Muscle spasms and weakness

I'm having a lot of spasms in my muscles in back, legs and arms. I also feel weak all over. I'm 6 1/2 months out. Anyone else have this?

H, I am following you around with this. I feel terrible today with same!

 

Love Buddy

Thank you for telling me this! I guess I need some reinsurance every other day now. I'm so tired of this situation. I even called my neuro to make sure that everything was fine on the last emg. The anxiety gives me more spasms and weakness. What a catch 22. 

For some reason you and I are particulalry badly affected this way! I get these twitches constantly and nothing seems to stop it until it wants to stop. I had a lovely day yesterday walking around a yard sale and it came on in the evening. That's why I don't think youga will work. It does what it wants to do.

 

I am being tested for a few neuroendocrine thingies. I don't think for a minute I have them, am not anxious about it at all, just another path to follow and something to do. They are querying an overactive thyroid though follwoing a slight anomoly on a test.

 

Love Buddy

It's a good sign tgat you're having breaks from this. I feel mine is getting worse. I don't get it. I have more spasms now. You know that big twitchings. It's everywhere. I hope you're tests are fine and that you'll heal soon!

Not too many spasms here .. But I have terrible arm weakness lifting heavy things literally wipes me out ... I have to lay down till it passes which is about an hour  or less. My arms go numb too

My left foot goes numb. Used to have numbness in my hands, but it's gone.

Yes, I have muscle weakness too. I dropped my dishes in the sink and chipped them. I fell down my stairs a few steps but luckily they're carpeted.

 

Other days my dishes feel light as a feather.

 

I strength train and exercise. This stuff is poison.

Yes, it is! It's terrible!

Hi Hghg,

 

just checking in on you seeing how you are? i hate those muscle spasms. i mostly got them in the back of my neck and shoulders and also the rhomboid muscles. sometimes they would be so intensely painful i would say to my brain "stop!" "please let up".

 

pretty

Thank you, pretty! That's very nice of you! I am a little bit better today. These spasms are so unpredictable. How are you doing today? 

Hi HG

 

I'm having them worse, last 4 days.  I had a few good days last week.  Nerve pain is ramped up, shooting like a current down my legs, right foot is cramping and hurts.  Cramps and muscle spasms all over.  Can't imagine what it would be like without Inositol, theanine, and glycine.  I just can't stay up long now, and i need to do so many things in my house!  So frustrating!  I'm at day 94 I think. Just over 3 months.  I pray these cramps and nerve pain don't last beyond a year, I will lose my mind! 

 

Hugs to you!  MG :smitten:

No, I don't hope it will last a year.  I wonder what it will do to our muscles. I hope you get better soon, mountaingirl!

No, I don't hope it will last a year.  I wonder what it will do to our muscles. I hope you get better soon, mountaingirl!

 

HG, I know mine look awful  and I always was athletic.  It's a bummer!  Praying for our healing sis. 

Me too! My muscles are weird. Different. Sometimes they feel like they're not attached to my body. When I'm running I'm afraid they'll fall off. 

Me too! My muscles are weird. Different. Sometimes they feel like they're not attached to my body. When I'm running I'm afraid they'll fall off. 

 

LOL!  You can run?  I can't walk much it sucks.  I tried walking around the block, and they roll and cramp, hurts bad.

Thank you, pretty! That's very nice of you! I am a little bit better today. These spasms are so unpredictable. How are you doing today? 

 

a little shift has taken place.

Me too! My muscles are weird. Different. Sometimes they feel like they're not attached to my body. When I'm running I'm afraid they'll fall off. 

 

LOL!  You can run?  I can't walk much it sucks.  I tried walking around the block, and they roll and cramp, hurts bad.

 

I can run, but I feel bad afterwards. The symptoms get worse. Lot of spasms and twitchings after my last run. So I guess I can't run afterall.

Thank you, pretty! That's very nice of you! I am a little bit better today. These spasms are so unpredictable. How are you doing today? 

 

a little shift has taken place.

 

A shift is good isn't? 

Thank you, pretty! That's very nice of you! I am a little bit better today. These spasms are so unpredictable. How are you doing today? 

 

a little shift has taken place.

 

A shift is good isn't? 

 

today and tonight has been a good shift. i still have all the symptoms of head squeezing and neuropathy around the knees, legs & feet but it's not squeezing or burning like it's been for 25 months straight. and i feel somewhat normal even with these symptoms. i can only imagine or really can't imagine how i would feel without any head squeezing at all. i even played the piano for the first time in 3 months. i hope i don't fall back into a wave -- but that could definitely happen. but tonight, i feel hope that we all will recover from this.

That's really good news, pretty! Sounds like you're healing!

Have had some really bad muscle spasms here and am nearly 6 months out.

 

Have had them in my shoulder, hands, and arms. Very annoying.

I have spasms in shoulders, arms and hands too. Followed by weakness and pain.

i have horrible spasms and tightness in the shoulder/rhomboid area. today it was the right rhomboid. it hurt so badly.

Yes, its terrible! I have noticed that it gets worse if I stress. I went to my cabin last weekend and felt almost healed for four days. I was so happy! Came back and got terrible spasms again. I can feel its coming from the CNS because it starts one place and moves to another a second after. We have to avoid stress as much as we can until we are healed!