Pelvic pain, burning VJ/ prostate, urinary type problems support group

[[Buddie]]

I don't know if there is already a group for this or not. A really nice member on here has been helping me with my issues as she has suffered from them as well. I understand there are a few others on here men and women have pelvic pain/ urinary/prostate type problems. I have really bad pelvic pain, burning vagina (sorry guys) and urinary frequency/burning. After a billion tests by many DR's  and negative for all including VD (and  I don't sleep around) all negative. The pain makes me much more depressed and irritated. Anyone find anything that helps?  Home remedies etc..... Thanks in advance...

And guys, don't be shy, please chime in. I've read a few threads about guys complaining about prostate/ pelvic type problems that were really painful. We're all in the same boat.

[[Buddie]]

Hi [...],
    I am sorry you have this collection of symptoms...it is miserable. I had them early on and now only occasionally. They were the presenting symptoms of tolerance after intermittent use of benzos. My doctors treatment was full time xanax and valium. I did not realize what I was getting myself into. Now, 39 month later I have tapered from both x and v and am much much better.

   I sought care from several docs including flying to San Francisco to see a pelvic pain specialist. The most helpful treatment was trigger point release therapy by a pelvic floor women's health physical therapist. There are a few books available you could use to self treat...but perhaps your city has a professional that could help you?

   I am away from my library and do not remember the exact titles. I believe one author is Isa Herrera, a physical therapist. The other Amy Stein(?) also a PT. If you google their names perhaps they will come up. Or you could search for pelvic pain using the search option here....my old posts may come up with these references and more of my story.

   Let me offer you hope....in my case I believe 90% of the pain was from benzo use. You will get better. Feel free to ask me any questions. I am happy to help you.
Warmly,

[...]

[[Buddie]]

Thank you for the info. It does get really distressing. I can only hope it lets up soon after my taper is finished.

[[Buddie]]

My story is similar....
In November I had an IUD placed which caused severe pelvic floor spasms.  Unfortunately, this diagnosis came 3 months later and by that time I was already being treated for depression and major anxiety with klonopin due to the chronic pain.  I did find a physical therapist through a uro gyn specialist and they took me 90% of the way to better easing my muscular discomfort but the mental issues and anxiety has a stronghold on me.  After feeling better, hubby and I became more "intimate" and I ended up with urethral inflammation which has yet to resolve.  I've been tapering off of the K for about a week now because of sleep issues, memory issues and depression enhancement.  Now that you mentioned it, the k also might be causing the residual discomfort which I never realized.

[...] to find a physical therapist or urogyn to give you a referrals and don't let them tell you that you have interstitial cystitis.  It's a bunk diagnosis.  Check with your gyne for yeast infections (sometimes they mask themselves) and I went on an alkaline diet to [...] to ease discomfort and burning in my urethra (I had a very high white blood cell count but no UTI).  It seems to be helping along with a few advil per day.  If you want the elimination diet, let me know.  I'm happy to share.

Chin up.  Know that there are several of us dealing with pelvic pain and discomfort, trying to put one foot in front of the other and work it all out.
Dria

[[Buddie]]

I wish I had something new to tell you OGM.  After years of severe irritation/pelvic pain and numerous courses of antibiotics just because that's what doctors always prescribe my GP put me on Ativan. Overnight, problem gone.

It pretty well stayed gone, with some minor flare ups over six years.

Then I decided to taper off of Ativan.  The problem came back with a vengeance, and even though I'm back on my original Ativan dose there's no joy.

I have tried various supplements and prescription medicines to no avail.  I have heard that physical therapists who specialize on pelvic floor muscles can help, but I have no idea where to find one.

You're not alone, suffering with this condition, but I know that it sure feels like it.

[[Buddie]]

Hi,

I am here to offer hope. I had burning vagina, and burning buttocks that I call "saddle ass". It was alarming. This was fairly early in withdrawal. But it went away (along with crippled hands) after I made significant reduction in dosage, and switched to micro tapering. Remember that we are suffering from an iatrogenic illness, not just trying to withdraw from a drug safely. This and many other horrible symptoms will likely go away. Keep the faith.

[...]

[[Buddie]]

My story is similar....
In November I had an IUD placed which caused severe pelvic floor spasms.  Unfortunately, this diagnosis came 3 months later and by that time I was already being treated for depression and major anxiety with klonopin due to the chronic pain.  I did find a physical therapist through a uro gyn specialist and they took me 90% of the way to better easing my muscular discomfort but the mental issues and anxiety has a stronghold on me.  After feeling better, hubby and I became more "intimate" and I ended up with urethral inflammation which has yet to resolve.  I've been tapering off of the K for about a week now because of sleep issues, memory issues and depression enhancement.  Now that you mentioned it, the k also might be causing the residual discomfort which I never realized.

[...] to find a physical therapist or urogyn to give you a referrals and don't let them tell you that you have interstitial cystitis.  It's a bunk diagnosis.  Check with your gyne for yeast infections (sometimes they mask themselves) and I went on an alkaline diet to [...] to ease discomfort and burning in my urethra (I had a very high white blood cell count but no UTI).  It seems to be helping along with a few advil per day.  If you want the elimination diet, let me know.  I'm happy to share.

Chin up.  Know that there are several of us dealing with pelvic pain and discomfort, trying to put one foot in front of the other and work it all out.
Dria

Wow, thank you for the info. I almost got an IUD a few years ago. I backed out at the last minute. Glad I did now.

[[Buddie]]

I wish I had something new to tell you OGM.  After years of severe irritation/pelvic pain and numerous courses of antibiotics just because that's what doctors always prescribe my GP put me on Ativan. Overnight, problem gone.

It pretty well stayed gone, with some minor flare ups over six years.

Then I decided to taper off of Ativan.  The problem came back with a vengeance, and even though I'm back on my original Ativan dose there's no joy.

I have tried various supplements and prescription medicines to no avail.  I have heard that physical therapists who specialize on pelvic floor muscles can help, but I have no idea where to find one.

You're not alone, suffering with this condition, but I know that it sure feels like it.

Thank you for the reply. The meds really do seem to screw up every part of our body. 

[[Buddie]]

Hi,

I am here to offer hope. I had burning vagina, and burning buttocks that I call "saddle ass". It was alarming. This was fairly early in withdrawal. But it went away (along with crippled hands) after I made significant reduction in dosage, and switched to micro tapering. Remember that we are suffering from an iatrogenic illness, not just trying to withdraw from a drug safely. This and many other horrible symptoms will likely go away. Keep the faith.

[...]

Do you think the Ativan set it off? When I'm uncomfortable down there it just makes it all more miserable.

[[Buddie]]

Hi,

I am here to offer hope. I had burning vagina, and burning buttocks that I call "saddle ass". It was alarming. This was fairly early in withdrawal. But it went away (along with crippled hands) after I made significant reduction in dosage, and switched to micro tapering. Remember that we are suffering from an iatrogenic illness, not just trying to withdraw from a drug safely. This and many other horrible symptoms will likely go away. Keep the faith.

[...]

Do you think the Ativan set it off? When I'm uncomfortable down there it just makes it all more miserable.

If you didn't have the burning until you started tapering, my estimation that it's a withdrawal symptom of Ativan not an independent condition or disease. It is pretty freakin uncomfortable. I put an ice pack on my crotch. It helped.