Author Topic: Micro Tapering/Daily Tapering off of Klonopin – Success Story -  (Read 36684 times)

[Buddie]

Re: Micro Tapering/Daily Tapering off of Klonopin – Success Story -
« Reply #130 on: February 16, 2020, 02:49:20 pm »
I have not come to this forum on a regular basis. Due to the many opinions of taper methods I stayed away. At first I sifted through the many opinions. I did join Jana's group in July/Aug 2013  to start micro tapering. But I rather like the term “Daily Tapering”.

The taper was the right choice for me. I left the group midway and just took care of myself for the rest of the taper which was considerably many months.  I found certain things not true on my own and other things very helpful.

I started tapering the last day in July 2013 by December 2013 I was noticing lots of improvements however I did go through two frozen shoulders, one at a time and that was painful.

I had all the symptoms most people list so I am not going to list every single symptom.

If I can look back most my psychological symptoms faded away in December 2013. I now consider that a phase one. Phase two was the pain phase, nerve pain, arm pain muscle pain and all that started to fade by October 2014 in fact I had hardly any symptoms so end of phase two and onto phase three which was the healing phase. I lost all my symptoms except for fatigue and started to improve dramatically after October 2014. I was tapering but the only thing that reminded me was taking the actual doses and being fatigued, other than that I felt pretty normal, I still had dry hair and skin though.

My taper took 15 months for .50mg Klonopin.

Did I heal before my last drop of a dose because of the taper?

Or was it because of the time it took?

Would I have healed in the total time of 15 months if I tapered faster? I will never know.

Am I totally healed now? I would say yes to all the withdrawal symptoms however I feel that I am returning slowly to homeostasis.

I am happy that I did it this way because I wanted the safest taper possible I could find and even though this was incredibly slow it delivered what I wanted. I was tapering and able to regain a lot of my life and function while tapering. If I had to go back and do it over again I would do exactly how I did it.

I was on Klonopin for over 20 years and in my opinion this was the best plan for my situation.

The first time I tapered I tapered 5 percent every two weeks and I got down to .25mg a day. I held for eight months due to my best fried passing away.  Then one morning about 3:00am I woke up in a bolt of blind terror. I had no idea I was in acute tolerance withdrawal. After about a week of that I went to the ER, I had no idea it was the klonopin because I was still taking .25mg a day.

The ER Doctor gave me .50mg of Klonopin and when I got relief of my symptoms I realized that what I experienced was klonopin withdrawal. The ER Doctor did not tell me I was in withdrawal all he said was to throw out the rest of my klonopin and he wrote a prescription for seven days of Xanax. I tore up that prescription and called my prescribing doctor who then told me it was break through anxiety and just upped my klonopin to .50mgs 3 x a day.  I knew it was withdrawal and I only took .50mg twice a day for two days when it hit me that this will just happen again in the future. I went back to .50mg a day and started to look for taper types and learned about daily tapering. I took my .50mg dose and put it in whole milk and divided it up to take three times a day, I did this for a month because  that helped me to be stable.

I started out tapering at .0005mg a day August 2013 then doubled that to .001mg in November 2013 and decided to stay there for as long as I could.

I did not have to slow down towards the end, in fact towards the end I felt really normal. All I had towards the end was fatigue.

I keep seeing posts of people saying that slow tapers have to face acute after their tapers and this did not happen to me at all! So it is not true everyone faces acute even if they do a very slow taper. How slow do you think tapering slow is?

This taper might not be for everyone but it was the best one for me. I don't have fear of acute anymore, I have [...] from withdrawal and doctors. All my phobias disappeared.  even my phobias I had before withdrawal and before I ever took a benzo.

My hair is starting to thicken and the dry part is softening up some.

My shoulders are still sore from the frozen shoulders episodes, I hope with exercise my muscle will return. I have already been exercising while tapering and have upped my exercise now and I am building up my muscle mass.  Exercise energizes me now, instead of wearing me out. My skin is making me happy now, no more dry skin (I was so sick of the dry skin) .

I do not have any withdrawal anxiety whatsoever.
I do not have any depression whatsoever.
I sleep like a rock now and wake up feeling good and do not have that tired and wired feeling.
I have had coffee and sometimes I feel jittery and sometimes I feel fine,  so I don't know what that means.

I will not drink now, maybe will try in a year.

I never doubted that the taper would not work, but it took such a hell of a long time that I felt it would never end. But it does end and we do heal, maybe not when we wish but it does and when it does it is wonderful and worth it.

I do think it took me such a long time and that was a bummer, however I was able to function like anyone else and that was the plan, I had no idea it would take 15 months. But in my mind I had to pick from fast and non functional or slow taper and fully functional.

Congrats... I just finished last week..  Now if I can get that dang ticker to work.  🤦‍♀️😂 :thumbsup: :smitten:
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[Buddie]

Re: Micro Tapering/Daily Tapering off of Klonopin – Success Story -
« Reply #131 on: February 16, 2020, 08:44:23 pm »
Thank you, [...], for sharing your update and insights with us.  I am sorry to learn about your episodes of akathisia (it sounds like a horrific condition), but I’m delighted your memory has improved.  That must be a major relief for you!

Might I tap your “experiential expertise”?

As I’m sure you know, tapering clonazepam is problematic because of its high potency and the limited, FDA-approved dose and format options available in the US (e.g. in contrast to alprazolam, lorazepam, and diazepam, an FDA-approved oral solution of clonazepam is not available).  So, it is especially important for us to learn from members such as yourself who found a way to taper this particular benzodiazepine successfully.

Based on what I’ve read here and elsewhere, milk has a solid track record when used to prepare a homemade liquid with clonazepam. Your experience supports this.  Can you tell us more?   

Did you use whole fat, homogenized milk as recommended?  Do you have any “tips and tricks” to share about using milk with clonazepam? (i.e. what worked/what didn’t, things to do/not do).  Other info or insights? 

Thank you in advance for sharing your experiential expertise with us!
« Last Edit: February 16, 2020, 09:54:55 pm by [Buddie] »
Suggestions, opinions and/or advice provided by the author of this post should not be regarded as medical advice; nor should it substitute for professional medical care. Consult your doctor before making any changes to your medication. Please read our Community Policy Documents board for further information.

[Buddie]

Re: Micro Tapering/Daily Tapering off of Klonopin – Success Story -
« Reply #132 on: February 17, 2020, 04:25:27 am »
[...],

Whole milk was great for me. I do know people who can't do liquid so they got a real accurate expensive scale. and I know people who used water. I noticed the people with the scale and water go even slower. I like milk and it worked very well. I had the generic brand that was chalky and it just melted in the milk. people's who pill had a harder shiny surface had to be careful and make sure it all is absorbed. What I was told about milk was that the active ingredient was absorbed into the fat of the milk so that it was a solution and that people who used water had their benzo in a suspension so lots of shaking it up to try and keep it even. But I know many who did either and got off their benzo just fine.

Another thing I was told was to take magnesium and thankfully I didn't listen because it really messes with people even after taper. I get my magnesium through food. right now I know a few people suffering because of the magnesium problem after their taper. Some people disagree and some people know people in this situation. I believe these people and magnesium will dampen the glutamate receptors voltage in some people. Which is why taking high doses would make someone feel better but as with everything there could be a cost in some.

I hope that helps.
Kay
Suggestions, opinions and/or advice provided by the author of this post should not be regarded as medical advice; nor should it substitute for professional medical care. Consult your doctor before making any changes to your medication. Please read our Community Policy Documents board for further information.

[Buddie]

Re: Micro Tapering/Daily Tapering off of Klonopin – Success Story -
« Reply #133 on: February 17, 2020, 04:26:37 am »
[...],
I am so happy you are done! How do you feel?

Kay
Suggestions, opinions and/or advice provided by the author of this post should not be regarded as medical advice; nor should it substitute for professional medical care. Consult your doctor before making any changes to your medication. Please read our Community Policy Documents board for further information.

[Buddie]

Re: Micro Tapering/Daily Tapering off of Klonopin – Success Story -
« Reply #134 on: February 17, 2020, 04:28:30 am »
[...]

I do know someone tapering and using liquid klonopin. So it's brand name. I didn't think it existed but it does. It's made just like Liquid Valium.

Kay
Suggestions, opinions and/or advice provided by the author of this post should not be regarded as medical advice; nor should it substitute for professional medical care. Consult your doctor before making any changes to your medication. Please read our Community Policy Documents board for further information.

[Buddie]

Re: Micro Tapering/Daily Tapering off of Klonopin – Success Story -
« Reply #135 on: February 17, 2020, 04:42:46 am »
Thanks so much for coming back to update us, Kay! It sounds like you're doing really well, and that's wonderful news. Thanks, too, for the encouragement. I, for one, can use it.  :-*

I have to tell You [...], my brother CTed cymbalta and 4 other drugs including ativan  he had been taking for years. So you know it went bad for him for some time. But he has lost all his symptoms he thought he was stuck with even the hissing, the boat like dizziness and others. Because he was on high doses for many years it took some time for him it was a total of 5 years, but in those 5 years things dropped off. Back then 2009 I had my Doctor look at his prescriptions and he was shocked at how high. My brother blamed the cymbalta for some reason.

I have a nephew who took cymbalta. He tapered for 6 weeks. And he is great today. He is in top physical shape he has to be because he is a US Marine!  And you know all the shots they make him get. He is doing well.

They are not just lucky and with my brother there were times we thought it would be forever, or many many years. And well he healed. Try to remember that. And I asked my brother and he said one day he got up and it was all gone. For me it was over time. So we can't let other people's bad times make us think that we are doomed.

This is what I told myself ---> No matter how you feel you must have a life during this.

Kay

Suggestions, opinions and/or advice provided by the author of this post should not be regarded as medical advice; nor should it substitute for professional medical care. Consult your doctor before making any changes to your medication. Please read our Community Policy Documents board for further information.

[Buddie]

Re: Micro Tapering/Daily Tapering off of Klonopin – Success Story -
« Reply #136 on: February 17, 2020, 01:41:17 pm »
Thanks so much for coming back to update us, Kay! It sounds like you're doing really well, and that's wonderful news. Thanks, too, for the encouragement. I, for one, can use it.  :-*

I have to tell You [...], my brother CTed cymbalta and 4 other drugs including ativan  he had been taking for years. So you know it went bad for him for some time. But he has lost all his symptoms he thought he was stuck with even the hissing, the boat like dizziness and others. Because he was on high doses for many years it took some time for him it was a total of 5 years, but in those 5 years things dropped off. Back then 2009 I had my Doctor look at his prescriptions and he was shocked at how high. My brother blamed the cymbalta for some reason.

I have a nephew who took cymbalta. He tapered for 6 weeks. And he is great today. He is in top physical shape he has to be because he is a US Marine!  And you know all the shots they make him get. He is doing well.

They are not just lucky and with my brother there were times we thought it would be forever, or many many years. And well he healed. Try to remember that. And I asked my brother and he said one day he got up and it was all gone. For me it was over time. So we can't let other people's bad times make us think that we are doomed.

This is what I told myself ---> No matter how you feel you must have a life during this.

Kay

Amazing stories, Kay, thank you! I'd been on benzos for a few years when I started Cymbalta, and that's actually when my dizziness started in earnest. I'd had a bit of it before then, but that's when it became more noticeable and debilitating. In my case, I think there was a confluence of factors, i.e. multiple meds.

It's years later, and I'm still dizzy. It has become excruciatingly painful for my muscles. I've been crying in pain for the last four hours, so it's good to hear a bit of positive news. Having battled dizziness, near-falls, excruciating muscle pain, plus a dizziness-induced fracture in my foot, I'm exhausted and overwhelmed. Either the dizziness goes, or I go, but this is unbearable. My spirit is broken.

Thanks again for sharing those uplifting stories, Kay. Very kind of you to take the time.

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[Buddie]

Re: Micro Tapering/Daily Tapering off of Klonopin – Success Story -
« Reply #137 on: February 17, 2020, 02:12:59 pm »
[...]

I do know someone tapering and using liquid klonopin. So it's brand name. I didn't think it existed but it does. It's made just like Liquid Valium.

Kay

Hello, Kay. Thanks ever so for responding and for the tip that clonazepam tablets from different manufacturers vary in terms of how quickly/well they disintegrate in milk.  I’ve read here and elsewhere that a fix for this is to add a sufficient amount of water to the tablet(s) first to “jump start” the disintegration process before adding the milk.

Alas, I just double checked DailyMed and Genentech (the Roche subsidiary that manufacturers brand Klonopin in the US) and do not see a product listing for an oral solution of clonazepam.

Roche does indeed make an oral solution of clonazepam named Rivotril but it is only available in certain countries (New Zealand comes to mind), not the US.

So, if the person you know is US-based, I’m wondering if s/he is using a prescription compounded liquid made with brand name Klonopin tablets?
« Last Edit: February 17, 2020, 07:04:51 pm by [Buddie] »
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[Buddie]

Re: Micro Tapering/Daily Tapering off of Klonopin – Success Story -
« Reply #138 on: February 17, 2020, 06:17:40 pm »
Yes, thank Kay for the update. So great to hear you are well and to read your encouragement. I am 6 mo off now and feeling much better but still a ways to go, even though I'm not on any other meds at the moment.  Stay strong and keep in touch!
Suggestions, opinions and/or advice provided by the author of this post should not be regarded as medical advice; nor should it substitute for professional medical care. Consult your doctor before making any changes to your medication. Please read our Community Policy Documents board for further information.

[Buddie]

Re: Micro Tapering/Daily Tapering off of Klonopin – Success Story -
« Reply #139 on: February 17, 2020, 11:45:54 pm »
[...],
Yes it is very painful. More than anyone can imagine. Cymbalta WD is very very very painful. I saw this with my brother. Its the one big bad thing about cymbalta WD. I had klonopin WD pain, I think Cymbalta pain must be worse. Try to hang in there!
Suggestions, opinions and/or advice provided by the author of this post should not be regarded as medical advice; nor should it substitute for professional medical care. Consult your doctor before making any changes to your medication. Please read our Community Policy Documents board for further information.