Author Topic: Let's Talk Benzo Belly! - GIVE ME YOUR BEST IDEAS  (Read 1787 times)

[Buddie]

Let's Talk Benzo Belly! - GIVE ME YOUR BEST IDEAS
« on: December 06, 2022, 08:01:35 pm »
Hey awesome community of people trying to help each other out  ;D. So I'm on my second taper (you can read my blog below, but long story short I successfully tapered off of benzos after 2 years, and then fell off the wagon recently due to some SSRI mismanagement on my part), and I'm dealing with the dreaded Benzo Belly symptoms again. So I'm asking everybody, what did you do for Benzo Belly? Did you take probiotics? Which ones? How much? Diet modifications? Ehat worked what didn't? Did anyone ever get anything to work??? I'd love for people to chime in here. My 3 big symptoms both now and during my previous taper were and are:

1) Gas and Bloating
2) Nausea which always accompanies the gas and bloating
3) Stomach pain... again from the gas and bloating

Yes I've modified my diet greatly. No sugar, no dairy, no gluten... blah blah blah.
Currently taking these probiotics spaced throughout the day:

120 billion of these (2 pills) - Physicians Choice Probiotic 60 - https://www.amazon.com/dp/B079H53D2B
25 billion of these (1 pill) - NOW Probiotic 10 (cheap) - https://www.amazon.com/NOW-Probiotic-10-Billion-100-Capsules/dp/B00L1GHMN0
5 billion of these (1 pill) - Flora Revive (soil based with Saccharomyces boulardii) - https://www.amazon.com/Probiotic-Probiotic-Complete-Health-Carolyn/dp/B088HF8BXT

Ginger, Peppermint, and Fennel supplements kind of help... I dunno... none of em really get rid of the bloating. Peppermint tea does help with cramping sometimes. Whose got ideas that have worked??? I'll take em all! Thanks for all you do benzo buddies community, I know I couldn't do this without this group.
Suggestions, opinions and/or advice provided by the author of this post should not be regarded as medical advice; nor should it substitute for professional medical care. Consult your doctor before making any changes to your medication. Please read our Community Policy Documents board for further information.

[Buddie]

Re: Let's Talk Benzo Belly! - GIVE ME YOUR BEST IDEAS
« Reply #1 on: December 06, 2022, 10:17:53 pm »
Heating pad most day and night helps me some. Not a miracle cure but does help nausea and pain for me. I use a drop of digize essential oil diluted with fractions coconut oil and rub that on my tummy some nights and thatís helped reflex a lot. Maybe space it out so not using every night.

Otherwise doing what youíre doing /have done 👍.

Hope things improve for you soon!!!
Suggestions, opinions and/or advice provided by the author of this post should not be regarded as medical advice; nor should it substitute for professional medical care. Consult your doctor before making any changes to your medication. Please read our Community Policy Documents board for further information.

[Buddie]

Re: Let's Talk Benzo Belly! - GIVE ME YOUR BEST IDEAS
« Reply #2 on: December 06, 2022, 11:26:07 pm »
I had to have an enema after a week without bowel movements.  But then have been using restoralax religiously. Water is amazing as well as green tea. 
Suggestions, opinions and/or advice provided by the author of this post should not be regarded as medical advice; nor should it substitute for professional medical care. Consult your doctor before making any changes to your medication. Please read our Community Policy Documents board for further information.

[Buddie]

Re: Let's Talk Benzo Belly! - GIVE ME YOUR BEST IDEAS
« Reply #3 on: December 07, 2022, 03:45:01 am »
For me a cool gel pac on the abdomen, so might want to experiment between that and a heating pad.
Suggestions, opinions and/or advice provided by the author of this post should not be regarded as medical advice; nor should it substitute for professional medical care. Consult your doctor before making any changes to your medication. Please read our Community Policy Documents board for further information.

[Buddie]

Re: Let's Talk Benzo Belly! - GIVE ME YOUR BEST IDEAS
« Reply #4 on: December 07, 2022, 04:50:41 am »
Hey awesome community of people trying to help each other out  ;D. So I'm on my second taper (you can read my blog below, but long story short I successfully tapered off of benzos after 2 years, and then fell off the wagon recently due to some SSRI mismanagement on my part), and I'm dealing with the dreaded Benzo Belly symptoms again. So I'm asking everybody, what did you do for Benzo Belly? Did you take probiotics? Which ones? How much? Diet modifications? Ehat worked what didn't? Did anyone ever get anything to work??? I'd love for people to chime in here. My 3 big symptoms both now and during my previous taper were and are:

1) Gas and Bloating
2) Nausea which always accompanies the gas and bloating
3) Stomach pain... again from the gas and bloating

Yes I've modified my diet greatly. No sugar, no dairy, no gluten... blah blah blah.
Currently taking these probiotics spaced throughout the day:

120 billion of these (2 pills) - Physicians Choice Probiotic 60 - https://www.amazon.com/dp/B079H53D2B
25 billion of these (1 pill) - NOW Probiotic 10 (cheap) - https://www.amazon.com/NOW-Probiotic-10-Billion-100-Capsules/dp/B00L1GHMN0
5 billion of these (1 pill) - Flora Revive (soil based with Saccharomyces boulardii) - https://www.amazon.com/Probiotic-Probiotic-Complete-Health-Carolyn/dp/B088HF8BXT

Ginger, Peppermint, and Fennel supplements kind of help... I dunno... none of em really get rid of the bloating. Peppermint tea does help with cramping sometimes. Whose got ideas that have worked??? I'll take em all! Thanks for all you do benzo buddies community, I know I couldn't do this without this group.

Hi [...]

As histamine is often an issue in benzodiazepine withdrawal and recovery, I would be very careful with the probiotics you choose. Most pharmacy shelf probiotics contain multiple strains, and itís very difficult to find one that doesnít contain histamine producing strains. I have SIBO, and have struggled with pre-existing histamine intolerance, so I just take a single strain - Lactobacillus rhamnosus GG 10Billion cfu. Do a search for non-histamine producing probiotic strains.

Also, foods which are most problematic when it comes to gas and bloating are onion, garlic, and things like cabbage, broccoli, cauliflower.

I stick to potato, sweet potato, pumpkin, carrots, green beans, organic spelt wholegrain sourdough bread, rolled oats (fermented in a teaspoon of Greek yogurt over 8 hrs or more then rinsed), blueberries (which are histamine reducing) and a little dragonfruit.

It may also help you to do a search and print out a chart of foods listing low to high histamine.

You have mast cells throughout your entire body, and when weíre going through benzodiazepine withdrawal and recovery, especially recovery, mast cells often become destabilised and are easily triggered, releasing histamine. These mast cells are also throughout your gut, so the histamine related gas and bloating isnít just as a result of foods, as the body creates its own histamine which is released when mast cells are destabilised and easily triggered. As you continue to recover, your mast cells should stabilise again and resolve any histamine sensitivity, but by watching your high histamine food intake and which probiotics you take, you at least wonít be adding to the overload of histamine in your body.
Suggestions, opinions and/or advice provided by the author of this post should not be regarded as medical advice; nor should it substitute for professional medical care. Consult your doctor before making any changes to your medication. Please read our Community Policy Documents board for further information.

[Buddie]

Re: Let's Talk Benzo Belly! - GIVE ME YOUR BEST IDEAS
« Reply #5 on: December 07, 2022, 07:53:53 pm »
I use a drop of digize essential oil diluted with fractions coconut oil and rub that on my tummy some nights and thatís helped reflex a lot. Maybe space it out so not using every night.

Interesting boges, you actually put the essential oil directly on your stomach... I had never really thought of that. Does it help with gas and bloating or just reflux? Interesting thought.


As histamine is often an issue in benzodiazepine withdrawal and recovery, I would be very careful with the probiotics you choose. Most pharmacy shelf probiotics contain multiple strains, and itís very difficult to find one that doesnít contain histamine producing strains. I have SIBO, and have struggled with pre-existing histamine intolerance, so I just take a single strain - Lactobacillus rhamnosus GG 10Billion cfu. Do a search for non-histamine producing probiotic strains.

Also, foods which are most problematic when it comes to gas and bloating are onion, garlic, and things like cabbage, broccoli, cauliflower.

I stick to potato, sweet potato, pumpkin, carrots, green beans, organic spelt wholegrain sourdough bread, rolled oats (fermented in a teaspoon of Greek yogurt over 8 hrs or more then rinsed), blueberries (which are histamine reducing) and a little dragonfruit.

It may also help you to do a search and print out a chart of foods listing low to high histamine.

You have mast cells throughout your entire body, and when weíre going through benzodiazepine withdrawal and recovery, especially recovery, mast cells often become destabilised and are easily triggered, releasing histamine. These mast cells are also throughout your gut, so the histamine related gas and bloating isnít just as a result of foods, as the body creates its own histamine which is released when mast cells are destabilised and easily triggered. As you continue to recover, your mast cells should stabilise again and resolve any histamine sensitivity, but by watching your high histamine food intake and which probiotics you take, you at least wonít be adding to the overload of histamine in your body.

Winter, THIS IS EXACTLEY WHAT I WAS LOOKING FOR. I actually do have bad allergies, and have read about histamine intolerance in the past. I actually eat an avocado every day for lunch, and my benzo belly is usually worst right before dinner in late afternoon (when I also take a probiotic as well)... hmm.... this is sounding really interesting to me. I have ordered https://www.amazon.com/dp/B096SVYM3L in the past from amazon but was still taking my other probiotics with it and didn't see much improvement. I'm wondering if changing the probiotics and trying some more more DAO (as well as a lower histamine diet), might help the benzo belly stuff.

Do you have any links to forum posts on Benzo's and histamines or any further information you might be able to give me on the subject??? I ordered these probiotics in the meantime to try: https://www.amazon.com/gp/product/B07L8MMCZV. Any other thoughts or resources on histamine intolerance you can recommend would be appreciated.

Just curious, what tipped you off that this might be the case in your own situation?

Suggestions, opinions and/or advice provided by the author of this post should not be regarded as medical advice; nor should it substitute for professional medical care. Consult your doctor before making any changes to your medication. Please read our Community Policy Documents board for further information.

[Buddie]

Re: Let's Talk Benzo Belly! - GIVE ME YOUR BEST IDEAS
« Reply #6 on: December 07, 2022, 08:20:21 pm »
I use a drop of digize essential oil diluted with fractions coconut oil and rub that on my tummy some nights and thatís helped reflex a lot. Maybe space it out so not using every night.

Interesting boges, you actually put the essential oil directly on your stomach... I had never really thought of that. Does it help with gas and bloating or just reflux? Interesting thought.


As histamine is often an issue in benzodiazepine withdrawal and recovery, I would be very careful with the probiotics you choose. Most pharmacy shelf probiotics contain multiple strains, and itís very difficult to find one that doesnít contain histamine producing strains. I have SIBO, and have struggled with pre-existing histamine intolerance, so I just take a single strain - Lactobacillus rhamnosus GG 10Billion cfu. Do a search for non-histamine producing probiotic strains.

Also, foods which are most problematic when it comes to gas and bloating are onion, garlic, and things like cabbage, broccoli, cauliflower.

I stick to potato, sweet potato, pumpkin, carrots, green beans, organic spelt wholegrain sourdough bread, rolled oats (fermented in a teaspoon of Greek yogurt over 8 hrs or more then rinsed), blueberries (which are histamine reducing) and a little dragonfruit.

It may also help you to do a search and print out a chart of foods listing low to high histamine.

You have mast cells throughout your entire body, and when weíre going through benzodiazepine withdrawal and recovery, especially recovery, mast cells often become destabilised and are easily triggered, releasing histamine. These mast cells are also throughout your gut, so the histamine related gas and bloating isnít just as a result of foods, as the body creates its own histamine which is released when mast cells are destabilised and easily triggered. As you continue to recover, your mast cells should stabilise again and resolve any histamine sensitivity, but by watching your high histamine food intake and which probiotics you take, you at least wonít be adding to the overload of histamine in your body.

Winter, THIS IS EXACTLEY WHAT I WAS LOOKING FOR. I actually do have bad allergies, and have read about histamine intolerance in the past. I actually eat an avocado every day for lunch, and my benzo belly is usually worst right before dinner in late afternoon (when I also take a probiotic as well)... hmm.... this is sounding really interesting to me. I have ordered https://www.amazon.com/dp/B096SVYM3L in the past from amazon but was still taking my other probiotics with it and didn't see much improvement. I'm wondering if changing the probiotics and trying some more more DAO (as well as a lower histamine diet), might help the benzo belly stuff.

Do you have any links to forum posts on Benzo's and histamines or any further information you might be able to give me on the subject??? I ordered these probiotics in the meantime to try: https://www.amazon.com/gp/product/B07L8MMCZV. Any other thoughts or resources on histamine intolerance you can recommend would be appreciated.

Just curious, what tipped you off that this might be the case in your own situation?

Hi [...]

I get the distinct feeling thereís quite a long post brewing, so Iíll just allow it to distill, and then Iíll reply later tonight (Australian time).
Suggestions, opinions and/or advice provided by the author of this post should not be regarded as medical advice; nor should it substitute for professional medical care. Consult your doctor before making any changes to your medication. Please read our Community Policy Documents board for further information.

[Buddie]

Re: Let's Talk Benzo Belly! - GIVE ME YOUR BEST IDEAS
« Reply #7 on: December 07, 2022, 09:27:18 pm »
 :laugh: I like it. Looking forward to it
Suggestions, opinions and/or advice provided by the author of this post should not be regarded as medical advice; nor should it substitute for professional medical care. Consult your doctor before making any changes to your medication. Please read our Community Policy Documents board for further information.

[Buddie]

Re: Let's Talk Benzo Belly! - GIVE ME YOUR BEST IDEAS
« Reply #8 on: December 09, 2022, 12:56:42 am »
I get the distinct feeling thereís quite a long post brewing, so Iíll just allow it to distill, and then Iíll reply later tonight (Australian time).

just bumping this thread. Winter, I'm literally waiting with bated breath for your thoughts!
Suggestions, opinions and/or advice provided by the author of this post should not be regarded as medical advice; nor should it substitute for professional medical care. Consult your doctor before making any changes to your medication. Please read our Community Policy Documents board for further information.

[Buddie]

Re: Let's Talk Benzo Belly! - GIVE ME YOUR BEST IDEAS
« Reply #9 on: December 09, 2022, 03:50:17 pm »
Hi [...]

Sorry for the delayÖ I got caught out and about without my tablets after last posting and ended up missing two doses. When I destabilise, I get extreme lethargy and fatigue and end up bedridden, unable to lift my head off the pillow.

Iíll just take the pressure off myself and address your questions one at at a time in separate posts, so just know Iíll keep adding as I have more add.

First of all - I was actually going to mention DAO and histamine blockers, but didnít want to overload you with too much. All these supplements also add to expenses which many of us simply donít have the means to meet. I havenít been using DAO or histamine blockers during my taper because I didnít feel they were necessary as the benzodiazepines are a mast cell stabiliser, even when tapering, but I feel thatís only true if you taper slowly and remain reasonably stabile in your taper. Early on when I was suffering through a C/T and then directly switched to Valium they probably wouldíve helped. My intention (if needed) is to add these supplements once I jump, as obviously, there will be no benzodiazepine to stabilise the mast cells and the stress of withdrawal on my CNS may mean they become necessary to ease my overall symptom load.

In regard to the probiotics - just do a google search of histamine producing probiotic strains and write down the ones you want to avoid. This way you can refer to it when reading the various strains included on any probiotic bottle or package.

Thereís also a problem with the way people use probiotics - firstly, not all probiotic strains have been studied properly, and all probiotic strains serve different purposes or have different actions within the body. If you have taken a course or are taking a course of antibiotics for some specific reason, then it makes sense to take a probiotic to fill up the spaces left where the gut bacteria is being killed off. Maybe it is of little consequence which probiotics you take to fill up these spaces whilst on a antibiotic treatment because they are serving just that purpose, avoiding other nasties from taking up that ground, but when you are treating specific symptoms, you want to take a probiotic that targets your specific issues, and these probiotics must have had a certain amount of study done on them to know that they do support in treating a specific issue. So many are unstudied and thrown into bottles to make up the numbers and consumers are unaware that some of these strains are offering no benefit at all.

You can visit Jason Hawrelakís (world leading researcher in probiotics) ĎProbiotic Advisorí, do a quick study of which probiotic strains are study backed and target your specific needs and write down all the information you can as you go through it, keeping in mind that you only get 24hrs free of charge to do your search after which you will then have to pay to join.

If you want to find more on histamine intolerance, thereís an endless supply of information out there on the net, including lists of foods rating from low to high. You wonít have any trouble finding them. But because weíre not just talking about histamine intolerance on its own, but also potentially destabilising mast cells, your best one stop for information on both would probably be the US site MastCell360.

Iíll add more as I think of it.  :thumbsup:



Suggestions, opinions and/or advice provided by the author of this post should not be regarded as medical advice; nor should it substitute for professional medical care. Consult your doctor before making any changes to your medication. Please read our Community Policy Documents board for further information.