into the butt cheeks, thighs, hips, abdomen.

Avoiding inflammatory foods like wheat, nightshade veggies, and dairy may help. Avoiding high glutamate food may help. Avoid gassy foods as the colon is very connected to pelvic floor pain.  But, ultimately, it is just time away from drugs. Once off the Ativan my burning got worse for a while. And, turned into pain...it was nasty. I felt like I was sitting in acid and like a car ran into my crotch. The rectum stopped functioning and felt like a jackhammer drilling into my bones. But, it all went away. It takes time. Hard to believe a drug could do this.

I wasn't on Benzo Buddies when I was ill from Ativan withdrawal. I was on Benzo Friends. I was the only member with this burning crotch. Plus, 75 other crippling sx. I felt very hopeless and alone. I even wrote to Heather Ashton and she scared the hell out of me. She said she never heard of this and that it probably wasn't the Ativan. Well, she was wrong. She put horrible fear into my fragile mind and that was awful and unappreciated. It was the Ativan. 100%. It all went away after 20 months off that poison.

Ativan is a horrible chemical. All benzos are horrible. Your pain will go away.

Denise :smitten:


Thank you for replying! You are awesome  :)  I am so sorry all your pain came back   :(     Still thinking of you and your kindness.   :smitten:
Suggestions, opinions and/or advice provided by the author of this post should not be regarded as medical advice; nor should it substitute for professional medical care. Consult your doctor before making any changes to your medication. Please read our Community Policy Documents board for further information.

[Buddie]

Re: Pelvic pain, burning VJ/ prostate, urinary type problems support group
« Reply #12 on: August 29, 2015, 12:21:03 am »
Hi,

I am here to offer hope. I had burning vagina, and burning buttocks that I call "saddle ass". It was alarming. This was fairly early in withdrawal. But it went away (along with crippled hands) after I made significant reduction in dosage, and switched to micro tapering. Remember that we are suffering from an iatrogenic illness, not just trying to withdraw from a drug safely. This and many other horrible symptoms will likely go away. Keep the faith.

[...]

Do you think the Ativan set it off? When I'm uncomfortable down there it just makes it all more miserable.

If you didn't have the burning until you started tapering, my estimation that it's a withdrawal symptom of Ativan not an independent condition or disease. It is pretty freakin uncomfortable. I put an ice pack on my crotch. It helped.

Actually at the end of every shower I take a Poland spring bottle of almost frozen water and rinse everything down there with it. The one with the squirt top. One would think after the pucker factor   ::)  everything would tense up but after the initial WHOA COLD  8)  I will get a brief window where the burning is gone and the pain is better. Usually like an hour.  But Brrrrrr........ And then it comes right back.
Suggestions, opinions and/or advice provided by the author of this post should not be regarded as medical advice; nor should it substitute for professional medical care. Consult your doctor before making any changes to your medication. Please read our Community Policy Documents board for further information.

[Buddie]

Re: Pelvic pain, burning VJ/ prostate, urinary type problems support group
« Reply #13 on: August 29, 2015, 05:34:19 am »
Hi,

I am here to offer hope. I had burning vagina, and burning buttocks that I call "saddle ass". It was alarming. This was fairly early in withdrawal. But it went away (along with crippled hands) after I made significant reduction in dosage, and switched to micro tapering. Remember that we are suffering from an iatrogenic illness, not just trying to withdraw from a drug safely. This and many other horrible symptoms will likely go away. Keep the faith.

[...]

Do you think the Ativan set it off? When I'm uncomfortable down there it just makes it all more miserable.

If you didn't have the burning until you started tapering, my estimation that it's a withdrawal symptom of Ativan not an independent condition or disease. It is pretty freakin uncomfortable. I put an ice pack on my crotch. It helped.

Actually at the end of every shower I take a Poland spring bottle of almost frozen water and rinse everything down there with it. The one with the squirt top. One would think after the pucker factor   ::)  everything would tense up but after the initial WHOA COLD  8)  I will get a brief window where the burning is gone and the pain is better. Usually like an hour.  But Brrrrrr........ And then it comes right back.

You do realize that as horrible as this withdrawal process is, there is the distinct possibility that someday you may laugh about doing that?  :idiot: I used to think ice pops...  ::)
Suggestions, opinions and/or advice provided by the author of this post should not be regarded as medical advice; nor should it substitute for professional medical care. Consult your doctor before making any changes to your medication. Please read our Community Policy Documents board for further information.

[Buddie]

Re: Pelvic pain, burning VJ/ prostate, urinary type problems support group
« Reply #14 on: August 29, 2015, 03:10:08 pm »
OMG....ice pops......that would probably work  LOL !!
Suggestions, opinions and/or advice provided by the author of this post should not be regarded as medical advice; nor should it substitute for professional medical care. Consult your doctor before making any changes to your medication. Please read our Community Policy Documents board for further information.

[Buddie]

Re: Pelvic pain, burning VJ/ prostate, urinary type problems support group
« Reply #15 on: August 30, 2015, 12:13:55 am »
  I have also started having pressure and pain feelings after being on the Valium since January.  I had crossed from the Ativan.  I noticed my urine stream seemed a little weak a few months ago but didn't think much of it as it didn't cause pain etc.  Now that I am tapering the Valium I am having all kinds of things pop up.  Today I had feelings of pressure etc almost like I had a UTI.  I don't think I do but still have kind of a weak stream.  I'm really scared of this as will the Dr. insist I get off the Valium immediately?  I can't do that, I think I would lose it.  What has anyone else's Dr.s suggested as far as this symptom?  I am so scared. I never had this on the ATivan, now that I have tapered down 5 mg. of V seems symptoms are getting worse.  Will the Dr. make me stop V because of the urinary symptoms.  I hope this goes away, I can't imagine having to suffer with this all the way down and then after jumping.  So sorry I ever took the first pill of this poison.  Any help is appreciated. I"m just scared I will do permanent damage to my urinary system if I stay on V.  Thanks for the help.
Suggestions, opinions and/or advice provided by the author of this post should not be regarded as medical advice; nor should it substitute for professional medical care. Consult your doctor before making any changes to your medication. Please read our Community Policy Documents board for further information.

[Buddie]

Re: Pelvic pain, burning VJ/ prostate, urinary type problems support group
« Reply #16 on: August 30, 2015, 12:49:59 am »
Hi [...],

You don't know that you'll feel this way for the rest of your taper and afterwards. That's catastrophic thinking. Most likely, as for many people, this is a withdrawal symptom and will go away. Do the best you can to minimize the discomfort. Tapering any Benzo is going to bring up symptoms, and it could be that this would have eventually happened with Ativan, not just Valium. See if you can ride it out, you are not alone in this. Hang tough.

[...]
Suggestions, opinions and/or advice provided by the author of this post should not be regarded as medical advice; nor should it substitute for professional medical care. Consult your doctor before making any changes to your medication. Please read our Community Policy Documents board for further information.

[Buddie]

Re: Pelvic pain, burning VJ/ prostate, urinary type problems support group
« Reply #17 on: August 30, 2015, 11:50:35 am »
  Thanks for the encouragement.  I didn't get much sleep, woke up at 1:30 am with nausea, hands tingly again and that slight pressure feeling.  I also had diarrhea and thick mucous in throat.  I think since I just cut 2 1/5 weeks ago I might be still getting a wave of symptoms.  Got first after about a week of the cut, then felt better.  I [...] not to think the worst but you know how it is.  when you think this will go on forever, you have so long to taper, and new things keep popping up, plus I'm on other meds that will need tapering once I get through my surgery it just seems never ending and I get anxious.  Hopefully this symptom will settle down.  I don't think I could be as strong as so many of you that have been through it.  I'm going to make an appt. and see if theDr. will give me the liquid V and [...] the daily microtaper and see if I do better on that.  Hope everyone has a better day and God Bless.
Suggestions, opinions and/or advice provided by the author of this post should not be regarded as medical advice; nor should it substitute for professional medical care. Consult your doctor before making any changes to your medication. Please read our Community Policy Documents board for further information.

[Buddie]

Re: Pelvic pain, burning VJ/ prostate, urinary type problems support group
« Reply #18 on: August 30, 2015, 03:46:39 pm »
  Thanks for the encouragement.  I didn't get much sleep, woke up at 1:30 am with nausea, hands tingly again and that slight pressure feeling.  I also had diarrhea and thick mucous in throat.  I think since I just cut 2 1/5 weeks ago I might be still getting a wave of symptoms.  Got first after about a week of the cut, then felt better.  I [...] not to think the worst but you know how it is.  when you think this will go on forever, you have so long to taper, and new things keep popping up, plus I'm on other meds that will need tapering once I get through my surgery it just seems never ending and I get anxious.  Hopefully this symptom will settle down.  I don't think I could be as strong as so many of you that have been through it.  I'm going to make an appt. and see if theDr. will give me the liquid V and [...] the daily microtaper and see if I do better on that.  Hope everyone has a better day and God Bless.

Give yourself some time for a transition using liquid V. Not that I've been on V, it's what I've heard. Symptoms may be less severe with MT. I'm MTing. I became functional on MT. Some of the most severe symptoms are likely to be at higher doses and early on. So don't give your despair lots of weight. Recognize this as chemically driven. The other day I had a meltdown and realize it was benzo lies, all the things I told myself, that I'd feel this way always. And I'm on a really small dose. Well, yesterday I had a 90/10 day! And this morning, feeling pretty good again. I have 38 more cuts, woo hoo! And yet, that's a few more months at my taper rate. And yes, you DO have the strength to endure. Do you really have a choice? You WILL persevere, you ARE strong.
Suggestions, opinions and/or advice provided by the author of this post should not be regarded as medical advice; nor should it substitute for professional medical care. Consult your doctor before making any changes to your medication. Please read our Community Policy Documents board for further information.

[Buddie]

Re: Pelvic pain, burning VJ/ prostate, urinary type problems support group
« Reply #19 on: August 30, 2015, 04:53:39 pm »
  So happy you are having a nice good wave.  I still feel awful, I'm in bed but you give me hope.  I also get the emotional depressed and anxious feelings when these physical things hit. tomorrow is another day so I hope its better for us all.  I want to feel I am strong enough but when you get in this state , well you all know.  I hope your good days last all the way down, you have come so far.  One day I will be there also God willing.  Have a good day everyone.
Suggestions, opinions and/or advice provided by the author of this post should not be regarded as medical advice; nor should it substitute for professional medical care. Consult your doctor before making any changes to your medication. Please read our Community Policy Documents board for further information.