Author Topic: The Dizziness Group: For those who are floating, boating, falling or flying  (Read 320955 times)

[Buddie]

Re: The Dizziness Group: For those who are floating, boating, falling or flying
« Reply #7250 on: January 02, 2021, 07:00:31 pm »
Hey Floaty Boaters and Push-arounders  :laugh:
I [...] your new year day was great. The fireworks and gun shots drove me[...] in my neighborhood. Last night was more of it but not as much or for as long. Good riddance fireworks until July 4th! Perhaps [...] then I'[...] be much healed.
Anyway I wanted to report some good news. Yesterday I started vestibular therapy. I'm impressed with these guys because they come to your house. They're aware that most of patients with dizzy boaty push pulling issues can't drive or even ride in a car. Initial tests were given to me with almost all of them in normal ranges concerning coordination of balance in conjunction with the eyes involvement. I will be receiving therapy to see what can be helped for 2 days a week for 6 weeks then go from there. The one session yesterday was short but it wore me out. I'm optimistic that it will help. I'[...] keep you posted.
Once again Happy New Year! Here's to [...] and joy of life!  :-*
Suggestions, opinions and/or advice provided by the author of this post should not be regarded as medical advice; nor should it substitute for professional medical care. Consult your doctor before making any changes to your medication. Please read our Community Policy Documents board for further information.

[Buddie]

Re: The Dizziness Group: For those who are floating, boating, falling or flying
« Reply #7251 on: January 02, 2021, 10:17:25 pm »
Hey, that's great, [...]! Please let us know how it goes for you.
Suggestions, opinions and/or advice provided by the author of this post should not be regarded as medical advice; nor should it substitute for professional medical care. Consult your doctor before making any changes to your medication. Please read our Community Policy Documents board for further information.

[Buddie]

Re: The Dizziness Group: For those who are floating, boating, falling or flying
« Reply #7252 on: January 03, 2021, 05:07:19 am »
I personally think the dizziness and boaty feeling is nervous/anxiety related.  Try to calm yourself down and it should subside.
Suggestions, opinions and/or advice provided by the author of this post should not be regarded as medical advice; nor should it substitute for professional medical care. Consult your doctor before making any changes to your medication. Please read our Community Policy Documents board for further information.

[Buddie]

Re: The Dizziness Group: For those who are floating, boating, falling or flying
« Reply #7253 on: January 03, 2021, 01:40:37 pm »
For anyone who is interested in reading information, rather than opinions, on how benzodiazepines and antidepressants can affect hearing and balance, here's a paper on OTOTOXICITY. There are many, many drugs that can adversely affect hearing and balance, and this paper lists just some of them. I'[...] just put an excerpt here, but the full paper is well worth reading. It could be a good one to share with those who don't understand what ototoxicity is and why so many medications can cause problems with hearing and balance.

https://hearinglosshelp.com/blog/ototoxicitythe-hidden-menace-part-i-lives-in-upheaval/

What Is Ototoxicity?

To many doctors, ototoxicity just means hearing loss or tinnitus. Others consider only drug side effects that affect the inner ear as being ototoxic. However, Stedman’s Medical Dictionary11 defines ototoxicity as the “property of being injurious to the ear.” Therefore, any side effect of a drug that damages our ears in any way is ototoxic whether it damages the outer, middle or inner ear.


How Common Are Ototoxic Side Effects?

How common are ototoxic side effects? The short answer is, “No one really knows.” We apparently only see (and record) the tip of the iceberg.

For extremely ototoxic drugs such as Cisplatin (used in the treatment of cancer), virtually everyone that takes this drug ends up with hearing loss. According to some researchers, not a single person escapes its ravages—100% of the people taking Cisplatin damage their ears.5 The resulting hearing loss “is usually irreversible (permanent).”8

Another very ototoxic class of drugs are the AMINOGLYCOSIDE antibiotics. Researchers estimate that between one and four million Americans receive AMINOGLYCOSIDE antibiotics (such as Gentamicin, Neomycin, Tobramycin) each year.7

According to one study, a person has a 25-30% chance of incurring hearing loss from taking any of the AMINOGLYCOSIDES.9 Another study pegs the figure at 63%.5 This means that between 250,000 and 1,200,000 people (and maybe as high as 2,520,000 people) in the USA incur hearing losses each year from taking just this one class of drugs.

Add to these figures the untold numbers of people who experience other side effects from taking these same drugs—such as tinnitus, dizziness, vertigo and numerous other cochlear and vestibular (balance) problems—and you have a figure of alarming proportions.

It is even more alarming when you realize we are just talking about a handful of ototoxic drugs in 2 of the more than 150 classes of ototoxic drugs!


Ototoxic Drugs are Everywhere!

There are at least 743 drugs that are known to be ototoxic.4 Here are just 84 of them. This gives an inkling of just how all-pervading ototoxic substances are in the medications we take without having a clue that these drugs may be harming our ears.

    ACE INHIBITORS such as Enalapril (Vasotec),2 Moexipril Univasc), Ramipril (Altace)
    ACETIC ACIDS such as Diclofenac (Voltaren), Etodolac (Lodine),Indomethacin (Indocin), Ketorolac (Toradol)
    ALPHA BLOCKERS such as Doxazosin (Cardura)
    AMINOGLYCOSIDES such as Amikacin (Amikin), Gentamicin(Garamycin), Kanamycin (Kantrex), Neomycin (Neosporin), Netilmicin (Netromycin), Streptomycin, Tobramycin (Tobradex)
    ANGIOTENSIN-2-RECEPTOR ANTAGONISTS such as Eprosartan(Teveten), Irbesartan (Avapro)
    ANTI-ARRHYTHMIC DRUGS such as Flecainide (Tambocor),Propafenone (Rythmol), Quinidine (Cardioquin), Tocainide(Tonocard)
    ANTI-CANCER DRUGS such as Buserelin (Suprefact), Carboplatin(Paraplatin), Cisplatin (Platinol), Vinblastine (Velban), Vincristine(Oncovin)
    ANTI-CONVULSANT DRUGS such as Carbamazepine (Tegretol),Divalproex (Depakote), Gabapentin (Neurontin), Tiagabine(Gabitril), Valproic acid (Depakene)
    ANTI-MALARIAL DRUGS such as Chloroquine (Aralen), Mefloquine(Lariam), Quinine (Legatrin)
    ANTI-RETROVIRAL PROTEASE INHIBITORS such as Cidofovir(Vistide), Ganciclovir (Cytovene), Ritonavir (Norvir)
    BENZODIAZEPINES such as Diazepam ([...]), Estazolam(ProSom), Midazolam (Versed)
    BETA-BLOCKERS such as Atenolol (Tenormin), Betaxolol(Betoptic), Metoprolol (Lopressor)
    BICYCLIC ANTI-DEPRESSANTS such as Venlafaxine (Effexor)
    CALCIUM-CHANNEL-BLOCKERS such as Diltiazem (Cardizem),Nifedipine (Adalat), Nisoldipine (Sular)
    COX-2 INHIBITORS such as Celecoxib (Celebrex), Rofecoxib(Vioxx)
    H1-BLOCKERS such as Cetirizine (Zyrtec), Fexofenadine (Allegra)
    IMMUNOSUPPRESSANT DRUGS such as Cyclosporine (Neoral),Muromonab-CD3 (Orthoclone OKT3), Tacrolimus (Prograf)
    LOOP DIURETICS such as Ethacrynic acid (Edecrin), Furosemide(Lasix), Torsemide (Demadex)
    MACROLIDE ANTIBIOTICS such as Clarithromycin (Biaxin),Erythromycin (Eryc)
    OPIATE AGONIST DRUGS such as Codeine (Codeine Contin),Hydrocodone (Vicodin), Tramadol (Ultram)
    PROPIONIC ACIDS such as Flurbiprofen (Ansaid), Ibuprofen(Motrin), Naproxen (Anaprox)
    PROTON PUMP INHIBITORS such as Esomeprazole (Nexium),Lansoprazole (Prevacid), Rabeprazole (Aciphex)
    QUINOLONES such as Ciprofloxacin (Cipro), Ofloxacin (Floxin),Trovafloxacin (Trovan)
    SALICYLATES such as Aspirin, Mesalamine (Asacol), Olanzapine(Zyprexa)
    SELECTIVE SEROTONIN REUPTAKE INHIBITORS (SSRIs) such asFluoxetine (Prozac), Fluvoxamine (Luvox), Sertraline (Zoloft)
    SEROTONIN-RECEPTOR AGONISTS such as Almotriptan (Axert),Naratriptan (Amerge), Sumatriptan (Imitrex)
    THIAZIDES such as Bendroflumethiazide (Corzide), Indapamide(Lozol)
    TRICYCLIC ANTI-DEPRESSANTS such as Amitriptyline (Elavil),Clomipramine (Anafranil)

Ototoxic Side Effects

Ototoxic side effects can damage our ears in many different ways. You may experience one, several or no side effects from taking any given drug. The average ototoxic drug exhibits about 3.5 ototoxic symptoms.4

Here are a number of the ototoxic side effects you could experience. When you know which ototoxic side effects can occur, you can watch for them. If they do occur, immediately contact your physician, stop taking the offending drug (with your doctor’s consent—of course) to try to limit the damage to your ears.

1. Cochlear side effects

    Tinnitus: Tinnitus, commonly called “ringing in the ears,” is the number one indicator that you may be damaging your ears from an ototoxic drug. At least 447 drugs are known to cause tinnitus.4Tinnitus can manifest itself as a wide variety of sounds. It may be a ringing, roaring, beating, clicking, banging, buzzing, hissing, humming, blowing, chirping, clanging, sizzling, whooshing, rumbling, whistling or dreadful shrieking noise in your head. It may also sound like rushing water, radio static, breaking glass, bells ringing, owls hooting or chainsaws running.3

    Hearing loss: More than 230 drugs are known to cause hearing loss.4 Hearing loss can range from mild to profound and may be temporary or permanent. One of the insidious things about ototoxic drugs is they generally first destroy hearing in the very high frequencies which are not normally tested (those above 8,000 Hz). Thus, you’re not even aware you are losing your hearing until it is too late to do anything about it.

    Distorted hearing: Some drugs, instead of causing hearing loss (or in addition to causing hearing loss), cause hearing to be distorted so we do not understand some (or much) of what we are hearing.

    Hyperacusis: Hyperacusis is a condition where normal sounds are perceived as being much too loud. It is as though the body’s internal volume control is stuck on “high.” At least 38 drugs can cause this condition.4

    Feelings of fullness in your ears: You can experience this feeling for a few reasons. One, because your ears really are blocked [...] a middle ear infection or [...] earwax. Two, because your ears feel“blocked” because of sudden hearing loss. Three, exposure to loud sounds can result in a feeling of “fullness” too.

    Auditory hallucinations: At least 8 drugs can cause you to hear phantom sounds—voices and music that are not there. Another 165 drugs can cause hallucinations, some of which may be of the auditory variety.4 Most of these hallucinations seem to be the result of a damaged auditory system rather than the effects of a mental illness.

2. Vestibular Side Effects

    Dizziness: Dizziness is the most common ototoxic symptom. At least 588 drugs have this ototoxic side effect.4

    Vertigo: Vertigo is the perception of movement (normally a spinning sensation) when the body is really not moving. At least 432 drugs are known to cause vertigo.4

    Ataxia: Ataxia is the loss of your ability to coordinate your muscles properly and can be a result of a damaged vestibular system. As a result you may walk with a staggering gait, just as though you were drunk. At least 288 drugs can cause this side effect.4

    Nystagmus: Nystagmus is abnormal rapid rhythmic back-and-forth involuntary eye movement, usually from side to side. Although technically an eye problem, it fundamentally is the result of a damaged vestibular system. At least 102 drugs can cause this side effect.4

    Labyrinthitis: Labyrinthitis is a catch-all term that simply means something is wrong in your inner ear (cochlear and vestibular systems).

    Loss of balance/equilibrium disorder: Some drugs cause a person to lose their balance. These terms too, are mostly catch-alls for various kinds of balance conditions.

    Oscillopsia: Oscillopsia is “bouncing vision.” This is the result of damage to the vestibular system such that it no longer works together as the vestibulo-ocular reflex. Oscillopsia can result when your vestibular system in both ears is severely damaged.

    Emotional problems: When you lose much of your sense of balance, emotional problems such as anxiety, frustration, anger and depression can surface.7 Your feelings of self-confidence and self-esteem may plummet.

    Fatigue: Damage to the vestibular system can result in exhaustion, because you now have to consciously work at maintaining your balance.

    Memory problems: Memory problems can result because areas of your brain that were previously used for thought and memory, must constantly work on keeping you balanced. As a result, you may grope for words, forget what was just said, be easily distracted or have trouble concentrating.

    Muscular aches and pains: Another seemingly-unlikely result of vestibular ototoxicity are muscle pains due to failure of the vestibulo-spinal reflex (the reflex dictating automatic muscle changes in response to changing movement). If the reflex fails, you have to consciously control it. You may make your muscles rigid as you strain to keep your balance.

    Nausea: Nausea is a relatively common side effect of vestibular damage that results from your brain’s confusion over vestibular sensory inputs.

    Visual problems: A host of visual problems can result if the vestibulo-ocular reflex (the reflex that stabilizes your eyes in space) is damaged. As a result, you may have trouble reading since everything seems blurry or fuzzy. You may have trouble focusing your eyes—particularly on moving or distant objects.6

    Vomiting: Vomiting is a common result of a damaged vestibular system. Often vomiting and vertigo go together.

    Vague feelings of unease: Sometimes you can’t put your finger on exactly what is wrong, but you feel vaguely uneasy. You may feel that things seem wrong or unreal.7 This too, can be a result of a damaged vestibular system.

3. Central Nervous System (CNS) Side Effects

    Central auditory processing disorder: Sounds may enter our ears and be processed correctly, but these sound signals may be delayed or scrambled after they leave our inner ears. This scrambling can occur as the sound signals are processed [...] the neuronal networks that make up our auditory nerves, or in various parts of our brains. When this processed sound reaches the conscious levels in our brains where we “hear,” we may hear a bunch of gibberish. This is known as a central auditory processing disorder. Several ototoxic drugs/chemicals have this effect.

4. Outer/Middle Ear Side Effects

    Ceruminosis: Some drugs cause excessive ear wax production. This excess wax can block our ear canals and cause temporary hearing loss.

    Ear pain: Medically called otalgia, ear pain is typically the result of middle ear infections. 154 drugs have ear pain associated with their use.4

    Otitis externa; O. media: Otitis is typically an opportunistic infection of the outer (O. externa) or middle (O. media) ear. Many of the drugs listed as having otitis as an ototoxic side effect do not directly cause these conditions. Rather, these infections come in and take over when an opportunity presents itself—i.e. an ototoxic antibiotic killing off the “good bacteria” in the ear canal, leaving it wide open to an opportunistic invasion of “bad bacteria.” 138 drugs are associated with otitis.4

Risk Factors

Some people take ototoxic drugs with seeming impunity. Others take one little dose, and wham—there goes their ears. Why? The short answer is that we are all different.

Each person (patients and professionals) is a unique biological case study! No two are exactly the same. Therefore, it should be no surprise that we vary in our sensitivity to ototoxic drugs.

Researchers have identified a number of factors that increase the risk of our having an ototoxic reaction when taking certain drugs. Here are 20 of the risk factors (in no particular order of importance).

    You are very young—including unborn children.
    You are a senior (over 60 years).
    You have certain hereditary (genetic) factors that make you more susceptible than the general population. This is particularly true if you take AMINOGLYCOSIDE antibiotics.
    You already have a sensorineural hearing loss, balance problems or some other form of pre-existing ear damage.12
    You have had previous ear damage (hearing loss) from exposure to excessive noise.
    You have problems with your kidneys. For some reason, people with kidney problems have an unusually high incidence of hearing loss, even without drug use.10
    You are extremely sensitive to drugs or have a low tolerance for drugs.
    You have had ototoxic reactions to drugs in the past. Not only does the risk increase, but the resulting ototoxic damage has a tendency to be more severe and is more likely to be permanent.7
    You have previously used ototoxic drugs, or you have taken repeated courses of the same ototoxic drug.
    You have taken certain drugs for a long time—especially if you have taken a drug for longer than the manufacturer recommended.
    You can be at higher risk if an ototoxic drug is not administered properly—i.e. larger than recommended dose, higher that recommended cumulative dose, faster dose than recommended (injection or intravenous).7
    You have been given an inappropriate dose—i.e. a child given an adult dose, or an overweight person given a dose based on total weight rather than on lean body weight (especially true if taking an AMINOGLYCOSIDE antibiotic).7
    You are dehydrated.
    You have taken ototoxic DIURETICS at the same time as other ototoxic drugs or if you have used or are using two or more ototoxic and/or nephrotoxic (toxic to the kidneys) drugs at the same time.
    You have had previous ear infections.
    You are generally in poor health.
    You have abnormal laboratory values such as reductions in serum albumin, serum [...] blood cells, hematocrit, hemoglobin or you have rising serum creatinine levels.7
    You have had radiation treatments on your head or ear.6
    You have bacteremia (bacteria in the bloodstream).7
    You have either eye or proprioceptive (balance) problems. This increases the chances that you will have a more serious result on your life-style if vestibular ototoxicity does occur.7

Reduce The Risk-Here’s How

You cannot do anything about certain ototoxic risk factors such as your age or your genetic makeup. However, there are still some things you (and your doctor) [...] to lessen your risk of having an ototoxic reaction from taking certain drugs. Here are some things you and your doctor [...].

    Be aware of the early warning signs of ototoxicity. They are (in order of frequency): you feel dizzy; your ears begin ringing (tinnitus); your existing tinnitus gets worse or you hear a new kind of tinnitus sound; you feel pressure in your ears (unless you have a head cold); your hearing gets worse or begins fluctuating; or you develop vertigo (spinning sensation).

    Tell your doctor you are hard of hearing, especially if you have a sensorineural hearing loss and/or suffer from balance problems. Also, let him know if you have tinnitus.

    Always discuss possible side effects with your doctor before you begin a new medication.

    Follow your doctor’s dosage instructions exactly. At the same time, make sure your doctor does not exceed the drug manufacturer’s dosage instructions when he prescribes drugs for you.

    Use the same pharmacy for all your prescriptions so they will know all the drugs you are taking. That way they can advise you of any known dangerous drug combinations.

    Always read the labels on over-the-counter medications and particularly watch for ototoxic side effects.

    Drink plenty of fluids so you don’t get dehydrated. This is especially important if you have a fever or are taking loop diuretics.

    If you have kidney problems, have your health care professionals carefully monitor your kidney function and report abnormalities immediately. Your doctor needs to know how well your kidneys are working before he prescribes various medications.

    Avoid taking multiple ototoxic drugs at the same time.

    Avoid noisy environments for at least 6 months after you have completed a course of an AMINOGLYCOSIDE antibiotic or platinum compound such as Cisplatin.8

    If you are beginning treatment with an ototoxic drug such as any of the AMINOGLYCOSIDE antibiotics, LOOP DIURETICS or platinum compounds such as Cisplatin, it is important that you have a baseline high-frequency audiogram done before you begin treatment and then serial high-frequency audiograms (testing those frequencies above 8,000 Hz) during and after drug therapy.

    If you have had vestibular (balance) problems from taking any drugs, be very careful not to damage your vestibular system further [...] taking drugs known to damage your vestibular system.

When you are aware of the many drugs that can damage your ears and the many risk factors that can make you even more susceptible to ototoxic side effects than the general population, you can take steps to protect your precious ears. You will then be in the position to take control and make informed decisions about your health care.

For example, “Joan” takes Celecoxib for her arthritis. When she takes it, her tinnitus gets louder, but her arthritis problems improve. She chooses the tinnitus over the arthritis pain. That is her choice and she is content to live with it.

“Harold,” on the other hand, began taking Amitriptyline and soon noticed he had severe tinnitus. He didn’t like this one bit and wrote to me for help. I suggested the Amitriptyline may be causing his tinnitus. With his doctor’s permission, he stopped taking the drug. Twelve days later, he joyfully reported that his tinnitus went away. That was his choice. He is happy he made it.

When it comes to the health of your ears, you, too, have a choice. Don’t let ototoxic drugs flip your world upside down!

    (First published in Audiology Online and Healthy Hearing December 1, 2003.)

____________________

Now read Ototoxicity—The Hidden Menace, Part II to learn even more about ototoxic drugs and how you can protect yourself from their nasty side effects. Although written specifically for audiologists, Part II is still easy-to-read, and contains valuable information that will help anyone concerned about ototoxic drugs and their side effects.

____________________

The information in this paper was taken from the second edition of the book Ototoxic Drugs Exposed [...] the same author. To learn more about ototoxicity in general, or to learn the specific ototoxic side effects of the 877 ototoxic drugs, 35 herbs and 148 chemicals mentioned in this book, get your own copy of Ototoxic Drugs Exposed.
« Last Edit: January 03, 2021, 04:21:44 pm by [Buddie] »
Suggestions, opinions and/or advice provided by the author of this post should not be regarded as medical advice; nor should it substitute for professional medical care. Consult your doctor before making any changes to your medication. Please read our Community Policy Documents board for further information.

[Buddie]

Re: The Dizziness Group: For those who are floating, boating, falling or flying
« Reply #7254 on: January 04, 2021, 12:48:34 am »
I was diagnosed with horizontal nystagmus decades ago and more recently, memory impairment and amnesia and I have hyperacusis now.  Loud noises never used to bother me too much, but now they do since I got off these poisonous [...]'s.  I took AD's for years and they never caused any of these problems.
Suggestions, opinions and/or advice provided by the author of this post should not be regarded as medical advice; nor should it substitute for professional medical care. Consult your doctor before making any changes to your medication. Please read our Community Policy Documents board for further information.

[Buddie]

Re: The Dizziness Group: For those who are floating, boating, falling or flying
« Reply #7255 on: January 04, 2021, 02:33:17 am »
Hey [...]! Hey [...]!
[...] thanks for the informative post. I [...] you're having a good day in a nice window. How have you been doing lately? Excited about the new year?
[...], unfortunately my boatiness isn't caused [...] anxiety. I'm very calm all the time. Anxiety was something I had when I became tolerant to the Ambien. When I started tapering it was the first thing to go. Ambien hurt my vestibular system. It hit it hard. That's why I'm dizzy/boaty with ringing ears.  If it was a matter of anxiety/staying calm then I definitely would not have this problem. It has slowly improved so I've started vestibular therapy to see if I can help it to compensate better. But I greatly appreciate your support and suggestion. Big hugs to you. I'm wishing you a happy year this year with improvements or finally [...].  :thumbsup:
Suggestions, opinions and/or advice provided by the author of this post should not be regarded as medical advice; nor should it substitute for professional medical care. Consult your doctor before making any changes to your medication. Please read our Community Policy Documents board for further information.

[Buddie]

Re: The Dizziness Group: For those who are floating, boating, falling or flying
« Reply #7256 on: January 04, 2021, 03:11:36 am »
I saw a therapist early on in this process to get support and to consult with her about the dizziness, i.e. to see if it was anxiety-related. She said that the type of dizziness I was describing and the patterns it followed (and continues to follow) don't reflect anxiety. So, no, it's not anxiety-related in my case. 

Please read the document I just shared from top to bottom. And read any of the other studies, papers and articles I've been sharing about the adverse effects of medications on the vestibular system for the last many years. These are biological effects of medications. There can also be hormone-related effects on the vestibular system, a topic about which I've also posted a number of papers. And read a bit about Mal de Debarquement Syndrome as well. We've had multiple discussions about that around here over the years as well.

Genetics play a huge role in how we metabolize medications. If anyone read the document I just shared, then you'[...] see that in there too.



Suggestions, opinions and/or advice provided by the author of this post should not be regarded as medical advice; nor should it substitute for professional medical care. Consult your doctor before making any changes to your medication. Please read our Community Policy Documents board for further information.

[Buddie]

Re: The Dizziness Group: For those who are floating, boating, falling or flying
« Reply #7257 on: January 04, 2021, 10:49:02 am »
I saw a therapist early on in this process to get support and to consult with her about the dizziness, i.e. to see if it was anxiety-related. She said that the type of dizziness I was describing and the patterns it followed (and continues to follow) don't reflect anxiety. So, no, it's not anxiety-related in my case. 

Please read the document I just shared from top to bottom. And read any of the other studies, papers and articles I've been sharing about the adverse effects of medications on the vestibular system for the last many years. These are biological effects of medications. There can also be hormone-related effects on the vestibular system, a topic about which I've also posted a number of papers. And read a bit about Mal de Debarquement Syndrome as well. We've had multiple discussions about that around here over the years as well.

Genetics play a huge role in how we metabolize medications. If anyone read the document I just shared, then you'[...] see that in there too.

[...],

Thank you for the information you posted about ototoxic drugs.

My ears started ringing Dec 2018. I was in [...] tolerance unbeknownst to me. I also had 2 attacks of the room spinning within 6 months prior to my ears starting to ring.

In the information you provided it says to stop the offending medication as soon as the symptoms begin to avoid damage.

I had went to my family doctor, an ENT and an Audiologist who is  the Director or the Dizzyness Dept at the Cleveland Clinic. I told all of them of my ringing in my ears (of course along with the room spins and the vertigo) They all knew I took Ativan. My family doctor was the one prescribing it. Not one of them questioned the Ativan. Not one.

I continued to take Ativan for 6 more months until I stopped cold turkey.

Imagine if I would have stopped at the first sign of symptoms? How there could have been less ramifications?

I can remember with great detail the looks and mannerisms of all 3 physicians when we discussed the vertigo and ears ringing. The vestibular tests were normal. They had looks of cluelessness and attitudes of arrogance. Especially the ENT. He was the worst. He told me to take Meclizine like ever 6 hours every day. What a fool. I am so glad I knew better than to do that. I had already knew enough about vertigo from my own research and reading of books that the Meclizine just worsens it over time because it numbs your vestibular system's ability to compensate. Imagine if I took a bunch of meclizine AND the Ativan? Thank God I did not. Unfortunately, not one of these books I read mentioned that benzos could cause this. I did not start to solve the mystery until I looked up benzodiazepines and withdrawal.

All 3 of those physicians addressed the vertigo. When I told them about the tinnitus they literally ignored it.

Both tinnitus and dizziness are listed in the side effects of Benzodiazepines in the FDA prescribing info. I also had insomnia for almost the entire time that I was taking them. No one picked up on that either. In fact a nurse practitioner told me to increase the dose. So glad I did not.

Scary, clueless, arrogant, reckless practioners.

I'm almost 20 months Ativan free, and med free and my ears still ring. I'm also still sensitive to anything that fires up my CNS this includes illnesses such as colds and stuff. God forbid I get something as severe as Covid or even just a fever. I could just imagine the setback. Medications affect me too. It all brings back those vertigo symtoms.

Luckily I'm mostly vertigo and boaty free for the last couple weeks. The flu shot set me back in October. It took me two months to recover from that. After being 8 months vertigo/boaty feeling free, the flu shot set me back 2 months. I have now "dug my way out" of that. Luckily the flu shot set back did not bring back all of the other withdrawal symptoms. I had all of "the typicals".

The flu shot set back was just a sign that I'm not healed enough yet. I'm not as healed as I thought I was. All it's done is make me fearful of getting sick and needing meds, or surgery.

I'm trying to get as much time between when I last took Ativan and any illness or surgery or the need for meds. All I have is staying healthy, avoiding stress, meditating 🧘‍♀️, walking in nature,  eating well. That's all I have. And this pandemic....... my God please make it go away, for everyone's sake. It just makes all of this 1000x harder. The stress. The worry. The "what ifs" . Ugh.
« Last Edit: January 04, 2021, 01:44:18 pm by [Buddie] »
Suggestions, opinions and/or advice provided by the author of this post should not be regarded as medical advice; nor should it substitute for professional medical care. Consult your doctor before making any changes to your medication. Please read our Community Policy Documents board for further information.

[Buddie]

Re: The Dizziness Group: For those who are floating, boating, falling or flying
« Reply #7258 on: January 04, 2021, 01:11:06 pm »
Thanks for sharing your story, [...]. I had similar experiences, and I was on multiple ototoxic medications concurrently. There was certainly an accumulation caused [...] the types of medication, the length of time I was on the them and the longer half-lives of the individual medications. All of it was missed until rather late in the game.

I've shared this document here before, but I will put the link in once again, for anyone who is interested. It's a 2011 European Review article about ototoxic and vestibulotoxic medications. The comprehensive list of offending medications begins on page 610. If anyone wants to print out and share a medical journal article with a medical professional that they're seeing, this might be one to consider.

"Pharmacological drugs inducing ototoxicity,vestibular symptoms and tinnitus: a reasoned and updated guide"

https://www.europeanreview.org/wp/wp-content/uploads/956.pdf 

« Last Edit: January 04, 2021, 04:40:49 pm by [Buddie] »
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[Buddie]

Re: The Dizziness Group: For those who are floating, boating, falling or flying
« Reply #7259 on: January 04, 2021, 04:16:51 pm »
I just woke up one day with inner ear pressure/pain, hissing inside my head, and hyperacusis. Hissing and hiperacusis are bad enough, but this inner ear pressure/pain is really uncomfortable. It makes me have weird feeling in the sides of my chest, as if someone is pulling me. I hate it that my psychiatrist instead of stopping me from it, encouraged my cold-turkey and then told me I was paying too much attention to the symptoms.
Suggestions, opinions and/or advice provided by the author of this post should not be regarded as medical advice; nor should it substitute for professional medical care. Consult your doctor before making any changes to your medication. Please read our Community Policy Documents board for further information.