The body twitchers group

Well since the craziness is starting, I figure now is a good time to chime in.  I'm lying on the couch relaxing and a creepy under the skin feeling goes through my stomach, chest, arms and jaw.  Now my legs and feet are jerking.    It takes me several hours to get to sleep, and when I do, it starts all over the next day. 

 

I've never been very good at the acceptance part if these things.  But I guess I'll have to learn,  because it looks like I am stuck with this for awhile.

It is hard isn't it. I keep thinking something is wrong with me. Mountain girl is inistol a betablocker? I have wondered about this?

 

Love Buddy

Page: I hope you did sleep.

 

H. Thanks for the good wishes.

 

Can I ask has anyone got like severe jolts in their hands and feet. That is one of my most annoying symptoms.

 

Love Buddy

Anyone with muscle weakness and atrophy in the twitching body parts? This is really starting to freak me out!!

I don't have it H, I can understand why you are frightened. But all your medical results have been normal, haven't they?

 

Love Buddy

It is hard isn't it. I keep thinking something is wrong with me. Mountain girl is inistol a betablocker? I have wondered about this?

 

Love Buddy

 

Hi Buddy, no it's a simple Carbohydrate found in B vitamins.  It tastes yummy, like and fluffy white, and kind of like sugar   I slept like a baby last nite, woke up this a.m., no muscle cramps!!  No anxiety either!  I slept till 8:30, I am loving this!  Another buddy told me that it helped him heal up fast.  I take Inositol and Vit B1 L-Theanine every 3-4 hours when I start cramping.  I bought Inositol a month or so ago, and was too afraid to try it, what an idiot!  I wish I had taken it.  Only side effect is possible loose bowe, ls, easy to remedy, take some Immodium AD.  For me I need it, have been constipated badly.

 

I can see serious hope now!  Sleep is everything!  They both are so relaxing I almost took a nap yesterday, and haven't been able to.  I had a head injury in a wreck, and can't sleep since.  This is a miracle for me!  I also take Holy Basil, but guys have to take Fenugreek with it to avoid the female hormonal part of it.  I take Red clover & Burdock for their anti-inflammatory properties, mag glycinate, potassium and a few others.

 

Hugs, MT50

 

I have not slept in 5 days much. My jaw keeps moving and now my legs are moving. I did have jerks but this movement is more constant. I just want peace to my CNS.

I know Rose. I am just about to post up a massive temper tantrum about jerks and jolts. I have been fairly relaxed and in a good mood most of today. My daughter was at a friend so I lay on bed to get some rest. And it's been spasm, twitch, jerk, jolt constantly. Mostly in my legs but also all over my body. And my face is numb! I am so tired of finding the resources to deal wit this.

 

Mountaingirl, thanks for coming back to me. Sounds like a good supplement.

 

Love Buddy

Mountaingirl, thanks for coming back to me. Sounds like a good supplement.

 

Love Buddy

 

 

 

Buddy, yes it is!  I had a few muscle cramps & some mild akathesia, but was able to mop my kitchen floor for first time by myself in over a month!  I took more Inositol, and now they are gone, just mild nerve pain.  Something to be aware of is it makes you very relaxed, almost tired.  It's a great trade off I think, considering the horrid benzo brain! 

 

I would use some Immodium or other anti-diarrhea otc med if you plan to use 18gm a day like me.  Not having the anxiety is such a blessing!

 

MG50

Moutaingirl I like the idea of it but I am bit nervous. I know we are all different but I was taking supplements, B supplements in a drink and I went and got tolerant to it. I would rather try and hang in there and manage without if I can. But it is hard!

 

Love Buddy

Moutaingirl I like the idea of it but I am bit nervous. I know we are all different but I was taking supplements, B supplements in a drink and I went and got tolerant to it. I would rather try and hang in there and manage without if I can. But it is hard!

 

Love Buddy

 

Buddy,  you can't get tolerant of something your brain needs.  It's a B vitamin. I was the same way, and could kick myself, I put myself thru a month of torture I didn't need to.  Now I can get a massage and it will hold!  YAY!!

 

Hugs, MG50

Page: I hope you did sleep.

 

H. Thanks for the good wishes.

 

Can I ask has anyone got like severe jolts in their hands and feet. That is one of my most annoying symptoms.

 

Love Buddy

Just in the feet

I have not slept in 5 days much. My jaw keeps moving and now my legs are moving. I did have jerks but this movement is more constant. I just want peace to my CNS.

Me too! I fantasize about sleep 

I know Rose. I am just about to post up a massive temper tantrum about jerks and jolts. I have been fairly relaxed and in a good mood most of today. My daughter was at a friend so I lay on bed to get some rest. And it's been spasm, twitch, jerk, jolt constantly. Mostly in my legs but also all over my body. And my face is numb! I am so tired of finding the resources to deal wit this.

 

Mountaingirl, thanks for coming back to me. Sounds like a good supplement.

 

Love Buddy

I'm sorry you're feeling so badly.  It's great that we have this place where we can vent

I have not slept in 5 days much. My jaw keeps moving and now my legs are moving. I did have jerks but this movement is more constant. I just want peace to my CNS.

Me too! I fantasize about sleep 

 

 

I was getting 3.5 hrs for weeks until I started taking peppermint softgels, and putting some on upper lip to inhale, then I got about 4.5-5.  After a few nites on Inositol & B1/L-Theanine, I slept  8 hrs and was able to go back to sleep after getting up twice with my dog when she woke me up, and to get her meds.  I couldn't go back to sleep before that.

 

MG50

I am so relieved that we have this group. I've needed it for a long time!

 

Love Buddy

Mountaingirl, Where do you get the supplement from?

 

Love Buddy

Mountaingirl, Where do you get the supplement from?

 

Love Buddy

 

Found a company on Ebay that is very reasonable, and reputable, and don't cost a fortune, search for bulk Inositol & L-Theanine, (Rhino)  The inositol seems to make me sleepier, and the L-Theanine seems to help more with cramps/nerve pain.

 

  MG

I have suddenly got much rougher twitchings. Its like small explosions under my skin. Everywhere. It started after I quit first phenergan and then Valerian root. It's like those supplements have been holding back my healing prosess for months and real healing is finally happening. After quitting this supplements I have been going through acute phase over again for the last month. Severe anxiety, insomnia, huge depression and terrible twitchings. Today I can finally feel mentally.more back to myself than before this crazy wave. I don't know whats going on, but something is definitely changing.

H, That's exactly how I was after the Ovaltine. I am nervous of taking anything more than milk. I'm inclined to agree with you!. Glad you are feeling a bit better, despite the twitches,

 

Love Buddy

Thank you! I'm very scared to take any supplements after this experience. I don't want anything to mask the real withdrawal status. We have to trust our brain. It knows what to do with this. 

Woke up this morning with hugely uncomfortable leg twitches.  This is a new one.  Never had them in the morning before.  Anyone else have leg twitches upon waking?

Absolutely! A lot. Gone for a while. Back again now.

Yes, Page. Mine are at their worst in the morning. I think they are calming down a bit but I don't want to talk too soon!

 

H, you and I are on the same page.

 

Love Buddy

I have suddenly got much rougher twitchings. Its like small explosions under my skin. Everywhere. It started after I quit first phenergan and then Valerian root. It's like those supplements have been holding back my healing prosess for months and real healing is finally happening. After quitting this supplements I have been going through acute phase over again for the last month. Severe anxiety, insomnia, huge depression and terrible twitchings. Today I can finally feel mentally.more back to myself than before this crazy wave. I don't know whats going on, but something is definitely changing.

Hopefully this is a short term thing.  I hope you get relief soon.  Does it feel like someone is poking at your nerves?