Author Topic: worried about rapid taper  (Read 3479 times)

[Buddie]

Re: worried about rapid taper
« Reply #20 on: January 17, 2023, 12:18:28 am »
I agree with [...] & Winter's sun that it's best to focus on your Xanax taper.
I hope you won't be too hard on yourself about the Oxazepam. It wouldn't have made sense to start tapering the Oxazepam now anyway. 

The vision you had was intense but not out of the ordinary for withdrawal.  There are all sorts of mental and visual phenomena that happen during withdrawal - much of it is a mystery, and it can be disturbing.  As our brain readjusts it can struggle more than usual to make sense of things. 

I hope you find some resolution soon with the support of your therapist and your meeting with the pharmacist.  This quest in itself is a big stressor.  I wish I could fast forward it for you. 

I also want to mention to you that I started on my benzo withdrawal journey at age 65.  Three years later I wrote my Success Story.  I am worlds better now.  I think there are quite a few of us here who have traveled this difficult path in our 60s and older.  I hope you'll take heart that other older individuals have recovered.
Suggestions, opinions and/or advice provided by the author of this post should not be regarded as medical advice; nor should it substitute for professional medical care. Consult your doctor before making any changes to your medication. Please read our Community Policy Documents board for further information.

[Buddie]

Re: worried about rapid taper
« Reply #21 on: January 19, 2023, 04:43:36 am »
Not much changed on the rapid taper when I spoke to the pharmacist. I was expected to go on an SSRI or other antidepressant type drug, and she went on about how there are so many new meds out there to help with my anxiety and withdrawal from the X.
Im in a rough state now. Im back where I was before. Emotionally and physically. My dam health is declining, i can barely eat, sleep or stop crying.
Nothing was truly promising that she told me. She went on telling me it was generally the doctors decision on how he tapers me and withdrawals are pretty much assumed to be not so bad and mainly anxiety related ( according to her).
Ive been crying most of the day, giving up again and now suffering excruciating muscle spasms in my upper back that comes around to the right side of my rib cage across my liver. (I also have NAFLD, diagnosed 2 yrs ago, stage 3) Im noticing that from all the stress my doctor has put me through these past months, has increased the bloating and stomach pain around my liver, so the specialist wants to see me but I said lets just do another fibroscan, as I said the doctors been  stressing me out, fighting me every bloody inch of the way , not allowing me to lead my own taper and give my system time to catch up and calm down. The taper speed is too rapid and even emailing the Dr S's email to the pharmacist did little. Its all in the clinic, so theyre all sticking together. I guess. I tried calling other places , but no one was available as it was late.
Doctors suppose to call tomorrow, after whatever the pharmacist tells him, and I know it will be pretty much useless saying anything to him now. I did mention to this woman pharmacist, that I may as well look for another doc, but she made some remark about me not "aggravating him"? Like whats he doing to me? And he started that one last year, telling me if I wasnt happy with his practice and the treatment, that I was free to look for another doctor, no hard feelings....I think he wants me to bugger off. Its dam difficult to find another doctor around here these days.
I dont know what else to say to him. Hes dug his heels into my backside and now Im sicker than I was a few short weeks ago and so is my husband. I think I cried so hard that I felt like my brain just snapped in half. It hurt to cry that hard. Ive no hope left.None.
Im sorry for not having the strength so many of you have, but Im not looking forward to the next few years or whatever I have left, suffering like this and then die anyway.
Im off to try and sleep, have a good weekend. Again, sorry for such a negative post, you can remove it if needed.
Suggestions, opinions and/or advice provided by the author of this post should not be regarded as medical advice; nor should it substitute for professional medical care. Consult your doctor before making any changes to your medication. Please read our Community Policy Documents board for further information.

[Buddie]

Re: worried about rapid taper
« Reply #22 on: January 19, 2023, 04:56:36 am »
Iím so sorry Moojoo

I was afraid this would happen.

Itís Canada, they donít know much here.

Please call the RAAM clinic again.

They will taper you and not as quickly as your dr.

Have them call the Drs at Womenís College Hospital RAAM for getting them to understand how sensitive some patients are.

They are letting me taper myself.

For example I jus tapered 0.075 mg 10 days ago and Iím dying!

They will take all the burden off your family dr.

They can also call CAMH in Toronto, some drs and pharmacists there know how sensitive some people are too.

Donít give up.

Call more RAAM clinics tomorrow.

Call WCH RAAM clinic. I donít even go in for apts there, everything is by video.

Good luck.

[...]
Suggestions, opinions and/or advice provided by the author of this post should not be regarded as medical advice; nor should it substitute for professional medical care. Consult your doctor before making any changes to your medication. Please read our Community Policy Documents board for further information.

[Buddie]

Re: worried about rapid taper
« Reply #23 on: January 19, 2023, 06:35:22 am »
Not much changed on the rapid taper when I spoke to the pharmacist. I was expected to go on an SSRI or other antidepressant type drug, and she went on about how there are so many new meds out there to help with my anxiety and withdrawal from the X.
Im in a rough state now. Im back where I was before. Emotionally and physically. My dam health is declining, i can barely eat, sleep or stop crying.
Nothing was truly promising that she told me. She went on telling me it was generally the doctors decision on how he tapers me and withdrawals are pretty much assumed to be not so bad and mainly anxiety related ( according to her).
Ive been crying most of the day, giving up again and now suffering excruciating muscle spasms in my upper back that comes around to the right side of my rib cage across my liver. (I also have NAFLD, diagnosed 2 yrs ago, stage 3) Im noticing that from all the stress my doctor has put me through these past months, has increased the bloating and stomach pain around my liver, so the specialist wants to see me but I said lets just do another fibroscan, as I said the doctors been  stressing me out, fighting me every bloody inch of the way , not allowing me to lead my own taper and give my system time to catch up and calm down. The taper speed is too rapid and even emailing the Dr S's email to the pharmacist did little. Its all in the clinic, so theyre all sticking together. I guess. I tried calling other places , but no one was available as it was late.
Doctors suppose to call tomorrow, after whatever the pharmacist tells him, and I know it will be pretty much useless saying anything to him now. I did mention to this woman pharmacist, that I may as well look for another doc, but she made some remark about me not "aggravating him"? Like whats he doing to me? And he started that one last year, telling me if I wasnt happy with his practice and the treatment, that I was free to look for another doctor, no hard feelings....I think he wants me to bugger off. Its dam difficult to find another doctor around here these days.
I dont know what else to say to him. Hes dug his heels into my backside and now Im sicker than I was a few short weeks ago and so is my husband. I think I cried so hard that I felt like my brain just snapped in half. It hurt to cry that hard. Ive no hope left.None.
Im sorry for not having the strength so many of you have, but Im not looking forward to the next few years or whatever I have left, suffering like this and then die anyway.
Im off to try and sleep, have a good weekend. Again, sorry for such a negative post, you can remove it if needed.

Iím so sorry to hear heís caused you to feel so broken and defeated, moojoo, but just try and keep a sliver of positivity that things will eventually fall your way. See what your doctor says when you ask him if he read your email from the Ďbenzo wiseí psychiatrist, who is so much more educated in these medications, on top of being a general practitioner. It would be ignorant for the GP to think he knows more than the psychiatristÖ simply because heís been considerably less educated in medications and their adverse affects. If I were you, I would listen to what the doctors thoughts were after reading the email, if he has, and if thereís no shift in his position on fast tapering, I would just remind him that he once told you that if you were unhappy with his treatment, you could find another doctor without there being any hard feelings. So I would advise him that unfortunately you have no choice but to look for a much more benzo wise doctor who is understanding and compassionate towards the intense suffering caused by the fast tapering of these medications and therefore sees the importance of putting your mental, emotional and physical health before a seriously flawed, Iíll-informed fast taper that further risks your overall health. He canít dump you while you are looking for another doctor without facing considerable repercussions to his licence and reputation should you decide to take legal action against him. Cutting you off from your prescriptions altogether comes with all sorts of potential risks, as mentioned by the psychiatrist. Doing so would only show an extreme level of callousness and unprofessionalism by your doctor. Please keep looking for another doctor, any doctor, as they couldnít possibly be as ignorant and uncaring as the doctor you presently see. I see that [...] has provided you with a potential road map out of this, so I would follow through with that information and see where it leads you. It may be your answer. Keep believing in an eventual positive outcome, moojoo! :hug: :smitten:

[...]: Thank you so much for your advice!  :smitten:
Suggestions, opinions and/or advice provided by the author of this post should not be regarded as medical advice; nor should it substitute for professional medical care. Consult your doctor before making any changes to your medication. Please read our Community Policy Documents board for further information.

[Buddie]

Re: worried about rapid taper
« Reply #24 on: January 20, 2023, 08:24:53 am »
Hello Moojoo
Reaching out as I feel furious about your situation.
I work as a nurse in Australia. As someone already mentioned our oath as health professionals is to ďDo
no harmĒ. I believe you have a right to report this doctor.
In Australia, we have both a health ombudsman &r health professional regulatory body that members of the public can make reports against health professionals. Iím not sure whatís available in Canada.
Tapering is like walking through hell. Iím having an ok day today however have been on occasions bed ridden, not eating, barely able to sleep etc. Iíve never felt more vulnerable.
I tried tapering too quickly & suffered the consequences. Iím currently holding on 6mg Valium. Will remain here until I feel stabilised. My doc has tried to push me to continue however Iíve had to set some firm boundaries around my recovery. Thinking of you. Take care
Suggestions, opinions and/or advice provided by the author of this post should not be regarded as medical advice; nor should it substitute for professional medical care. Consult your doctor before making any changes to your medication. Please read our Community Policy Documents board for further information.

[Buddie]

Re: worried about rapid taper
« Reply #25 on: January 20, 2023, 08:12:34 pm »
Ive gone as far as i can go now. Ive spoken to as many people as possible about all this. My doctor called twice yesterday.
First call of my appointment was a whole lot of confusion and more upset. He tried giving me a new plan of 2 different doses of the X. One was 0.5 mg for so many days and the other was .25 mg of the X for the remaining days...i couldnt even understand what the hell he was talking about. Telling me i was going to be going even slower,  which isnt what i could understand, and then i asked him if he read the email i gave to the pharmacist there at the clinic from Dr Shipko, psychiatrist.  He said he did but i had it handy and read it to him out loud and straight up repeating it, I was at risk of  having a stroke or heart attack or even seizure,  if this taper rate continued the way he was doing it.
He just kept going on about this new plan, still expecting me to get down to 5 and 4 and 3 etc...with in a few months. He was getting pretty nervous or having his own panic attack or something because he had to go. I told him  I'd be out Monday since i couldn't get down to 5 tabs a day or 2.5 mg, so he said he was going to fax this new script,  yesterday. I had no options, so again, said fine. I was totally exhausted by this again.
Then he called back about 15 minutes later and in a frantic tone, tells me, ** i cant, i cant do this taper, im not tapering anymore, its too much, and you're obviously unstable, and im leaving this with the psychiatrist to taper you,......im at risk.....stay on your 6 tabs until you see the psychiatrist.....**** , then im still upset, unstable? and trying to wrap my brain around what he just said, then ask ,is he faxing in anymore scripts, like whatever he said previously? He says he faxed in whatever script, not really being clear, and said you will be taking 6 a day, etc.
So i called the pharmacy  this morning, found out the script he  faxed in was for 6 tabs a day, but only 112 to last for 30 days? And then also telling the pharmacist to make sure i only take 5 tabs most of the days in that month......wtH??? They're 0.5 mg tabs she said, i said hes been screwing me up since last July.  Hes got no idea hes doing at all. He doesn't.  The way he spoke to me , even though im a little messed up myself at the moment, it seriously sounds like hes discombobulated and screwed up himself.



Ill try to get back on here later, just wanted to update you all.

Edit... Made quite a few changes on this post as I  was a little overwhelmed when i wrote it. I posted my rough idea of a plan on the ..plan your taper board.
« Last Edit: January 21, 2023, 11:04:33 am by [Buddie] »
Suggestions, opinions and/or advice provided by the author of this post should not be regarded as medical advice; nor should it substitute for professional medical care. Consult your doctor before making any changes to your medication. Please read our Community Policy Documents board for further information.

[Buddie]

Re: worried about rapid taper
« Reply #26 on: January 21, 2023, 12:13:19 am »
You might be able to negotiate 6 more months or so give it a try. From your dose, a year would be the minimum taper imo.
Suggestions, opinions and/or advice provided by the author of this post should not be regarded as medical advice; nor should it substitute for professional medical care. Consult your doctor before making any changes to your medication. Please read our Community Policy Documents board for further information.

[Buddie]

Re: worried about rapid taper
« Reply #27 on: January 22, 2023, 04:23:45 pm »
a rapid taper is possible, but not recommended

if you do so, there are hospitals and medical facilities which offer these services

best of luck :)
Suggestions, opinions and/or advice provided by the author of this post should not be regarded as medical advice; nor should it substitute for professional medical care. Consult your doctor before making any changes to your medication. Please read our Community Policy Documents board for further information.

[Buddie]

Re: worried about rapid taper
« Reply #28 on: January 22, 2023, 10:31:42 pm »
a rapid taper is possible, but not recommended

if you do so, there are hospitals and medical facilities which offer these services

best of luck :)

That's the last thing I want. Hospitals, facilities like detox are not on my agenda. They're no better. I'm doing this my way and pray to God this pharmacist of mine can actually speak up for me as he said he would.

Thanks for the advice anyway.
Suggestions, opinions and/or advice provided by the author of this post should not be regarded as medical advice; nor should it substitute for professional medical care. Consult your doctor before making any changes to your medication. Please read our Community Policy Documents board for further information.

[Buddie]

Re: worried about rapid taper
« Reply #29 on: January 22, 2023, 10:39:02 pm »
You might be able to negotiate 6 more months or so give it a try. From your dose, a year would be the minimum taper imo.

Thanks [...], according to the pharmacist, the doctor did fax over a script for a 3 MTH supply but messed the calculations..so the pharmacist is fixing that part and I've come up with another taper plan to give my pharmacist to help communicate what I want to do, it's just a simple straightforward monthly reduction of 5 ,%. Instead of the doctors reduction of 30 tabs per month...I'm not feeling my best yet. Today brought on some uncomfortable dizzy spells, probably from all the stress,and trying to make sense of all this. I'm struggling to stabilize..
Suggestions, opinions and/or advice provided by the author of this post should not be regarded as medical advice; nor should it substitute for professional medical care. Consult your doctor before making any changes to your medication. Please read our Community Policy Documents board for further information.