Author Topic: Exercise support group  (Read 122707 times)

[Buddie]

Exercise support group
« on: March 15, 2015, 03:18:13 pm »

I would like to start a thread that supports our endeavors to try and help our recovery through exercise.  I know trying to get an exercise program going and staying with it has been very difficult for me.  I used to be able to exercise for much longer and felt much healthier.  Now, some days my body is so sore that it can be hard for me to walk a mile. 

I would like this thread to be an area where we can post what we did each day or comments about what challenges we may have had. With the large community here we can help each other out with strategies to help us build our bodies back to or even better than they used to be.

Lastly, I want anyone to post here and not worry about if they exercise enough.  Wether you can only walk to the kitchen or do a triathlon all are welcome.
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[Buddie]

Re: Exercise support group
« Reply #1 on: March 15, 2015, 07:07:05 pm »
Great thread [...]!!! Last [...] I did leg raises (2 sets of 10) & Vestibular Rehab Therapy (VRT). 3 sets of 5. One time was just walking back & forth without holding onto anything. 2 was walking but with my hands across my chest, last one was heal toe.

I learned these in PT when I was going.

I suffer from poor balance and an old symptom (leg weakness).

A little about me. I'm 40 years old, mom of a 3 year old, used to run marathons, ran 6-10 miles a week & African danced weekly until I became ill due to Lyme Disease.

Got on benzos due to anxiety caused by Lyme midway through my treatment. Started getting my life back until benzo w/d set in  :tickedoff:

My goal...I want to get my balance back, ditch the leg weakness so I can start taking normal walks again and build up to jogging

I also do Tai chi, some yoga & when I can light weights for my arms.
Suggestions, opinions and/or advice provided by the author of this post should not be regarded as medical advice; nor should it substitute for professional medical care. Consult your doctor before making any changes to your medication. Please read our Community Policy Documents board for further information.

[Buddie]

Re: Exercise support group
« Reply #2 on: March 15, 2015, 07:14:55 pm »
I love this thread! So far this week I have gotten the same amount of exercise as a veal calf and this needs to change! I'll update more later. Thanks [...]!
Suggestions, opinions and/or advice provided by the author of this post should not be regarded as medical advice; nor should it substitute for professional medical care. Consult your doctor before making any changes to your medication. Please read our Community Policy Documents board for further information.

[Buddie]

Re: Exercise support group
« Reply #3 on: March 16, 2015, 02:01:44 am »
[...],...wonderful idea....can non-athletes join? ...I only do gentle yoga at this point ...and some vestibular exercises , but I am at a place where I want to do some strength work. Geriatric style. ...This is a very positive focus and will be a nice divergence from sx.  I would really love to come on board.  Thank you for starting this.  [...]
Suggestions, opinions and/or advice provided by the author of this post should not be regarded as medical advice; nor should it substitute for professional medical care. Consult your doctor before making any changes to your medication. Please read our Community Policy Documents board for further information.

[Buddie]

Re: Exercise support group
« Reply #4 on: March 16, 2015, 02:17:51 am »
Good thread. Like the rest of you I've had a wide variety in what I can do. I'm 52 and have had Chronic Fatigue Syndrome for 19 years. Prior to that I was very active and a runner. I've been trying to recover from wd and the CFS and I'm getting stronger. I started with almost 6 mos. of PT and now I go to a 30 minute exercise class 2-3 times a week followed by 20 minutes of Nautilus (weights) for 20 minutes, I go to an hour long yoga class once/week then I try to walk around 4 miles or do dance dance revolution on 2-3 of the other days. Some days go by though and I can't do a damn thing. Still, I'm so thankful not to be bed bound anymore that I try to cut myself a break. It's especially hard when I've missed a lot of sleep since I'm not sleeping much now. I really think exercise is a key way to help ourselves and recover but we have to pace ourselves.
Suggestions, opinions and/or advice provided by the author of this post should not be regarded as medical advice; nor should it substitute for professional medical care. Consult your doctor before making any changes to your medication. Please read our Community Policy Documents board for further information.

[Buddie]

Re: Exercise support group
« Reply #5 on: March 16, 2015, 02:19:49 am »
Yes [...]!!!  This is just not for athletes.  It's for anyone who wants to do their best to incorporate whatever they can do to improve their situation. 

Welcome billy and [...].

[...]-sounds like you're doing great.  My goal is twent minutes of elliptical tomorrow.

Suggestions, opinions and/or advice provided by the author of this post should not be regarded as medical advice; nor should it substitute for professional medical care. Consult your doctor before making any changes to your medication. Please read our Community Policy Documents board for further information.

[Buddie]

Re: Exercise support group
« Reply #6 on: March 16, 2015, 03:35:21 am »
Hey [...]
Great idea for a thread! I thought exercise helped me a lot through my benzo ordeal.
[...]
Suggestions, opinions and/or advice provided by the author of this post should not be regarded as medical advice; nor should it substitute for professional medical care. Consult your doctor before making any changes to your medication. Please read our Community Policy Documents board for further information.

[Buddie]

Re: Exercise support group
« Reply #7 on: March 16, 2015, 04:23:37 am »
Hi [...],

Ditto everyone else on what a great idea for a thread this is since exercise is SUCH a challenge to me right now and it bothers me that I can't do my usual activities! :thumbsup:

I am older and have a heart condition, but have always been in decent shape and able to lead a fairly normal life despite my heart, but with this benzo w/d I am really struggling. As part of my w/d sxs I have had not only fatigue, muscle spasms and pain, but also elevated heart rate and high blood pressure, which has totally put a damper on doing much exercise. Plus, I have a nearly non-stop headache.

When I can, I do a 10 minute morning yoga and a VERY light "calisthenics" routine (meaning I basically go through the motions I USED to go through when lifting light weights, only now my arms are so heavy they are weighty enough to tire me out!) and I try to do it in the sunroom or in front of a window to get early morning sunshine because I think this helps with my cortisol levels during the day and helps me to sleep better at [...]. I also try to do 7-10 minutes of easy "dancing" around the house a few times a week (when no one is looking) while playing my favorite music because it makes me happy and it's at least SOME little bit of a cardio workout. I also do a sitting/laying yoga type stretch routine at [...] before bed while listening to calming music, which also helps me sleep.

Of course, that is all on a good day...some days I do only one or two of those and some days I do NOTHING... I have finally learned that on some days I just seem to need to stay in bed late or go back to bed in the afternoon because my heart rate is too high or I am just too tired. I have gained 5+ pounds since starting my taper, which does not put me overweight as I have always been thin, but as the weight is all fat and it's on my belly it concerns me health wise, but I am ALWAYS hungry now and I crave carbs and sweets. So I am trying to stick to my usual healthy diet, but I swear, eating chocolate MAKES me feel better at least for awhile.

I have done tons of research on this and found some interesting information, like the effect benzo w/d has on dysregulation of the autonomic nervous system (affecting heart rate, BP), how it messes up the neuroendocrine system (DHEA, cortisol, adrenalin) and hyper sensivitivy to catecholamines generated during exercise (including walking into the kitchen for some of us), but nothing that is really definitive or that I feel I know enough about to have much control over without experimenting with various supplements that are not regulated and which I don't want to add to my already messed up body chemistry.

One of my biggest issues is that if I exercise "hard" on one day, it seems like the next day or two, my heart rate goes up and I am totally exhausted out of all proportion to what I did the day before. So I don't know whether I am overdoing it, or if this is okay and just the way it is?

Looking forward to hearing from and about others on this thread!

Best,

mo
Suggestions, opinions and/or advice provided by the author of this post should not be regarded as medical advice; nor should it substitute for professional medical care. Consult your doctor before making any changes to your medication. Please read our Community Policy Documents board for further information.

[Buddie]

Re: Exercise support group
« Reply #8 on: March 16, 2015, 04:36:59 am »
Great thread [...]....count me in.

I'm a [...] of two tweens, and work full time as a real estate agent and part time as a lab tech in our community hospital. I was extremely active up until Dec 2014 when I as prescribed Ativan daily, which was an increase to my "as needed" use. I played hockey 2-4 times a week, yoga 2-3 times a week, and rode my bike to school with the kids (to and from school).

Now I'm happy if I walk 10-15 minutes around the block, 2x a week....and I had to work up to that.

Now that spring is coming (we still have lots of snow here in Canada) I'd like to really make an effort to build my strength and endurance.

Looking forward to reading about everyone's success  :thumbsup:
Suggestions, opinions and/or advice provided by the author of this post should not be regarded as medical advice; nor should it substitute for professional medical care. Consult your doctor before making any changes to your medication. Please read our Community Policy Documents board for further information.

[Buddie]

Re: Exercise support group
« Reply #9 on: March 16, 2015, 04:48:37 am »
Hey [...]
Great idea for a thread! I thought exercise helped me a lot through my benzo ordeal.
[...]
Hi [...],

Were you able to exercise the entire time you were tapering? And were you able to keep up with your usual routine or did you find you had to cut back and then work up to it again? What sorts of exercises did you do?

Thanks very much,

Mo
Suggestions, opinions and/or advice provided by the author of this post should not be regarded as medical advice; nor should it substitute for professional medical care. Consult your doctor before making any changes to your medication. Please read our Community Policy Documents board for further information.