Author Topic: There and back again: multiple drugs, multiple tapers, multiple years to success  (Read 4759 times)

[Buddie]

The founder and moderators are superheroes that have saved a lot of lives, I’m sure. I am also grateful for their presence and benzo buddies as a whole. Thank you for volunteering as well, [...]. I don’t think I have what it takes to do it and that speaks volumes. I’ll take on just about any challenge. Or used to anyway.
Suggestions, opinions and/or advice provided by the author of this post should not be regarded as medical advice; nor should it substitute for professional medical care. Consult your doctor before making any changes to your medication. Please read our Community Policy Documents board for further information.

[Buddie]

Thank you so much for this thoughtful, evocative piece. I’m a writer, but I’ve found benzo withdrawal unrepresentable, maybe because it flies in the face of most assumptions about human experience. Yes, we can suffer without even the comfort of our bodies seeking homeostasis. But somehow you put words to the nuances.

I’m 2.5 years into this process and, though I’ve improved significantly, I do wonder what healed will feel like. You’ve given me a glimpse of the perspective I may have once I finally look back with the certainty that this chapter has closed. Thank you.
Suggestions, opinions and/or advice provided by the author of this post should not be regarded as medical advice; nor should it substitute for professional medical care. Consult your doctor before making any changes to your medication. Please read our Community Policy Documents board for further information.

[Buddie]

[...],
I'm absolutely speechless with tears streaming down my face. This captures the thoughts and feelings of this miserable experience so exquisitely. It comes from a hard fought and hard won fight. I can relate to so much of what you say, I just don't think I could have described it so well, but one day I hope to make an attempt. I had a similar experience except it was in the phase of my life transitioning to menopause. A hormonal shift that I didn't understand. I now know that what I needed was understanding. I needed to understand what was happening to me and I needed the people around me to understand too. But when the doctors insist that you have an "anxiety disorder" and you feel so exhausted and so drugged that you can't even think straight, what are you to do? And only the people that have lived this experience could even come anywhere close to understanding. This same story and so many others has repeated itself, over and over and over again. But you now have a perspective  that very few people in this world will ever have. I'm so happy for you! Thank you for writing this and for sharing it! 
Suggestions, opinions and/or advice provided by the author of this post should not be regarded as medical advice; nor should it substitute for professional medical care. Consult your doctor before making any changes to your medication. Please read our Community Policy Documents board for further information.

[Buddie]

Charlie and dash thank you for sharing your experience with me. I encourage you to try to write a bit as you go. It doesn’t matter if it isn’t what you want it to be, one day what you are experiencing will feel like a blurry half forgotten memory so your notes now are important. I know it’s a cliche but for a long time I kept a gratitude journal. One line for each day. Sometimes it was just “I am grateful to be off for eight months and twelve days” or “I am grateful to have a house”. I also found it helpful to describe what I was feeling because I could look at it and say that doesn’t seem like something I am imagining, or doing to myself.

I do love how the forum looks exactly the same as it did ten years ago. It would be great if one day it was no longer needed, but for now it continues to be a safe haven!
Suggestions, opinions and/or advice provided by the author of this post should not be regarded as medical advice; nor should it substitute for professional medical care. Consult your doctor before making any changes to your medication. Please read our Community Policy Documents board for further information.

[Buddie]

This has been the first success story in a very long time that really got me. What a beautiful story of suffering and healing. The tears came with the poem of David Whyte. How beautiful. May you live your best life ever and thank you from all my heart for sharing your story. I am 3.5 years off the last of many ct and it's still a nightmare. I really needed your words tonight.
Suggestions, opinions and/or advice provided by the author of this post should not be regarded as medical advice; nor should it substitute for professional medical care. Consult your doctor before making any changes to your medication. Please read our Community Policy Documents board for further information.

[Buddie]

Stopped by to read this.  First time posting in years.  Glad to see you are doing well and made it to the other side.
Suggestions, opinions and/or advice provided by the author of this post should not be regarded as medical advice; nor should it substitute for professional medical care. Consult your doctor before making any changes to your medication. Please read our Community Policy Documents board for further information.

[Buddie]

This is the most profound heartwarming story I have read in this forum. There were time my eyes lit up when I connected with your story. My heart too. I can’t thank you enough for the time you took to write this. All of it. The motherhood parts the support you received and the things that did and did not help.

Your work will stand the rest of time to other survivors of this unspeakable experience. I sepeicLly like the part about being anxiety free. If we could help those with the anxiety that come and goes in spurts they would see it is nothing compared to benzo anxiety.

I look forward to hearing your updates and wish you all the best.
Suggestions, opinions and/or advice provided by the author of this post should not be regarded as medical advice; nor should it substitute for professional medical care. Consult your doctor before making any changes to your medication. Please read our Community Policy Documents board for further information.

[Buddie]

[...],

I agree! This story really moves me too. 

Helen :smitten:
Suggestions, opinions and/or advice provided by the author of this post should not be regarded as medical advice; nor should it substitute for professional medical care. Consult your doctor before making any changes to your medication. Please read our Community Policy Documents board for further information.

[Buddie]

[...], this is one of the most astounding things I have ever read in my life.  To a very limited extent it is for me—as you know, from our “Klonopin Klub” days—a “been-there-done-that” kind of thing, but I could never have put it into words the way you’ve done.  I read part of your story aloud to my husband, who sometimes tells me I am a writer, but I saw the expression on his face, and said, “She outwrote me, didn’t she?”  He nodded.  You really did, and you can be sure I’m glad—especially if your account can bring home to others at least some part of the truth behind this experience in all its horrifying permutations (but also potential for victories—let me not omit that part).  I simply could never articulate it as you’ve done—and, believe me, I’ve tried.

I frankly don’t see much of a qualitative difference between coming through an ordeal like yours and surviving a near-lethal storm while scaling Everest.  Your account invokes the mountaineering metaphor, which I sometimes use as well—recognizing, of course, the essential difference: that climbing a mountain is generally a volitional act, undertaken in anticipation of, at the very least, the glorious vistas that will repay the effort and pain involved in a challenging climb.

The summer after my father died, in 2021, my husband and I—having both reached our early sixties—climbed Mt. Washington on what would have been my dad’s hundredth birthday.  Washington was perhaps his favorite place on earth, and, once you’re up there gazing at the splendor laid out below and all around you, it’s easy to see why.  But my own run-in with clonazepam in 2012, mercifully brief though it was, forever changed my perception of just about everything, such that I can never do anything like that again without being vividly aware of how utterly impossible it would be if a benzodiazepine still had its savage hooks in me.  All the way back down from the summit, my knees were screaming in agony—but so what?  That was nothing to lying in bed, during my hell-summer of 2012, shaking uncontrollably, convulsed with terror, my joints in so much clonazepam-induced pain that the mere touch of the bedclothes was too much for them.

Throughout that period of benzo-horror, my father called me up every single night to see how I was.  It must have been terrible for him to feel that he was powerless to do anything beyond this to help me.  I don’t know whether I ever succeeded in conveying to him how much those phone calls meant, that they were a kind of support beyond price, the absolute best thing those who loved me could do: just to say, “Here I am, and I’m not going anywhere.”  He, my husband, my sister, they were my tangible lifeline.  Most of my friends didn’t get it; some actually thought I had gone certifiably crazy, were unable to fathom how a medically prescribed drug could have so transformed me.  Some backed away, and I could see their fear, their confusion; I could actually forgive it, since since even I sometimes thought I had truly lost my mind.  But my father, my husband, my sister—they didn’t back away.  Nor did my intangible lifeline, the one that was Benzobuddies. 

Like you, [...], I was admonished by a prescribing physician to “Pay no attention to the Internet.”  Really?  Seriously, Dr. Disinformation?  The doctors never once had any part in this whole episode that wasn’t at best useless, and at worst destructive.  In retrospect it feels almost like a conspiracy, although I know it’s more complicated than that.  But Benzobuddies was for me part of a multi-pronged rescue operation, for which I was, and remain, inexpressibly grateful. 

Anyhow, [...], you rock.  And may you rock on and on.  By the way, I know your daughter has a challenge to contend with, but I believe her having you as an model for resilience and perseverance will surely help her to confront it successfully. 

Congratulations!  And warm wishes to you and yours for 2023 and beyond -

[...]
Suggestions, opinions and/or advice provided by the author of this post should not be regarded as medical advice; nor should it substitute for professional medical care. Consult your doctor before making any changes to your medication. Please read our Community Policy Documents board for further information.

[Buddie]

[...] and [...]! So good to see you here  :)
It’s like a reunion of the Klonopin Klub. I’m grateful for your support then and now.
[...] and Helen soon you too will be old alumni like us, just coming back to pay it forward.
 :smitten:
[...]
Suggestions, opinions and/or advice provided by the author of this post should not be regarded as medical advice; nor should it substitute for professional medical care. Consult your doctor before making any changes to your medication. Please read our Community Policy Documents board for further information.