Author Topic: 12-24 months and up support group  (Read 71595 times)

[Buddie]

Re: 12-24 months and up support group
« Reply #2140 on: August 07, 2022, 11:26:24 am »
Feeling very disheartened after few days feeling bit better. This course Iím doing not helping at all. If I could reinstate would do it tomorrow Not an option as GP wonít give me any. Just feel never going get my life back as it was, just so tired fighting this. Sorry to be a misery I know all of you suffering as well, and many have horrible  physical symptoms, and people do take 4 years to recover, just need glimmer of improvement.

I'm sorry [...], what course are you doing (sorry if I missed any post about it earlier)....?  But PLEASE [...], PLEASE DO NOT reinstate.  That's a lie your brain is telling you because it thinks the drug will make you feel better.  It won't.  You'll lose all the hard work you've put in.  You've worked really really hard.

I notice the heat will flare my symptoms.  The extreme heat is a stress the body has to manage and it isn't used to it.  Please just hang on until the heat breaks.  You are doing so much better than you think and your brain needs more time.
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[Buddie]

Re: 12-24 months and up support group
« Reply #2141 on: August 07, 2022, 11:30:24 am »
Dear Deanna, your words mean so much to me this morning as I awaken to one of those awful headaches I havenít had in a long while!

You are certainly going in the right direction to the forever opened, never to close window, and I am cheering you on.

Blessings and hugs,

GG
« Last Edit: August 08, 2022, 10:08:25 am by [Buddie] »
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[Buddie]

Re: 12-24 months and up support group
« Reply #2142 on: August 07, 2022, 12:31:27 pm »
GG:   Gosh, you have been through a lot.    So glad there is nothing serious going on.   Another UTI?????  This is crazy.   I know this is discouraging, but I am so glad you are able to take an antibiotic.   You have taken Caftin before, right??     Are you still having nausea?   I had a bad bout this morning and it was not fun.   How is your hubby doing?

[...]:  Yes, our weekends are not fun.   I will reach out to you later and we can commiserate!   I have been in HELL the last two days!   Sorry your are struggling.

[...]:  It sounds like you are feeling a bit better.   So happy for you.   The shaky feeling is probably the residual of everything you have been going through.   Everything is oversensitized at this point. 

Isn't it crazy how so many of us who are somewhere between 22-29 months are struggling.   I have got to believe that our bodies are trying to get things straightened out.   

Hope everyone is having a decent day!

[...]
Ok [...] sounds good. Iím looking forward to it. Hope you feel better real fast! ❤️❤️❤️❤️❤️
Suggestions, opinions and/or advice provided by the author of this post should not be regarded as medical advice; nor should it substitute for professional medical care. Consult your doctor before making any changes to your medication. Please read our Community Policy Documents board for further information.

[Buddie]

Re: 12-24 months and up support group
« Reply #2143 on: August 07, 2022, 12:35:34 pm »
Hello [...].  I am sorry to hear that you are still struggling.  You are only a couple of weeks ahead of me so I am waiting for you to pull me through a lovely window after you have gone through!

I am so very tired of feeling sick and in pain in the pelvic region.  And this UTI is being very stubborn, but the culture shows that it will respond to the Ceftin.  I had an awful UTI in January but after a ten day dose of the Ceftin it cleared right up. 

Hopefully I will begin to feel better soonÖ..yesterday I felt good enough to eat out, but I think maybe the tomatoes in my salad flared up the pain.  Plus last night I cooked chicken breast and used a pepper and herb mixture which could have also stirred up the pelvic pain.  But it is the chills and overall feeling of being ill that suggests to me it is more than just food sensitivities.

Please stay in touchÖ.we need each other.

Hugs,

GG
GG hope you feel better soon. UTI can make people feel pretty bad. I hope they hurry up to treat you because I donít want to see it get worse. Honestly I donít think going out is a good idea. Your body has infection so it needs to rest. I hope you donít mind my gentle ď scoldingĒ. I do understand that we sometimes get stir crazy in the house. Sending you warm hugs! 🤗❤️🌹
Suggestions, opinions and/or advice provided by the author of this post should not be regarded as medical advice; nor should it substitute for professional medical care. Consult your doctor before making any changes to your medication. Please read our Community Policy Documents board for further information.

[Buddie]

Re: 12-24 months and up support group
« Reply #2144 on: August 07, 2022, 12:38:23 pm »
[...],

I sure wish I was feeling better this is just a whole new kind of misery. But maybe it is just my system needs to settle down from all that fear and hopefully it won't return. I have other symptoms going and coming as well. It's just insane! I'm so sorry that you're having a bad weekend and doing poorly. It's interesting the point you make about us being from 22 to 29 months and suffering so much. Wouldn't it be wonderful if we all just turn the corner together and put this all behind us once and for all! Hugs.
YEZZZZZ! All turn a corner together would be fabulous! What a great idea, Live. Iím jumping on that train of thought with youÖ.come on window fairy where are you?!
Hope that corner turn is today. Hang in there, Live! Stay strong. 🌹🤗
Suggestions, opinions and/or advice provided by the author of this post should not be regarded as medical advice; nor should it substitute for professional medical care. Consult your doctor before making any changes to your medication. Please read our Community Policy Documents board for further information.

[Buddie]

Re: 12-24 months and up support group
« Reply #2145 on: August 07, 2022, 01:07:53 pm »
[...] I agree with Deanna. You DO NOT want to reinstate! Please donít do that. You just had some better days, right? Then you know you will get more of those. I think your brain has healed quite a bit. I agree that it just needs more time. You know that this goes up and down. And when down, it makes you feel gloomy. But as it was said, those are just symptoms too. Fight it! If you do take until year 4 then so be it. Wouldnít that be worth it? Another year of this compared to healed for good? And who knowÖyou might not be another year. Please donít undo all your hard work and time you put in. You will regret it deeply and it canít be undone. Plus, youíll end up having to taper again and start over. Youíll be kindled with a much harsher WD than now. So donít let it even be an option! Youíre doing better than you realize, sweetie. Just keep taking day by day. We are here to support you. Perhaps you can start a new hobby to help pass your time? Big hugs!

Deanna how happy I am to see someone post that theyíre doing well. Even with minor annoying symptoms that remain, life on the other side is worth it. Iím so very happy for you. Itís been a long journey but youíre now reaping the benefits of staying strong in the course of this. I canít wait for all of us to get there with you. And we will, we are on our way too. And donít be afraid to claim your healing. Itís to be celebrated! Even if you get slammed again ( I pray you donít!) then you have experienced what your new life will be like. The slam will be short lived for sure because your brain ď gets itĒ now. Iím sure you have big plans for doing enjoyable things that youíve missed doing. Iím cheering you on and right behind you, sweetheart! Love you very much! Iím crying happy tears for you. 🌹❤️

May all you Yearlings enjoy your day today! Do something to put a smile in your hearts. My love to you ❤️
Suggestions, opinions and/or advice provided by the author of this post should not be regarded as medical advice; nor should it substitute for professional medical care. Consult your doctor before making any changes to your medication. Please read our Community Policy Documents board for further information.

[Buddie]

Re: 12-24 months and up support group
« Reply #2146 on: August 07, 2022, 03:06:48 pm »
Donít worry my GP wonít give me any more, did get 1 packet off the web, but always a bit suspicious what you are actually buying, so reinstating not an option. Just seem on a real rollercoaster at moment. Is really hot doesnít help. Sitting in the garden got Flightracker on my I pad, we are on flight path to Gatwick & Heathrow you can see where planes are going to from. Just seems like another life when I could even think of going out for day let alone get on a plane. Sorry Iím just bit low today, had awful sinus headache for 2 days didnít sleep much. Distraction doesnít  really help after 3 and half years fighting this, lit harder to distract with mental symptoms. But donít worry reinstating isnít an option. I agree good to see someone doing well. Thereís new series on Netflix called the Sandman, bit Harry Potterish, try escape into that tonight. Thanks for your concerns sorry Iím back to moaning Minnie. Just canít see Iím ever going climb out this black hole, just feel hopeless again x
« Last Edit: August 08, 2022, 08:28:07 am by [Buddie] »
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[Buddie]

Re: 12-24 months and up support group
« Reply #2147 on: August 07, 2022, 03:19:02 pm »
Deanna,
I'm so happy to hear you're doing so well. It's very encouraging for all of us to see someone improving. I look forward to that day.

GG,
I really believe once you get through this UTI that things are going to start really looking up for you. If you can get that cleared up once and for all I'm sure you'll get back to living  your life, in a Crystal Clear Window that never goes away.

[...],
Thank you for your reply. Yes it would be so wonderful for all of us to just turn the corner and start feeling better. Looking for that window fairy and a bright and sparkling window.

[...],
I hope you're having a better day today.

[...],
I'm sorry you're feeling down again. Sure hope this passes for you soon.

Last night the fear returned along with the excited nervous system so something big is going on for me. I just wish I'd start to get a break and feel better. Working hard on trying to stay positive. It does get scary at times when things keep going on and on. Big hugs to all!

[...]
« Last Edit: August 08, 2022, 03:08:08 am by [Buddie] »
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[Buddie]

Re: 12-24 months and up support group
« Reply #2148 on: August 08, 2022, 09:08:03 am »
Hallo lovely buddies. Iím in such a dark place that I donít think going be able to climb out of this one,  donít want drag you down, so Iíll duck out for a while. Think maybe my brain is permanently damaged by this, how can it still be this bad 40 months later just feel Iím slowly drowning with no escape😢
« Last Edit: August 08, 2022, 09:14:29 am by [Buddie] »
Suggestions, opinions and/or advice provided by the author of this post should not be regarded as medical advice; nor should it substitute for professional medical care. Consult your doctor before making any changes to your medication. Please read our Community Policy Documents board for further information.

[Buddie]

Re: 12-24 months and up support group
« Reply #2149 on: August 08, 2022, 10:25:45 am »
Hallo lovely buddies. Iím in such a dark place that I donít think going be able to climb out of this one,  donít want drag you down, so Iíll duck out for a while. Think maybe my brain is permanently damaged by this, how can it still be this bad 40 months later just feel Iím slowly drowning with no escape😢

[...] I am so very sorry you are feeling this low.  I pray for you that the weather cools off soon and the fresh air will breathe a change of mood and mind.  Personally I will not accept that you are permanently damaged.  I firmly believe in the body's ability to heal itself with time and all the right ingredients (diet, exercise, etc)....Please hang on to THAT thought through these dark moments.  I don't know if your sleep has been disrupted by the heat, but do remember that lack of sleep can make us feel way way off and a really good sleep might snap you right back.  Hold on to HOPE [...].  We need you here fighting the good fight  :smitten: 

Suggestions, opinions and/or advice provided by the author of this post should not be regarded as medical advice; nor should it substitute for professional medical care. Consult your doctor before making any changes to your medication. Please read our Community Policy Documents board for further information.