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4 months update - some improvement


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I am now 4 months off and some people have asked how I'm doing so here's an update. The first three months symptoms felt the same as during my taper - I didn't notice much of a difference.

 

Around the start of month 4 during the first week I had a pretty bad wave. My sleep went from bad to worse and my symptoms also got worse. There were no new symptoms but the intensity increased. I spent most of the week on the couch. During my waves I am functional and I still keep things afloat but it is a huge struggle for me. I also didn't do any cooking during this week as I just didn't feel up to it. If I absolutely had to, I could've done it, but I just didn't want to do it. After a week the wave lifted and I felt much better. My sleep improved. I would usually get 3 hours sleep a night and since then there are often nights where I get 4-5 hrs of sleep. The intensity of my symptoms are also less. I still have all my symptoms but it's not as bad as it used to be. I will get waves of stronger symptoms but they'll last a couple of hours and then I'll go back to feeling better. Stress is still my worst enemy. I've had one day where I was back on the couch during this past three weeks which I know was stress induced.

 

So overall the past three weeks I can see improvement. I don't know if it will last, but for now I'll take it.

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You sound just like me!! I'm having windows, but the waves can still be quite bad.i function but can be a real struggle and I struggle to cook etc too because of it.im just over three months CT. The last three days have been extremely unpleasant and I can't shake the headache. I'm never symptom free but there are days when I'm 80 percent feeling ok
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Hugs Jelly.  It can only get better from here.  I still have some pretty horrid symptoms at 15 months from my setback but sleep has finally returned for me.  I can sleep 10 hours some days.  Sleep will return for you too!
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thanks for sharing your progress, as well as the ups and downs jellybean.  It gave me a lot of hope, especially about "after the wave"  :smitten:
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  • 1 month later...
Oh how did I miss this x congratulations u little battler ❤️ Before u know it you will be trying to remember how far off u are. Time moves fast x sending u lots of healing vibes xx
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