Botox during withdrawal.....UTTERLY DISASTROUS

Dear Buddies

I haven't posted for nearly 18 months.

it is 3 years since I stopped benzos and right now I should be well or almost well.

 

During my first year of wd I got muscle spasms and other things. I became sensitive to medications and supplements.

Then UTIs. Then oesophageal spasms and terrible chest pain...which was investigated and I was told I had only 10 per cent of my motility left. Doctors were puzzled as no diseases etc.

 

For many years I had had Botox in the forehead every 3 or 4 months and was told it was "perfectly safe" and impossible to react to. No warnings given because side effects were impossible.

 

WRONG. I had final injection 18 months ago and my body collapsed and I could not walk and I ended up in hospital. Eventually walked again but for the last 18 months I have been in hell.

 

Worse, so much worse and scarier than benzo withdrawal, can you believe it. It will take me years to recover, I am advised.

 

People with neural issues (including motor neurone) are warned by responsible doctors not to risk Botox.  I now get it that BENZO WITHDRAWAL FOR SOME, is a neural  issue.

My life has been wrecked.

 

Benzos made me sensitive and I should not have believed the doctor injecting me, and I was foolish to not recognise that Botox is a drug, which might have been fine for years but which eventually can kick you hard (sometimes kills people). Allergan sets it out clearly these things in its written warnings, which I wish I had been offered to read.

 

Viking 😪

wow, thanks for the warning.  I wasn't planning on any botox soon but it has crossed my mind for the near future.

 

I am so sorry you are feeling so bad, what a horrible thing to collapse and end up in the hospital.  Hang in there, I sure hope things take a turn for the better soon. :'(

 

 

I know this is an old thread but what were your symptoms after Botox and how long before they let up.

Good to know... I'm supposed to see a head pain specialist (also a neurologist) and one of the treatments for chronic head pain is botox.

Our CNS Is super sensitive to even foods and things like that I haven’t been surprised that you had reactions to Botox I also wanna take some pills for my skin disorder I got from benzo but I am not gonna do it right now

Some of the doctors have no ideas about benzo withrawal which is very sad

Regarding how long before symptoms of Botox let up, it was many months. However I now know that my undiagnosed AND UNTREATED autoimmune issue was responsible underneath all these drug issues. (No autoimmune “markers” showed up in bloods...a small group have this problem).

 

I now believe that a massive magnesium deficiency caused by this autoimmmune issue, was the reason for lifelong health issues. As it would be being a mineral so  vital.

may I ask how they found out you had an autoimmune disease if the normal markers didn't show up?  Is there another way to test this?  Thanks!

sure! Trying to set it out briefly:

Autoimmune genes (variations on a gene) are said to be in most or all of us, just that our unique layout of other genetic variations means either a condition will come out and be expressed (unlucky) or won’t and you walk around whole life (lucky!).

Or the offending genetic variation may be manifested later as, say, Alzheimer’s. Depends on surrounding biology.

Doctors we knownlargely react to blood test markers. They have not yet identified all markers for all conditions (auto or otherwise) yet many slavishly say “you don’t have lupus if you don’t have a marker.”

I was told by a rheumatologist that a rare kind of joint inflammation must be “autoimmune” and was told by a dermatologist that my unusual arm keratosis was “autosomal dominant autoimmune”.

My lifelong excessive thirst issue was never said to henautoimmune. But it must be part of the whole.

Most autos involve joints/vascular issues/kidney/skin OR A COMBINATION OF ONE OR MORE.

No doctor ever told me my issues were parts of a whole until I figured it out myself and put it to a new quack who said yes...you just don’t have a marker or antibody that researchers. Have looked for or detested.

My aunt and daughter both have variations of my own yet daughter has no blood markers, just the weird joint issue. It all fit into place for me a year ago.

Until getting magnesium into me, which research suggests will fix the issue (🤞) then all these drugs will murder me!

Currently recovering from withdrawal of Zoloft and then I will be able to tackle the issue naturally (or by steroids god forbid) like the rest of the autoimmune humans race.

Sorry so long...I have a genetic incapability of explaining anything except logically and I full!

Am typing on mobile so the spelling is crap

Hi again and I am not sure if I answered your question precisely enough.

In the sense of YOUR situation.

 

If they have tested you for markers and nothing shows up, then this can’t be helped.

 

However once withdrawal has totally finished and the receptor reactivity calms down (from any of these drugs),  then you CAN GET GOOD TESTS TO TREAT DEFICIENCIES OF MAJOR MINERALS TRAVE ELEMENTS AND VITAMINS.

 

Normal doctors know little or nothing of these tests. You look at tests on the Doctors Daya and Great Plains websites, then find a doctor (in the US I think they are called “functional doctors?), who can interpret them and treat the deficiencies.

Yes we DO excrete excessive minerals because of our genetic makeup. Doctors don’t get it that “a healthy diet” of CONSUMING the right foods etc, doesn’t mean you don’t EXCRETE THEM WHICH LEADS TO YOUR DODGY GENES BEING EXPRESSED.

 

I suggest you find such a doctor (they can also advise you on folate deficiency which is critical if it exists).

 

And finally, remember that whilst in withdrawal none of these tests are showing the “native you”. After total recovery from drugs (if you are able) then it is BLUE SKY identifying deficiencies and hopefully fixing yourself (ourselves!) up once and for all

X

Ha!! I meant Doctor’s Data. I must get spellcheck going!

Thank you so much for your thorough answer!  I was tested for autoimmune markers 2 months after I completed withdrawal, and everything came back "normal".  I have developed allergies to medications I took without issues in the past, and had major neuro symptoms.  Many of these have started clearing up, but I still have major muscle issues.  I was curious about other tests, because I had seen others mention something similar - not having markers but still having the disorder.

 

At this point I think it is just withdrawal (and possibly a withdrawal induced movement disorder) so I don't think I will have testing done now, but if my muscle issues get worse again or other things start to flare up that don't seem to be withdrawal, I will look into a functional medicine doctor.  Thank you for your response!

Great...let’s hope the withdrawal clears it all up and you are back to good health.

 

If Good health is your normal baseline state (no drugs needed for gut/sleep/joints or anything) is the normal state,  then why do tests for minerals/nutrient deficiencies.

 

😘😘

Power to your elbow for the rest of WD

Hi, I was also injured by Botox in the middle of a taper in 2017. The pain from the Botox was/is indescribable. It gradually let up after 4-5 months. I started tapering again after experiencing tolerance wd, and Botox pain has returned. Feel I am caught between rock and hardplace.

 

Did pain let up for you? So sorry youexperienced this with Botox as well!

 

Sunflower67