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DP/DR Support group


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Joantics - I completely understand where you are coming from.  I was there, too.  What finally helped me was to stop comparing myself to others.  Give yourself a break and accept that some days you are going to feel worse than others.  Maybe just do some stretching exercises.  Just do what you can do.  These symptoms will pass, new ones will pop up, but remember in time they will pass. Be kind to yourself.  :-*

Thank you, Rosie, I guess the comparisons just happen without even thinking much about it, but I'll try to remember that going forward because I know you're right.

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Ajusta, Thanks, I know you're suffering, too, like so many others here on BB. I'm thinking about you and sending you gentle hugs to help you have a restful night. :smitten:
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Hey I just wanted to chime in here and say my DR and DP is mostly gone right now.  I had it pretty bad over the summer, and into the Fall.  It went away and came back in December, but since January it has been pretty much gone now.  It's weird cause I remember thinking these things and these same thoughts just don't bother me as much anymore.

 

I also try to not get panicked about not remembering things- even things I did, or things I bought.  I know my recent memories can feel far away, and I'm trying to just accept that and not get all worked up about it.

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Thanks for posting about your success, GreenCup, because DP/DR are definitely the sxs that makes me and many others think we're completely losing it.
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Thanks for posting about your success, GreenCup, because DP/DR are definitely the sxs that makes me and many others think we're completely losing it.

 

 

Anyone else feel like this condition is starting to give them some symptoms of PTSD? I spend my windows having anxiety about when my next waves will hit.

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I spend my windows having anxiety about when my next waves will hit.

 

I do this unfortunately. Atleast there are windows! :thumbsup: couple months ago I could not say that.

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  • 2 weeks later...

I'm home from my 4th trip to the ER, and it's now Month 6. Every reason for going has been different, but getting medical staff to understand something besides "ANXIETY" has been almost impossible, especially when tests come back normal. Every night this week, I've gone to bed and woken up with more and more confusion because I cannot get a break from the DP/DR. Every time I go to sleep I hope and pray I'm going to wake up and "land" in the correct place and time, but it never happens. I lie in bed, thinking so hard to be here and now, but I can't do it.

 

This is maddening. How much more can anyone be expected to endure?

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I am having this feeling where I look around and suddenly I think I am taller than I just was a minute ago.  I feel like all the things are lower down.  I look at my bed and it looks so close to the floor. Then I think I was actually thinking I was the size of a child a minute ago.  It's so weird. 
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I get a lot of stuff like that. Also I look fatter and thinner bot in te mirror and when I llok down at my body.

 

 

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I’m suffering from constant anxiety but sometimes when anxiety gets even worse I get this strange feeling on and off that it feels uncomfortable to being alive,like the fact that I can move and see is freaking me out

 

Is this dp/dr?

 

It was even worse earlier in withdrawal

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First month I felt like I was just a terrified brain and with eyes stuck on the front staring out at the world. It was very disturbing.

 

My DR is bad today - everyone looks unreal.

 

The feeling that my body is inert / made of plastic gets transferred to the world and othervpeoplevtoo look like they are made of plastic. It's very dusturbing.

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Ajusta, did you see this news yesterday? As a ME/CFS sufferer, you've probably already heard about LDN Therapy, but it's always good to see it in the news. I asked my rheumy to Rx LDN to me last September (Fibromyalgia for years) so I could get off Vicodin. When she refused to even consider it, I went to the "specialist" for help so I could be done with it, and he put me on Suboxone ("you'll be pain-free AND get your life back"--right). :idiot::sick: I'm tapering it right now. I started taking a low dose of CBD Oil yesterday because I'm desperate to get some relief from anxiety, tension, pain, poor sleep... You know...

 

Anyway, at least this is some good news for a change. I'm right here with you. :smitten:

 

https://www.medscape.com/viewarticle/894020

 

 

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Thanks! Sorry to hear you have fibro.

 

I did look in to LDN a few years back it out but it won't be possible in the UK land of the PACE trial...

 

My neuro stuff has become so bad now I don't think I'm going to survive. I really don't think this is withdrawal. I can't get a doctor to listen to me.

 

Anyway in order to stay alive until I get to see the neurologist again I have decided to take the diazepam again. It is quite literally a matter of survival. It at least calms me down enough to cope with not being able to feel my body or stand or sit or walk without my body swaying feeling like it is falling over side to side. I look like I have Huntingtons or something. I feel like I am having constant minor seizures or something. The air feels like constant burning fumes. I think I have  a terrible  burning headache but I can't feel it. The only bodily sensation I can feel are horrendous spinal and leg pain. I need to stay alive long enough for someone to try and find out what is happening.

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Ajusta, you do what you have to for survival and don't ever second-guess it. If I didn't have something to give me some kind of relief right now, whether it really is or not, I don't think I'd be able to wait out this psychological and physical torture, minute by minute, hour by hour, day after day after day.

 

After seeing it on Wikipedia, I'm going to read about the PACE Trial tonight. Thanks for the info. :thumbsup:

 

I hope you continue to post here on BB because I'm sure lots of people like me have gotten to know you a little through your writing and it's always a good feeling to see a familiar "face" online! :mybuddy:

 

Sending you loads of hugs, love, and goodness! :smitten:

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Hi,

 

I will definitely stick around if I'm allowed to because I am going to have to taper down again at some point and will still have problems from teh Benzos.

 

I just hope my GP will agree to prescribe me the 2mg tablets again.

 

I have PM's you about PACE.

 

 

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Hi,

 

I will definitely stick around if I'm allowed to because I am going to have to taper down again at some point and will still have problems from teh Benzos.

 

I just hope my GP will agree to prescribe me the 2mg tablets again.

 

I have PM's you about PACE.

 

:thumbsup:

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Last night I had a horrible moment while I was trying to make food. I thought I was overdosed with Benadryl— it rushed over me while I was preparing something in the kitchen.
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  • 3 weeks later...
I feel like I am constantly having firsts, with little or no memory of doing these things before. Once I *TRY* to remember, I can, but it doesn't just come to me naturally.  Like using the bathroom in this apartment I've lived in for 5 plus years, I felt like today was the *FIRST* time. 
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I’m not sure whether this is rare or not, but I’m stuck in a derealization state.

It’s been 3 long months.

Anyone else “stuck” ?

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